This podcast is dedicated to raising awareness and sharing the voices of people living with rare disorders in New Zealand.
Around one in seventeen New Zealanders are affected by a rare condition. For many, finding answers and support can take years.
Here, we speak with individuals, families, and experts to help build greater understanding, connection, and support for the rare disorder community.
Thank you for listening and for being part of the Rare Aware journey.
For more information, visit www.raredisorders.org.nz
Alanna works in Engagement for Rare Disorders NZ and started Rare Aware to connect with more people in the rare community. As a mother of four, including two children with rare disorders, she brings personal insight into caring for someone with a rare condition and navigating the health system. Follow her and the speakers on this journey of bringing rare into the light.