Tell Her

Living Through War, Living With Dementia

Sharni Knighton Season 1 Episode 19

In this heartfelt and eye-opening episode of the Tell Her podcast, Sharni sits down with her longest-standing client, an extraordinary woman now 87 years young who has truly lived through it all.

Together, they explore her deeply personal journey navigating life alongside her beloved husband Ken, who was diagnosed with dementia. She speaks candidly about the broken care system, nearly losing their home to afford care, and the emotional toll of advocating for someone you love.

But her story doesn’t stop there. She also takes us back to her childhood during World War II, sharing memories of rationing, evacuation, and the strength it took to grow up in such uncertain times.

This conversation is a powerful reflection on resilience, love, and the importance of community. And spoiler alert it ran so long (and was so full of giggles and bloopers!) that we had to split it into two parts. Stay tuned for part two!

00:00 Introduction to the Tell Her Podcast

00:16 Life on the Move: From Hull to Kent

01:25 Settling Down for the Kids

01:43 Meeting Ken: A Love Story

02:08 Navigating Early Marriage and Career

07:58 Facing Dementia: Ken's Diagnosis

16:08 Challenges of Caring for a Loved One

30:50 The Struggles with Social Services

33:53 Exploring Care Home Options

35:02 Financial Struggles and Assessments

36:18 Social Services and Housing Issues

38:36 Systemic Issues and Personal Experiences

49:40 Reflections on War and Rationing

58:27 Advocating for Dementia Care

01:05:37 Challenges of Aging and Socializing

01:08:52 Struggles with Weekends

01:09:25 Coping with Loneliness

01:11:52 Cooking and Socializing

01:16:15 Reflections on Life and Regrets

01:22:11 Challenges with Dementia Care

01:27:57 Advocating for Better Care

01:40:00 Concluding Thoughts


🧠 What is Dementia?

  • Alzheimer’s Association gives a comprehensive definition and explanation: “Dementia is a general term for loss of memory, language, problem-solving and other thinking abilities that are severe enough to interfere with daily life.”
    wired.com+8
    dementiauk.org+8
    england.nhs.uk+8
    alz.org+1
    alz.org+1
  • NHS’ dementia guide explains causes, symptoms, diagnosis, living well, and care pathways.

ABOUT YOUR HOST — SHARNI KNIGHTON

I’m Sharni Knighton, the creator and host of Tell Her. I was inspired to start this podcast after meeting so many extraordinary ordinary women through my hair loss and wig clinic. I wanted to give these women a space to share their stories and help them realize that what they see as “ordinary” is truly extraordinary.

As an educator, I also train stylists in the hair loss industry around the world — and I’m passionate about showing them who these incredible women are. I believe you should only step into this work if you’re ready to truly help and connect with the women you serve.

Connect with my work:

Follow on social:

  • TikTok → @sharniknighton
  • Podcast TikTok → @tell.her.podcast

People on this episode