Fostering Futures℠
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Fostering Futures℠
Episode 12 - Inside the IEP Process: Through the Eyes of Parents
Use Left/Right to seek, Home/End to jump to start or end. Hold shift to jump forward or backward.
In this episode, Athena Cordero sits down with Monica Rodriguez and Iván Campos to unpack the realities of navigating the IEP (Individualized Education Program) process as parents and professionals. They share candid stories about early signs, assessments, and the emotional journey from suspicion to diagnosis. The conversation explores what an IEP really is, why collaboration matters, and how families can advocate effectively without feeling overwhelmed. From practical strategies to emotional resilience, this episode offers guidance for parents, educators, and anyone supporting a child with unique learning needs.
Highlights
- Monica shares her 20-year journey raising three children with IEPs, including two daughters on the autism spectrum.
- Iván reflects on his dual perspective as a speech pathologist and parent of a child with dyslexia and dyscalculia.
- The emotional stages parents experience from denial to acceptance, and how they impact advocacy.
- Practical tips for handling IEP meetings: asking for breaks, requesting second sessions, and understanding your rights.
- Why intimidation is common and how to reframe the meeting as a team effort.
- The role of SELPAs in California and resources available for families.
- Strategies for helping children understand their diagnosis and advocate for themselves.
- The importance of planning for the future, not just the present, when setting goals.
- How respect, communication, and cultural awareness shape successful IEP experiences.
Takeaways
- Pause when needed: Parents can request multiple sessions for an IEP meeting, don’t feel pressured to sign immediately.
- You are your child’s best advocate: No one knows your child better than you.
- Plan long-term: Think beyond today’s goals. Consider skills for independence and future success.
- Normalize emotions: Fear, anger, and overwhelm are part of the process; seek support systems.
- Empower your child: Involve them when appropriate so they learn to self-advocate.
- Use available resources: SELPAs, educators, and community networks can provide guidance and technical support.
Key Timestamps
00:00:45 – Athena introduces the topic: IEP process and creating a safe space for real conversations.
00:01:35 – Meet the guests: Monica Rodriguez (parent) and Iván Campos (program specialist and parent).
00:03:45 – What is an IEP? Definition, purpose, and IDEA explained.
00:05:27 – Monica shares her children’s learning challenges and strengths.
00:10:12 – Iván describes his son’s struggles with dyslexia, dyscalculia, and attention regulation.
00:14:46 – How parents first realized something was wrong: early signs and teacher observations.
00:23:22 – Emotional impact of diagnosis: grief cycle, denial, and fear for the future.
00:34:11 – Breaking down the IEP meeting: who attends and what happens.
00:41:32 – Strategies for parents feeling overwhelmed during meetings: pause, ask questions, request part two.
00:46:14 – SELPA explained: what it is, what services it offers, and how families can access support.
Thanks for listening! Follow us on Facebook and Instagram | www.cahelp.org | podcast@cahelp.org
00:00:45 Athena Cordero
Okay, everybody, I'm Athena Cordero, and today I'm actually very excited.
00:00:51 Athena Cordero
We've got two parents with us.
00:00:53 Athena Cordero
talking about the IEP process, which can be a struggle for some folks.
00:00:59 Athena Cordero
So we're hoping that the conversation gives a lot of strategies, tips, resources, anything that can be helpful for anyone who's going through this process.
00:01:08 Athena Cordero
So I just want to make sure that
00:01:11 Athena Cordero
I just start us off by saying that this is going to be a safe space, okay, but maybe not always comfortable.
00:01:19 Athena Cordero
So we're going to respect the privacy of our parents, our guests here today, and the districts and the schools that they work with, but we're also going to give an opportunity for you guys to be real and talk about your real experience with your kiddos and your journey along the way, okay?
00:01:35 Athena Cordero
so I have with me today Monica Rodriguez, the parent that we've worked with.
00:01:39 Athena Cordero
You actually have experience with
00:01:41 Athena Cordero
working with multiple districts.
00:01:44 Athena Cordero
And then we have Ivan Campos.
00:01:45 Athena Cordero
He is a program specialist here at CAHELP.
00:01:48 Athena Cordero
And you also have a child who's on an IEP.
00:01:51 Athena Cordero
Okay, so tell me a little bit about yourselves.
00:01:53 Athena Cordero
Monica, you want to go first?
00:01:55 Athena Cordero
Sure.
00:01:56 Monica
So I've been in the IEP world for about 20 years now.
00:02:05 Monica
I have three children and all three of them had IEPs.
00:02:08 Monica
My oldest
00:02:11 Monica
You know, he had challenges with auditory learning.
00:02:13 Monica
And that's really where my journey started with him.
00:02:16 Monica
And then it trickled into my other two daughters.
00:02:19 Monica
I have two daughters in the autism spectrum.
00:02:23 Athena Cordero
Okay, okay, so 20 years experience with this.
00:02:27 Athena Cordero
Iván, what about you?
00:02:28 Ivan Campos
So I think Monica has me beat.
00:02:30 Athena Cordero
Okay.
00:02:30 Ivan Campos
So I have about 17 years experience.
00:02:34 Ivan Campos
The first seven were more
00:02:37 Ivan Campos
as I was a school interpreter.
00:02:39 Athena Cordero
Okay.
00:02:39 Ivan Campos
And so that's where I would go to IEP meetings and interpret.
00:02:43 Ivan Campos
And then the last 10 years have been really more in terms of my role being a service provider and an IEP, a speech pathologist.
00:02:49 Ivan Campos
And then now having worked here at the SELPA for the last several years.
00:02:53 Ivan Campos
And so I've had kind of both.
00:02:55 Ivan Campos
And then I was a parent for the last six.
00:02:57 Ivan Campos
Yeah.
00:02:58 Ivan Campos
So I've been around IEPs for a while, like yourself.
00:03:02 Ivan Campos
And it's very different depending on which side of the, sorry, choked up a little bit there.
00:03:08 Athena Cordero
That's okay.
00:03:08 Ivan Campos
Depending on which side of the, I guess, table you're sitting on.
00:03:11 Athena Cordero
Yeah.
00:03:12 Ivan Campos
It could look very different from the parent side and also from the.
00:03:15 Ivan Campos
school professional educator side.
00:03:18 Athena Cordero
I appreciate you saying which side of the table you're sitting on because immediately I think it helps listeners understand that you could feel a little intimidated when you're sitting across from someone.
00:03:28 Ivan Campos
But you know, but ideally it shouldn't be a side because it's an IEP team and there's no I in team.
00:03:35 Athena Cordero
Well, and we're going to get to that part actually.
00:03:37 Athena Cordero
Okay, so before we even really jump into it too, I want to make sure for those listening who don't even know what an IEP is,
00:03:45 Athena Cordero
An IEP is an individualized education program or plan.
00:03:49 Athena Cordero
It depends on the team who uses which word.
00:03:52 Athena Cordero
It's a written, legally enforceable plan for a student with a disability.
00:03:56 Athena Cordero
Now, I know that some folks choose not to use the word disability.
00:04:00 Athena Cordero
I'm giving a definition, just a general definition for right now.
00:04:04 Athena Cordero
The terms, you know, it depends on the folks who are having the conversation what they're comfortable with, right?
00:04:09 Athena Cordero
But it is developed under the Individuals with Disabilities Education Act, or IDEA, which interests
00:04:15 Athena Cordero
interestingly enough, just turned 50 this year.
00:04:18 Athena Cordero
And it's to ensure that students with, again, a disability receive free, appropriate public education or FAPE.
00:04:26 Athena Cordero
Did I get that right, Iván?
00:04:27 Athena Cordero
Yeah.
00:04:29 Athena Cordero
How did I do?
00:04:30 Athena Cordero
Yes.
00:04:31 Athena Cordero
Okay, so for parents, it's really to help
00:04:35 Athena Cordero
help us understand the services that our child's going to be receiving in school.
00:04:39 Athena Cordero
It's to help keep us involved and to support some of those goals on that plan at home.
00:04:45 Athena Cordero
And then for teachers, it's more like a roadmap for lesson planning or planning for the classroom, setting expectations, and of course, working with that team, other teachers for making sure that, you know, Athena is having some success with her plan or her program.
00:05:00 Athena Cordero
Okay, to qualify, and I'm not gonna get into all the different ways, that's a podcast episode in itself, but typically to qualify, a child would have a disability that makes learning harder, so they need a little extra help, either special teaching or, you know, something individualized so that they can do their best in school, okay, in a nutshell.
00:05:22 Athena Cordero
And I know that's not doing it any justice when we're talking about qualifying.
00:05:26 Athena Cordero
Okay, so,
00:05:27 Athena Cordero
Now that we kind of understand what the IEP is, we've got a general idea.
00:05:31 Athena Cordero
I want you guys to put that aside for just a second and just tell me about your kids.
00:05:35 Athena Cordero
So Monica, you've got three kids.
00:05:37 Monica
Yes.
00:05:38 Athena Cordero
Describe them to me.
00:05:40 Monica
So they are lovely people.
00:05:43 Monica
They are, you know, they did have a lot of, you know, challenges growing up.
00:05:49 Monica
You know, I didn't immediately notice it.
00:05:53 Monica
It's not like, you know, I saw them one day and I said, oh, wow, you're struggling.
00:05:58 Monica
I, it didn't dawn on me that some of the things happening at home were trickling into the school setting piece.
00:06:06 Monica
It didn't dawn on me.
00:06:09 Monica
Yeah, so they're amazing in their own right.
