Marionette Doll's

In Awe of your Tism

Marionette Dolls

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In today’s episode, we explore the beauty, challenges, and strengths of raising and loving children on the autism spectrum. We discuss real emotions, real struggles, and real hope. This conversation is meant to validate families who feel overwhelmed, unseen, or unsure where to turn next.

Whether you are a parent, caregiver, educator, or someone seeking to understand autism better, this episode serves as a reminder that community, education, and support change everything.

We cover:

  • What autism really looks like in everyday life
  • Breaking stigma and misconceptions
  • Emotional burnout in caregivers
  • Why asking for help is an act of strength
  • How community and advocacy empower families
  • The importance of mental health support for parents

If you’re listening and feel like you need support, guidance, or even just a place to start, you are not alone. Some organizations and people exist for this exact reason. Reaching out is not a weakness. It’s care.

Resources Mentioned in This Episode:

🧩 Autism Society of America
Education, advocacy, and local chapter support.
https://autismsociety.org

🧠 CDC Autism Information Center
Up-to-date information on autism, diagnosis, and early intervention.
https://www.cdc.gov/autism

🤝 Parent to Parent USA
Connects parents with other parents who understand.
https://www.p2pusa.org

📚 Wrightslaw (IEP & Special Education Advocacy)
Understanding IEPs, special education law, and how to advocate in schools.
https://www.wrightslaw.com

💙 NAMI – National Alliance on Mental Illness
Support groups and education for caregivers experiencing burnout, anxiety, or depression.
https://www.nami.org

🏥 SAMHSA Treatment Locator
Find mental health and behavioral health services near you.
https://findtreatment.gov

📞 United Way 2-1-1
Local support for:

  • Therapy
  • Respite care
  • Financial assistance
  • Food and housing support
     Dial 2-1-1 or visit https://www.211.org

👨‍👩‍👧 Family-to-Family Programs
Support and education for families navigating disabilities and mental health systems.

Call to Action:
If this episode spoke to you, please share it with someone who may need encouragement today. Leave us a review, subscribe, and remember: you are doing enough. You are seen. You are not alone.

 💌 Submit your stories to marionette.dolls.podcast@gmail.com for the bonus content, like my strange addictions, ghost stories, and weird things you can't explain by science. 

* Remember, no politics or religion. This is the boundary we have set for our podcast, so respect that. 

If you would like to submit a personal story, please make it known that you do not want your name read on the episode and put in what you are discussing, for example, domestic violence, autism, adhd, etc., to give us an idea of where we can use the stories in future episodes. 

If you want to check out Alaina's YouTube, which was mentioned in one of the stories, please look up @kimiko_1247

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Crystal

Welcome back to the dollhouse.

Sarah

I'm Crystal and I'm Sarah and we are the Marionette dolls.

music

Make Danger feel like a little teacher. I didn't remember applauding your little plan.

Crystal

This episode talks about parental grief, emotional exhaustion, identity shifts, and the complicated feelings that come after an autism diagnosis. We speak with deep love and pride for our children. If this topic feels heavy for you today, it's okay to pause, come back later, or take care of yourself in whatever way you feel.

Sarah

So this episode is called In Awe of Your Tism because sometimes talking about autism makes you feel sad. My child was diagnosed. I didn't feel one thing, I felt everything. Relief, fear, grief, love, confusion, guilt, hope. All of it showed up at the same time. Like my nervous system couldn't decide what emotion was correct. So it just opened the door and let them all in.

Crystal

I remember thinking, why am I grieving if I love my child this much? That was the first moment I realized nobody talks about this part. We talk about advocacy, we talk about strength, we talk about unconditional love, but we don't talk about the quiet sadness that can sit right next to that love.

Sarah

Because grief feels like something you're only allowed to have when you've lost someone. Death, absence, endings. And our children are here. They're alive, they're beautiful, they're ours.

Crystal

So when sadness shows up, it feels wrong. It feels like you're betraying your child just by admitting it exists.

