Speaker 1: 0:03

Good day everyone, and thank you so much for joining in another discussion speaking with Sandra L, the Patient Experience. As always, we welcome your thoughts, we welcome your comments into this conversation and we thank you so very much for taking some time out of your busy day, no matter whether you're watching this with us live or you're tuning in at a later point. We appreciate you because you know what. You could have seen us and say you know what? I don't know what that is, but I'm going to keep it moving, and so I am very, very thankful, and Charms Many Helps Foundation team is very, very thankful that you're spending some time taking some time in to listen to this very important discussion where we talk about all things patient experience. I do want to put this disclaimer out here this is not a bash the doctor syndrome. It's not a bash the doctor session. It's a. We want to get along with our doctors and we want them to know from our standpoint, from patient standpoint. We want them to know what it is that a good patient experience for us is and what isn't. Likewise, if you're a provider and you want to share your thoughts on you know there's some things that patients can do as well If they want that patient experience to be better. We want to hear from you. We would love to have you on the show. I'm speaking to the patient community and sharing with us your thoughts on OK, well, you're asking for a good patient experience, but yet you come in here ill prepared, you don't have no notes, you don't have nothing with you. You know, really you know You're leaving us in a limbo and what we need for you to recognize is that right now, with the system the way it is, as a business instead of healthcare, we can't help you. Unless you come to us with notes written or having things together for us, we can't help you. We're stuck. So you might say well, doctor, she's rushing me out of this office or he's rushing me out of the office. But you have to understand our business is tied to a contract. That contract says how much time we can spend with you. For most doctors Not all doctors are like that, but for most doctors are tied to a contract and they have to go by that contract. Because guess what people? We don't work because we want to work. We work because we have to work. So, providers and patients, both on their ends we do what we have to do and we should evening.

Speaker 1: 2:38

Our special guest is a dynamic woman. She has taken her talents and her gift. When the doctor told her you know what, this is your diagnosis and this is what's going wrong with you, after so many years of going here, there and everywhere trying to get the help for her to get to help, it was like, okay, here's what's wrong with you. And she was like okay, you showed up at the wrong body, I'm not going anywhere and this is what I'm going to do to fight. So she's going to show you some lovely pieces of this is what?

Speaker 1: 3:22

When my mind sets in and I start to feel bad, these are some of the things that I work on to help uplift my spirit so that, if you're a patient or you know someone that is a patient, you can talk to them and say hey, listen, here's some things that you can do to help you to have a really good patient experience. So, without further ado, I'm going to let her go ahead and introduce herself. Jewel, please go ahead and introduce yourself and tell everyone who you are and what you do. A general overview, because of course, I'm going to get into a deeper overview. But if you could tell us who you are and what you do.

Speaker 2: 4:01

I'd appreciate it and what you do. I'd appreciate it. Hi, my name is Jewel Dukes. I am, how old am I? 39. 39 years old. I live in Atlanta, georgia, and I am a patient advocate. Slash crafter. Oh, I, um, yeah, that's that's, that's me.

Speaker 1: 4:30

That's what she's saying now because she's being modest. She's really being modest, and I say that not so that I can tell her story, but so that I can allow her to tell her story, and everyone that's listening or watching is going to be like she do so much more than patient advocacy and crafting. Is she kidding me? So I'm going to have to draw it out of her, which I very often have to do. I have some dynamic patients that come on and they're talking and I'm like, okay, well, let us really know what you do. You're doing so much, and she's one of them.

Speaker 1: 5:03

But I so appreciate her and we've grown to be really close associates. So I certainly enjoy speaking to her and I certainly enjoy seeing her. Every time she puts something on Facebook to show what she's doing, I'm like you know what that girl got the brain? I mean, the crafts that she comes up with are dynamic. She also does our T-shirts for our Many Hot Charms, many Helps Foundation. She does design and do our T-shirts for us, and so for that I'm very, very thankful. Jewel, my first question to you is can you take us back to the moment when you found out about your diagnosis and, within that moment, what were you feeling and how did you, how did crafting enter into that phase?