00:06:13 Monica
Each of them have their own attributes.
00:06:17 Monica
Like my oldest son, you know, he has auditory learning, but
00:06:21 Monica
He's incredibly smart in other facets.
00:06:25 Athena Cordero
Give me an example.
00:06:25 Athena Cordero
Like, what's he just awesome at?
00:06:28 Monica
Yeah, he's like a tinker.
00:06:30 Athena Cordero
Okay.
00:06:30 Monica
He's, he, like, I'll give you an example.
00:06:33 Monica
We had a shed and I was hiring someone to do it because I don't know what's the first thing about a shed, right?
00:06:39 Monica
I don't know how to build one.
00:06:40 Monica
And my husband works quite a bit.
00:06:42 Monica
He's a truck driver.
00:06:43 Monica
So
00:06:44 Monica
We were hiring this guy and the guy was supposedly somebody experienced and he couldn't figure out how to do the platform, to put the **** on top of it, to basically build it.
00:06:54 Monica
And it's the high desert, it's a lot of wind up here.
00:06:57 Monica
Yeah.
00:06:58 Monica
I didn't realize that there was all these different things impacting.
00:07:02 Monica
But my son, every day he'd come out and he'd be like, what is he doing?
00:07:06 Monica
Like, what's going on?
00:07:07 Monica
I'm like, I don't know.
00:07:08 Monica
I heard him to do the ****.
00:07:09 Monica
It's taken him longer than he said.
00:07:10 Athena Cordero
I knew what he was doing.
00:07:11 Athena Cordero
I don't know, right?
00:07:12 Monica
And so, you know, it took him too long.
00:07:14 Monica
So the guy ended up like giving up.
00:07:16 Monica
Oh.
00:07:16 Monica
And it was one of those like, whoa, wait a minute.
00:07:18 Monica
I hate.
00:07:19 Monica
What are we doing now?
00:07:20 Monica
It was weird.
00:07:21 Monica
And so my son, you know, he's like, you know what, let me go outside and check it.
00:07:26 Monica
He went outside.
00:07:27 Monica
This kid has no experience.
00:07:29 Monica
He's in his early 20s, no experience building sheds.
00:07:32 Monica
He's like, do you have the instructions?
00:07:34 Monica
He's like, let me see.
00:07:35 Monica
And I mean, he built the shed.
00:07:39 Monica
He finished it?
00:07:41 Monica
Yeah.
00:07:41 Monica
He finished the shed.
00:07:41 Monica
He put the walls up.
00:07:43 Monica
He was like, just hold this up.
00:07:44 Monica
And he had a, he has tools.
00:07:47 Monica
He went to school to be a mechanic and he was starting that program when he was doing this.
00:07:53 Monica
and he had a bunch of tools and he's like, you know what, mom, I think I could do this.
00:07:56 Monica
I'm like, what?
00:07:58 Monica
Why?
00:07:58 Monica
So he has a lot of that type of, you know, intelligence where he could figure it out without somebody telling him what to do.
00:08:08 Monica
Right.
00:08:08 Monica
Whereas if he's told what to do, it confuses him.
00:08:12 Athena Cordero
And I'm sure it gets frustrating.
00:08:13 Monica
It's like he could do it if he has like instructions, you know, he has the visual, he's more of a visual learner.
00:08:18 Monica
So
00:08:19 Monica
And things like that.
00:08:20 Monica
This is a good example of his potential, right?
00:08:24 Monica
He has been able to accomplish.
00:08:26 Monica
So kind of same when he was a little boy, he could figure things out without, verbal prompts.
00:08:33 Monica
So it's interesting.
00:08:35 Athena Cordero
Are your girls the same way?
00:08:36 Monica
My daughters are very visual, but very structured.
00:08:41 Athena Cordero
Okay.
00:08:42 Monica
You know, one is,
00:08:43 Monica
I would say one's going to go to college, probably live on her own, the other one may not.
00:08:48 Monica
Okay, no.
00:08:48 Monica
She was on her certificate of completion.
00:08:52 Monica
Different levels of autism, but still in the visual realm and very structured.
00:08:57 Athena Cordero
Okay.
00:08:58 Monica
It needs to be for them in a very, you know, we have to do it on a schedule.
00:09:03 Athena Cordero
Okay, gotcha.
00:09:05 Monica
They thrive on schedule.
00:09:06 Athena Cordero
So they need the consistent.
00:09:09 Athena Cordero
Absolutely.
00:09:09 Athena Cordero
Okay, I understand.
00:09:10 Athena Cordero
Gotcha.
00:09:11 Monica
Yeah, so like if you tell them you're gonna go somewhere, you say we're gonna go on Friday at two o'clock, they're ready at 1:30.
00:09:19 Monica
Gotcha.
00:09:20 Monica
They have their shoes on, they're ready to go.
00:09:22 Monica
You know, that's been them their whole lives.
00:09:24 Monica
And academically, very structured in-house beings play out.
00:09:29 Monica
So they need the calendar, they need the
00:09:33 Monica
consistency.
00:09:34 Monica
You know, if Mondays we talk about whether Tuesdays we talk about the day of the week and Thursday we talk about the month we're in, you know, they need that and it needs to be repetitive.
00:09:46 Athena Cordero
And that they find a sense of comfort in that.
00:09:48 Monica
Absolutely.
00:09:48 Athena Cordero
Wow.
00:09:48 Athena Cordero
Okay, awesome.
00:09:49 Athena Cordero
I mean, and kids need structure, period.
00:09:52 Athena Cordero
So I mean, and that's the reason, you know, you want to give them some comfort, but I can see how it turns into a
00:10:00 Athena Cordero
a comfort for other things.
00:10:01 Athena Cordero
if I can't control this, at least I know I have these things to look forward to, right?
00:10:05 Athena Cordero
And I'm sticking to that.
00:10:07 Athena Cordero
Okay, awesome.
00:10:08 Athena Cordero
So thanks for sharing.
00:10:10 Athena Cordero
Iván, what about you?
00:10:11 Athena Cordero
Tell me about your son.
00:10:12 Ivan Campos
So I have three boys and so my first two.
00:10:16 Athena Cordero
Three boys yeah I just realized that okay go.
00:10:18 Ivan Campos
Ahead and this is my youngest yeah I know so he's in high school now and so but with my oldest two school school was really easy for them you know they learned to read write math it was like easy for them right and then for my youngest I saw him struggling you know first grade second grade third grade with reading with math with you know those sight words
00:10:41 Ivan Campos
But then again, it's like, well, my wife's a teacher, you know, I work here.
00:10:45 Ivan Campos
We're thinking, oh, maybe we're not spending enough time with him.
00:10:49 Ivan Campos
But for him, he finally, you know, on his IEP, it was for dyslexia and also struggles with math, dyscalculia.
00:10:58 Athena Cordero
Say it again.
00:10:59 Ivan Campos
Dyscalculia.
00:11:00 Athena Cordero
Okay.
00:11:01 Ivan Campos
You know, struggling with math and also the internal attention deficit.
00:11:05 Ivan Campos
So it's not outward, it's internally, and so for him,
00:11:11 Ivan Campos
You know, one of the things that he struggled with was I would say something to him and then he would say, what?
00:11:19 Ivan Campos
And I would be like, didn't you hear me?
00:11:21 Athena Cordero
Right.
00:11:22 Ivan Campos
He goes, what again?
00:11:23 Ivan Campos
And so through the assessments that they did at the school, we were able to determine that he actually could hear and has heard what we said, but he doesn't always know he heard it because his mind is somewhere else.
00:11:34 Ivan Campos
So then what I started to work with him on is giving them a prompt.
00:11:39 Ivan Campos
And then all of a sudden, boom, he tells me what I just said or remembers what we talked about earlier.
00:11:44 Ivan Campos
All you needed was a little prompt.
00:11:46 Athena Cordero
Gotcha.
00:11:46 Ivan Campos
That is for the attention piece, right?
00:11:48 Ivan Campos
And so if you think about children who maybe can't regulate their attention,
00:11:54 Ivan Campos
they're missing out on classroom instruction.
00:11:55 Ivan Campos
They're missing out on information that's being presented in class.
00:11:59 Ivan Campos
And so they may be sitting there in class and quiet, but not necessarily aware of everything that's happening or engaging.
00:12:06 Ivan Campos
And so they miss crucial instruction.
00:12:08 Ivan Campos
And then literacy kind of builds upon, it's like a...
00:12:13 Ivan Campos
a big skyscraper there's a foundation and it keeps building building building building they.
00:12:17 Athena Cordero
Missed that first part and come in in the middle and then don't get the last part of it it's really.
00:12:22 Ivan Campos
Difficult because in third grade you're not learning to read gotcha you've already learned to read you are working on uh literature is more of knowledge now you're imparting knowledge into yourself.
00:12:33 Athena Cordero
Give me an example Iván of a prompt you would use when you notice that he might have heard but not really
00:12:40 Athena Cordero
took in what you were saying.
00:12:42 Ivan Campos
So I'm going to use Monica's example of you said by 2 o'clock and then they're ready at 1 30 yeah so I had to break it down into steps and say okay so we're going to be going at 2 o'clock somewhere I need you to do this this this and this to be ready okay and then it's 155 and we're still not ready gotcha I'm still not ready I'm not a 130er I'm ready at the end right
00:13:09 Ivan Campos
That's just me, right?
00:13:10 Ivan Campos
I'm ready at the end.
00:13:11 Athena Cordero
He starts when you get there, Iván.
