Párkinson en primera persona: el testimonio del Dr. Alexis González

En este podcast de BeHealth, el Dr. Alexis González relata su experiencia viviendo con párkinson, desde los primeros síntomas hasta el proceso de adaptación, tratamiento y apoyo familiar. Una historia de resiliencia, fe y aprendizaje en primera persona.

Transcript

SPEAKER_01 0:00

Bienvenidos una vez más a Salud Desvida, el podcast de Vigel, un espacio in which patients, cuidadors and familiar encontrar claves, recommendations of destacados aluristas, consejos andar. The Parkinson ya no is a thing that impacts also to the population adult. In this podcast, the Dr. Alexis Gonzalez relates your experience living with this condition from the symptoms that alert to his family via the process of adaptation and trying to resilience, fear, and apprentice in which you don't understand.

SPEAKER_02 0:57

And it starts with the doctor Alexis Gonzalez Valle, who enfrenta a diagnostic of Parkinson.

SPEAKER_00 1:12

Fui diagnostic with Parkinson at the end of six, six años aproximadamente, Orlando, Florida.

SPEAKER_02 1:18

En Orlando, Florida. Vamos a empezar con las preguntas para yo poder entender bien el diagnóstico. Cuando usted me dice que los primeros symptomas, ¿cuándo notó?

SPEAKER_00 1:36

Mira, the prime symptomas, the gente of my family, especially my herman, my papa, empezed cambios in me and my caminar. And when you say that when we caminhamos, the movement of the brand is involuntary. This is the term medical, the bradiquinesia, movements less for initial movement. And the people said what is coming from trincount. I said that there were problems that you were doing gimnasio, that were a little bit of the muscular. But as long as the years, 2017, 2018, my scripture. I started to have problems of disbalance, much attention in the muscles of the river. Not at the day of the day I started tremors, the temblor in replay. My type of parking is akinetic, which affects what I went at the moment, brakinesia, which are movement less. So in Puerto Rico, for this time I was in Puerto Rico, I went to visit neurologics and said, No, you are very happy for doing this, you have anxiety. I started studying medicine, I had my connection and said, This is not anxiety, it's not different. I went to neurólogers in Puerto Rico, in the area that I was in the world. So I said, No, this would be true. I decided, I didn't see it for trying to symptomatology, but not with diagnostics final. So I sent a good time. And I started the symptoms, and lent and lent, and combined, and the gentleman what happened, and I was a neurologist, puertorrique, who had a DAT scan of the cerebral scan, and effectively the car of the deficiency of dopamine in my cerebral, and I'm the diagnostic of Parkinson's 2020. Fue chocante, it was chocolate, especially with the three nights that have my family. I try to be very active in what I do for my department, I've been balancing. Actually, I'm going to play picking up my exercise, I try to come salvage. But yeah, I'm letting the process and a whole day, what siente or the person looks like?

SPEAKER_02 4:26

Yo me digo que no tiene tremors.

SPEAKER_00 4:34

When the dopamine está decayendo, I empiezo a rescribir very lentamente in the celular, me pongo un poquito tarde, like stiff, and more lento in my movement, and me that much of that. But actually, the tratament that I live at skin patch, unchanged, that I cambio. It's the more trust that I have been, where the absorption of bitopamina is absorbed for 24 hours, and this pancho yo cambio diariamente. It's more, a vehicle you bloqueo la enfermedad, gracias a Dios, because siendo que no la tengo, but yeah. I have much días where I muevo much, and the person, estate quiet, me dicen que no me puedo. Andas, ¿verdad? La presentación de Parkinson para todos los pacientes are different. Como te digo, aquí no have tremor hasta el día de hoy, pero sí me affect muchos movimientos lentos. ¿Y qué strategies for the quality of the stream? Pues actually I try to get me active, as I said, I have much pickeball, like a pico, which I do. And I try to do my work in my car. I try to jump on my dad, trying to come salad from the carbohydrates, the carbohydrates are refined. I don't have a diet specific, but I try to come the more, and I'm active the more I could have active, so it's all the things that the issue. You have been delgado, right? And you think that this is one of the beneficias that you have in front of my life, is delgado, right? The diet is very specific, but the absorption that you come is what you absorb. And it's much, like trash food, much sort of cambio when you come much fast food and those things. ¿Cómo has impactado esta enfermedad towns? Pues mira, I have a niña of 6 años, un niño de siete y una niña de 15. Ellos obviamente son chiquitos, no conocen, but me ven todos los días con el pacho y me han preguntado, ¿qué es eso, papi? Yo veo, mira, papi, eso es una curita que papi tiene que necesitar para seguir trabajando andas, and they enter the process, right? Todos saben el proceso de lo que estoy pasando, but actually, como te digo, he tratado de darle el máximo mentally para no caer en una depresión y todas estas cosas.

SPEAKER_02 7:07

Pues estos pacientes de Parkinson, muchos de nosotros, pues caemos lo que es la ansiedad y la depresión. ¿Cambió su vision sobre los pacientes con enfermedades crónicas después de convertirse en pacientes?

SPEAKER_00 7:19

Pues mira, a todos los veo de differentos, depends of these conditions. When you're since diagnostic, solamente me dice, I have estos temblores, no, yo empecé a preguntar examen neurologics creo. Aunque el neurologo es el diagnóstico final, but I would obtain much conocimiento sobre la property, porque me han mantenido leyendo ando informado sobre los beneficios and los tratamentos that would occur in the future for the pacified Parkinson. ¿Qué crees que los profesionales de la medicina, siendo usted también doctor, deberían entender more con Parkinson? Aquí yo con mi mayor in esa pregunta que tú me estás haciendo, yo diría mantener la calma y la paciencia, because muchas veces we desesperamos, and we have this condition, for example, my casual, quiero doblar las ropa rápido, un ejemplo basic, and no puedo porque las manos como que se me trancan, right? But in this case, the activity, you know, the activity physically is the most important, not permane much time in sedentarismo, because you think that these conditions are movement. I think enfrent the environment, depending on the type that they are.

SPEAKER_02 8:44

I'm going to enjoy a message to people who are recently diagnosticated, and a message to families and patients.

SPEAKER_00 9:03

Actually, I'm happy, it's a benefit for now in front of my condition, right? But I've had patients who are 70, 80, who are in etapas avancing, and the car that have sponsors and families over those patients is very important because patients don't publish a move, they live answered to the officer, darling because they cause laser. But you have to have pacify with me, enter me. De hecho, you say that when you go to a little bit delicate in my man, because I'm a risk that me published, the things of my man. It's mantra law, esos familiares, you know that it's fuerte, but you think that the proposal that one has in the life, you are one of the who descanso since cumplir my proposal, what I have, right? Aunque me hago arrived, but I do the máximo, and it's a patience and entendment and orientation about the condition because when this is part of the process, we have to approach it. Because no one can be sorry, but because they are doing so, much conlisten a travel of the condition to reaction to different manas.

SPEAKER_02 10:24

Much humanity.