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VisibilOT
The mission of VisibilOT is to raise awareness, provide education, and advocate for individuals living with invisible disabilities and chronic conditions. Through insightful conversations and expert perspectives, we aim to offer valuable education, support, and strategies for the community and healthcare practitioners alike. We want to empower those of you who are living with these often misunderstood and invisible health struggles, and believe that while many challenges faced may be unseen, there are always ways to find visible, actionable solutions.
VisibilOT
Episode 6: Bridging the Gap in Dysautonomia Healthcare: The Mission of The Dysautonomia Project with Cheryl Faber and Dr. June Bryant
In this episode of The VisibilOT Podcast, we’re diving into the mission and impact of The Dysautonomia Project (TDP), a nonprofit dedicated to bridging the gap between what autonomic specialists know and what patients and community-based providers need to know. Since its grassroots beginnings in 2014, TDP has become the global leader in dysautonomia education, believing that education is the number one treatment.
Joining me are two incredible guests: Cheryl Faber, Director of Education for TDP, and Dr. June Bryant, a doctoral-prepared nurse practitioner and Medical Ambassador for TDP. Cheryl shares her journey in advancing provider education and patient awareness, while June offers insights into the clinical side of dysautonomia care, including her research and work in primary care.
We’ll explore TDP’s groundbreaking initiatives, including their award-winning book The Dysautonomia Project, their free online Autonomic Education library, and The Residents Course, which is revolutionizing medical training in autonomic disorders. Cheryl and June also discuss the importance of collaboration between healthcare professionals, patients, and advocacy groups to improve access to knowledgeable care.
Whether you're a patient, provider, or advocate, this episode will leave you inspired by the work being done to increase awareness and access to dysautonomia education. Tune in to learn how we can all contribute to bridging the gap in care!
Medical Advice Disclaimer
The content of this podcast is for educational purposes only and does not constitute medical or therapeutic advice. Always consult a qualified healthcare provider for personalized medical concerns. Listening to this podcast does not establish a professional relationship with VisibilOT, its hosts, or guests. VisibilOT will not be liable for any direct, indirect, or other damages arising from the use of this podcast.
Resources Mentioned in this Episode:
More Helpful Resources
While we are not affiliated with these organizations, they offer valuable information and support for those with invisible disabilities and chronic conditions:
- Bateman Horne Center – Resources and support for ME/CFS, fibromyalgia, and other complex chronic illnesses.
- Solve M.E.- Solve M.E. takes a holistic approach to research and advocacy, catalyzing efforts through various programs to make ME/CFS, Long Covid, and other “long haul” diseases better understood, diagnosable, and treatable.
- Long Covid Alliance- a network of patient-advocates, scientists, disease experts, and drug developers who have joined together to leverage their collective knowledge and resources to educate policy makers and accelerate research to transform understanding of post-viral illness.
Connect with Us!
Do you have questions, comments, or ideas for future episodes? Are you interested in being a guest on VisibilOT to share your story or expertise? Contact us at podcast@visibilot.com.
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