Sarah

But what you're actually grieving isn't your child. You're grieving a story. The story you were handed about how parenting is supposed to go, the milestones, the timelines, the picture of quote unquote normal that society gives us without asking it to fit.

Crystal

And letting go of that story hurts, even when your child is perfect, exactly as they are.

Sarah

There's a term in psychology for this kind of grief. It's called ambiguous loss. It's grief without closure. There's no funeral, no final moment, no point where someone tells you, okay, it's done. It just stays. It shows up in waves, at birthdays, at school, transitions, and moments when you realize something might look different for your family.

Crystal

Sometimes it surprises you. You think you're okay, and then something small happens and your chest tightens for no clear reason.

Sarah

That's ambiguous loss. It's not failure. It's your nervous system adjusting to the future that doesn't match the one you imagined.

Crystal

It doesn't mean you're ungrateful. It means you're human.

Sarah

For me, that diagnosis didn't just change how I saw my child. It changed how I saw myself as a parent.

Crystal

Same. It was like parenting manual in my head just got ripped up and replaced with blank pages.

Sarah

Everything I thought good parenting meant had to be rewritten.

Crystal

And nobody prepares you for parenting that doesn't fit the template. You don't get a new rule book. You just get responsibilities.

Sarah

And pressure. So much pressure to get it right.

Crystal

I remember feeling like I was standing between two truths. One, my child is incredible. The other was, this is harder than I ever imagined.

Sarah

And those truths don't cancel each other out. They exist at the same time.

Crystal

But people act like they shouldn't. Like if you admit it's hard, you're saying something negative about your child.

Sarah

And you're not. You're saying something honest about the weight of responsibility, the lack of support, and the expectations placed on a parent. There is nothing wrong with you feeling grief and lether.

Crystal

There's nothing selfish about mourning a version of life you were told to expect.

Sarah

You're not grieving your child.

Crystal

You're grieving the story.

Sarah

And that grief deserves space. There's another layer of this that doesn't get talked about enough. And that's how much this changes your mental health as a parent. Not because something is wrong with you, but because your nervous system is suddenly carrying more responsibility than it has before.

Crystal

It's like your brain never clocks out. Even when you're resting, part of you is still scanning. Did I miss something? Did I advocate enough? Did I say the right thing? Did I push too hard or not hard enough?

Sarah

Research consistently shows that parents of children on the spectrum experience higher levels of chronic stress, anxiety, and depressive symptoms than parents of neurotypical child. Not because they love their children less, but because they demands are higher and more consistent.

Crystal

That was validating for me when I learned it because it meant I wasn't weak. I was just overloaded.

Sarah

Burnout isn't a personal failure. It's a nervous system response to sustained pressure.

Crystal

There's also this identity shift that happens. You're not just a parent anymore. You become an advocator, a scheduler, a case manager, a researcher, a translator between your child and a world that doesn't always understand them.

Sarah

You become the bridge.

Crystal

And bridges carry weight.

Sarah

And bridges don't get to collapse.

Crystal

So you learn to hold yourself together quietly.

Sarah

In bathrooms, in cars, late at night when everyone else is asleep.

Crystal

This is where resentment can show up, and people feel so much shame around that word.

Sarah

But resentment isn't about your child. It's about the loss of ease, the loss of spontaneity, the loss of support.

Crystal

It's about realizing your life will require more planning, more energy, and more emotional labor than you ever expected.

Sarah

And you're allowed to grieve that without feeling like you're rejecting your child. For me, being a mill-to-mill family added another layer of weight. There were moments when I felt like I was constantly negotiating between being a good service member and being a good parent. And there were so many times where I had to fight to advocate to be able to go home to take care of my kid, to get them to their appointments, to take it to ABA and to do all these different things, working around the clock. And there was at one point I had a service member supervisor that told me that they wouldn't cater to my Rward child. I don't know where they got the goal to say that, and I don't know why at that time I didn't punch them out, probably because I didn't want to lose rank. But that hit me hard because they would say we would rather you get out of the military than us have to deal with scheduling you for your child's special needs. And that was really hard. And the constant pressure that had was t was horrible.

