Special Needs Diaries
Welcome to Special Needs Diaries.
Previously called How We... Special Needs, this podcast aims to open conversations around the world of Special Needs and how it transforms people, carers, families and communities.
I’m Minie Minarelli, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.
Through heartfelt stories, sometimes interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.
Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.
I’d love to hear your thoughts and feedback along the way. So feel free to reach out to me on social media at My kabuki Girl, or on the website www.mykabukigirl.com
Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚
Special Needs Diaries
Stop Telling Mums to Take Care of Themselves
Use Left/Right to seek, Home/End to jump to start or end. Hold shift to jump forward or backward.
“You should take care of yourself!”
“Go get a massage!”
“Don’t forget to rest!”
Have you ever heard these well-meaning but *completely useless* pieces of advice? I did—over and over again—when I was a new mum, deep in the trenches of sleepless nights, hospital visits, and feeding pumps. And let me tell you: they didn’t help. At all.
Hi, I’m Minie, a special needs mum based in Sydney, and today’s video is part rant, part love letter, part public service announcement. For Mother’s Day, I’m giving a voice to the real struggles behind the glossy idea of “self-care” for mums like me. Especially those living in survival mode.
In this brutally honest and slightly funny episode, I’m breaking down:
💚 Why “take care of yourself” often feels like a slap in the face
💚 The stark difference between life on plane A vs plane B
💚 What survival actually looks like for a medical mum
💚 The *real* basics mums should focus on (poop, eat, drink)
💚 Practical tips on how to support the mums in your life *without* sounding dismissive
This Mother’s Day, let’s stop giving advice—and start offering real help.
🎥 Also available as a video: https://youtu.be/lSxHgxCvOAs
📲 Follow for more stories of love, strength, and Kabuki Syndrome: @MyKabukiGirl
#HappyMothersDay #MyKabukiGirl #SpecialNeedsParenting
Did you like this episode? Let me know! 💕
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Check the website www.mykabukigirl.com for merchandise and so much more!👀
Stay safe, ciao! ☺️