Life With a Difference
A space to celebrate and empower individuals with visible differences.
Through my work as a patient advocate I've had the privilege of meeting so many incredible people with stories that I believe we could all benefit from hearing.
This podcast aims to share those stories, experiences, and journeys of those living with unique appearances. Through candid conversations and inspiring interviews, we aim to challenge stereotypes, foster understanding, increase empathy and kindness and build a community where everyone feels seen and heard.
Join us as we explore topics ranging from self-acceptance and advocacy to the everyday triumphs and challenges faced by our guests. Whether you have a visible difference or simply want to learn more, you’re invited to be part of our conversation and discover the beauty in diversity.
Subscribe now to help create a kinder and more inclusive world.
Life With a Difference
"I felt like a burns victim" | Life with TSW: Amy Wilson
In this episode of Life With a Difference, I speak with Amy (@Journey_of_Amy), who lives with severe eczema and is currently going through Topical Steroid Withdrawal (TSW).
Amy shares openly about the physical pain, the mental health struggles, and the stigma of living with a visible difference. From being compared to a burns victim at her worst flare, to teaching children that “different is normal,” Amy’s honesty shines a light on what it’s really like to live with eczema on the extreme side of the spectrum.
We discuss:
• What TSW (Topical Steroid Withdrawal) actually is
• The devastating physical symptoms: swelling, redness, bone-deep itch, flaking & peeling
• The mental toll of eczema and suicidal thoughts that many never talk about
• Her journey through treatments: methotrexate, dupilumab, Rinvoq, cyclosporine & more
• Why self-advocacy at dermatology appointments is essential
• How children and students respond to visible difference in the classroom
• The role of community and connection in coping with chronic illness
• Hope for the future with new treatments like lebrikizumab and nemolizumab
Amy also talks about her work as a teacher, her growing advocacy on Instagram, and why she feels it’s her mission to raise awareness and help others feel less alone.
💬 Have you experienced eczema or TSW? Share your story in the comments — your voice matters.
👉 Subscribe to Life With a Difference for more honest conversations with patients, carers, and advocates.
#Eczema #TopicalSteroidWithdrawal #VisibleDifference #TSW #LifeWithADifference #SkinConditions
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