
Visionary Caregivers Show with Katherine Autin
Katherine Autin, a 43-year visionary entrepreneur, Parkinson's expert, Patient Advocate Consultant, Caregiver Coach, Author, Educator, Speaker, and Facilitator shares her 21-year journey as a 24/7 spouse caregiver for her husband who was diagnosed with Parkinson's disease in 2004. Her passion is empowering caregivers who care for people living with chronic and life-altering conditions through advocacy, education, and an inspirational, supportive community, encouraging joy and confidence in their caregiving journeys. Enjoy listening at https://visionarycaregivers.com/podcast.
Visionary Caregivers Show with Katherine Autin
Episode 2 Meet Patti Mamalis and Her Inspirational Power Word Burnout Prevention Program
Katherine Autin introduces you to Patti Mamalis from Tempe, Arizona, owner of Power Word Postcards. She is an amazing, creative entrepreneur and caregiver, who is offering the world her new initiative, the Power Word Burnout Prevention program. Katherine is a visionary 43-year entrepreneur and 24/7 caregiver for her husband who was diagnosed with Parkinson's disease more than 20 years ago, She wants to share with you that there is a program that is inspiring, motivating, and supporting for caregivers that Patti created for anyone who is overwhelmed and feeling burnt out with their life situations. You can contact Patti at info@powerwordpostcards.com, 480-200-4880, https://powerwordpostcards.com/power-word-burnout-program to get your Power Word Burnout Prevention program.
Katherine's passion is empowering those living with life-altering conditions and caregivers globally through her Visionary Caregivers programs like her Patient Advocate Training for Caregivers that is a six-month online training beginning February 10th (check it out and register for the early bird discount of $30 at https://visionarycaregivers.com/patient-advocate-training-page) and with her podcast. Episodes offer you:
- Her personal story as she shares stories from her book, An Unexpected Caregiving Detour: Becoming a Parkinson's Expert & Patient Advocate the Hard Way
- Introductions to creative and innovative guests who offer caregivers amazing and inspiring products
- Interviews with caregivers and people living with chronic conditions
- Experts speaking about helpful critical information we all need to know as caregivers
ENJOY LISTENING! Check back for more great episodes.
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Katherine Autin: Well, Hello.
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Katherine Autin: I am so excited to be here. This is my second, podcast the 1st one went up actually, December 24, th 2024. And it's because I am empowering the world of caregivers globally. And I want to bring programs and
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Katherine Autin: products to you that can really make a difference in your life. So welcome to Visionary Caregivers Show with Katherine Autin. I've been a caregiver for my husband, who has Parkinson's over 20 years. We now know he's had symptoms more than 46 years, which is really frightening.
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Katherine Autin: and I have written a book about that which I will talk about in my next episode. But this episode. I want to introduce someone to you who I am so inspired by, and I love what she offers the world. And so I wanted to introduce to you Patty Mamalis, from Tempe, Arizona.
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Katherine Autin: She has a program called Power word postcard. That is the most inspiring idea.
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Katherine Autin: and it really comes to fruition when it it comes to caregivers and others who need that special word now and then that just says, you can do this. Yeah, you got this, and I love that. So I wanted to bring Patty on and and let her tell her story, because honestly, what she has to offer is very unique.
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Katherine Autin: but so needed in this world where many of us are struggling, and many of us are lonely and need that that little push, and that yeah, you can do it kind of thing. So, Patty Mamalis, take it away and thank you so much for joining me.
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Patti Mamalis: Well, thank you, Catherine, for inviting me. I truly feel honored and blessed to be here like Catherine, said, I live in Tempe, Arizona. I am the owner and creator of my business, called power word postcards, and I am
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Patti Mamalis: a caretaker. I have kind of been a caretaker all of my life. I raised my 4 sons as a single mom, and my oldest son has down syndrome, and he still lives with us. He's 33, and he still lives with us. So, as a parent of a special needs child, I had to do a lot of caretaking, especially being a single mom.