Crystal

It's such an impossible position to be in.

Sarah

Because both roles matter, both are important, but only one of them sees your child. Because there isn't a flexible parent. There are two people who carriers demand presence, composure, and emotional containment.

Crystal

There's no automatic default caregiver.

Sarah

Grief doesn't get space, it gets scheduled or postponed or swallowed.

Crystal

You're expected to show up strong at work and then show up emotionally open at home. That emotional switch is exhausting.

Sarah

And sometimes it feels like leadership understands appointments, but not grief. Paperwork, but not emotional cost.

Crystal

They see calendar blocks, but they don't see the nervous system. And for me, the salon brought a different kind of pressure. Time off is money loss. And it's not just my schedule I was having to worry about. It was everybody else's too. My co-workers, my clients. I can't just take time off because they're also taking time off to come see me to get their hair done. They have to move things around. They have their own schedule, their own appointments. I'm responsible for not only my time in my space, but as well as theirs.

Sarah

Exactly. There's no sick leave for grief.

Crystal

And on my side, people think being self-employed means flexibility, but sometimes it means if I don't work, we don't get paid.

Sarah

There's no paid leave of emotional overload.

Crystal

Exactly. When your child needs you and your bills need you, your body feels split in half.

Sarah

There is no flexible paycheck.

Crystal

And there's guilt either way. If you work, you feel absent. If you stay home, you feel irresponsible.

Sarah

So you're always choosing between parts of yourself.

Crystal

This is why so many parents feel like they're failing at everything.

Sarah

But they're not failing. They are juggling impossible expectations.

Crystal

The system asks for perfection. Parenting asks for presents, and nobody gives you more hours in the day.

Sarah

You are not weak for feeling tired.

Crystal

You are not broken for needing rest.

Sarah

You're responding to an impossible workload with love.

Crystal

And that takes strength. Most people never have to develop.

Sarah

There's another part of this that we don't talk about enough, and that's how autism diagnosis doesn't just enter a family. It enters a marriage or a relationship or partnership. It changes the way two people move through stress together.

Crystal

And not because love disappears, but because pressure can multiply.

Sarah

Research shows that parents raising children on the spectrum experience significantly higher levels of relationship stress than parents of neurotypical children. Not because they're weaker couples, but because they're caring more.

Crystal

More appointments, more paperwork, more financial pressures, more emotional labor, and way less time.

Sarah

One large study found that parents of children with autism reported lower overall relationship satisfaction compared to parents of children with their other disabilities and parents of neurotypical children. And that's important because it tells us that it isn't just parenting stress, it's intensity of the advocacy role.

Crystal

You're not just raising a child, you're constantly negotiating systems, schools, therapies, insurance, schedules, and the level of responsibility drains connection if there's no space to recover. Sometimes you stop being partners and start being roommates.

Sarah

Yeah. Two people managing logistics instead of sharing a life. Yeah. Two people managing logistics instead of sharing a life.

Crystal

You talk about calendars, therapies, bills, transportation.

Sarah

Not dreams, not rest, not intimacy, just survival. Another thing research shows is that stress affects partners differently. One person might move into a problem-solving mode, and the other might move into a super emotional processing.

Crystal

One might want to talk a lot, and one might want to just be quiet.

Sarah

One wants action and one wants comfort.

Crystal

And when those coping styles don't match, distance can grow.

Sarah

But distant doesn't mean lack of love.

Crystal

It means exhaustion.

Sarah

It means both people are running on empty.

Crystal

And sometimes you grieve alone, even inside your relationships.

Sarah

Not because your partner doesn't care.

Crystal

But because you're both drowning in different ways.

Sarah

You don't have the energy to hold each other's grief when you're barely holding on to your own. In middle-to-mill families, that strain is amplified because emotional containment is part of the job. You're trained to be composed, mission-focused, and resilient.

Crystal

But grief doesn't respond to rank.

Sarah

And relationships don't r run on discipline alone.

Crystal

For self-employed parents, the pressure looks different, but feels just as heavy.

Sarah

Because financial survival is always in the background.

