A Winning Heart
Welcome to A Winning Heart conversations about being awesome with a disability and raising awareness at the same time and absolutely Yes sometimes you have to say F…..CK you to your own mindset and especially your disability!
A Winning Heart
Beyond the Mic: Life With CP and What Comes Next
A winning situation: http://awinningsituation.weebly.com. Check out Win's books at https://www.amazon.com/Win-Kelly-Charles/e/B009VNJEKE/ref=sr_tc_2_0?qid=1538951782&sr=1-2-ent. Cactus Rose By Win: https://www.etsy.com/shop/CactusroseByWin. Check out Danielle’s books at https://www.amazon.com/stores/Danielle-Coulter/author/B00OFIOY3C?ref=ap_rdr&store_ref=ap_rdr&isDramIntegrated=true&shoppingPortalEnabled=true. Win’s Venmo: @Win1195 365 The lipstick coffee shop fundraiser: https://crowdfundr.com/12Gk66?ref=ab_9jzenTUwWNY9jzenTUwWNY. Be Tri For Us: http://www.betriforus.com. Ekso: https://youtu.be/QK-qsas8dqA?si=tCMZxvtP3io7QKQ7. Dan Can Shred: https://www.dancanshred.com. Snowmass Angel: https://authorexperts.club/show-book/B01N7Q5I37. PodMatch: https://podmatch.com. Win Charles has given you an exclusive offer of $50 off of delicious chef-prepared meals: https://www.cookunity.com/referral?utm_campaign=wch3003078&utm_source=referral&utm_content=link&promo=wch3003078.
Welcome to a winning situation, everyone. The reason why I have my camera turned off is because I'm so exhausted that I'm lying down. The good news is that my C diff is 90% healed and I get to go see GI in June, which GI is going to tell me more about C diff? Or they're going to tell me oh, you need a surgery on your colon. A colon lost me. To look at C diff. I'm like, go ahead, go ahead if I need one, go ahead and do one, because I'm at that age anyway. And the good news about my fever is it's 75% healed. It's not 100% healed. I'm a little bit annoyed about that because I thought by now, if you had surgery in February, it would be healed by June, but apparently not.
Speaker 1:Apparently, my femur decides to take forever to heal and I'm looking at other surgeries too. Yes, I said other surgeries Because I am looking at hamstring lengthening as an adult, yikes. And I'm looking at a secret surgery which you guys didn't know that I'm having, and we'll get more into that as soon as I get set up with the surgeon who can do it and why I need to have it done again the third time. And, yeah, because I want to get rid of a bump in my nose and I want to not have a deviated septum. Oh yeah, I gave it away. Yes, I have a deviated septum. Yes, I'm not getting a cute nose again, not getting a nose job people, I'm getting a deviated septum fixed and that's that. As soon as INT can see me, I'm getting it done and I am. That's going to be a recovery in itself, but I am so used to recovery that it's not even funny and this won't be the last time I have my deviated substance.
Speaker 1:But enough of a house update on me, on me. Today we're going to talk about what we like to do outside of podcasting, as I said, outside of podcasting. And, danielle, I can tell you're looking down at the iPad and so I'm going to let you, Missy, take it away on the iPad, because I know you're empty with that iPad and so I'm going to let you hit. She's laughing at me because she knows what I just said and I'm going. You hit the go button on the iPad, so go. My favorite activities to do are singing.
Speaker 2:You hit the go button on the iPad, so go. My favorite activities to do are singing, acting, snowboarding, rock climbing, biking and paddle boarding and, for my surprise, I am finally getting to swim in the ocean for my first time ever in October by going with Max and a traveling group on a Disney cruise. Geez, you are, yeah, in.
Speaker 1:October by going with Max and a traveling group on a Disney cruise. Geez, you are. Yeah, how fun is that Disney cruise? Fun, fun, fun, fun, fun. Well, I and I still do. I just haven't done it in a long time because of my hips and femur and back. I have a horsey that I go. And you've probably seen me ride horses.
