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Metabolically Speaking
Metabolically Speaking with Maridith Baker. Rare conditions, Real stories.
Living with a metabolic condition is about embracing more. More things you can do, more you can enjoy, and more adventures along the way.
Metabolically Speaking unpacks the perceived challenges facing individuals and families living with inherited metabolic conditions. Host Maridith Baker, who knows firsthand what it means to live fully with PKU, brings her unique spark, energy, and deep curiosity to every conversation.
Through expert interviews and real-world experiences, each episode blends metabolic knowledge with practical advice. Covering topics such as identity, relationships, mental health, advances in research and the ordinary moments that make life extraordinary.
Subscribe to Metabolically Speaking and join a growing community breaking barriers and living without limits. Spread the word and leave a review - let’s help more people find these inspiring conversations.
Metabolically Speaking
7. Finding Her Voice in Early Adolescence With PKU with Norah and Staci
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Metabolically Speaking
Rare conditions, Real stories.
Finding Her Voice in Early Adolescence With PKU
With Norah and Staci
At 11 years old, Norah is learning to navigate early adolescence while living with
PKU - balancing school, friendships, jazz band, sports clubs, and the desire to
simply fit in. With support from her Mom, Staci, she’s building confidence and
independence as she learns to manage her condition and advocate for herself.
In this episode, Norah shares what it really feels like to grow up with PKU, from
sleepovers and celebrations to managing formula and explaining her condition to
others. Together, Norah and Staci reflect on how their family works as a team to
balance responsibility, independence, and daily PKU care.
Join us for this uplifting conversation on Metabolically Speaking, a reminder that
children living with PKU don’t want sympathy, they want understanding, normalcy,
and the chance to thrive on their own terms.
Show Notes
Find out more about Cambrooke:
- www.cambrooke.com/about
- www.linkedin.com/company/cambrooke-therapeutics
- www.instagram.com/ajinomoto_cambrooke
- www.facebook.com/AjinomotoCambrooke
Get in touch with us: MetabolicallySpeaking@cambrooke.com
Maridith Baker:
- www.instagram.com/phenylketonuriaandme
- www.linkedin.com/in/maridithbaker
- www.facebook.com/maridith.baker
Resources from Norah and Staci:
- NPKUA Mentor Program: Mentor | NPKUA
Metabolically Speaking
Rare conditions, Real stories.