Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care.
Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope.
Ownership & Support:
Hidden Diagnoses Impact is owned by Wang-Hiller LLC and licensed to InclusiVibe Foundation for presentation and distribution. Podcast sponsorships support InclusiVibe Foundation's charitable mission and are tax-deductible.
Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Part 1 of Dr. Hilary Merry’s Journey with EDS: Navigating the Healthcare System as a Veterinarian
In this episode of Occult Awareness, we explore the personal and professional life of Dr. Hilary Merry, a veterinarian who has bravely faced the challenges of living with Ehlers-Danlos Syndrome (EDS) and multiple comorbidities.
In part one, Dr. Merry shares her journey from experiencing early symptoms as a child to receiving a formal diagnosis at the age of 27. She opens up about the struggles and triumphs of navigating a healthcare system that often overlooks complex conditions, offering listeners a rare glimpse into the realities faced by those with invisible illnesses.
Additionally, Dr. Merry provides unique insights from her veterinary profession, highlighting parallels and contrasts between diagnosing complex conditions in animals versus humans.
- Introduction to Dr. Hilary Merry and her medical background
- Early symptoms and childhood experiences with undiagnosed EDS
- The long path to diagnosis and the impact on her personal and professional life
- Navigating the healthcare system: struggles with being heard and believed
- The role of comorbidities in complicating diagnosis and treatment
- The psychological toll of living with a chronic, invisible illness
- Advocacy and the importance of self-education and persistence in seeking care
- The intersection of veterinary and human medicine in understanding complex conditions
- How veterinary medicine approaches diagnostic challenges
- Comparisons between veterinary and human diagnostic processes
- Insights from veterinary practice that could benefit human healthcare
- Advice for others facing similar health journeys and the significance of support networks
Tune in to hear Dr. Merry's inspiring story and gain insights into the intricacies of managing life with EDS and other complex health conditions, enriched by her dual perspective as both a patient and a veterinary professional.
Please follow us on social media @HiddenDiagnosesImpact, watch the video format on YouTube @hiddendiagnosesimpact
Support this podcast and the mission of our forming nonprofit, which aims to raise awareness of complex neurological conditions like CCI and EDS, uplift disabled artists, and spark systemic change in both medicine and the creative world:
https://inclusivibe.betterworld.org/donate
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