Speaker 2: 5:51

Okay, so I guess I'll go back to who I am. I am a mother of two children, a wife of 14 years this year, and yeah, so my diagnosis, my original diagnosis well, my major diagnosis, is Cushing's disease, which is a rare disease. It is hypercortisolism, which means my body was making too much cortisol. Cortisol is a hormone you need to live, but it's also a hormone that, in excess, can kill you or, you know, deteriorate your body and your bones and everything. But that moment that I got my diagnosis, it was just pure fear. Fear of being a Black woman in the medical world, fear of not being taken seriously, fear of not getting help, and those were the things that first went through my mind. And then I it's so crazy because most of my information came from me getting online on Facebook groups. I was able to find and meet people that helped me. They gave me advice when my doctor didn't know how to treat me. They gave me advice when my doctor didn't know how to treat me, so I could go to my doctor and say, hey, I'm having this problem, I need you to do this, and yeah, so that's kind of how my diagnosis started. That was in 2021. That was in August of 2021.

Speaker 2: 8:01

In October of 2021, I had pituitary surgery, which is kind of like brain surgery to remove a tumor that was on my pituitary gland that was causing my body to overproduce cortisol. So crafting entered when I had nothing else. I had lost all hope After I had my surgery. I had no God forbid say it will to live, so I didn't have anything. I had my children and my family and that was it, and so I created a hobby. I've always been crafty or artsy, but I was always on the go because my body was geeked up on cortisol all the time. So I began crafting and my first thing that I made was T-shirts for my daughter's track team for her high school, and it just grew from there and her coach was like, well, can you make this? And I'm like I don't know, but I'll figure it out. And that's kind of how I grew into being a crafter and owning the business, and which this month actually makes three years that I have actually been in business. So that's nice.

Speaker 1: 9:29

Happy anniversary. See, I learned something new today, which is a good thing, because every day when I wake up I hope to learn something new, especially if it's a patient that I'm speaking with and I've helped. And they're like Sandra, you know what? Thanks to you I got this help. Or you know, I was able to open up my mouth and when the doctor said this, I said no, hold on for a second and I was able to talk. So every day I look for that gold line that tells me, sandra, what you're doing is needed right, even if it's not for everybody, somebody out there needs that information, that resource that you have, that you're giving them, that you or your team is coming up and saying, hey, this is how this person could be helped.

Speaker 1: 10:11

I got to grab a hold of something to help me push past this. It's a big, you know, it's a big plus for you and it's a big plus for me, because I remember talking to you a couple of years ago when you were having an issue and you was like I really don't know what to do, and you know, and us talking through it got you through it and I'm so glad you didn't get through it and say, okay, well, I'm done. You got through it and say, okay, well, how can I do something on an everyday basis to make sure that my patient experience, whether I'm at the doctors or home, is a great patient experience, right? So I'm grateful and I'm very, very happy to know that you made three years and you didn't quit and didn't say you know what glass is drawing closer to being out? You know, you like, took that hourglass and you flipped it and made it come. You know, no, I'm living, I'm not dying I'm.

Speaker 2: 11:16

I don't want to make it sound like it was easy. It was not I have days where I can't get out of bed and I post those things. I am very honest about what I'm going through and what my situation is, because I see a lot of people who out here and they're not honest. And then when I'm going through it I'm like well, I'm over here hurting, but you happy. But then when you turn around.

Speaker 2: 11:41

They're like, oh well, yeah, I do have this issue and I do have this issue. So I want people to see the real real behind what goes on with the chronically ill community. Because it is not easy, some days I lay in my bed and I'm like, well, I can't get up today, I can't do it, and that's okay and I give myself grace on those days. So it has not been an easy three years.

Speaker 1: 12:08

Like I said, I know it hasn't because I've watched you over those three years and I've seen you going through the pain and you're right. For anyone that's listening that's like, well, I'm not a critically ill patient and this doesn't amount to me. Once again, what I want to bring to everyone's attention is that illnesses and sicknesses, they don't ask for our permission for them to show up in our body. They show up when they want to show up, and it doesn't make a difference whether you're 25, whether you're 35, on down the line, even our babies, who are pediatric, critically, chronically ill patients. Illness doesn't ask for your permission to show up. It just shows up. And when it shows up, you have to have some type of hope and someone seeing you suffering, but then also seeing you doing well, to know that, no, don't give up hope. You know you got to keep fighting for what you know that you want in your life. So thank you for that.