Speaker 1:Yes, I like to ride horses, and people know this. And yes, I want to be a crazy woman and ride horses again and I wish I had access to a snowboard. I do like snowboarding Danielle knows I do but I don't have access to a snowboarder. I gave that up for the Beauty of Arizona. But I do have access to possibly going home and when I say home, I mean Aspen home. I possibly going home in January of the next year We'll see what happens.
Speaker 1:And my surprise to you guys unbeknownst to you guys is I am I like to do art. Well, those of you it won't be as much as you guys, but those of you who have followed me for years know that I like to do art and so I'm planning to get back into that as a hobby, not as a business. You guys and I like to inspire people, which is no surprise to you guys, because I like to keep people going, and then Yilda's too. She likes acting. And, by the way, public announcement, danielle and I are taking one week off in July, or maybe maybe the month of July. In July or maybe maybe the month of July we haven't necessarily talked about it, I know. I know I'm 100% positive, it's one week, but maybe the month of July we take off, because Danielle when she said I like acting, danielle is a phenomenal actress. I have seen her act many times and she is one of the stars in the Challenge Houseman Play Camp, which I love it dearly. But the Challenge Aspen Play Camp and she'll admit this to you drives her nuts because she is one of the helpers with the Challenge Aspen Play Camp due to she's been doing it for 20-some-odd years that's how we met originally and so she needs all the good vibes sent to her. She also needs a week off from work because the Challenge Aspen Play Camp drives her absolutely insane and it's chaotic. But she loves chaos, she loves helping with it. But yeah, danielle can't help with the podcast and Danielle can't help me, so I give a week off. I probably she's laughing at me because she's laughing at me because she knows that I was about to say that. And you just need to tell people when the play camp is, so they don't contact you about the podcast, although they can.
Speaker 1:That is the week of July, second week of July. So guess what people? We'll be back in August because Danielle needs a major, major, major mental health break after. I mean, we have participants who are in their 80s to 5 years old. I mean, the youngest participant is 5 years old and she's a rock star and she helps mental kids, but she needs a major mental health break after that and she can't die. Even though I want to do, she can't, she can't. Cp gets a major break. After that, the second week of July, cp gets a major break. She doesn't know that she's taking the whole month of July off the podcast. And then we have another announcement for you guys. We'll get to that announcement later, but Danielle and I have decided something finally to save our sanity. To save our sanity, basically, we'll get to that announcement later, but no podcast in July. You guys get to listen to old episodes Because, yes, yes, july you guys get to listen to all the episodes because, yes, really did you just say thank you.
Speaker 1:You didn't know I was going to do that, but yeah, well, that was my surprise, I didn't want to tell you via text, but because she needs a major mental health break. And they have fun that week, but you need a major, major mental health break after that, because not only do we deal with cerebral palsy, we deal with nonverbal, we deal with autism, we deal with things that CP doesn't want to deal with, but because Danielle's the rock star that she is, um, danny will work too after that, but, um, because Danielle is a rock star that she is, they kind of make her and they made me at one point the co-directors, because we could handle it and we had done it before, but Danny Elmore and me, but all in all, cp needs a chill pill after that. Cp just needs a chill pill after that. Cp just needs a chill pill after that, because CP freaks out. If you let it, if you let the CP freak out, it will freak out. Trust me, it's freaked out on me three times since I've been down there Once after back surgery, once while well C diff. It flicked out many times, and then once after my knee surgery, it had a mini flick out, knee surgery, had him in a freak out, and so CP and Danielle and I don't know the word self-care, danielle and I know the word hit the ground running, but we don't know the word self-care. So that's why I say the month of July podcasts go bye, bye. And then the month of August podcasts back, and then the month of July podcasts go bye-bye, and then the month of August podcasts back, and then the month of September it will just be Danielle and I doing it, because it's to save our sanity. It's to save our sanity. It's to save our sanity.
