Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care.
Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope.
Ownership & Support:
Hidden Diagnoses Impact is owned by Wang-Hiller LLC and licensed to InclusiVibe Foundation for presentation and distribution. Podcast sponsorships support InclusiVibe Foundation's charitable mission and are tax-deductible.
Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Part 2: Systemic Failures and Hidden Diagnoses: Dr. Hillary Merry’s Advocacy
In Episode 5, Part 2 of Occult Awareness, Dr. Hillary Merry continues her deep dive into the critical issues of Craniocervical Instability (CCI) and systemic medical neglect.
Part 2 of the conversation, Dr. Hillary Merry continues to uncover the hidden flaws in the medical system, focusing on how often critical tests are dismissed, and the consequences this has on patients with conditions like Craniocervical Instability (CCI). She highlights the systemic negligence that leads to misdiagnosis and even tragic outcomes, sharing stories of patients who have been failed by the healthcare system.
Key points discussed in this episode include:
- The pervasive game of telephone in medical record-keeping.
- The systemic issues cause doctors to avoid certain tests.
- Real-life impacts of dismissing patient symptoms.
- Dr. Merry’s personal motivation and advocacy work.
This eye-opening episode is a must-listen for anyone interested in understanding the deep-seated issues within our healthcare system and the importance of advocating for unheard voices.
Please follow us on social media @HiddenDiagnosesImpact, watch the video format on YouTube @hiddendiagnosesimpact
Support this podcast and the mission of our forming nonprofit, which aims to raise awareness of complex neurological conditions like CCI and EDS, uplift disabled artists, and spark systemic change in both medicine and the creative world:
https://inclusivibe.betterworld.org/donate
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