Speaker 1: 13:13

I do want to ask you, though so when did you make the decision? And you're like, okay, well, I'm personally, I'm doing this for my daughter's track team and for my family members, but now I want to branch out and I want to monetize what it is that I do so that I can have some additional assistance paying for my medicines or paying to go. Maybe I want to go to a specialist and my insurance is saying, well, we'll cover 80 or 70%, but I need a hundred percent. So let me monetize this so that I can have some additional income coming in. What made you decide and I'm so thank you for deciding that you know what I have to honestly say I don't think I made that decision.

Speaker 2: 13:58

I think the decision was made for me.

Speaker 2: 14:02

Because people said oh, you did that, oh, I need you to do this, you did that, oh, I need you to do it. So we kind of snowballed into I might as well create a business. I might as well, you know, and for a long time I worked part time and also did my business. But when I tell you it's something that I love, it's something close to my heart, and I want to make things that people can enjoy. I want to make things that make people smile. I want to make things that give somebody hope, whether it's something for awareness or whether it's just let me tell you, I do just about everything. Okay, yes, you do. I have not done that. I love doing it all, and it just makes me happy to see other people happy. It makes me happy to see the joy that people get out of the things that I can create with my hands.

Speaker 1: 15:07

Now, what I do want to ask you is this so you've done well with your crafting and we're going to show a few pieces before we leave for this evening or before we leave for this discussion. You've done crafting, done it personally, you've done it. You know, as far as monetization, you've been able to monetize off of it and you have a rare health condition which, once again, you stated earlier. You had to learn how to set boundaries and say no and no is a full sentence and say no without any explanation, because we know that you have.

Speaker 1: 15:46

A person knows that you have an illness, right, what should be happening is they should be, and they know that there are some things that they need. Ok, well, she might be not going through some stuff, and so for me to actually get this back from her in time, I need to give it to her in time so she can get it back, so in those days that she can feel good, she can continue to work. So how has that illness or that health condition I don't want to say illness how has that health condition, how has it impacted the way you, creatively, are able to keep functioning in that crafting atmosphere?

Speaker 2: 16:22

Yeah, so I would say, in these past three years I may have been hospitalized about four times and each time I felt like I was on the mend. I'm going up and then now I'm back down. I'm going up and now I'm back down. So, whereas it would take a normal person maybe three or four days to do something, well, I have to take into account that I may not be able to get out of my bed for a day. I may be tired, I may be weak, I may have to do something for my kids and once I go outside and I come back in, I'm done for the day. I need a nap, I need a whole recharge, I need a Coca-Cola, I need everything to get back into the swing of things. So that's the way it affects my business. I have to be mindful of the timeframe that I have to do things. So if somebody comes to me and say, hey, jewel, I have this order and I need it really quickly, I need to be able to identify how do I feel? Do I feel like I can actually physically complete this order in the amount of time that they need it? Physically complete this order in the amount of time that they need it, and if I can't, I have to tell you no, or I can tell you I can't do it in that time, but I can do it by this time. So I will say I do think I get my orders out pretty quickly, though I have less bad days now than I have had before. So I don't know.

Speaker 2: 18:05

I know we talked about it. I believe we talked about it, but at the end of 2023, I had spinal surgery and after that I had to close down my business for a little while because, of course, I couldn't go down the stairs, I couldn't bend over. I couldn't bend over. I couldn't do all these things that I love to do. So I did have to take a break from my business, and I do have to step back sometimes. Um, are they? Is this something that?

Speaker 2: 18:46

they like to do as well my son is not crafty at all. He is the smart one, not saying my daughter's not smart, but he is the the mind you know, he's all about schoolwork, all about his grades. And my daughter, she is really, really crafty, but she does not want to embrace it. She is actually better at me than a lot of the things that I do, but she won't, she won't embrace it. She actually just went to college this year. My daughter goes to Georgia State. She runs for their track team. She did get a scholarship to go run there, so she is out here enjoying and living her best life in atlanta. Okay, um, but um, yeah, she is very crafty, she, she, but she won't embrace it she won't embrace it yet.