Crystal

You're trying to keep a business alive while also being emotionally present at home.

Sarah

That's not balance, that's endurance. The important thing to say here is this autism doesn't break marriages.

Crystal

Unprocessed grief, isolation, and overload do.

Sarah

And those things need support, not shame.

Crystal

Research also shows that when couples have access to support, shared caregiving, and communication tools, relationship satisfaction improves over time.

Sarah

Not because life gets easier.

Crystal

But because they stop carrying it alone.

Sarah

You start learning how to say I'm tired instead of I'm fine.

Crystal

And how to hear it without being defensive.

Sarah

You stop seeing each other as a problem.

Crystal

And start seeing stress as the problem.

Sarah

If your relationship feels quieter, flatter, or more logistical than romantic.

Crystal

That doesn't mean the love is gone.

Sarah

It just means the love is busy holding everything else together.

Crystal

And love like that deserves respect.

Sarah

One of the hardest things to accept is that no one is coming to the rescue for us. There isn't a moment where someone taps us on the shoulder and says, Okay, you carried it enough. We'll take it from here.

Crystal

There's no finish line, just adjustment.

Sarah

An adjustment sounds gentle, but it's actually a cycle of grieving and rebuilding.

Crystal

You let go of one version of the future and then you build another one.

Sarah

And then sometimes you let it go again and build again. Is that why I like Legos so much?

Crystal

There's where a lot of parents feel confused about why emotions keep resurfacing. Like, didn't I already accept this?

Sarah

But acceptance isn't a single event, it's a practice.

Crystal

It's something you return to.

Sarah

Every time you return to it, you're doing emotional labor no one else sees. There's something powerful that happens when you stop fighting reality and start working with it.

Crystal

Parenting shifts from how do I fix this to how do I support my child inside of this?

Sarah

That doesn't mean you give up hope. It means your hope matured.

Crystal

It become more grounded, more compassionate, and more real.

Sarah

Your definition of success changes too.

Crystal

It stops being about hitting milestones on someone else's timeline. It becomes about safety, connection, communication, regulation.

Sarah

Small victories become huge.

Crystal

Moments of calm.

Sarah

Moments of laughter.

Crystal

Moments where your child feels understood.

Sarah

And pride changes shape.

Crystal

It gets deeper.

Sarah

You're not proud because something looks impressive.

Crystal

You're proud because your child is trying in a world that asks more of them.

Sarah

That's a different kind of pride.

Crystal

And it shouldn't need applause. But it does. Small wins.

Sarah

Small wins, exactly. We want to say this directly to everyone and every parent listening.

Crystal

You're allowed to mourn what you thought your life would look like.

Sarah

You're allowed to feel sad and grateful in the same breath.

Crystal

You're allowed to feel tired and still be a good parent.

Sarah

Those things do not cancel each other out.

Crystal

If no one has told you this yet. We're all human.

Sarah

If today you feel like you're barely holding it together.

Crystal

That doesn't mean you're failing.

Sarah

It means you're carrying something heavy with love.

Crystal

We also want to honor the parents who are doing this without enough support.

Sarah

The ones who don't have flexible jobs.

Crystal

The ones who don't have understanding leadership.

Sarah

The ones choosing between time and money.

Crystal

Between rest and responsibility.

Sarah

You are not weak for feeling stretched.

Crystal

You're responding to impossible expectations with courage.

Sarah

For the couples listening.

Crystal

You're not distant because you stopped caring.

Sarah

You're tired.

Crystal

You're overloaded.

Sarah

You're surviving.

Crystal

If your relationship feels quieter for more logistical than romantic.

Sarah

That doesn't mean love disappeared.

Crystal

It means love is busy holding everything else together.

Sarah

This episode was never about sadness alone.

Crystal

It was about honesty.

Sarah

It was about permission.

Crystal

Permission to grieve.

Sarah

Permission to rest.

Crystal

Permission to love without pretending everything is easy.

Sarah

Your child is not a tragedy.

Crystal

Your child is a person.

Sarah

A whole, worthy, complex human.

