Metabolically Speaking
Metabolically Speaking with Maridith Baker. Rare conditions, Real stories.
Living with a metabolic condition is about embracing more. More things you can do, more you can enjoy, and more adventures along the way.
Metabolically Speaking unpacks the perceived challenges facing individuals and families living with inherited metabolic conditions. Host Maridith Baker, who knows firsthand what it means to live fully with PKU, brings her unique spark, energy, and deep curiosity to every conversation.
Through expert interviews and real-world experiences, each episode blends metabolic knowledge with practical advice. Covering topics such as identity, relationships, mental health, advances in research and the ordinary moments that make life extraordinary.
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Metabolically Speaking
Advocacy, Community & Innovation – A Mom’s Journey with Lynn Paolella
Welcome to the very first episode of Metabolically Speaking!
We’re kicking things off with an inspiring conversation you won’t forget. Our first guest is a community advocate, leader, and founder of Cambrooke; Lynn Paolella.
In this episode, Lynn shares her experience on receiving not one, but two PKU diagnoses in her family and how those life-changing moments ignited the creation of Cambrooke, a global innovator in the field of advanced medical nutrition. She shares the highs, the lows, and all of the moments in between.
Joined by host Maridith Baker, we explore the defining moment that shaped Lynn’s journey into creating low-protein foods and formulas. From classroom anecdotes to huge milestones, Lynn shares her why. She delves into her desire to provide better, palatable nutrition options for her children and families living with inherited metabolic disorders, and how her and her husband’s mission was driven by love and determination.
At the heart of this episode is a powerful theme; community. Through cooking meet ups with other PKU Mom’s to working alongside healthcare professionals to develop good-tasting, low protein options, Lynn shares how building a community has been the secret ingredient in her story.
Lynn’s unwavering commitment to supporting families navigating life with rare metabolic disorders is nothing short of extraordinary. Whether you’re a parent, a patient, or just curious to know more, this episode is here to educate, inspire, and uplift.
If you'd like to know more about Lynn and Cambrooke after listening to this episode, you'll find resources and links in the show notes below. Thank you for being here with us from the very beginning.
Show Notes
Find out more about Cambrooke:
o www.linkedin.com/company/cambrooke-therapeutics
o www.instagram.com/ajinomoto_cambrooke
o www.facebook.com/AjinomotoCambrooke
• Get in touch with Cambrooke:
o metabolicallyspeaking@cambrooke.com
• Lynn Paolella:
o www.linkedin.com/in/lynn-paolella-a827b510
• Maridith Baker:
o www.instagram.com/phenylketonuriaandme
o www.linkedin.com/in/maridithbaker
o www.facebook.com/maridith.baker
• New England Connection for PKU and Allied Disorders (NECPAD):
• National PKU Alliance (NPKUA)
• Flok
• Patients and Providers for Medical Nutrition Equity
o https://nutritionequity.org/
• California Coalition for PKU and Allied Disorders
• E.S.PKU