Speaker 1: 19:39

So you're like okay, right, like what, mommy?

Speaker 2: 19:47

yeah, she's actually very, very good. She can look at colors and tell me if they'll go together, if they won't go together, if I shouldn't do that or if I should do that. She's actually better than me at a lot of stuff that I do. We'll see. She was going to school for nursing. Maybe she'll be the crafty nurse.

Speaker 1: 20:11

Hey, nothing wrong with that. Or maybe she could teach her patients that she's working with, how here's when they feel down and out or like let me show you how to do something to get their mind, you know. Okay, I could do that Right.

Speaker 2: 20:25

But you want to work with children, so that would be excellent Right up her alley Right.

Speaker 1: 20:30

Right up her lane. She doesn't know it yet, so we're going to watch. We're going to sit back and like, look at her and watch and then when she starts coming in and say, mommy, I showed the child how to do this, you're going to nod your head and say, baby, I know what's in you all the time. Are there any messages when you do your creativity? Are there any messages that you're trying to send to patients? Not even patients, but providers, the whole network? Is there any messages that you're trying to send?

Speaker 2: 21:03

To the providers like we just want to be heard, and sometimes that is more than like I can wait on my diagnosis if I feel like you're listening to me, hearing me, are you or are you just? You Are just so for me. I am overweight due to cortisol and when I go in, doctors just look and say, oh, you're fat. So everything that ever has to do with my body and it being messed up is because I'm fat. So I'm like we just want to be heard. I was telling the doctors. So Cushing's disease can cause a plethora of things. Some of mine include I have osteoporosis at the age of 39. I had a fat patch on my spine. So according to them, it's like oh well, you're fat, so lose weight and it'll go away. Well, at a certain point I became my walking. I couldn't. My mobility changed and I couldn't walk. And that's when I met the lovely Sandra and the first thing she helped me with was trying to get a wheelchair. And I'm like it's been a year. She's like well, why are you just not calling me? So she helped me through and I kid you not, it was like a month later I had my wheelchair and now, to this day, I sit in the crafting community because everywhere I go, I always want to build a community. I never just want to be somebody that's selling products online. I will always have a community. I will always advocate for people in their health.

Speaker 2: 22:57

And I recently started getting on TikTok and I follow a lot of creatives, a lot of crafters, a lot of people that do resin art, and I've noticed a lot of the Black women saying, oh, I have thyroid disease or I have fibroids or I have. And this is every woman that I'm coming across and I'm like, well, if all of us are having issues, what can we do to help fix this? So one of the ladies, she's on the live and she's like, yeah, I haven't had, I have, she had thyroid disease and she hasn't had her medicine. And I'm like, hey, I know you don't know me, but I know somebody that might can help. And I come off as the strange lady on TikTok trying to help.

Speaker 2: 23:55

But I'm like I know somebody that might be able to help and if I can't help, if I can't just be an ear, hey, I'm calling Sandra's like hey, this person got this issue. I gave them your number so they could call you. They need help Because we don't have anybody out here helping us. We don't have anybody to call when we don't understand what's going on with our health, or don't understand what's going on with this paperwork, or don't understand how to get through to insurance companies or how to get through the political red tape. And I thank you.

Speaker 1: 24:31

I thank you from the bottom of my heart for being that person, for us, you know, and it's like and that's actually one reason why, it's the main reason why we're hosting the Charms Many Helps Foundation is having the Unseen Health Summit on October 25th, in October, because we realized I realized personally that I had two sisters who passed away from. One passed away from a really rare condition and the other one passed away because she was gaslit, and so, on a daily basis, I'm talking to people who don't get it right, and they don't get it because nobody's educating them right. Like you just said, you're on TikTok and you hear, these women and all these women have all of these problems and nobody is listening and nobody really understands that this is what's needed. Right, we need to come together, we need to address some of these unseen conditions. We need to address some of those conditions that we know about, but we need to show people how to go and where to get help from, so that we're all not sitting around grieving. We're all not sitting around grieving, we're all not sitting around dying. We're all not sitting around worried about those people who have those conditions and saying I just feel like giving up.

