Unifying Research
A podcast about bridging the gap between the business side and patient side of the research industry.
Each episode will feature two conversations - one with a research professional sharing their expertise, and the other with a patient or patient advocate diving into the patient's experience in research.
Our hope is that these conversations will spark further discussion and be an encouraging voice as we work to better connect patients with research.
Unifying Research
Unifying Research S2E1 - Patient Negative One and Christine Von Raesfeld
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In season two, episode one of Unifying Research, I had the pleasure of sitting down with a true research innovator and a rare disease patient with a fascinating story.
Our research expert this episode is Kaye Doiron, an innovator and serial entrepreneur, who is helping to redefine how we think about clinical trials. Whether it's her Patient Negative One concept, or her new AI-driven tool for research sites, Kaye understands how to take novel ideas and make them reality.
Our patient guest this episode is Christine Von Raesfeld. Christine is a rare disease patient who has used her lived experience, along with other advocates, as the foundation for the Patient AI Rights Initiative, which offers a clear framework to help individuals understand what the rise of AI means for autonomy, ethics, and trust.
Additional resources:
- Connect with Kaye Doiron on LinkedIn
- Connect with Christine Von Raesfeld on LinkedIn
- Learn more about Patient Negative One
- Learn more about Research Works Inc.
- Learn more about the Light Collective
- Check out the AI Rights for Patients Initiative
- Connect with Univo to learn more about our mission and services
- Learn more about Univo's partners working together to bring the patient's voice to research:
- Clinical Trials For All
- Savvy Cooperative
- Inspire
- Children's Flight of Hope
- The Patient View
- AAHRPP