00:13:13 Ivan Campos
Sometimes, sometimes it's going on without me and that's okay.
00:13:17 Ivan Campos
And so then I would say to him, okay, so tell me, what did I ask you to do first?
00:13:22 Ivan Campos
Oh, you said this.
00:13:23 Ivan Campos
And then, oh, and then he names it.
00:13:25 Ivan Campos
And then, and then, so we, when he was younger, we had to work on that.
00:13:29 Athena Cordero
But now, is it,
00:13:31 Athena Cordero
is it is it like natural for you to do this and for him to respond that way?
00:13:36 Ivan Campos
No now now it's it's I think he's learned some skills to be able to maybe advocate for himself gotcha and then he'll say maybe oh dad I was distracted can you tell me again oh that's awesome instead of saying huh what okay which to a teacher can appear to be a student who is not wanting to participate distracted yeah maybe a kid who doesn't want to learn.
00:13:57 Athena Cordero
Okay so we're actually gonna I'm glad you you brought that up because it as a
00:14:01 Athena Cordero
I'm listening to you both.
00:14:04 Athena Cordero
And again, you've got 17 years experience with the IEP process, six as a parent of a child on an IEP.
00:14:10 Athena Cordero
You've got 20 years, Monica, three kids who've been on an IEP, okay?
00:14:14 Athena Cordero
We jumped straight into that, but take me back a little bit to, I hear you so comfortably talking about what their needs are, but what was that, I mean, Monica, you said it, you didn't realize that some of the things you were seeing at home
00:14:29 Athena Cordero
We're also transitioning into the classroom and being present there as well.
00:14:34 Athena Cordero
When did this even start?
00:14:36 Athena Cordero
When did you realize we need to see what's going on?
00:14:39 Athena Cordero
Maybe there's some test or assessment or questions I need to ask.
00:14:44 Athena Cordero
How did that present itself to you?
00:14:46 Monica
Well, I feel really fortunate because that actually started with the educator.
00:14:53 Athena Cordero
Okay.
00:14:54 Monica
So their teacher.
00:14:55 Monica
Gotcha.
00:14:55 Monica
For my son, she asked me a very, very interesting question.
00:15:01 Monica
I had picked him up from school.
00:15:02 Monica
He was in, the first teacher who talked about this, he was in Head Start.
00:15:08 Monica
And he was like, it was like half Head Start, half daycare.
00:15:11 Monica
And she said, well, is there something maybe at home that you give him instruction to do that maybe he doesn't follow through with?
00:15:22 Monica
And I said, you know,
00:15:24 Monica
Actually, there is.
00:15:25 Monica
Every night, I tell him three different things to do before bed.
00:15:29 Monica
And sometimes he does one, sometimes he does two, sometimes he does the last one, sometimes he starts with the first one.
00:15:36 Monica
I don't know why, you know?
00:15:38 Monica
So he's just like, can you give me the instruction?
00:15:40 Monica
Yeah, actually, I'll say, go brush your teeth, put on your PJs,
00:15:46 Monica
and get in bed, get ready to read a book, because I used to always read.
00:15:51 Monica
That's the routine.
00:15:52 Monica
Yeah, it was a routine.
00:15:53 Monica
And I didn't think it was a big deal, to me.
00:15:56 Monica
Sometimes I would change the instruction.
00:15:58 Monica
I'd say, okay, make sure you throw out your trash, because sometimes he had trash in the room, so I'd make him pick up the trash.
00:16:03 Monica
It was just little things.
00:16:04 Monica
He was a little boy, three, four years old.
00:16:07 Monica
So I gave him little things to do, but he definitely struggled with it because he would do one.
00:16:13 Monica
Or sometimes I'd just find him in the shirt
00:16:15 Monica
and not the pants and brushing his teeth.
00:16:19 Monica
So it was always like half done or not done at all.
00:16:24 Monica
So that was something we talked about with the teacher.
00:16:27 Monica
I told her, yeah, it happens.
00:16:29 Monica
And she said, well, it could be that he's struggling with the instruction, auditory.
00:16:34 Monica
You're verbally giving him the prompt.
00:16:36 Monica
Have you tried writing it down so he could see it, put it up on the wall?
00:16:41 Monica
And I said, you know what, that's a great idea, let me try that.
00:16:44 Monica
And then she started to give me
00:16:45 Monica
little pictures for him.
00:16:47 Monica
So I had them like on a Velcro, kind of like they do in school.
00:16:50 Monica
I didn't know that was actually something happening in the class because she had picked up on.
00:16:57 Athena Cordero
So, and I, okay, I have to ask, right?
00:17:00 Athena Cordero
This sounds like whoever this was, whoever this educator was, found a way to come to you with something that she noticed and got you to open up about it at home.
00:17:12 Athena Cordero
I don't know how she did it.
00:17:13 Athena Cordero
I don't know what her tone was.
00:17:14 Athena Cordero
I don't know any of that, but I don't know that every parent or every educator had an experience as easy, you know, as smooth as that, because it's a difficult situation.
00:17:25 Athena Cordero
So, you know, I'm picturing even parents that I've worked with or myself.
00:17:31 Athena Cordero
I think it would be easier for me if someone came to me saying, hey, have you noticed?
00:17:36 Athena Cordero
instead of Athena in class is not following instructions.
00:17:40 Athena Cordero
I'm having trouble.
00:17:41 Athena Cordero
I'm assuming you're probably having trouble too.
00:17:43 Athena Cordero
You need to start, you know, X, Y, and Z.
00:17:45 Athena Cordero
That wouldn't land well, you know, on me.
00:17:48 Athena Cordero
Right.
00:17:48 Athena Cordero
But it sounds like whoever this was.
00:17:51 Athena Cordero
found a way to talk to you about it in a way that was putting your child first and to be helpful at home, which I think would make all the difference, especially in the situation.
00:18:02 Athena Cordero
Is that how you, was it easy or...
00:18:08 Monica
It felt like just a normal conversation.
00:18:11 Monica
And 2 adults talking about this child we're both interested in, right?
00:18:14 Monica
Because her interest as a teacher and mine as a parent, I didn't see it because of how she approached me.
00:18:20 Monica
I think if she would have approached me the way you're talking about, you know, like, hey, something's going on with him.
00:18:25 Monica
Right.
00:18:25 Monica
I mean, have you noticed he doesn't listen?
00:18:27 Monica
I mean,
00:18:28 Monica
I think if she would have approached me that way, I would have probably not been open to talk about what's happening at home.
00:18:34 Monica
But she was very subtle.
00:18:36 Monica
And so, I mean, she was the first one, I would say by second grade.
00:18:40 Monica
So he went to kindergarten, first grade, second grade.
00:18:44 Monica
His second grade teacher was just...
00:18:47 Monica
Amazing.
00:18:48 Monica
This woman was, I, woman, just, educator, woman, whatever you want to call her, she was amazing.
00:18:55 Monica
Wow.
00:18:55 Monica
She actually told me, you know, I kind of think we need to do some tests.
00:19:01 Monica
She's like, are you open to some tests?
00:19:03 Monica
I said, absolutely.
00:19:04 Monica
We talked about what happened when he was in Head Start and the things I would do at home to help him with instructions.
00:19:11 Monica
Because I started to get really good at drawing pictures.
00:19:14 Athena Cordero
Nice.
00:19:15 Monica
Or cutting out magazine things or, you know, finding things on the internet.
00:19:19 Monica
I'd print and be like, okay, this is a good picture to show him as an example.
00:19:23 Athena Cordero
Yeah.
00:19:24 Monica
Because he was a visual person.
00:19:27 Athena Cordero
So for you,
00:19:29 Athena Cordero
That was really the first step in, I think we need to work, like there's something else we have to work on here.
00:19:38 Athena Cordero
And it was at that point that you started looking out, okay, my kid's gonna need something extra.
00:19:43 Monica
Yeah.
00:19:43 Athena Cordero
Okay.
00:19:44 Athena Cordero
And so not too much of a, it doesn't sound like a negative experience, but it did kind of help you get ready for what you knew could be some work, you know, some work at, okay.
00:19:56 Athena Cordero
Iván, what about you?
00:19:57 Athena Cordero
I don't know that it works out that way for everybody, but what was your experience with yours?
00:20:01 Ivan Campos
I think mine was more of the, every year you get the parent conference, the report cards, the progress notes, and so kindergarten, really no concerns in any area, but then first grade.
00:20:17 Ivan Campos
you know, they're not keeping up with the sight words or reading or rhyming or whatever the different things that they're taught for reading instruction in first grade.
00:20:26 Athena Cordero
Yeah.
00:20:26 Ivan Campos
And so then in the report card, it kept saying that his beginning of the year assessments were, you know, he was behind.
00:20:34 Ivan Campos
And so, but the teacher said, oh, he'll catch up.
00:20:36 Ivan Campos
You know, he's a boy was kind of the word used or the statement utilized.
00:20:40 Ivan Campos
And so.
00:20:42 Ivan Campos
Make sure you read with your child 20 minutes at home every day.
00:20:45 Ivan Campos
And so we did that.
00:20:46 Athena Cordero
Yeah.
00:20:47 Ivan Campos
Second grade, it was kind of the same.
00:20:49 Ivan Campos
And by that point, I think he got placed into a intervention, reading intervention program, or maybe he was being pulled out of the class in general education, not special ed.
00:20:58 Athena Cordero
Yes.
00:20:59 Ivan Campos
Just to get some additional supports, but still it was that challenging for him.