Crystal

And so are you.

Sarah

You are not behind.

Crystal

You're not doing this wrong.

Sarah

You are adapting.

Crystal

And adaptation is strength.

Sarah

So if all you did today was show up, that's enough. If all you did was try, that's enough. You're allowed to take this slowly.

Crystal

You're allowed to change your mind.

Sarah

You're allowed to grow alongside your child.

Crystal

We don't need perfect parents.

Sarah

We need present ones.

Crystal

And if no one has said it to you yet today, you're doing better than you think. We see you.

Sarah

We honor you.

Crystal

And we're walking this with you. When we talk about being in awe of your tism, we're not just talking about diagnosis or clinical language. We're talking about real families, real parents, and real moments where something finally clicks into place. And sometimes that moment isn't grief, sometimes it's relief. This next story was set in by a listener, and it's such a powerful reminder that a diagnosis doesn't always close doors. Sometimes it opens them. Sometimes it gives language to what someone has already known in their hearts for a long time. We're so grateful they trusted us with this, and we're gonna hold it with care. Sarah's gonna read it for us.

Sarah

When I found out my son's diagnosis, I think instead of denial or grief, I finally experienced the opposite relief. I finally felt seen, heard, and understood after advocating for so long. Not much has really changed for us, as he's already been in therapies and seen specialist after specialist for other medical needs. We didn't need the label for us, but everyone else, because the label made it easier for the world to understand him. This is what we needed: a language that someone else or other specialists, nurse, new people would understand. It opened doors for us rather than close them. My son is perfect the way he is, and life has had to change, but everyone has to adapt and change when they have children. Our adaptation and routines were just different than everyone else's or those with neurotypical children. I appreciate my son's differences. The milestones were cherished a little bit more, anticipated a lot a little longer, a lot of. There's still more excitement waiting every day. I never pictured myself to have kids as a teenager, let alone with special needs. However, he was just what we needed. Don't get me wrong, the therapies were and are tiring. The constant battle with insurance, phone calls, and doctors is an endless battle. They burn me out at times. But I think the biggest thing for me are the trips. Not for fun, but for medical things. And not having the finance do the fun things because medical things are expensive. Those are things I grieve the most. And these are things that are not unique to children with autism, but are broader and apply to all special need parents. It takes a lot longer to buy a home, go on fun trips, etc., because medical is a priority, which sucks, but the diagnosis itself didn't carry grief. It caused relief. It's just a hard realization that we have to work harder to get the same things as everyone else, like understanding, or the extra work that goes into typical family events. But it just makes it more meaningful, more cherished. Having my son slowed me down and made me so much more appreciative of other things. As a teenager, that's what I needed. The diagnosis came with a roller coaster for emotions. But when it comes to life itself, changes happen constantly and eventually just balance out. The next story was sent in by a good friend of mine who was willing to do a sound bite and tell her story of advocacy and helping her daughter with her diagnosis and kind of how she felt through the process.