Speaker 1: 25:47

We can give hope to people, which is why we are doing the Unseen Health Summit in October here in Chicago. Hopefully we'll be able to branch it on a global level. That's what we're working on right now. So hopefully we'll find someone that'll be able to branch it on a global level. That's what we're working on right now. So hopefully we'll find someone that will be able to come in and say OK, I could do that for you. You know I can control your Zoom while you guys are speaking. So that's a little bit about the reasoning why we're having the Unseen Health Summit. Next question I wish I could come to Atlanta and do that.

Speaker 1: 26:21

You know what, who knows, we may, we might start branching it off, which is another reason why I'm trying to do it on a global level, so that they know that, hey, this is something that we can do, we can share it, we can actually connect with those people that are in those other states or in those other countries to show them how to do it, so that this is an ongoing thing. This isn't a one and done thing. This is an ongoing thing, and so that's what, behind the scenes, we're working on. We don't know if it's going to pan out, but that's what we're working on is getting people to be able to see it, for, you know, full space. My other question to you is this, but before I actually ask you the last question, what I do want you to do is can you show us some of the lovely pieces that you've actually created?

Speaker 2: 27:08

Yes, oh, can I. Oh, here it is. I'm like well, didn't we go through this before we did okay, can you see?

Speaker 2: 27:25

yes, I'm gonna see I just prepared a few slides of some of the things I made recently. Um, I made a chess board. Um, I have several different sizes of chessboards on my website. I do make advocacy things with resin. These are some memorial barriers that I made my beautiful sister, aka fall of 2024, and I just made this recently for her, so that that was something close to my heart, and I love to do dominoes. If you play games, I gear a lot of things towards advocacy advocacy and Greek life. So I also do football, basketball, like whatever theme you can imagine I can create for you, and this is a labor of love.

Speaker 2: 28:36

Recently, I started making dominoes and I wanted to get into making dominoes for children With. This domino set is going to include five or six pages of math worksheets so that the kid can just practice and look at something nice and have fun with it. Let the kid can just practice and look at something nice and have fun with it. I make all types of tumblers. I work with a few companies, a soccer league and I just graduation. So I was fortunate enough to be able to create the things for my daughter's graduation. So here is books I made for her track team all the stuff I made for graduation for her as well as other people. But I use my daughter here because this year was special to me, because I did get to do all these things for my daughter and see her go to the next level. So I do all different types of crafts, as you can see here. So my website is shopcraftedwithtlc. On my TikTok it's craftedwithtlc, instagram and Facebook craftedwithtlclc.

Speaker 1: 30:26

That is all I have, all right, and so I thank you so much, and so my last question to you is this what advice would you give to someone who's newly diagnosed with Cushing's disease or any type of disease and is searching for a way to not live every day just you, you know at a stalemate, just like, okay, I'm just going to sit here and wait to die? What advice can you give them about staying active and staying busy?

Speaker 2: 30:50

Well, cushing's disease is one of those things that go under the table. We look and we say, oh, cancer is bad, oh, these things are bad. I want to say Cushing's disease is right up there on that list and you only have a few options. But know your options. Do your own research. There are different options as far as Cushing's disease versus Cushing's syndrome. There are different medications you can take to lower or raise your cortisol. There are different surgeries you can have. But know your options. I didn't know my options and that's one of the things I want people to understand. Find a community. I'm out here, we are out here.

Speaker 2: 31:50

If you put hashtag Cushing's disease, I'm almost positive You'll find a post of mine, a post of somebody's, because I use it on everything. So if you need help, reach out to people who are going through it, because doctors only know what they're getting taught out of a book. If you don't look like the picture of a Cushing person in a textbook, then to them you don't have Cushing. It's impossible because it's rare, but that's not always the case. You don't always get. One of the major signs of Cushing's is purple striae, and they get purple striae from being a Caucasian person. Their skin turns purple. Well, I'm not Caucasian, so you're not going to find purple straw egg, but you will find some dark brown ones. But because in the textbook it says it has to be purple. Now you just eliminated a whole race of people who now you don't have cushions.

