A different shaped heart conversations about disability awareness
Welcome to A different shaped heart conversations about being awesome with a disability and raising awareness at the same time and absolutely Yes sometimes you have to say F…..CK you to your own mindset and especially your disability!
A different shaped heart conversations about disability awareness
What If Rehab Wear Made You Feel Beautiful
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Welcome to a different shaped heart. You guys, remember the saying your parents used to ask you, what do you want to be when you grow up? Well, I said a teacher to begin with, tried that trick, didn't like that. And now I'm a full-time podcaster, which I love. And so not only am I getting a communications degree, but I'm also getting, if I had a drum law machine, I would play it right now, but I don't. I'm also getting a degree in fashion design, which is only gonna take me 15 credits to get because um I'm halfway, I was halfway through a fashion journalism degree the in 2019, so I dropped that because life got in the way. So on Sunday it I need to double check, I think it's next Sunday. On Sunday I start uh communications degree out of Grand Ken in university, then in the summer, which is after my hip replacement, not sooner, I will be starting a well finishing a degree in fashion design, which means I will have the capabilities to design clothes for people with disabilities. That's my ultimate plan. And because so many people in life get disabilities or have disabilities, i.e. CP, um disample policy, and they can't do buttons, they can't do zippers, they can't do they can barely do elastic waste. And yes, designers have come out with lines geared towards the disabled, but their abled-bodied. And if I say out during this podcast interview, that's because I'm still dealing with my hip. Good grief. Um it's time to get done fixed. Oh wait, I'm getting a hip replacement in 30 days. Yay, yay, yay, so I can put my foot back on the ground. Jeez. So um, if I say out, that's why, but right now it's cop. But I want to make a difference in people's lives, not only physically, but emotionally and spiritually, and I'm gonna get my master's in the counseling I've decided because over the years so many people have come to me with their issues in private, and I have listened to them. I mean, I've had people bursting to the ears in my arms. Um, I've had people fall in my arms and look at me, Danielle, and look at me and say, please don't leave me, Danielle. And that's what she did two years ago when I came out to Aspen to see the challenge Aspen play music and movement, dance camp play. All of a sudden, Danny Young runs off stage. Lily runs into my arms, falls into my lap, Lily, and the running joke is don't fall. Don't fall, because when Danny Young gets excited, and Danny Young will agree, she runs, and the running joke between her and I is don't fall. Well, I said that, and she falls directly in my lap, and then gives me a huge hug, and then looks at me with the sweetest eyes, like, don't leave me. You already left me too long, don't leave me. So, anyway, so I want to help people physically, emotionally, feel good, mentally, feel good dress-wise, because you don't feel good if you don't dress well. At least I don't. I mean, I don't feel good sitting here in a teacher and and with this intro. So I want in the long run to make people feel good emotionally, physically, spiritually, and I will do my best to get a master's in counseling and have the degree of fashion designing behind me so that I can help people um in the unside design course. It's gonna be a full-time career. Design course is gonna be a full-time career because I love fashion and I love looking good, but counseling is gonna be my part-time job along with podcasting, along with multi-level marketing, which is Line Life Viacone. Look me up on that website, that website, Insist Makeup and Skin Care. But really, there's and I'm not kidding when I say this, if you Google disabled clothing, it's ugly, it's unfashionable, and I want to make a difference in the world. I want to make cute, handicapped, accessible clothes, and for mainly for people close to me, like Andy Elle, who who struggles with buttons and zippers. She does well with Elastic, but there's not that many cute clothes having to do with Lastic. And I can't, I should really get my um degree in shoe design. I mean, quite frankly, if there's a school there that helps you design shoes with my fashion degree, tell me people, because um the struggle's real when it comes to FAO's oxidics and shoes. This struggle bus is real. I can't tell you how many hours my mom spent looking for shoes that fit over my ozonks. Finally, Billy's whose oxonic shoe company, they came out with shoes that fit over oxonics. But in the cute, yes, they are cute, but I want to take it one step further and help the help my tribe out by giving back to my tribe and um possibly doing pairing up with make a wish down here and let um kids do um fashion designing as a wish. Or yeah, because this is something I want to do, and it's only gonna take me 15 credits to finish. And so I have that degree coming up. I have my communications degree, as I said, but it's what do you want to be when you grow up? I want to be a fashion designer, and I have had the skull since I've moved to Amazon. In fact, I got the skull. Um the second day I was laying in bed with my back surgery, and I looked at a friend of mine who's still a friend of mine, and I said, This is after I yeah, I know. This is after pneumonia and a twisted bowel. And I looked at this friend of mine and I said, Susie, I feel hope I feel