Special Needs Diaries
Welcome to Special Needs Diaries.
Previously called How We... Special Needs, this podcast aims to open conversations around the world of Special Needs and how it transforms people, carers, families and communities.
I’m Minie Minarelli, an Italian special needs mum living in Sydney, sharing my personal diary as I walk alongside my daughter’s journey with Kabuki Syndrome. But this podcast isn’t just about us - it’s about us.
Through heartfelt stories, sometimes interviews with other special needs parents, and honest conversations, we’ll explore the challenges, victories, and emotions that come with raising extraordinary children. Together, we’ll share the tears, the laughter, and the questions we might be too afraid to ask.
Whether you’re part of the special needs community or simply curious about this roller coaster called life, you’re welcome here. This podcast offers a raw, relatable, and unconventional window into the world of disabilities, genetic conditions, and medical families.
I’d love to hear your thoughts and feedback along the way. So feel free to reach out to me on social media at My kabuki Girl, or on the website www.mykabukigirl.com
Let’s celebrate the love, strength, and stories that make this journey unforgettable. 💚
Special Needs Diaries
A journey with Auto inflammatory disease | Interview with Sharon Kensell
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Hi guys, I'm Minie, #Italian special needs mum from #Sydney! 🇮🇹🇦🇺Welcome to our channel, where I share our daughter’s journey with #Kabukisyndrome.
In this podcast episode I interview Sharon, my first guest who will speak about the challenges of having a genetic chronic condition herself, while also advocating for her daughter (and son).
In this interview she touches the very important topic of medical gaslight and how hard it was for her to get a proper diagnosis, despite being dismissed many times by medical professionals who didn't recognise her condition.
Are you a special needs parent? Are you interested in being interviewed on How We...Special Needs? Let me know in the comments! 👇
You can find Sharon and her organisation here:
Website ➡️ https://anzfaid.org
Facebook ➡️ https://www.facebook.com/share/1CNWAmFxSF/?mibextid=wwXIfr
Instagram ➡️ https://www.instagram.com/autoinflammatory_aus_nz?igsh=MW9xdjEzbDZhYTVicA==
Did you like this episode? Let me know! 💕
Don’t forget to subscribe for more stories of love, strength, and Kabuki Syndrome.
Follow me on TikTok, Instagram and YouTube @MyKabukiGirl and share your thoughts!
Check the website www.mykabukigirl.com for merchandise and so much more!👀
Stay safe, ciao! ☺️