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Patti Mamalis: It's pretty incredible that it's continued through my life. I think I'm a lifelong caregiver. I currently have my 92 year old father living in our house, and fortunately I'm really, truly blessed that he's very, very independent. He still drives. He still takes care of his his needs. Personally, you know, like his grooming and things like that.
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Patti Mamalis: But he he lives with us. He's 92, and I help
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Patti Mamalis: caretake his meals and just just be supportive to him. So he's living with us, and then I'm married, and I've been married to my husband, Larry, for 9 years, and right out of the gate after we got married one month less than one month to the day. He had a very, very serious stroke. And
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Patti Mamalis: He had to go to rehab, and he
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Patti Mamalis: Really had to gather his strength back, but I was caretaking for him because he he lost a lot of functionality on his right side. But now he's doing so much better in that area and.
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Katherine Autin: Interrupt for just a second, and just say I had no idea. I you know we've talked many, many times, and I did not know any of that about your son. I did not know about your husband shortly after you'd gotten married, so oh, my gosh! My heart goes out to you. I'm sorry to interrupt, but I just had to say that.
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Patti Mamalis: No.
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Patti Mamalis: you did so. Yeah, I was. I was caretaking Larry after his stroke 3 years ago. Larry had a quadruple heart bypass surgery, so that added to the mix. And then he recently was diagnosed with colon cancer. So all of those pieces have just been part of my life and part of my household, and I am kind of
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Patti Mamalis: proud about being a caretaker in all of those aspects of my life.
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Katherine Autin: Wow!
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Katherine Autin: I have to just tell you my heart is just full of love for you, because
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Katherine Autin: what you're dealing with is so incredibly difficult, and your attitude and and your ability to continue to run your business, to offer hope and empowerment to others, and inspire inspiring others to keep taking those journeys that they dream about. Thank you.
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Patti Mamalis: Yes, and my 3 words sort of go along with your brand words, but my 3 words for my business are to inspire, to motivate and to support. So I create products to inspire, motivate, and to support in all wakes of life. But I'm really, really super proud about this brand new product. It's called the power word Burnout prevention program.
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Patti Mamalis: And it's a digital product. And it comes with private Facebook group and what it is. It's a weekly email that you can print out. I'm providing an acrylic frame for free, so you can
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Patti Mamalis: print it every week and pop it in this frame and have it in your workspace, or wherever that is around you, just.
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Katherine Autin: I have mine.
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Patti Mamalis: Yeah, just to inspire you and to motivate you into. And have you keep going. And my biggest thing for caretakers is that we have to take care of ourselves first, st before we can pour our cup into everybody else. So if I am taking care of myself, which I do
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Patti Mamalis: wholeheartedly, I wake up really, really early in the morning, when the house is very quiet, and I journal and I do angel cards, and I pull tokens out of a bag, and I have a list of gratitude
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Patti Mamalis: and actually 5 min of silence where I just try to ask the question, what do you need today.
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Patti Mamalis: What does Patty need today?
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Patti Mamalis: And I listen.
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Patti Mamalis: I listen to myself. I listen to my body, and once I have my daily I call it my spiritual gym. Once I do that, and I also go for a walk.
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Patti Mamalis: Then I I'm ready to face the day, and it doesn't matter if I have to go to doctor's appointments, or if I have to.
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Patti Mamalis: whatever I have to do to help my family function, then I'm ready to do that, and I'm just so grateful that my creative brain came up with this burnout prevention program because
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Patti Mamalis: all of us are in the same boat, especially long-term caregivers.
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Patti Mamalis: Burnout is so prevalent, and if we are not taking care of ourselves, then how? How can we take care of others so.
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Katherine Autin: And that's really the bottom line, for what both you and I are focusing in on is really to help caretakers, caregivers, and in the vernacular of the Parkinson's community care partners. They call each other care partners.
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Katherine Autin: It's really that. Yes, you're caring for someone else. But you also have to be partners, especially if your spouses. Now there are all kinds of levels of of caregiving, you know, for your children, for your spouse, for your parents.