00:21:04 Ivan Campos
And then we're reading, reading with him at home, but still not quite, you know, he's answering comprehension questions,
00:21:11 Ivan Campos
But if he has to read, he's really struggling, right?
00:21:15 Ivan Campos
And so as a parent, it was painful to sit with him and have him read to you second, third grade, right?
00:21:20 Ivan Campos
And so, but he had all the books, The Diary of a Wimpy Kid, all of those series of books that all the other kids had, and he wanted so hard to read them.
00:21:30 Ivan Campos
Yeah.
00:21:30 Ivan Campos
But it was hard to be like, wait.
00:21:34 Ivan Campos
why isn't he able to and then my wife would say maybe we're not spending enough time with him maybe we're not doing this maybe it's something we didn't do you know it's kind of that well maybe he just needs more time and so it's this kind of flux but in my situation there was not a teacher that said hey you know there's something more going on it was more of
00:21:57 Ivan Campos
I requested assessments to determine whether he had a need for special ed or not.
00:22:03 Athena Cordero
Did you know, I know you said 17 years experience and you had some experience with special education before even this, you know, going on with your son.
00:22:12 Athena Cordero
Did you know at that time to ask for an assessment?
00:22:16 Ivan Campos
I need to ask.
00:22:17 Athena Cordero
Okay.
00:22:17 Ivan Campos
And so when I did ask,
00:22:21 Ivan Campos
I was basically redirected to have an SST, a student study team, and told that they haven't done any interventions with him.
00:22:31 Ivan Campos
So I reminded the person who called me on the phone to discuss my request that you have three years worth of data from all the intervention groups he's been in.
00:22:41 Ivan Campos
I'm requesting an assessment, then I look forward to receiving the assessment plan or a letter telling me that you're not going to assess.
00:22:49 Ivan Campos
So I received one.
00:22:50 Athena Cordero
Okay.
00:22:52 Athena Cordero
Yeah.
00:22:53 Ivan Campos
And it was kind of, that's kind of set the, I guess, the stage for the first few years.
00:22:58 Athena Cordero
Yeah.
00:22:59 Athena Cordero
Okay, so after assessment, right, Monica, you're shaking your head.
00:23:05 Athena Cordero
I want you guys to just help me understand.
00:23:09 Athena Cordero
You've gone through now the assessment process and here we are.
00:23:12 Athena Cordero
This is what it is.
00:23:14 Athena Cordero
What's the initial reaction, you know, to that?
00:23:17 Athena Cordero
How do you,
00:23:18 Athena Cordero
How do you respond?
00:23:22 Monica
I had a lot of emotions around this, 'cause this is also around the time my daughters, my two younger ones were being diagnosed with autism.
00:23:29 Monica
So it's kind of like a big wave of emotions.
00:23:32 Monica
I was a really young mom.
00:23:33 Monica
I had all three of my kids by the time I was 26, so very young.
00:23:37 Monica
And then I didn't know anybody who had gone through or was going through what I was going through at the time, so I didn't have anybody to grab onto to support me, so I relied heavily
00:23:47 Monica
on the educators.
00:23:49 Monica
I did.
00:23:49 Monica
I relied on the district I was at and I got to say they were amazing.
00:23:53 Monica
They were amazing.
00:23:56 Monica
Every person answered every question I had, you know, they walked me through that process.
00:24:02 Monica
Yeah, it's just a lot of emotion around that.
00:24:06 Athena Cordero
Iván, would you agree?
00:24:09 Ivan Campos
I would say that there's definitely a lot of emotions around this process.
00:24:14 Ivan Campos
To me, it reminds me of a
00:24:16 Ivan Campos
model it's a grief cycle by kuber ross and the first stage is denial and so for me for a while let's just wait and see let's just wait and see but then once that once the iep meeting was held he was determined eligible under you know an area of disability one of the 13 then it was more of well anger now about well what we how come we didn't catch it we're both educators
00:24:42 Ivan Campos
How come we didn't get them tutoring?
00:24:43 Ivan Campos
How come we didn't ask for this sooner?
00:24:45 Ivan Campos
So now it's kind of angry at yourself for not having done something that you should have known to do.
00:24:52 Ivan Campos
Perhaps.
00:24:53 Athena Cordero
Well, I was just gonna say maybe maybe no maybe not necessarily And every kid already is different in their own way no matter what.
00:25:02 Ivan Campos
If I may for a second So when it was confirmed that he did have a disability, it's almost like his whole life Sorry, his whole life flashed in front of me Yeah, and then I was thinking oh my goodness.
00:25:13 Ivan Campos
How is he gonna be able to do this?
00:25:15 Ivan Campos
How is what about work?
00:25:16 Ivan Campos
What about?
00:25:18 Ivan Campos
functions of life i see you agree and it just flashes before you and it kind of you get kind of frozen in that and then you get this i'm getting kind of catharsis right now this just emotion my body's kind of reacting right now but you kind of just be like what are we gonna do how are we gonna get through this it's this very it's like a fear and.
00:25:39 Athena Cordero
Anger denial paralyzing like it kind of stops you in your.
00:25:44 Ivan Campos
Tracks and even talking about it I'm kind of reliving it yeah to a degree yeah.
00:25:49 Monica
Yeah I agree with him I mean it's it's such a um it's a it's a whirlwind a whirlwind of feelings okay that we go through you know um I I don't know if I experienced quite the denial part my husband did okay his his side was more denial it was
00:26:08 Monica
especially when the girls were being diagnosed, because this happened through regional.
00:26:13 Monica
The IEP was a little different for them than it was for my son.
00:26:18 Athena Cordero
So, sorry, explain that to me.
00:26:19 Athena Cordero
You said it was different, it was through regional.
00:26:21 Athena Cordero
What do you mean?
00:26:21 Monica
So their diagnosis happened.
00:26:24 Monica
I found out that they had autism through regional, right?
00:26:27 Monica
So it was a little different, the panel of people making a determination about the child's disability, right?
00:26:37 Monica
Whereas with my son, it wasn't a panel of people, it was suspicion from an educator.
00:26:43 Monica
So it was a little different.
00:26:44 Athena Cordero
Yes.
00:26:44 Ivan Campos
So the regional center, I think that's what you're referring to?
00:26:47 Monica
Yes.
00:26:48 Ivan Campos
So they support students or children zero to three?
00:26:52 Ivan Campos
And then once they turn three years old, on the day they turn three years old, then if they still need support services, then it's done through the school.
00:27:01 Ivan Campos
And then they have to now be reassessed at the school level.
00:27:05 Athena Cordero
Gotcha.
00:27:05 Ivan Campos
And so, but also regional centers will support certain disabilities, depending on the severity, way beyond school age.
00:27:14 Athena Cordero
Okay, so I mean, I can't even imagine.
00:27:17 Athena Cordero
I know though, I mean, I'm a parent, I have two kids.
00:27:20 Athena Cordero
You start planning for them the moment you know you're gonna have them.
00:27:24 Athena Cordero
Right.
00:27:24 Athena Cordero
I mean, you kind of plan out what you hope happens.
00:27:28 Athena Cordero
So I'm listening to you guys thinking in that moment, that plan just,
00:27:36 Athena Cordero
you still wonder what, now what?
00:27:39 Athena Cordero
what's the plan going to be moving forward?
00:27:41 Athena Cordero
But no matter what the plan is, you still want the best for your kids.
00:27:45 Athena Cordero
I mean, as a parent, of course.
00:27:46 Athena Cordero
And so I appreciate you bringing up the stages of grief.
00:27:52 Athena Cordero
You do have to work through those emotions and those feelings.
00:27:55 Athena Cordero
It sounds like, Monica, that you had to rely heavily on
00:27:59 Athena Cordero
Educators Iván, did you have family support, you know education?
00:28:04 Athena Cordero
I know you and your wife were in education, but who helped who kind of walked with you guys So I.
00:28:08 Ivan Campos
Ended up relying on just colleagues.
00:28:10 Ivan Campos
Okay from where I had worked in the district that I worked at for some support With just hey, this is the assessment.
00:28:18 Ivan Campos
They gave me.
00:28:19 Ivan Campos
I'm I'm not I'm not This is not my area of expertise.
00:28:23 Ivan Campos
Can you take a look at it and give me your thoughts?
00:28:26 Ivan Campos
Like what's good about it?
00:28:27 Ivan Campos
What is it missing?
00:28:30 Ivan Campos
It was just, I relied on colleagues and my spouse.
00:28:34 Athena Cordero
Yeah.
00:28:35 Athena Cordero
So I don't want to leave, the kids out of this, too.
00:28:40 Athena Cordero
They don't know, of course, the plans their parents are making for them, really.
00:28:47 Athena Cordero
But in your situation, both of you, do your kids know what the diagnosis is, what it is, what challenge or what need they have?
00:28:56 Athena Cordero
Can they name it?
00:28:57 Athena Cordero
How do you talk about it?
00:28:59 Athena Cordero
How did that come up in your families for them?
00:29:03 Monica
Well, for my son, he acknowledges it.
00:29:06 Monica
He does.
00:29:08 Monica
But I believe for kids, it's a little different.
00:29:11 Monica
They want to be included, right?
00:29:14 Monica
And so if they're being pulled out for speech, let's just say, or occupational therapy or whatever service they have within their IEP,
00:29:23 Monica
they feel left out from the general class, right, from their peers.
00:29:28 Monica
And so it's hard for them to accept it.
