The FL Community Podcast
Welcome to The FL Community Podcast, created for the community, by the community, where we discuss living with follicular lymphoma, with a particular focus on thriving beyond diagnosis, both physically and mentally.
The FL Community Podcast
E6: From Patient to Advocate: How Charlotte Built Lymphoma Out Loud
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In this moving episode of The FL Community Podcast the team sit down with Charlotte Cox — founder of Lymphoma Out Loud — to explore what it really means to self-advocate as a patient.
Charlotte was just 27 when, after two years of being misdiagnosed, she was told she had stage 4 follicular lymphoma. What followed was a journey marked by courage, persistence, and purpose. From fertility preservation and chemotherapy, through relapse and recovery, Charlotte has transformed her frustration at delayed diagnosis into a powerful movement for awareness and education.
BBC Radio 5's You, Me and the Big C:
https://www.bbc.co.uk/programmes/p0608649/episodes/downloads
Please send your comments, questions and feedback to:
theFLcommunitypodcast@gmail.com
Here are some other websites that might be useful:
Living with Follicular Lymphoma Facebook Group
The Follicular Lymphoma Foundation
Robert Miller's comprehensive collection of resources built over decades on how to live well with FL:
