endokind

Sarah Jane Allen, Endometriosis and Irish Healthcare Advocate

Season 1 Episode 3

Our THIRD episode is with Sarah Jane Allen, an Irish endometriosis patient and a powerful advocate for change in Ireland.

In this conversation, Sarah Jane and I discuss the challenges faced by individuals with endometriosis, particularly within the Irish healthcare system. We explore the emotional and physical toll of chronic pain, the struggle to be believed, and the systemic issues that contribute to difficulties in accessing adequate care. 

Sarah Jane shares her personal 17 year journey to diagnosis - from aged 8 to 25 - and how she has had to travel abroad to access the treatment she needs. 

We reflect on the disconnect that people with endo often experience as a coping mechanism, grief, finding strength and joy amidst struggles, the support provided by the online endo community, and how sharing stories can empower others and lead to real change. 

Sarah Jane's difficult journey powers her mission to advocate for better healthcare and support for those living with endometriosis in Ireland. May the road rise with you, Sarah Jane!

If you enjoy this conversation, please add a rating or review so that it can reach more people!

Many thanks to Astrid for supporting Season One of the podcast. You can learn more about Western Sydney University's 'EndoCann' clinical trials here. And be sure to check out Astrid's excellent Endo Resource Hub

Follow and connect with Sarah Jane here. 

Learn more about endokind here and follow along on here.

Artwork by Lynn Bremner, Music by Coda Chroma, Photography by Gang of Babes.

TRIGGER WARNING: Mentions of medical trauma and dismissal, and fertility challenges. If these are sensitive topics for you right now, please take care while listening. 

DISCLAIMER: The content you hear on this podcast is of a general, educational nature and should never be interpreted as medical or mental health advice. Information and opinions shared may not suit your body or situation or resonate with you personally. Everyone is different. Take what resonates, leave the rest. 

Always consult a medical or mental health professional to assess what’s right for you and your situation. Individualised healthcare for the win!                                    

If you require immediate mental health support, please contact your local crisis support service. In Australia, you can contact Lifeline on 13 11 14 or Beyond Blue on 1300 22 4636. Please know that there is hope and help is available. 

People on this episode