Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care.
Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope.
Ownership & Support:
Hidden Diagnoses Impact is owned by Wang-Hiller LLC and licensed to InclusiVibe Foundation for presentation and distribution. Podcast sponsorships support InclusiVibe Foundation's charitable mission and are tax-deductible.
Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges
In this episode of Hidden Diagnosis Impact, Christina shares her powerful journey living with Ehlers-Danlos Syndrome (EDS) and the complexities of navigating a healthcare system that often overlooks rare conditions.
Christina opens up about her early symptoms, the pain of repeated misdiagnoses, and the emotional toll of being dismissed and mischaracterized by doctors. Her story sheds light on the physical challenges of EDS, from spinal instability to brainstem complications. Christina has redefined recovery, seeing it as a continuous process of adaptation and self-care rather than a cure.
Highlights:
YouTube full interview:
Please follow us on social media @HiddenDiagnosesImpact, watch the video format on YouTube @hiddendiagnosesimpact
Support this podcast and the mission of our forming nonprofit, which aims to raise awareness of complex neurological conditions like CCI and EDS, uplift disabled artists, and spark systemic change in both medicine and the creative world:
https://inclusivibe.betterworld.org/donate
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