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Navigating Disability
Welcome to the Navigating Disability Podcast Show!! Your hosts, Kate Read and Jenn Abbott are committed to changing the narrative around 'normal' and 'ability' and look so forward to sharing our weekly guests with you! Get ready to be inspired, empowered and enlivened as we dive into education, lived experiences, expert advice, behind the scenes on political movements and how YOU, our listeners can THRIVE within your community!
So this means, if you, your family, client or loved one are impacted by disability, you've landed on the right channel.
We know how daunting the future can seem from time to time, and when you know you can lean into expert advice and interviews to get your questions answered or your faith renewed, the journey can feel more achievable.
Be sure to subscribe and hit the alerts so you never miss an episode of NAVIGATING DISABILITY with your resident support experts and researchers, Kate Read and Jenn Abbott.
Navigating Disability
Seeing in The Dark: The Unwavering Vision of Fiona Demark
What does it mean to truly see? For disability advocate Fiona Demark, vision was never a guarantee, but a diminishing resource.
Today, Navigating Disability sit with Fiona Demark, an advocate for disability.
Born with approximately 40% sight due to recessive genes, a genetic legacy she shares with her sister, Fiona’s world was always one of gradual erasure. Around the ages of five or six, doctors delivered a vague yet certain verdict: complete blindness was in her future. The how was understood, but the when remained a haunting mystery.
Fiona’s life became a unique and protracted journey of goodbye, a slow farewell to colors, faces, and the visual landscape, all while learning to construct a new way of being in real-time. This episode is a deep, intimate conversation with Fiona about navigating a life in fade-to-black.
Fiona’s story is not one defined solely by loss. It is a powerful narrative of creation and love against the odds. She opens up about a dream she once thought impossible: motherhood. With raw honesty, she discusses the fears and personal way of raising two daughters in a sighted world without the use of sight.
How do you guide a toddler, took them somewhere else, or share in the beauty of a rainbow? Fiona’s answers are as innovative as they are heartwarming.
Now living with blindness, Fiona lived in her experience and turned it into fierce advocacy.
Listen to Fiona Demark’s journey and discover how the most profound sight often has nothing to do with the eyes.
Connect with Fiona Demark through her socials:
Instagram: https://www.instagram.com/fiona.demark?igsh=MTF0OGs1dmFkd2xsOQ==
Facebook: Fiona Demark - Blind Inspiration
LinkedIn: https://www.linkedin.com/in/fionademark