Speaker 2: 32:58

So know your options, find a community and advocate for your rights. You know your body. They don't. If they don't believe in you, find you another doctor. If that doctor don't believe you, find you another doctor. If you need help understanding something, reach out to people like Sandra, like me, who can help guide you. I may not have the answers, but I can guarantee you I know somebody that does. Somebody reached out to me and said hey, do you know anything about Crohn's disease? I don't, but I have a friend who has Crohn's disease. I can get you in contact with her and she can help you out. So, and that's what the community is, a big part of it.

Speaker 2: 33:48

Unfortunately, people who are not chronically ill don't understand people who are chronically ill. So it'll be. You'll be hard pressed to find somebody who understands what you're going through, understands how you're feeling. It's hard because my doctor just told me recently this is a conversation that I haven't been able to have with you yet that I may be on steroids for the rest of my life, and that wasn't what I thought was gonna happen.

Speaker 2: 34:23

But now I have to pivot. So now I have to figure out. Okay, what test can I have done to tell me that? First of all, this is the case because I need you to prove to me but, um, I'm from the show me state. I need you to show me what you're talking about, cause it ain't making sense. But now I have to pivot and I have to figure out, okay. So what is my next step? How do I want to take the next step in my life with trying to figure out how to manage being chronically ill for the rest of my life, having to manage my energy levels with medication for the rest of my life? How am I going to get past that? And I take the advice that I give other people. I reach out to my community.

Speaker 1: 35:17

And thank you so much for reaching out to your community. And, once again, that's the reason why we're doing, why we're launching the Unseen Health Summit here in Chicago, because you are exactly correct, people that are not sick are not going to understand people that are sick. As a matter of fact, I often have to tell people that say, oh, that's not for me, okay, when is it going to be for you? Right, you have to stop. I mean, I'm glad I, the people who have no health conditions right now. I consider them to be extremely blessed. We're all blessed, but I consider them to be extremely blessed because they don't have to depend on medication. They you medication. My nephrologist tells me all the time Sandra, I don't have you on the medicine right now and I want to keep you off because I'm telling you right now, if I put you on medicine, you are going to stay on that medicine for the rest of your life. What it did was actually reinforce. What I'm often always told is that once they put you on medicine, it's going to be hard for them to take you off, for various reasons which I'm not going to get into today. But if someone wanted to reach out to me and say well, sandra, what are those reasons? I would be more than happy to discuss them with them, because it's a proven fact. But how do we stay off of it? We have to depend on each other. You could do it by yourself. You could be a patient on an island by yourself. You're only hurting yourself.

Speaker 1: 36:47

So podcasts such as the Patient Experience, speaking with Sandra L going and seeing who's on Facebook, as far as the groups, the health groups Going on LinkedIn LinkedIn is a good channel now that actually also has a lot of health channel your health groups that are on LinkedIn doing different things. So there are all different types of social media platforms that you can get on. But know this everyone listening, no matter when you're listening to it, june or myself are medical doctors. Dr Google and Mr Firefox are not medical doctors, you may say, but when I go to the doctor, that's what he be doing. He be in or she be getting on the internet, because they know what resources they can trust. They know that I can't go on wikipedia or I can't go on this other channel because it's a blog. It's not really peer-reviewed information, it's a blog. So your doctors are trained to know. Your doctors, your dentists, your clinicians are trained to know what sites are trustworthy and what sites aren't.

Speaker 1: 37:58

So please stop getting these diagnoses and running home and seeing what Dr, google, mr Firefox and all the other ones all their cousins say about your condition. And speak to people who have personal lived experiences so they can help you through the process. Every prognosis and every diagnosis is not a death sentence, and Jewel is not the only one that's showing that it's not a death sentence. There are others out there that are showing that it's not a death sentence. But because I know Jewel and because I believe in the work that she's doing and I've seen her go through her personal lived experience, I asked her and she always does she said, yes, sandra, when you want me, because she wants to tell the story to let other people know that these do exist.