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Katherine Autin: or even for your neighbors and friends. I mean, many of us help out in whatever way we can right.
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Patti Mamalis: Right, exactly.
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Katherine Autin: But what I'm excited about and why I wanted you to appear on this podcast as a guest. I'm so excited that you're here and thank you for agreeing to do this is because my program visionary caregivers is to empower, educate, and bring creativity back to the caregiver. I want folks to find the idea that you can find yourself joyful
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Katherine Autin: outside of your life as a caregiver with some creativity. So very soon I have a new website that's going up where people will have access, not just to creative events, where we're going to have
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Katherine Autin: singers and writers and journalists and all kinds of people like yourself, who are creative and bringing their ideas to you, because I'm hoping for people to find something that empowers them and makes them feel a little bit less lonely and isolated
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Katherine Autin: and frustrated and burned out as caregivers. So soon we will have a connection to your power word burnout prevention program on my website where they can access that information and purchase your program. I purchased it myself, and I love it so thank you.
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Katherine Autin: And I think that for all of us who are caregivers. It's an every day is a different journey.
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Patti Mamalis: Right.
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Katherine Autin: And I think that a lot of us end up being like, what's next? What, doctor? -Oh! Something came up. We have to go to the hospital
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Katherine Autin: and so part of what I've also done, and I'll talk about it just briefly is I've put together a
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Katherine Autin: because I'm a board certified patient advocate and A. Parkinson's expert.
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Katherine Autin: I've put together a program that I've been trying to do since 2021, and it's 2025.
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Katherine Autin: I wanted to teach people how to be patient advocates for themselves and their loved ones like you said, if you don't do well, your loved ones don't do well, it's really got to be that team effort.
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Katherine Autin: And so I have my patient advocate training for caregivers. That will be online at starting February 10.th
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Katherine Autin: But it's something that's near and dear to my heart, and especially
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Katherine Autin: Patty. I don't know if you've read a lot of the recent Aarp magazines. But there! There is a real
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Katherine Autin: There are fewer and fewer doctors available.
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Katherine Autin: and it's going to be up to us as caregivers to really read between the lines and the few times we meet with the doctors we're going to have to be prepared.
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Katherine Autin: We're going to have to know what questions to ask
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Katherine Autin: and make use of every minute of time that we have with a doctor or professional medical advisor, if you will.
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Katherine Autin: So I think part of what your program does is give people this empowerment, but also these words that you have. I'm going to read a couple of them that I just that I just got amplify beyond opportunities, boundaries, extraordinary, awesome, wild side. Go bold, believe it. Anything's possible.
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Katherine Autin: Build a new system. I am yourself. It's possible. All of these words are words that caregivers need.
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Katherine Autin: They need to incorporate them into their lives.
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Katherine Autin: And it's almost like a habit that develops like you were saying, you get up
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Katherine Autin: and you do these specific things every day to get your mindset. I've got to do this, and this is what I'm going to do today.
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Katherine Autin: and whatever comes next, we don't know.
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Patti Mamalis: That's true. That's true.
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Katherine Autin: And and I love what you put together because with your power postcards which I've been getting, and I love them.
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Katherine Autin: It seems like they arrive at the right time. So I also want to encourage people to look at your power word postcard program.
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Patti Mamalis: It looks like this.
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Katherine Autin: They're awesome. They're so awesome. And when you get them it's almost like somebody's reading your mind. And you're like, yes, I needed that today. Thank you.
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Katherine Autin: The other day I got one because I'm so close to finishing getting my book published.
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Katherine Autin: and I read the card. And I was like, this is what I needed. And then the next day I got my power word, bone, burnout, prevention sheet, and I put it in front of me, and I was like
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Katherine Autin: somebody's reading my mind. They know what I need. So I just love what you're doing. And I'm so happy that we're able to coordinate and
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Katherine Autin: and really collaborate to make a difference in the caregiver world. I can't wait to see where things go from here, and I know maybe you could tell us a little bit more about how your husband's doing, and because I know that's a struggle.
