Life With a Difference
A space to celebrate and empower individuals with visible differences.
Through my work as a patient advocate I've had the privilege of meeting so many incredible people with stories that I believe we could all benefit from hearing.
This podcast aims to share those stories, experiences, and journeys of those living with unique appearances. Through candid conversations and inspiring interviews, we aim to challenge stereotypes, foster understanding, increase empathy and kindness and build a community where everyone feels seen and heard.
Join us as we explore topics ranging from self-acceptance and advocacy to the everyday triumphs and challenges faced by our guests. Whether you have a visible difference or simply want to learn more, you’re invited to be part of our conversation and discover the beauty in diversity.
Subscribe now to help create a kinder and more inclusive world.
Life With a Difference
Life with MDP Syndrome: Dylan Lombard
Dylan Lombard on Living with MDP Syndrome, Advocacy and Photography
In this episode of Life With a Difference, I speak with Dylan Lombard, one of only a handful of people in the world diagnosed with MDP syndrome. Dylan opens up about life with a rare condition, his journey to diagnosis, and how photography and social media helped him find purpose and community.
We talk about everything from representation, visibility and advocacy, to living with autism, navigating school, and becoming a powerful voice online. Dylan also shares how a viral Lady Gaga TikTok changed everything and how his passion for photography helps him process isolation and tell his story in a powerful way.
This is a heartfelt, eye-opening conversation you won’t want to miss.
📸 Follow Dylan on social media: https://www.tiktok.com/@be_yourself_dylan
https://www.instagram.com/be_yourself_dylan
This was recorded before I was aware of Tom Staniford's incredible fund raising project, please see the details below:
https://www.justgiving.com/crowdfunding/goodbye-legs
🎧 Subscribe for more conversations with people living with a visible difference
#MDPSyndrome #RareDiseaseAwareness #VisibleDifference #LifeWithADifference #DisabilityAdvocate #DylanLombard #PhotographyAsTherapy #AutismAwareness #ChangingFaces #RepresentationMatters
Social media:
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TikTok https://www.tiktok.com/@lifewithadifference
Linkedin https://www.linkedin.com/in/andrew-collinson/
buymeacoffee.com/lifewithadifference
Please get in touch if I can help in any way
Blog:
https://www.lifewithadifference.info/