How We...Special Needs
Welcome to How We... Special Needs, a podcast about navigating life with Special Needs and how it transforms families.
This podcast aims to share how we talk about Special Needs, how we live with Special Needs, and how Special Needs have changed our families.
I’m Minie, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.
Through heartfelt stories, interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.
Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.
I aim to release new episodes weekly or fortnightly, and I’d love to hear your thoughts and feedback along the way.
Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚
How We...Special Needs
Stop Telling Mums to Take Care of Themselves
“You should take care of yourself!”
“Go get a massage!”
“Don’t forget to rest!”
Have you ever heard these well-meaning but *completely useless* pieces of advice? I did—over and over again—when I was a new mum, deep in the trenches of sleepless nights, hospital visits, and feeding pumps. And let me tell you: they didn’t help. At all.
Hi, I’m Minie, a special needs mum based in Sydney, and today’s video is part rant, part love letter, part public service announcement. For Mother’s Day, I’m giving a voice to the real struggles behind the glossy idea of “self-care” for mums like me. Especially those living in survival mode.
In this brutally honest and slightly funny episode, I’m breaking down:
💚 Why “take care of yourself” often feels like a slap in the face
💚 The stark difference between life on plane A vs plane B
💚 What survival actually looks like for a medical mum
💚 The *real* basics mums should focus on (poop, eat, drink)
💚 Practical tips on how to support the mums in your life *without* sounding dismissive
This Mother’s Day, let’s stop giving advice—and start offering real help.
🎥 Also available as a video: https://youtu.be/lSxHgxCvOAs
📲 Follow for more stories of love, strength, and Kabuki Syndrome: @MyKabukiGirl
#HappyMothersDay #MyKabukiGirl #SpecialNeedsParenting
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Stay safe, ciao! ☺️