Navigating Disability
What if the conversation around disability focused on possibility instead of limitation?
Welcome to the Navigating Disability Podcast Show, hosted by Kate Read, a passionate advocate dedicated to changing the narrative around “normal” and “ability.”
Each week, Kate sits down with inspiring guests to explore lived experiences, expert insights, practical advice, and powerful stories from across the disability community. From advocacy and education to honest discussions about systems, supports, and real-life challenges, this podcast is about helping people feel informed, empowered, and connected.
Whether you’re living with disability, supporting a family member, working in the sector, or wanting to better understand the journey — this podcast is for you.
So get ready to be inspired, informed, and reminded that you are not navigating this journey alone.
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Navigating Disability
Seeing in The Dark: The Unwavering Vision of Fiona Demark
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What does it mean to truly see? For disability advocate Fiona Demark, vision was never a guarantee, but a diminishing resource.
Today, Navigating Disability sit with Fiona Demark, an advocate for disability.
Born with approximately 40% sight due to recessive genes, a genetic legacy she shares with her sister, Fiona’s world was always one of gradual erasure. Around the ages of five or six, doctors delivered a vague yet certain verdict: complete blindness was in her future. The how was understood, but the when remained a haunting mystery.
Fiona’s life became a unique and protracted journey of goodbye, a slow farewell to colors, faces, and the visual landscape, all while learning to construct a new way of being in real-time. This episode is a deep, intimate conversation with Fiona about navigating a life in fade-to-black.
Fiona’s story is not one defined solely by loss. It is a powerful narrative of creation and love against the odds. She opens up about a dream she once thought impossible: motherhood. With raw honesty, she discusses the fears and personal way of raising two daughters in a sighted world without the use of sight.
How do you guide a toddler, took them somewhere else, or share in the beauty of a rainbow? Fiona’s answers are as innovative as they are heartwarming.
Now living with blindness, Fiona lived in her experience and turned it into fierce advocacy.
Listen to Fiona Demark’s journey and discover how the most profound sight often has nothing to do with the eyes.
Connect with Fiona Demark through her socials:
Instagram: https://www.instagram.com/fiona.demark?igsh=MTF0OGs1dmFkd2xsOQ==
Facebook: Fiona Demark - Blind Inspiration
LinkedIn: https://www.linkedin.com/in/fionademark