How We...Special Needs
Welcome to How We... Special Needs, a podcast about navigating life with Special Needs and how it transforms families.
This podcast aims to share how we talk about Special Needs, how we live with Special Needs, and how Special Needs have changed our families.
I’m Minie, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.
Through heartfelt stories, interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.
Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.
I aim to release new episodes weekly or fortnightly, and I’d love to hear your thoughts and feedback along the way.
Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚
How We...Special Needs
Celebrating My Daughter’s Journey with Communication Delays
In this episode of How We…Special Needs, I’m diving into a topic we all know too well: milestones. My daughter Beatrice, who has Kabuki syndrome, has made incredible strides with her communication—she can now say 20 words! But as any parent in our community knows, milestones can be a double-edged sword.
I’ll share a personal moment of Googling how many words a typical 2-year-old speaks (spoiler alert: it wasn’t what I expected) and explore how I’ve learned to reframe comparisons. We'll chat about how milestones can help guide us, but also how they sometimes miss the mark for special needs families.
Let’s rethink what progress looks like, celebrate our kids’ wins on their terms, and discuss why it’s time to develop inclusive benchmarks that reflect diverse journeys.
Join me for a conversation filled with insights, lessons, and a few laughs as I learn to be proud of Beatrice’s incredible progress—no matter the number. 💖
👉 Next Episode Teaser: Storytime: My mum is with me
Did you like this episode? Let me know! 💕
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Check the website www.mykabukigirl.com for merchandise and so much more!👀
Stay safe, ciao! ☺️