Nichole

So I'm gonna pass it over to Nicole. My name is Nicole, and my daughter was diagnosed with pervasive developmental disorder when she was four years old. She got her diagnosis in 2012. And we were living in a small town in Downe's Maine. And when we got the diagnosis, we didn't have the support that we have now. It was very difficult to explain to people about her diagnosis because we were met with different things. It was because I was such a young mom. I had Alena when I was 18. It was the food that she ate. It was she was undisciplined. We heard it all. And it was incredibly frustrating. Trying to explain to people what we were going through was a challenge because, again, it wasn't something that a lot of people talked about. We had ABA therapy, we had services all over the place. She had accommodations, an IEP, she had the weight at best, she had sensory bins, she had everything that you could think of. She was diagnosed on top of the PDD with echolelia, sensory processing disorder, in line twitch, and ADHD. It was it was definitely challenging. And it's crazy to think that that was 14, 14 years ago, and we have come so far now. I was told that Elena would need accommodations, possibly for the rest of her life. And that news, it about broke, it about broke me and her father. But we we knew that we wanted to give her a good opportunity. We wanted to treat her just like everybody else. And so we learned how to work with Elena. And it wasn't always easy, definitely was a challenge. But here she is. My baby just turned 18 and she's getting ready for college. She has done amazing and exceeded any of our expectations. She has managed to hold down a job and she has her license. There are still some things that we're working on, like money management and understanding coins and that kind of thing. But it's things that we can work on. This is definitely much more than what we were told years ago. And it is absolutely wonderful to see the kind of communities that are available now, the resources, the podcasts, YouTube videos. There's just so many things out there. I think that that is incredibly important being a parent of a child diagnosed with any of these disorders. It you're definitely not alone. There are so many things that that go overlooked. And I mean, we could go back and forth on so many different theories as to why this happens, but at the end of the day, it's kind of like a superpower. And I feel like it's really safe to say, or at least in our case, Elena is kind of like a superhero. A lot of kids that we've met with similar diagnosis are as well. Elena, she struggles in some areas, but she thrives in math and creative on things. Like she's got a YouTube series, and she art has been her thing since she could pick up a pencil. But then there's other areas like social interactions. Elena's facial expressions don't match how she's feeling. And even as her mom, there are often times where I have to ask her, hey, Elena, are you okay? Like, are you are you mad? And so I mean there are some things that we are still working on, but again, I'm so glad that we didn't we did not follow the path that we were we were given. We kind of went off course, we paved our own way, and we are, I believe, right where we need to be. And that's so important. Just because somebody tells you something doesn't mean that that's you know, that's locked in and that's concreted in. Find what works for y'all, go that way and just trust, trust the process. Nobody knows your kid better than you do, and that's gonna show. Later down the line, it's definitely gonna show. And no matter what, whatever you're going through, you definitely got this.

Crystal

If you're listening and you feel like you need support, guidance, or even just a place to start, you're not alone. There are people and organizations that exist for this exact reason. Reaching out is not weakness, it's care. The Autism Society of America offers education, advocacy, and local chapter support, a great starting point for families looking for community and resources. The CDC Autism Information Center provides up-to-date information about autism, diagnosis, early intervention, and developmental milestones. Parent-to-parent USA connects parents to children with disabilities to other parents who understand emotional support from people who have lived it. Rights Law, Education, and IEP advocacy, essential resources for understanding IEPs, special education law, and how to advocate in a school system.

Sarah

NAMI, National Alliance of Mental Illness, support groups in education for caregivers experiencing anxiety, depression, or burnout. Sam Hasa, which is S-A-M-H-S A, Treatment Locator, finding mental health and behavioral health services in your area, including family and caregiver services. United Way 211 helps connect families with local resources for therapy, respite care, financial assistance, food and housing support. Family-to-family health information centers provide support navigating health care systems for children with special health care needs. Early Child Technical Assistance, ECTA Center, provide resources on early intervention services and how to access them in your state. These resources exist because none of this is meant to be done alone. Parenting, advocating, navigating systems, carrying the emotional weight, that's not something one person is supposed to handle by themselves.

Crystal

Needing support doesn't mean you're failing. It means you're protecting yourself. It means you're protecting your family. It means you're choosing care over burnout.

Sarah

And everyone who shared their story with us today, and every listener who saw themselves in these stories, thank you for trusting us with something so personal.

Crystal

Listener stories matter. They remind us that behind every diagnosis is a human being, a family, a parent, doing their absolute best with what they have.

Sarah

If today's episode stirred something in you, let yourself feel it. Take a breath, reach out if you need to. You don't have to hold everything by yourself.

Crystal

And if you're walking this path, whether you're a parent, a caregiver, a grandparent, or someone on the spectrum yourself, we see you. Your efforts matter, your love matters.

Sarah

This is what the Marionette dolls is about cutting the strings of shame, isolation, and misinformation.

Crystal

And replacing them with understanding, compassion, and connection. Thank you for being here.

Sarah

Thank you for listening. And thank you for being a part of this space. We'll see you in the next episode. Until then, take care of yourselves and take care of each other.

music

Okay, bye. Make wrong feel beautifully to blame.

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