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Patti Mamalis: Yes, so he actually had surgery in November,
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Patti Mamalis: November 18.th He was supposed to be out of the hospital like between 2 and 3 days, but he had a little bit of complications. He was actually in the hospital for 7 days, and then he was out for 2 and then back in for 4 more. But the good news is that they got all of the colon cancer. So that is very, very exciting.
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Patti Mamalis: and we'll take it from here. He's still having some issues with some other problems. But
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Patti Mamalis: he's actually got to ring the bell at the cancer center. And he is cancer free. So that is a big.
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Katherine Autin: Congratulations. Oh, my gosh! Oh, my gosh! That's wonderful news! And you know the thing is that you've been through a lot
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Katherine Autin: together, you and he, and and with your son, and of course raising boys is not always easy.
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Patti Mamalis: Yeah, I have 4 of them.
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Katherine Autin: I have one who just turned 43, and
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Katherine Autin: he's my godsend. I love him so much. Michael is is amazing, and I think we're all very lucky, and we have to remember that every single day. So what you were talking about gratitude?
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Katherine Autin: I think that's hard for us when you're going through these things where you're frustrated, and and all of that, and I don't know if you feel comfortable with me saying this. But for me it's taken me now. I've told you I've been a caregiver now over 20 years.
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Katherine Autin: and it wasn't too bad the 1st couple of years. But after the 5th year was when things really started to change.
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Katherine Autin: And for years I've been thinking, you know, I need to talk to someone I need to talk to a professional.
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Katherine Autin: and I want to encourage people. And I you probably feel the same way is, if you feel you need to talk to somebody to get through a situation, or even just to help you
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Katherine Autin: in your daily or monthly situation that you're in.
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Katherine Autin: I finally, after 3 months, got an appointment and spoke to a therapist the other day a counselor, and
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Katherine Autin: it really helped.
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Katherine Autin: And I'd like to encourage people along with your your burnout prevention program
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Katherine Autin: to to think about. That's another self-care thing is to know you need. It's okay to reach out.
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Katherine Autin: It's okay. If you need help.
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Patti Mamalis: Right.
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Katherine Autin: It's okay to ask friends and family for help.
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Katherine Autin: You shouldn't have to do it alone.
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Patti Mamalis: So I have a really good story about that just recently, throughout, I mean, within the last 6 months
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Patti Mamalis: it has been really stressful around our house and just dealing with all of these things. I went to a really teeny, tiny school in for college. It's called Davis and Elkins college in Elkins, West Virginia, and I actually was a theater major in a music minor, and the costume the staff at Davis and Elkins College. We got to know very, very well, and
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Patti Mamalis: I'm 65 years old. So I went to college in 1987,
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Patti Mamalis: and we're still connected. And my my old professor
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Patti Mamalis: she called me, and she said, Patty, she goes. You can call me anytime that you want.
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Patti Mamalis: and I'm like for real, and she's like yes, and there's a 3 h difference on sometimes between Arizona and West Virginia, and
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Patti Mamalis: so sometimes I would have a panic attack.
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Patti Mamalis: and I'd get so upset and so nervous, and it was 5 o'clock in the morning at my time, and I'm like, who am I going to call? And then I called my friend Ruth, and she would talk me off the ledge, and she would just like, it's okay. It's going to be all right. So to have
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Patti Mamalis: some phone numbers handy in your phone of people that you have prearranged to already talk with. And it doesn't. It can be somebody early on the East Coast that's early morning, or somebody that's on the West Coast that's late at night, or something like that. So you can have.
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Patti Mamalis: I would suggest 3 or 4 people in your phone that when
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Patti Mamalis: the shit hits the fan, excuse my French, but when when it gets crazy out there that you can take a breath, take a step back, pick up the phone and have
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Patti Mamalis: very specific people that you can call as a resource and seeing also professional counseling, I think, is excellent, too. So, taking care of yourself so you can take care of others, is so very, very important.
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Katherine Autin: It's critical. And but it brings me back to your power word burnout prevention program, because, having that come every week reminds it reminds you that you are supported.
