How We...Special Needs
Welcome to How We... Special Needs, a podcast about navigating life with Special Needs and how it transforms families.
This podcast aims to share how we talk about Special Needs, how we live with Special Needs, and how Special Needs have changed our families.
I’m Minie, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.
Through heartfelt stories, interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.
Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.
I aim to release new episodes weekly or fortnightly, and I’d love to hear your thoughts and feedback along the way.
Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚
How We...Special Needs
A journey with Menkes Disease | Interview with Ana Romanow
This is my first interview and it couldn't have been with a better guest: Ana Romanow. She's a super mum and super woman who's sharing her son's journey with Menkes Disease.
Although Philip is not here with us anymore, his light and meaningful life keep inspiring all of us! I am so grateful that Ana allowed us to know even just a fragment of her intense experience with motherhood and Menkes.
Are you a special needs parent? Are you interested in being interviewed on How We...Special Needs? Let me know in the comments!
You can find Ana here: https://www.instagram.com/anamariaromanow/
👉 Next Episode Teaser: Special Needs Family Vlog: How we spent the Holidays
Did you like this episode? Let me know! 💕
Don’t forget to subscribe for more stories of love, strength, and Kabuki Syndrome.
Follow me on TikTok, Instagram and YouTube @MyKabukiGirl and share your thoughts!
Check the website www.mykabukigirl.com for merchandise and so much more!👀
Stay safe, ciao! ☺️