Special Needs Diaries
Welcome to Special Needs Diaries.
Previously called How We... Special Needs, this podcast aims to open conversations around the world of Special Needs and how it transforms people, carers, families and communities.
I’m Minie Minarelli, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.
Through heartfelt stories, sometimes interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.
Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.
I’d love to hear your thoughts and feedback along the way. So feel free to reach out to me on social media at My kabuki Girl, or on the website www.mykabukigirl.com
Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚
Special Needs Diaries
The Lantern Against All Fears | A Special Needs Story that Stirs
Use Left/Right to seek, Home/End to jump to start or end. Hold shift to jump forward or backward.
I was invited to speak on the theme "expansion" at the event @Storiesthatstir, on the 24th February 2025. I know the lovely organiser, Monica, and I was honoured when she invited me to talk about our story.
This is the story of how becoming a special needs parent didn’t just expand our world—it catapulted us into a multiverse. One filled with fear, medical trauma, endless questions... but above all, with love.
I share our journey through rare disease diagnosis, NICU stays, open-heart surgery, and the terrifying uncertainties that come with Kabuki Syndrome. But I also share what gives me strength: a superhero metaphor that unexpectedly became my lifeline.
💚 If this story resonates, please share this podcast. You never know who might need to hear it today.
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📌 Follow our journey on socials: @mykabukigirl
🎥 Watch the video version on YouTube: https://youtu.be/xtA1BfNg9Cs or
Read the blog post: https://www.mykabukigirl.com/post/the-lantern-against-all-fears
#MyKabukiGirl #SpecialNeedsMama #SpecialNeedsParenting #KabukiSyndromeAwareness #GreenLantern #RareButReal #DisabilityParenting #MedicalMum #HeartWarriorMama #LoveIsMySuperpower #RealParentingMoments #RareDiseaseAwareness #storiesthatstir
🎙️ ENJOYED THIS EPISODE?
If this episode resonated with you, please subscribe and leave a review on Apple Podcasts or Spotify — it helps other families find us when they need it most. 🙏 Share it with a fellow mum, carer, or anyone who might feel less alone after listening. 💚
🎧 LISTEN TO SPECIAL NEEDS DIARIES
▶️ Apple Podcasts: https://podcasts.apple.com/au/podcast/special-needs-diaries/id1782035233
▶️ Spotify: https://open.spotify.com/show/2zp384wlxzIZyYAEEEqZlh
⚠️ CONTENT WARNING
This episode may contain discussions of [medical challenges/grief/diagnosis/mental health]. Please listen with care if these topics are sensitive for you.
📍 CONNECT WITH MINIE
🌐 Website: https://www.mykabukigirl.com
▶️ YouTube: https://www.youtube.com/user/mykabukigirl
📘 Facebook: https://www.facebook.com/profile.php?id=100090362986609
📸 Instagram: https://www.instagram.com/mykabukigirl
🎵 TikTok: https://www.tiktok.com/@mykabukigirl
💼 LinkedIn: ...