helpless. And she said, When you're healing, you're supposed to feel what you feel you're healing. You just had a major back operation. And so I have had the skull since April of 2024. Did I pursue it in April 2024? No. Did I pursue it in 2025 when I had my knee surgery? No, I did not because I was focused on my knee. Did I pursue it in 2026? Yes. After my hip replacement, yes, because I can sit and sew and do and hang stuff on mannequins with help, yes. And I'll hire a seamstress to help me. As long as I can design clothes and be able to sit in my wheelchair and yes, my ultimate goal is to design clothes that work with wheelchairs and G tubes and all the tubing that comes with disabilities. It doesn't necessarily come with mine, but it comes with a lot of people's, including a dear friend of ours, which I won't mention. Um, but I just feel like I need to do this. This is a calling that I've had for years, and my don't listen to your parents. Well, listen to your parents, but when they tell you to be a teacher, yeah, and then you move to the worst um teaching state in the country, yeah, right. So I always wanted to be a journalist, and I always secretly wanted to be a fashion designer because I um always loved design plans. I mean, I've always loved Louis Vuitton, big fan of Louis Vuitton, and um big fan of Kristen D. Big fan of Dolce and Gabada, big fan of all that. So I yeah, and I want to get back to that along with living and breathing and getting back in that interest range because I feel like along with podcasting, along with counseling, uh, me getting masted in counseling will help people. So um I just want to help people in the long run because and I my ultimate goal is to donate um cute clothes to the women in homeless shelters and um rehabs who are rehabbing from back injuries and um hips, primarily back injuries, because when you have a back surgery, your life turns completely upside down. And one of the one of the things they say um when you have a back surgery because of skull illnesses, and they put the rods in your back for six weeks, no twisting, no bending, no lifting. Well, the rehab clothes are absolutely ugly, the pants are too big, the tops are ugly, the and I always bring my own stuff to rehab and try to look cute, but at the end of the day, if um if I wear rehab issues, pants, that's okay because everyone else is wearing rehab issues pants too. And but I want to look cute in rehab. And now you gotta remember rehab is PG13, no short, shorts, no tight, skin tight leggings, because older guys are in there and older women are now, and um they deal with a lot of strokes, they deal with a lot of dementia, they deal with a lot of injuries, they deal with knees, they deal with hips, they are starting to deal with CP because of me. But I primarily want to give back to the um community of rehabs up and down the Valley of Phoenix because rehab clothes are ugly and I want to make them cute and no zippers, no buttons, no, I want to make it easy for caregivers, and I have a podcast coming out um to follow me on this journey of getting a fashion degree. And my first um my first closing line will be for well one of the pieces will be for Danielle because um Danielle was the main one that inspired me to do this, believe it or not, because she struggled with buttons and due to CP. And I watched her struggle with snowboard pants and buttons, and I'm like, why can't we make cute snowboard pants with elastic here, honey? And so um that's what I'm gonna be doing in summer, and also getting my communications degree, also getting a hip replacement, also getting uh working on a podcast, working on two million podcasts, so I will be um a little bit busy, but my main focus is my health, aka my hip replacement. Sorry for the coughing attack, um, aka my hip replacement, and my um schooling. That's gonna be my main focus because school and my hip replacement, and yes, I whooped on my professors on January 12th, do not get a hold of me, do not get a hold of me, do not say my assignments late to me until the end of the week, just to take a week off and get used to this new hip. And my philosophy with this new hip is it's going to because it's a man-made hip, it's going to wear out, but it's not going to be worn out because of CP. CP will lovingly take care of it. Yes, CP, you will. You won't eject the hip because of my tone. And CP will lovingly accept it and lovingly take care of it, and Daniel will send me all the good divisions in the world no longer with everyone else. So, CP, you can't eject the hip because of the tone. And so, there's gonna be a lot of self-talk, there's gonna be a lot of in my mind, I can't do this, but I will tell PTs, yes, I'm ready, I'm ready to go. They will get me up and moving um 100% after surgery, just because of lungs, when I had my reconstruction knee surgery, they got me up and hopping to a bedside commode. Um, when I right after surgery, one hour after surgery, and yes, I was still in the anesthesia brain, and yes, in my mind I said, I can't do this. I am still in the anesthesia brain. I want to go back to bed. But of course, it made me hop. Of course, I told the PT, yes. Um, like I always do, I always push myself a little bit harder. But I have a bunch of pre-ops next week. I have um my pulmonologist pre-op. I have um pain manage no infectious disease. In infectious disease is not a pre-op per se. It's just to check on GD C diff, goddamn C diff again, because this docs is insane. He wants to check on C diff again. And with that being said, C diff won't get involved in a replacement. Because I've already called my medical liaison to tell my um doctor team when they give me antibiotics