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Patti Mamalis: Right.
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Katherine Autin: And that somebody is out there.
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Katherine Autin: you know, egging you on to keep going, no matter what, because there are days when I don't know about you, but there are days when I just want to run away, and I have run away. There's a beautiful park near us.
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Katherine Autin: and I've written about this in our book.
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Katherine Autin: When I got really, really upset years ago, I would get in the car, and I drive to the park, and there's a lake.
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Katherine Autin: and there's a swing that would overlook the lake, and the ducks and the swans and water calms me. Some people it does, and I found that was my happy place. I would go there, and I would swing and watch the ducks and the water, and I would cry till I couldn't cry anymore, and then I would go home.
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Patti Mamalis: Yeah.
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Katherine Autin: Keeping it in is not good for you, and it's certainly not good for anybody else, because you never know when you're gonna explode. And I have exploded. I don't know if that's been an issue with you, but
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Katherine Autin: there are days when at the end of the day, and he asked me to do something I'm like.
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Katherine Autin: can't you do it?
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Katherine Autin: And then I feel bad. And then I'm like, Oh, okay, okay, I'm 1 more time. I'm getting up.
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Katherine Autin: It's hard to be a caregiver.
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Patti Mamalis: Yes, that's why it's so important to take care of yourself.
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Katherine Autin: It is, and many of us get to the point where we just do perfunctory things like, you know. You'll see your doctor once a year because you have to.
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Katherine Autin: But there are things that happen in between, and we have to be alerted to that and pay attention to our minds and our bodies.
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Katherine Autin: because things can snap.
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Patti Mamalis: Yes.
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Katherine Autin: And it's hard to come back from that.
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Katherine Autin: And in the meantime you may have hurt somebody's feelings like, I know there are times I've hurt my husband's feelings, or I've yelled at him when it wasn't him I'm really yelling at. It's the situation.
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Patti Mamalis: Right.
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Katherine Autin: And I feel so guilty. So I want to thank you. For you know, coming on this, podcast. This is only my second time doing a pod.
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Katherine Autin: and thank you for allowing me to interview you.
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Patti Mamalis: Yes, of course.
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Patti Mamalis: No. I just think that the potential of our partnership is just amazing, because caregivers are on like, really high on my list like educators, medical professional people, caregivers.
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Patti Mamalis: actually like customer service people. They get.
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Katherine Autin: Oh, yeah.
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Patti Mamalis: You know, for sure.
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Patti Mamalis: But if I can target and and really streamline this Burnout prevention program to those people that are truly, truly need some inspiration, motivation and support. Then that's
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Patti Mamalis: I'm doing my passion.
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Patti Mamalis: Yeah.
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Katherine Autin: Well, I think we both are in our own, you know ways, and I also want people to look at your power word postcard because that's another thing that is great that you offer.
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Katherine Autin: So I just Oh, thank you so much for coming on today.
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Patti Mamalis: Thank you. Bye.
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Katherine Autin: It's just you inspire me every time we talk. You inspire me and make me feel like there really are wonderful people in this world, and I'm usually a very positive person. But sometimes I really don't feel positive. And your cards and your whole system, this burnout prevention program is wonderful. So thank you for creating it
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Katherine Autin: and for creating power word postcards.
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Katherine Autin: So we'll sign off here. But hopefully we'll have you on another time.
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Katherine Autin: and we can talk about how things are going and kind of bring people back up to date because you are going through a lot, and I just applaud you for everything you're doing. Your attitude is amazing. It really is.
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Patti Mamalis: Okay, well, thank you again. And I'd be happy to come back anytime. So.
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Katherine Autin: Thank you. So I'm signing off on Visionary Caregivers Show with Katherine Autin. This is my second episode. So here we go, and the next one will be talking about the 1st chapter of my book, because that's when my husband got diagnosed. Woohoo! That'll be our next one. So thank you, Patty, thank you so much.
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Patti Mamalis: Thank you.
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Katherine Autin: Here.
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Patti Mamalis: And bye-bye.
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Katherine Autin: Bye.