Speaker 1:And I have a couple projects going on behind the scenes. That one I'm going back to school again to be a pre, to get my degree finally, finally, finally, A totally different degree, although I do have a plan. If that school doesn't accept me and although I'm working on the paperwork, but if they don't accept me, I'll go for my dream career, which is journalism. But somehow I'm power-pull, am in this direction of helping others. So we're trying that first. But I want to help others, but helping others is a lifelong calling. But if that program at Liberty University, the program I'm trying to get into, is disabled ministry, believe it or not, and I'm trying to get more involved with the Episcopal Church, believe it or not, and so I am trying to get into that program. If not, I have a backup plan put in place if that program doesn't accept me, and so we'll see what happens. I have to organize the paperwork, get a couple more transcripts sent over by August and then we'll be good to go.
Speaker 1:But other than that, that's my projects behind the scenes. So, basically, the transcripts Podcast is going to not be put on hold but it's going to take a turn for the better, because chasing people is hard on CP and I don't want CP to flick out on both ends. My CP has flicked out enough and my CP has flicked out enough, and then the CP will flick out if I let it, and stress flicks out CP, so yeah the tone. And when the body gets stressed out, cp goes yes, I don't want to work anymore, so yeah. So that's why I'm giving the other months of July off, because I knew that the Challenge, aspen Play Camp was coming up and I knew that how she's so involved with that and I didn't want CP to freak out. I wanted CP to be nice and calm and I knew that you were going back to work-y, which work-y's fun too.
Speaker 1:But, as I said, I didn't want CP to necessarily freak out. So that's why I'm giving Danny the month of July off. And that was surprise to her. She didn't even know it and I yeah, which she's very, very grateful for, because she's like I could tell by her text message. She's like how in the world am I going to do all this? How in the world? She's like go on and go, but at the time sometimes I don't want her to fall over. When she falls over because of CP, it's like yeah, yeah, and I mean physically and mentally, fall overdue. And it's like, hello, cp needs to take a chill pill, especially after that chaotic week in July.
Speaker 1:And so that's why I but we're going to have fun this summer, I'm going to get completely healed, and then we'll see what ends up happening and I'll keep you guys updated on my health and thank you for love and support on my health and a huge shout out to pod match for sending me all the new listeners and thank you for doing that. And then I'll be back on PodMatch and then it will be all good to go and we'll still have the podcast, but the podcast will be taking a different turn in September because I'll still do the occasional interviews, but it will basically be Danielle and I doing it, but the podcast will basically be Danielle and I doing it, but the podcast will still be available and will still be up and rolling, and let me know. Let me know if you guys have any questions. You can reach out to me, and so we'll be that. That's the summer plans and that's what we like to do outside of podcasting, and yeah, and then I'll. I guess I'm taking another week off when Danny Hill goes on vacation for the first time ever to go swim in the ocean on a Disney cruise, and so that sounds fun. I wish I could go with you, but I can't. I'm stuck here, healing, healing my body.
Speaker 1:Next year, next year, we need to plan something, and so I'm going to let you guys go. Danielle's going to let you guys go, and thank you for following us. Thank you for following us. What a cute, funny thing. Thank you for following us and let us know if you have any questions.
Speaker 1:You can find us floating around on Amazon or floating around on YouTube, or floating around in your earbuds or floating around on smart speakers. Just follow us and support Cerebral Palsyy awareness people and we love you and we're going to let you guys go and enjoy your day and enjoy Memorial Day weekend as we record this, but we try to make it good content, so it's it's feasible to listen to at any time and, yeah, we're going to let you guys go. It's feasible to listen to at any time. We're going to let you guys go and have a great day and we'll see you next week. In the meantime, I'll be recording episodes with Danielle and with other people. Whatever Danielle throws at me, I'll be recording and I'll be recording and I'll be healing at the same time. Thanks to you guys. Bye, you guys.
Speaker 2:Bye.