00:29:30 Monica
It really is.
00:29:31 Monica
I had, you know, one that accepted it wholeheartedly and said, okay, you know, this is what I have and I'm going to move this way with my life.
00:29:40 Monica
And then I have another one who just doesn't acknowledge it at all, you know, and then the other one just,
00:29:47 Monica
accepted it recently, where it's like, okay, I acknowledge, yes, maybe there, but she says it caused a lot of turmoil for her in school, specifically junior high and high school, because that's where they develop ideas and their characters, their identities, and they're trying to figure out who they are, as people.
00:30:09 Monica
And of course, they're trying to fit in, you know, like anybody.
00:30:13 Monica
So she has vocalized that.
00:30:16 Monica
She didn't feel included, you know, that she felt like she was an oddball.
00:30:20 Monica
And it was hard to hear as a parent.
00:30:23 Monica
Yeah, I bet.
00:30:24 Monica
As a parent sitting in that car when she was talking about it and her emotions, I had a hard time that day, you know, just, but I can only imagine what she went through.
00:30:34 Monica
All those years, she didn't tell me, right, she kept it.
00:30:38 Monica
So it's just tough moments, but I think once they accept it, it's easier for them.
00:30:46 Athena Cordero
Yes.
00:30:47 Monica
Yeah.
00:30:47 Athena Cordero
Iván.
00:30:50 Ivan Campos
About it my wife and I in front of him so we wanted him not to I guess identify with that disability or be it so that that's what we're focused on we wanted him to develop as a human and not be a label right I just remembered he my son also had OT services because he couldn't write and so that added to the frustration with writing dyslexia all that but going along with what you were saying Monica about
00:31:18 Ivan Campos
Once they're pulled out to a separate class to receive some type of service, my son would tell me, and he was probably 3rd or 4th grade, he would say, dad, I'm going to that class again.
00:31:26 Ivan Campos
They take me every day and we do stuff.
00:31:30 Ivan Campos
But then when I come back to my class, then the teacher wants me to catch up on everything that I missed.
00:31:35 Ivan Campos
And how come not all the kids are going there?
00:31:37 Ivan Campos
How come it's just these kids?
00:31:39 Ivan Campos
Yeah.
00:31:40 Ivan Campos
And we're like, well, they're just providing you extra support.
00:31:43 Ivan Campos
You know, they're there to help you.
00:31:44 Ivan Campos
You know, remember, you've done tutoring before.
00:31:46 Ivan Campos
Am I somewhat like, no, this is different.
00:31:48 Ivan Campos
Like he knew something, but we really didn't want to, I guess, maybe acknowledge as a parent.
00:31:54 Ivan Campos
Maybe it's part of that denial that I spoke to earlier.
00:31:58 Ivan Campos
And maybe I'm still kind of bargaining.
00:31:59 Ivan Campos
That's one of the other stages where I'm kind of bargaining the should I, should I not, you know, am I okay with this, me as the parent?
00:32:07 Ivan Campos
And so
00:32:08 Ivan Campos
We kind of didn't talk about it.
00:32:10 Ivan Campos
And eventually, I think when he was 11 or 12, he's watching something on YouTube, and then he says to me, Dad, I have that.
00:32:18 Ivan Campos
And it was something about dyslexia on a YouTube commercial or something, or maybe a program that somehow randomly showed up on our TV.
00:32:25 Ivan Campos
And he goes, I think I have that.
00:32:27 Ivan Campos
Dad, I have that.
00:32:28 Ivan Campos
And I said, How do you know that?
00:32:30 Ivan Campos
And he goes, Did you hear your mom and I talking about it?
00:32:32 Ivan Campos
He goes, No, I know it, because the way that that person, that's me.
00:32:37 Ivan Campos
I have the same.
00:32:38 Ivan Campos
Wow.
00:32:38 Ivan Campos
I struggle with this.
00:32:39 Ivan Campos
I struggle with that.
00:32:40 Ivan Campos
And so now that he's in high school, just recently, he said to me, dad, you know, I realized that I get distracted in my mind.
00:32:51 Ivan Campos
I start thinking about other things, and then I forget what I'm working on.
00:32:56 Ivan Campos
And so I said, so think about some of those strategies that you've learned.
00:33:00 Ivan Campos
Maybe you need a timer to help you stay focused on how much time, give yourself X amount of time to do certain homework or certain studying.
00:33:08 Ivan Campos
But I also told myself, even adults, even myself, even others, we all get distracted.
00:33:13 Athena Cordero
Yeah.
00:33:14 Ivan Campos
So it's not necessarily something that...
00:33:17 Ivan Campos
maybe you should be so afraid of, but just maybe find ways to, and he catches himself and he goes, I'm sorry, dad, I wasn't paying attention.
00:33:27 Ivan Campos
And I'm thinking to myself, maybe I do that too sometimes, but I don't have the label.
00:33:32 Ivan Campos
But yet for him, he knows, he knows, and he attends his IEP meetings.
00:33:37 Ivan Campos
And I think we started him attending in the 6th grade.
00:33:40 Ivan Campos
And at the very recent one,
00:33:43 Ivan Campos
He was advocating for himself.
00:33:45 Ivan Campos
He was participating, given thoughts and opinions about, we were asking him for his input because this is something, again, going back to the word disability, I think it needs to be talked about so that he knows what his strengths and weaknesses are so he can leverage from all the tools that he's learned how to move forward with his life.
00:34:06 Athena Cordero
So you bring up that your son
00:34:09 Athena Cordero
sat in the IEP meetings in there.
00:34:11 Athena Cordero
Let's talk about the IEP meeting.
00:34:13 Athena Cordero
Okay.
00:34:14 Athena Cordero
Because again, I mean, it's not it's not going to look the same for everybody.
00:34:20 Athena Cordero
And for again, just for our listeners, the IEP meeting itself is just a discussion with the team.
00:34:27 Athena Cordero
Iván, you mentioned that earlier, a team of folks from the school.
00:34:31 Athena Cordero
And what they're doing is
00:34:34 Athena Cordero
creating a plan, reviewing a plan for the child's special education services, right?
00:34:39 Athena Cordero
What's going to work best for Athena?
00:34:40 Athena Cordero
What's going to work best for Iván?
00:34:42 Athena Cordero
And parents attend.
00:34:44 Athena Cordero
Who else attends?
00:34:46 Monica
So it could be an administrator from the school, the teachers, the speech pathologist, if that's a service, or occupational therapist, anybody who's
00:34:57 Monica
basically in a render a service, okay, of some nature is involved.
00:35:01 Ivan Campos
And then I would add that also families have the right to invite a friend, a family member, even other agencies to attend with them.
00:35:10 Athena Cordero
Okay.
00:35:11 Athena Cordero
And the child, yes.
00:35:14 Ivan Campos
At certain ages, I think it's appropriate.
00:35:16 Athena Cordero
What, now I don't know the rule and we're not going to get into that part of it, okay?
00:35:20 Athena Cordero
But for you all, when were you comfortable with your kids sitting in, if they did it all?
00:35:25 Ivan Campos
I think for us, it was for when he started identifying himself.
00:35:31 Ivan Campos
Yeah.
00:35:32 Ivan Campos
That's where it clued us in that, okay, he's aware.
00:35:34 Ivan Campos
He wants to know, he's asking about being pulled out, working with this person, that person.
00:35:40 Ivan Campos
Now he's like, how come the other kids don't have it?
00:35:43 Ivan Campos
Where does, who decided that?
00:35:45 Athena Cordero
Yes.
00:35:45 Ivan Campos
So I'm like, are you ready to come to your first IEP meeting?
00:35:48 Ivan Campos
Yeah.
00:35:48 Ivan Campos
He goes, okay.
00:35:51 Ivan Campos
So he came, he came and he sat and watched the first year.
00:35:54 Athena Cordero
Yeah.
00:35:54 Ivan Campos
And then after that, he started to become more involved and advocating for his needs as well.
00:36:00 Athena Cordero
What about your kids, Marca?
00:36:01 Monica
Very different.
00:36:02 Monica
Yeah.
00:36:03 Monica
For our dynamic, I think it varies on the child, right?
00:36:09 Monica
I never saw any interest from them to find out the why behind it all.
00:36:15 Monica
Other than I just don't like to go to speech.
00:36:18 Monica
My middle child would always talk about that class.
00:36:20 Monica
I don't know why they don't like speech, but she didn't like speech.
00:36:25 Monica
But yeah, I would say my son when he was in high school.
00:36:29 Monica
It was more about like, okay, well, I think it's time now.
00:36:33 Monica
I had a conversation.
00:36:34 Monica
Again, he had no interest in going, right?
00:36:36 Monica
He knew these meetings would happen.
00:36:39 Monica
and that his math would be altered or he had maybe less work than the other students because of his challenge.
00:36:46 Monica
So he knew those parts, right?
00:36:48 Monica
Maybe in his mind, he thought, oh, I'm just getting it easier, right?
00:36:52 Monica
Maybe that's what he was thinking.
00:36:54 Monica
I don't know.
00:36:54 Monica
Can't think for, can't talk for him.
00:36:57 Monica
But when he was in high school, I said, I think it's time for you to come to a meeting.
00:37:02 Monica
What do you think?
00:37:03 Monica
And he was like, why?
00:37:06 Monica
do I have to go?
00:37:07 Ivan Campos
Right.
00:37:08 Monica
He had a more reluctancy.
00:37:10 Ivan Campos
I also want to give credit to a case carrier who in middle school really saw a lot of potential in him.