to also give me vancomycin to counteract C. diff because unfortunately any antibiotics you give a person with a history of um C. diff, C diffasent, colade diffusent, or C diff for short. C diff loves antibiotics. So that's fun. So when they give me antibiotics or anyone with a history of C diff. Yeah, that's always fun. Not and I'm being sarcastic because I don't want to be in C diff mode trying to walk up and down the hallways. No, and exercise my hip. And I can't wait to get back to exercise PT like a normal person, shouting like a normal person, going to the toilet like a normal person, all while working on my fashion degree and my um communications degree. So this ought to be fun. Fashion and communications and counseling on top in the master's degree, and then I have to get certified as a counselor, but that's gonna be the easy part. And so and I'll do it from home and help people all across the world. I mean you have to get individual licenses to so I'm gonna license here, I'm gonna license in Califor I'm gonna license here, I'm gonna license um in Colorado, and I may license in um California because there's a disabled population that needs help. There's a disabled population everywhere that needs help, but I will definitely license in Colorado and definitely license in the Amazon, my two home states because the um finding help um down here is like finding help, like a needle and a haystack sometimes. I go into doctors and I say, look, this is what I want. And they go, patient insisted on an hip replacement. And I'm like, no, patient insisted on feeling better. Feeling better and wearing cute shoes. Patient did not insist on a hip replacement. Patient insisted on feeling better and didn't want wiggly limbs and didn't want a ball to be gone completely. So patient insisted on feeling better. Patient did not insist on a hip replacement. I just took that option because it was the best outcome. So my mommy would have fought for the best outcome too. My biological mommy would have fought for the best outcome. So sometimes I have to be mean to Doxis. Ain't that the truth? But I want to um I want to give back to the um rehab society and um the injury rehab society, and I want to give back to women and men, um, especially those who've had spine surgery or spinal cord surgery just to get them cute and feeling good, and then I'll get a degree, a master's degree in counseling, get certified in the air domain and call a lot and do things virtually, and so I'll make adults feel good physically and emotionally and spiritually and mentally too. So that's all in the fun bag. And Monday we have a fun, fun interview. Let's talk about this hip replacement fun upbeat interview about a certain person going on a Disney cruise, and another certain person has to give her the questions. So um I'm going to do that tonight, and she will be speaking on her iPad. Danielle has a voice, but it's a little bit easier to do interviews on the iPad. So Danielle will plug it into her iPad. So you can hear a computer voice, but it's a little bit easier for her to speak. Because she, even though she loves podcasting, Danielle gets a little bit frustrated when people can't understand her. So she likes the iPad better, but she's gonna do it with the iPad, so watch out. The iPad is going to rock and roll, and we're going to have fun with this interview, and yeah, we're going to have fun with this interview, so it will be out on Monday. So Monday should be fun, and Disney is going to be fun. And then I'm working on my other podcast from wheelchair to chic launch, and um it's um my personal journey about becoming a fashion designer, and so um I'll let you guys know when that's out. And this podcast is about to lose a voice, I don't know why, but yeah, maybe it's time for me to go because I'm about to lose my voice. So, Danielle, do you want to leave Valley? Yeah, uh thank you for following us, you guys, and watch out for the Disney Cruz interview, and yeah, watch out for um from Wheelchair 2 Sheek, the podcast coming out, and just watch out for the next big great thing, which will be a hip replacement on my end, and I'm trying to get everything organized for that. And so, as I said, I will be recording content from my um rehab, not the hospital because the Wi-Fi is not good, but maybe if I'm feeling good, maybe we can get I don't know, a podcast out of me the second day of recovery so you can walk with me through a hip replacement, just so you know how to support a loved one who's having a hip replacement. I'll let Danielle know and maybe we can concoct some trouble, like we always do, with me and a hip replacement. Danielle's going to chase me along with everyone else because I won't be wheelchair bound for much longer, but I will still use a wheelchair for long distances, and thank you for following us before I lose my voice completely. Thank you, thank you, thank you guys for following us what Danielle said, and we'll be back with Danielle and a Disney interview on Monday, as I said, and then we'll all talk to you guys leading up to the hip replacement. I'll release the speech about CP that I did for my church when I'm under, so you guys can hear that. And um, that's when the injury first happened, and then I will also release something in the hospital by myself. Um, maybe with Danielle helping me so I can record the phone call, but by myself, so you guys can get a progress update, and then we'll do a full episode on the second day of recovery so you guys can get a full picture of what's going on. But I'm gonna let you guys go, and I'm going to go rest my voice beyond the vocal rest, and thank you for following us. You guys, bye you guys. Bye.