How We...Special Needs
Welcome to How We... Special Needs, a podcast about navigating life with Special Needs and how it transforms families.
This podcast aims to share how we talk about Special Needs, how we live with Special Needs, and how Special Needs have changed our families.
I’m Minie, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.
Through heartfelt stories, interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.
Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.
I aim to release new episodes weekly or fortnightly, and I’d love to hear your thoughts and feedback along the way.
Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚
How We...Special Needs
The Lantern Against All Fears | A Special Needs Story that Stirs
I was invited to speak on the theme "expansion" at the event @Storiesthatstir, on the 24th February 2025. I know the lovely organiser, Monica, and I was honoured when she invited me to talk about our story.
This is the story of how becoming a special needs parent didn’t just expand our world—it catapulted us into a multiverse. One filled with fear, medical trauma, endless questions... but above all, with love.
I share our journey through rare disease diagnosis, NICU stays, open-heart surgery, and the terrifying uncertainties that come with Kabuki Syndrome. But I also share what gives me strength: a superhero metaphor that unexpectedly became my lifeline.
💚 If this story resonates, please share this podcast. You never know who might need to hear it today.
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📌 Follow our journey on socials: @mykabukigirl
🎥 Watch the video version on YouTube: https://youtu.be/xtA1BfNg9Cs or
Read the blog post: https://www.mykabukigirl.com/post/the-lantern-against-all-fears
#MyKabukiGirl #SpecialNeedsMama #SpecialNeedsParenting #KabukiSyndromeAwareness #GreenLantern #RareButReal #DisabilityParenting #MedicalMum #HeartWarriorMama #LoveIsMySuperpower #RealParentingMoments #RareDiseaseAwareness #storiesthatstir
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Check the website www.mykabukigirl.com for merchandise and so much more!👀
Stay safe, ciao! ☺️