00:37:16 Ivan Campos
And so I remember she would meet with him and give him a copy of his accommodations because, you know, he was taking a couple of special ed classes and then the rest were general ed.
00:37:28 Ivan Campos
And so for him to also, one of his goals was to advocate for his needs because he wasn't.
00:37:34 Ivan Campos
It's still that part of the process.
00:37:36 Ivan Campos
they're developing and they're growing.
00:37:38 Ivan Campos
They want to be just like their peers.
00:37:39 Ivan Campos
They don't want to ask questions for things to be repeated to them.
00:37:43 Ivan Campos
So we had to do the IEP, find ways to have the information presented in different ways.
00:37:49 Ivan Campos
You mentioned visuals earlier, right?
00:37:51 Ivan Campos
So maybe there's a visual in the class that may be a reminder of what we're working on instead of somebody raising their hand, right?
00:37:57 Ivan Campos
And so
00:37:58 Ivan Campos
This teacher really, case carer really supported him with growing in that area and having him be more aware of himself and also aware of how he can advocate in other classes for himself in terms of asking for some of those accommodations.
00:38:15 Ivan Campos
Maybe I need more time on an assignment.
00:38:16 Ivan Campos
Maybe I need more
00:38:19 Ivan Campos
maybe I need some notes, just depending on the situation.
00:38:22 Athena Cordero
So Ivor, I have to ask because I would imagine, and correct me, okay, if I'm wrong, that he was...
00:38:29 Athena Cordero
He got to a point where he was able to do that, partly because he's got some parents who maybe speak in those ways or suggest you should ask that.
00:38:40 Athena Cordero
You should see what they say.
00:38:41 Athena Cordero
Tell them that you don't particularly like this.
00:38:44 Ivan Campos
Yeah, we did.
00:38:44 Ivan Campos
We did.
00:38:47 Athena Cordero
I know you, we work together, so I could see you modeling that for him.
00:38:51 Athena Cordero
But I mean, in a meeting with educators, teachers who are
00:38:58 Athena Cordero
maybe more educated than the parents in the room.
00:39:01 Athena Cordero
And a child who's coming to an IEP for the first time, that could be overwhelming.
00:39:06 Monica
I think it is.
00:39:07 Athena Cordero
Emotional.
00:39:09 Athena Cordero
For those who don't, maybe have someone who can prompt and model and give them things to advocate for themselves.
00:39:16 Athena Cordero
What do you do?
00:39:17 Athena Cordero
What would you say someone should do if they don't fully understand what's being said in an IEP?
00:39:22 Athena Cordero
if they feel like they're sitting there listening to something that's going on that doesn't have everything to do with them when it really does, what do you suggest for someone who might feel like that?
00:39:32 Athena Cordero
Because I would think even for an adult, your first go-to is just to stay quiet and hurry up and get it over with, right?
00:39:39 Athena Cordero
And then you walk out going, what just happened?
00:39:41 Ivan Campos
And then you have this fear of not agreeing, because if you don't agree with what's presented to you, then
00:39:47 Ivan Campos
your child is not going to get the help.
00:39:49 Athena Cordero
Right.
00:39:50 Ivan Campos
And so now, but you're like, but okay, I like, I agree with this part of the IEP, but maybe with not this part, but then how do I communicate that?
00:40:01 Ivan Campos
Or how do I advocate for my son or so that he can get the services and support that he needs?
00:40:07 Ivan Campos
And so it's this weird kind of, you have to kind of either invite somebody with you or maybe ask the team for,
00:40:15 Ivan Campos
Help me understand what this test you're talking about.
00:40:18 Ivan Campos
I know you showed the scores on the piece of paper with me.
00:40:21 Ivan Campos
You shared a chart, but I really don't know what phonemic awareness is.
00:40:25 Ivan Campos
Can you tell me what that is?
00:40:27 Ivan Campos
Explain it to me in a way that I can understand.
00:40:30 Ivan Campos
But it's sometimes in some cultures, it's we respect the professional where we accept their word.
00:40:38 Ivan Campos
In other cultures, we challenge it.
00:40:41 Ivan Campos
And then there's others that, it's a mix of two, right?
00:40:44 Athena Cordero
And so, yes, Ivonne, and I'm, like I said, you guys are seasoned, okay, in this process.
00:40:51 Athena Cordero
And we're talking about it today, but I know that, I know folks who've sat in an IEP meeting and they've gotten there at a point where they are hot.
00:41:00 Athena Cordero
You know, like it is, I've been through some things.
00:41:03 Athena Cordero
I've been asking questions.
00:41:05 Athena Cordero
maybe it's not that they weren't given what they should have been given.
00:41:10 Athena Cordero
It's just the it's the frustration from this morning.
00:41:13 Athena Cordero
It doesn't feel like it.
00:41:14 Athena Cordero
doesn't feel like it.
00:41:15 Athena Cordero
So now I'm sitting here.
00:41:16 Athena Cordero
I don't know what you're talking about.
00:41:18 Athena Cordero
You're using words I've never heard before.
00:41:20 Athena Cordero
My kid's frustrated.
00:41:22 Athena Cordero
I'm frustrated.
00:41:23 Athena Cordero
What am I supposed to do?
00:41:25 Athena Cordero
You know, like that parent who's in that, like at their wit's end and they're sitting here now with something so important in front of them.
00:41:32 Athena Cordero
What's a good, what's a good strategy or a good,
00:41:36 Athena Cordero
pause for them so that they don't walk away feeling like great I don't even know what I just agreed to I'm not happy with this because that can happen you want emotions get the best of you what would you suggest just to help them in that moment you know to just come to please help me with this that's hard to do it's hard to ask for help even when you're in a good mood sometimes my.
00:41:57 Ivan Campos
My recommendation would be to take the IEP home okay and review it with others at home with other people that you
00:42:05 Ivan Campos
You can, other colleagues or other folks that maybe have more experience with IEPs, and then take your time to sign it, make sure you understand the document.
00:42:15 Ivan Campos
When I was a case carrier and I noticed that a family that was there at the IEP meeting where I noticed their body language was telling me they were uneasy, and I would always say, take this home with you.
00:42:27 Ivan Campos
I don't want you to feel pressure to sign it.
00:42:29 Ivan Campos
Review it, if you have any questions about anything that's on there,
00:42:33 Ivan Campos
you have my phone number, you have my e-mail address, reach out.
00:42:35 Ivan Campos
I want to be able to explain it to you.
00:42:38 Ivan Campos
And I know it's a lot of words, it's all a lot of lingo in there that is educational lingo, but at the end of the day, don't sign it if you're not comfortable.
00:42:46 Ivan Campos
That's what I would say to families, and that's the same thing I would tell families that I was the case carer for.
00:42:53 Athena Cordero
You look like you've got a little bit different perspective.
00:42:56 Monica
I do, from the parents' side, the other side of the table.
00:43:01 Monica
And no offense to anyone, right?
00:43:03 Monica
I mean, that is the idealistic approach, right?
00:43:08 Monica
That's idealistic.
00:43:09 Monica
Is it what happens?
00:43:11 Monica
No.
00:43:13 Monica
I would probably say from the parents' perspective, say,
00:43:17 Monica
If it's making you feel a certain way, right?
00:43:20 Monica
You're like you said, you're hot, you're heated, you're passionate about what's being said, you're not understanding, you're overwhelmed.
00:43:27 Monica
I think it's time to take a pause.
00:43:29 Athena Cordero
Yeah.
00:43:29 Monica
Get up respectfully and say, you know, respectfully say, you know, right now, all of this may be a lot.
00:43:38 Monica
If we can maybe have a second part to this IEP meeting, because some people think
00:43:43 Monica
An IEP meeting has to be within that time, within that one hour they gave you, and it doesn't have to.
00:43:50 Athena Cordero
Okay.
00:43:50 Monica
I've had IEPs that have been four parts.
00:43:52 Athena Cordero
Wow, I didn't realize that.
00:43:54 Monica
Okay.
00:43:55 Monica
And that's because there's things within the IEP that I did not agree with.
00:43:59 Monica
Okay.
00:43:59 Monica
Because right at the end, I got more savvy, you know, and I got more assertive with certain things that I felt were more important to me as a parent for my child at school, you know?
00:44:13 Monica
You're your child's best advocate.
00:44:16 Monica
I don't care how many people you have with you.
00:44:20 Monica
can have everyone.
00:44:21 Monica
You can have the President of the United States sitting next to you, but you are your child's best advocate.
00:44:26 Monica
And I will say, take a pause, maybe get up, you know, excuse yourself, restroom break, something to calm you down.
00:44:34 Monica
If after that you still feel it, then it's time to do maybe the second part of that.
00:44:39 Monica
I want to add.
00:44:40 Ivan Campos
To something you said, Monica, that
00:44:42 Ivan Campos
the pause, right?
00:44:44 Ivan Campos
And from me as a parent, I was afraid of the pause because then we wouldn't get through to it and get to the end.
00:44:51 Ivan Campos
And now we're going to hold back the services.
00:44:55 Ivan Campos
But I know they're not going to schedule for another few weeks, the next one.
00:44:58 Ivan Campos
And so
00:44:59 Ivan Campos
I want to give my kid the support he needs now.
00:45:02 Athena Cordero
You know what, though?
00:45:03 Ivan Campos
And so I'm kind of balancing the two, right?
00:45:05 Ivan Campos
At least from my parent perspective, right?