Speaker 1: 38:44

What I do want to say is this Be kind always. I end every session with the same thing Be kind always. It's free, it doesn't cost a dime, a penny, it's free. Be kind always, as Jewel was saying when she was speaking. You know, when she goes to the doctor, even when she's not at the doctor, that's how she gets fat. They don't realize that there's a health condition that's causing her to be like that. So how hurtful and how harmful is it for you to say to someone girl, you just fat, lose some weight, are you pregnant? I mean statements like that when someone is dealing with already going through a health challenge, a health battle. Those things hurt, they hurt, and you don't have to hurt anybody. You can be kind, and if you can't be kind, walk the other way and don't say nothing at all. Don't open your mouth. If you don't know what's right to say, don't open your mouth, walk away, turn around and walk away and call it a day. You know.

Speaker 1: 39:47

One of the other things that I do want to add to the session before I close out is this a lot of what you spoke about, about. You know patients don't know and they feel alone and they, you know patients don't know and they feel alone and they, you know, what resources do we go to those? A lot of those issues will actually be discussed on our digital health learning platform that we will be releasing. We're hopeful that we can get it to market, get it to the public the first quarter of 2026. The courses are done. We're going through the user testing period, so we're really hoping that we will have it out to the public the first quarter of 2026.

Speaker 1: 40:29

But even with it out to the public, if you have questions, just ask. That's what I'm here for, that's what Jewel's here for is to ask those questions so that you're not going through these health challenges alone and that your patient experience questions, so that you're not going through these health challenges alone and that your patient experience becomes one that you know hey, yeah, I'm going through it, but I'm doing my thing. Uh, instead of yeah, you know, I'm just gonna go home, I'm, you know, I'm not feeling well, I'm just the downness. We don't need the downness, right, joel? Thank you, I appreciate you.

Speaker 2: 40:58

I wanted to show you something, so I asked you if I could donate something to your.

Speaker 1: 41:06

The health summit.

Speaker 2: 41:07

Yes, and I got these pocket hugs. I make these pocket hugs and they come in a little package like this and I have all different colors and I'll be getting I'm preparing them to get them out in the mail to you this week coming up. So, um, hopefully they'll be there for your summit and it's just a little token to tell people that somebody's thinking about you right, exactly, and that's what I said when you was like you know what, sandra, can I do some pocket hugs for you?

Speaker 1: 41:40

And I was like you know what? How many of us that are going to the doctor and facing different things, even not even going to the doctor, but I have a bad day how cool is it to actually reach in your pocket and feel a hug? I mean, it gives you hope and it gives you strength. I so thank you. The patients that will be there, the attendees I'm not going to say just patients, because we have others that will be attending, but they'll love it. Yeah, right, yeah, big hit, big hit. And so Delight Jewel is giving us an in-kind donation. If you have something that's in-kind and you're like Sandra, I don't live in Chicago, I'm not there, but hey, I think the attendees would love this, can I get it to you? Like Sandra, I don't live in Chicago, I'm not there, but hey, I think the attendees would love this, can I get it to you? By all means, please reach out. We're accepting monetary and non-monetary donations because we want this to be a success.

Speaker 2: 42:32

I appreciate you. Go ahead. I actually have a few people in the crafting community that would like to donate, so I will be giving them your information so that they can donate whatever's on their heart.

Speaker 1: 42:47

Okay, I appreciate you. We appreciate you from the bottom of our hearts. My goal is if I can reach one, like I said earlier, one patient makes me happy. If I can see the light go off in one patient's heart and in their eyes, it makes me happy. If I can see the light go off in one patient's heart and in their eyes, it makes me happy. Each one teach one, reach one. It's my mission and my goal. I thank you.

Speaker 2: 43:11

Thank you.

Speaker 1: 43:12

Have the rest of a good night.

Speaker 2: 43:14

You too.

Speaker 1: 43:16

And then we'll talk offline about that steroid situation.

Speaker 2: 43:19

Yes, ma'am.

Speaker 1: 43:22

Have a good one.

Speaker 2: 43:23

You too.

Speaker 1: 43:24

All right, bye.

Speaker 2: 43:25

Bye-bye.