00:45:07 Athena Cordero
I appreciate both of your perspectives right now, because this is how I'm listening to it.
00:45:12 Athena Cordero
As an educator in that room, now you've given me something to look for.
00:45:16 Athena Cordero
If someone needs to walk out, take a minute, get a drink of water, I'm going to offer you the drink of water, let you know where the restroom is.
00:45:23 Athena Cordero
if it looks like you're panicking a little bit because we're not coming up with the solution, I'm going to try to reframe the conversation.
00:45:30 Athena Cordero
So I guess what I would say is for educators listening right now is you really have to facilitate, it's the facilitation part and knowing how to reframe and how to stop and come back to it.
00:45:42 Athena Cordero
So your feelings about it are helpful.
00:45:45 Athena Cordero
And any parent that's at this, they have a right to their own feelings about it.
00:45:49 Athena Cordero
So I appreciate you guys sharing that.
00:45:51 Athena Cordero
That's good advice for
00:45:53 Athena Cordero
the educators in the room, especially when it's a team effort.
00:45:57 Athena Cordero
I want to talk a little bit about the systems of support, just things that you can go to for help.
00:46:03 Athena Cordero
And the first thing I want to draw attention to is the fact that we here at CAHELP, we're part of Desert Mountain SELPA.
00:46:10 Athena Cordero
Iván, can you give us just a general description of what a SELPA is?
00:46:14 Athena Cordero
And I know that's asking for a lot.
00:46:16 Ivan Campos
So SELPA stands for Special Education Local Plan Area.
00:46:20 Athena Cordero
Okay.
00:46:20 Ivan Campos
And so they're unique to California.
00:46:23 Ivan Campos
Once IDEA was initiated back 50 years ago, California developed a system to support school districts.
00:46:32 Ivan Campos
And this, sorry, there could be something called a single district SELPA, which is 1 district, and the SELPA is just for that district.
00:46:40 Ivan Campos
Or you can have multi-district SELPAs, like there's a mountain SELPA where there's many of the, sorry, all of the school districts up in the high desert are part of that.
00:46:50 Ivan Campos
So it's a consortium of school districts
00:46:53 Ivan Campos
in which the SELPA supports those districts with special ed programming, professional development, compliance, meaning IEPs on time, you know, the goals are appropriate, timeline pieces.
00:47:07 Ivan Campos
Also, we support with instructional practices.
00:47:11 Ivan Campos
Maybe we're coaching a teacher through a process.
00:47:14 Ivan Campos
We're helping develop programs.
00:47:16 Ivan Campos
And also when IEPs sometimes
00:47:18 Ivan Campos
don't go the way we expect them to.
00:47:20 Ivan Campos
We also, parents can reach out to those help of our support.
00:47:24 Ivan Campos
And then we're able to hear them out and maybe relay the information back to the director with their permission and then try to work towards resolving.
00:47:34 Ivan Campos
And so sometimes.
00:47:35 Ivan Campos
part of my, the SELPA role could be to facilitate an IP meeting or mediate a meeting.
00:47:40 Ivan Campos
Gotcha.
00:47:41 Ivan Campos
And then this particular SELPA has other services such as mental health, has an outreach team, also has a prevention and intervention team.
00:47:49 Ivan Campos
And then they also have a continuing technical education team for students past high school.
00:47:56 Ivan Campos
Yeah.
00:47:56 Ivan Campos
So it's more than special ed here.
00:47:58 Ivan Campos
Yes.
00:47:59 Ivan Campos
And they're all SELPAs are unique across the state.
00:48:02 Athena Cordero
They are.
00:48:02 Athena Cordero
And so you did that in just a couple minutes.
00:48:05 Athena Cordero
You did great.
00:48:06 Athena Cordero
There's so much.
00:48:07 Athena Cordero
There is so much that can be offered through a SELPA.
00:48:11 Athena Cordero
And so just to give a just a general idea in case somebody had questions.
00:48:15 Athena Cordero
Of course, they can call and we could help them more with that.
00:48:18 Ivan Campos
And the parent procedural rights, they're given this document that explains the rights.
00:48:22 Ivan Campos
The SELPA's phone number, contact information is within that document at the very end.
00:48:27 Athena Cordero
Yes.
00:48:27 Ivan Campos
And so we receive phone calls from families reaching out for support and they come to the program specialist or someone else.
00:48:36 Athena Cordero
We also have a question and answers pamphlet that's available on the CAHELP website.
00:48:44 Athena Cordero
And so if you just went on there and searched resources for parents and families, or if you put in there question and answer special education, the pamphlet would pop up and there's some questions, answers in there.
00:48:56 Athena Cordero
The same thing kind of what we were talking about, what's a SELPA, what's an IEP, but it does give some very good information and it has contact information in there as well for those of you who want to take a look at that.
00:49:07 Athena Cordero
Those are some of the technical things, right, that we have we can offer.
00:49:11 Athena Cordero
What about you guys like individually?
00:49:13 Athena Cordero
What is a
00:49:14 Athena Cordero
support that you say helped you through the 20 years, the 17 or six years you know with your son.
00:49:21 Athena Cordero
What was a go-to for you?
00:49:24 Monica
I think for me, definitely relying, like I said, on the educators.
00:49:29 Monica
Some of them became my friends.
00:49:31 Athena Cordero
Okay.
00:49:31 Monica
So I'm still friends with them now.
00:49:34 Monica
So, you know, that I can reach out to them in a candid manner, ask questions.
00:49:40 Monica
I mean, obviously without stepping on anybody's toes, right?
00:49:44 Monica
I'm asking from parent to teacher about XYZ happening with my son or daughter, you know?
00:49:51 Monica
That was always really, really great for me.
00:49:53 Monica
Also, my mom.
00:49:55 Monica
I mean,
00:49:57 Monica
even though she didn't know what an IEP was, she definitely was somebody that I could rely on, call her, venting, all of the things that we go through after an IEP.
00:50:08 Monica
If it went well or it didn't go well, you know, she was the person that I would call.
00:50:11 Monica
So shout out, man.
00:50:13 Monica
Yeah, very supportive.
00:50:14 Athena Cordero
Yeah.
00:50:15 Athena Cordero
What about you, Iván?
00:50:16 Ivan Campos
I think it would, you know, my spouse and then friends and colleagues and, you know, along the way there were some case carriers, some school staff that were really helpful, that were really,
00:50:26 Ivan Campos
understanding or very helpful to kind of help process as well.
00:50:32 Athena Cordero
Yeah.
00:50:32 Ivan Campos
And those ones, what stood out to me is that they identified maybe what the parent may be going through.
00:50:39 Ivan Campos
And so they offered, hey, you know, if you ever need to talk, but also they had an open channel of communication.
00:50:46 Ivan Campos
They made sure that it wasn't the one way where you come to the meeting and they're sharing with you, but it was a two-way dialogue.
00:50:55 Athena Cordero
And so I would imagine that in some cases, I don't need to talk about what's really on the plan.
00:51:02 Athena Cordero
You know, I get it.
00:51:04 Athena Cordero
I need somebody to hear me say, you know, like that was a lot.
00:51:09 Athena Cordero
It was a lot to sit down and listen to it.
00:51:11 Athena Cordero
I'm going to go try it.
00:51:12 Athena Cordero
I don't know if it's going to work.
00:51:13 Athena Cordero
They want me to do, you know, these things.
00:51:16 Athena Cordero
I'm not sure we're on the same page.
00:51:18 Athena Cordero
Just the emotional piece of it, I would imagine is where the support system comes in heavily, and I'm guessing.
00:51:25 Athena Cordero
But I feel like that's what it is.
00:51:26 Athena Cordero
The things on paper, you can always go back and ask a question about how you felt.
00:51:30 Athena Cordero
That is going to be what runs the moment when you're coming out of there.
00:51:34 Ivan Campos
I would say when IEPs become contentious, I've had several of those in which just even leading up to it, your body's
00:51:43 Ivan Campos
lets you know it's coming.
00:51:45 Ivan Campos
And then after the meeting, you feel it for a couple days.
00:51:49 Athena Cordero
Wow.
00:51:50 Athena Cordero
You agree?
00:51:51 Monica
Yeah.
00:51:53 Monica
A lot of people don't talk about that.
00:51:55 Monica
So thanks for pointing out, Iván, because...
00:51:58 Monica
I was, when we were talking about the feelings and the emotions behind it, those can linger.
00:52:03 Monica
Yes.
00:52:03 Monica
And those can last a few days.
00:52:05 Monica
you're, getting back to the, inviting the child to the IEP, that was part of my feel.
00:52:13 Monica
Because if I felt, right, they're talking about my kid in these meetings.
00:52:18 Monica
And if I felt a certain way after the meeting, you know what, your kid?
00:52:22 Monica
They're not talking about me specifically.
00:52:24 Monica
They're talking about my child, right?
00:52:26 Monica
And although we're a little bit more like mama bears, parents are like this over our children, but can you imagine how the child may feel too?
00:52:35 Monica
So that's why I guess maybe for me that part of it was a little different, me talking to them and saying, hey.
00:52:43 Monica
Do you want to go to an IEP with me?
00:52:44 Monica
And they're like, what is that?
00:52:47 Monica
they, I also wanted to shield them from those feelings too.
00:52:50 Monica
Because I remember being in the car crying after an IEP.
00:52:54 Monica
Right.
00:52:55 Monica
Being so just, I'm going to take the rest of the day off.
00:52:58 Monica
You know, I worked all.
00:52:59 Monica
the time they were in school, I've always worked.
00:53:01 Monica
And so I would take time off for IEP.
00:53:04 Monica
It was exhausting.
00:53:05 Monica
It was a lot.
00:53:06 Ivan Campos
Yeah, I would agree.
00:53:07 Ivan Campos
And but when things are good, when there's a relationship, it's been restored with, you know, the IEP team or the district or whatnot, where you're able to have a dialogue conversation, I don't feel anything.
00:53:21 Athena Cordero
Yeah.
00:53:22 Ivan Campos
So it's and I kind of realized along the way that
00:53:26 Ivan Campos
Sometimes respect goes a long way to a family.
00:53:29 Athena Cordero
Yes.
00:53:30 Ivan Campos
Sometimes communication and accountability.
00:53:32 Athena Cordero
Yeah.
00:53:33 Ivan Campos
And so if somehow you feel that, at least for me, if those aren't being met some somehow way or another, then I kind of feel slighted.
00:53:40 Athena Cordero
Yeah.
00:53:41 Ivan Campos
And that's where it starts.
00:53:42 Athena Cordero
Yeah.
00:53:43 Ivan Campos
So at least for me.
00:53:45 Athena Cordero
So, no, I would agree.
00:53:46 Athena Cordero
I would agree, especially, like you said, it can be intimidating and emotional.
00:53:52 Athena Cordero
You too right now are
00:53:56 Athena Cordero
composed.
00:53:57 Athena Cordero
You're able to talk about this.
00:53:58 Athena Cordero
It speaks to the years of experience that you've dealt with navigating this process.
00:54:04 Athena Cordero
But I know, and I can tell that it wasn't always that composed.
00:54:08 Athena Cordero
It was emotional.
00:54:09 Athena Cordero
So I have a question for you both, okay?
00:54:12 Athena Cordero
If you could go back to the beginning of this journey and tell yourself, you back then, one thing, what would it be?
00:54:19 Monica
I would say to my younger self,
00:54:23 Monica
Related to IEPs, obviously.
00:54:26 Monica
This, yeah, this process, yeah.
00:54:27 Monica
Think of the future.
00:54:30 Monica
Because we're very, you know, in the, right now, you know, okay, what goal, like once you start getting into goals, you know, to meet a certain goal, building on the big picture.
00:54:43 Athena Cordero
Yeah.
00:54:43 Monica
You know, what do you want overall for your child?
00:54:46 Monica
Like, let's just say it's about math, right?
00:54:49 Monica
addition, subtraction, do you want them to get to timetables, division?
00:54:53 Monica
Okay, how small do you need to go to get there to build that child to get to that goal?
00:54:59 Athena Cordero
Something like backwards planning, right?
00:55:02 Monica
It's what I would have wanted to know now, right?
00:55:06 Monica
Because now that I know things, I don't think I plan too much for the future.
00:55:11 Monica
I plan for the now.
00:55:12 Monica
And it was almost like I was just going with the flow of it because I didn't know what to expect in the future.
00:55:18 Monica
Now that I know that the future does matter, right?
00:55:21 Monica
We want to help them, set them up for a successful year, a successful year.
00:55:28 Monica
elementary, junior high, high school, the ones that are passing on to college, all of these things that you're doing right now with your kids really matter.
00:55:36 Athena Cordero
So I hear you saying that.
00:55:39 Athena Cordero
And then I also have had a chance to talk to you outside of this.
00:55:41 Athena Cordero
And it sounds like you did do that.
00:55:43 Athena Cordero
I mean, I know you feel like you want to go back and say those things.
00:55:47 Athena Cordero
Even though that might not be how you started, you did get there.
00:55:51 Athena Cordero
But of course, we can critique ourselves all day long, right?
00:55:54 Athena Cordero
But from what I've heard from you, Monica, it did sound like you did, you got to that point.
00:55:59 Athena Cordero
So high five, TA with your three kiddos.
00:56:01 Athena Cordero
Iván, what about you?
00:56:02 Athena Cordero
What would you go back and tell yourself at the beginning of this?
00:56:05 Ivan Campos
And I appreciate that I had a couple minutes to think about it because it's a loaded question.
00:56:10 Athena Cordero
It is.
00:56:10 Ivan Campos
And I've been listening to Monica's response, I'm thinking about this idea, that idea, and then I'm listening to what you're saying.
00:56:18 Ivan Campos
And then I'm trying to land on one and knowing you're going to ask me, it's hard to land on one.
00:56:23 Ivan Campos
And so what I would say to myself in this very moment as I'm tipping through my fingertips trying to land on one is that it's a journey and that there's no quick fix.
00:56:34 Ivan Campos
There's not going to be a tutoring program or a teacher or a specialist that is going to solve it immediately.
00:56:41 Ivan Campos
that I need to be patient with this journey.
00:56:44 Ivan Campos
I need to love my child and embrace them for who they are.
00:56:48 Ivan Campos
And don't focus too much on what they can't do.
00:56:50 Ivan Campos
Focus on who they are and what they can do and celebrate every day.
00:56:55 Athena Cordero
That both of those were perfect.
00:56:58 Athena Cordero
Okay.
00:56:58 Athena Cordero
I mean, I know you, like I said, we can critique ourselves all we want now.
00:57:02 Athena Cordero
But from what I've learned about you, Monica, I know about you, Iván, you guys have been doing those things.
00:57:08 Athena Cordero
That's what you would tell yourselves
00:57:10 Athena Cordero
What do you hope our listeners, someone who's just trying to get some ideas, support, understand this process, what do you hope they take away from this episode?
00:57:20 Ivan Campos
I want to validate what Monica said about if the parent feels something is not okay in that meeting or something doesn't sell well with them, if you're already overburdened with the information plus your emotions, it's going to be hard to engage in that meeting.
00:57:36 Ivan Campos
And so as for a time out, as for a part 2 meeting,
00:57:41 Ivan Campos
That would be something I would tell families.
00:57:43 Ivan Campos
And I appreciate that you highlighted that.
00:57:45 Monica
Yeah.
00:57:47 Monica
If I was talking to somebody who's never, right, they're just coming out the gate with this info.
00:57:53 Monica
It's overwhelming.
00:57:57 Monica
I would say, I would tell another parent, you know, the intimidation part, try to get
00:58:06 Monica
rid of that as quickly as possible.
00:58:08 Monica
The other person on the other side of the table is also interested in your child.
00:58:13 Athena Cordero
Yes.
00:58:14 Monica
You know, they want them to be successful.
00:58:17 Monica
I have yet to meet a teacher that doesn't feel like that about students.
00:58:21 Monica
You know, they want their students to be successful.
00:58:24 Monica
And when there is a need, you know, when there is a child that needs something in a classroom, they do their best to accommodate.
00:58:31 Monica
And so
00:58:34 Monica
quickly try to take that intimidation part.
00:58:36 Monica
It's, they're human just like you.
00:58:38 Athena Cordero
I appreciate you saying that because I'm sitting here listening, thinking, and I have not gone through this process, right?
00:58:45 Athena Cordero
I don't have a child on an IEP, but I hear you and I believe you when you say it's intimidating.
00:58:50 Athena Cordero
I've heard it's intimidating, but in my mind, I'm thinking I would be walking in the room thinking you don't know more than me.
00:58:57 Athena Cordero
They're my kid.
00:58:58 Athena Cordero
You don't know more than me.
00:59:00 Athena Cordero
That's how I feel like I would walk in the home.
00:59:02 Athena Cordero
I don't know that I would, but I feel like, no, one in here knows more than I do about my child.
00:59:09 Athena Cordero
You might know more about a service that you can offer them, but you don't know more about my kid.
00:59:14 Athena Cordero
So it took me a minute to wrap my head around those feelings coming from parents, feeling intimidated, feeling like they don't know as much, because I don't know that I would feel like that.
00:59:23 Athena Cordero
I can't say that I, you know, how it would be.
00:59:26 Athena Cordero
But I get it now.
00:59:28 Athena Cordero
there's so much going on.
00:59:29 Athena Cordero
You're worried about your kid that immediately puts you on the defensive.
00:59:33 Athena Cordero
And I could see that.
00:59:34 Athena Cordero
I could totally see that.
00:59:35 Athena Cordero
This is what I want you guys to do for me now, because we went a couple places in this conversation, so I'm not so comfortable.
00:59:42 Ivan Campos
And emotions, I, throughout this conversation, I've been, that was my emotions.
00:59:47 Athena Cordero
You guys did great.
00:59:49 Athena Cordero
I appreciate you so much for sharing such personal things, but here's what we're going to do, because I'm not going to just send you on your way now after that until you
00:59:56 Athena Cordero
deal with the emotions.
00:59:58 Athena Cordero
We're going to do a transition activity that I'm going to call text tag, okay?
01:00:03 Athena Cordero
So take your phones out, even though I made you put them away for the episode.
01:00:08 Athena Cordero
I want you to find one person in your phone who you feel like has just been an awesome support to you, to your family, to your kids,
01:00:17 Athena Cordero
And then just tell them, give them a grateful, you know, something that you're grateful to them for.
01:00:24 Athena Cordero
And while you guys are doing your text, I'm just gonna wrap up with reminding everybody that you can go to our website and search for that question and answer special education pamphlet.
01:00:34 Athena Cordero
It'll give you some more information and contact number to get ahold of anyone if you have more questions about the IEP process.
01:00:41 Athena Cordero
Or if you just need somewhere to start, feel free to reach out and thanks everybody for listening today.