Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care.
Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope.
Ownership & Support:
Hidden Diagnoses Impact is owned by Wang-Hiller LLC and licensed to InclusiVibe Foundation for presentation and distribution. Podcast sponsorships support InclusiVibe Foundation's charitable mission and are tax-deductible.
Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond
Navigating the Maze of Rare Conditions: Why Sharing Our Stories Matters
In this deeply personal episode, join Amy as she shares her harrowing journey through a labyrinth of medical mysteries that span years of misdiagnoses and ineffective treatments. From the initial shocking symptoms following a float tank session to the life-altering diagnosis of Ehlers-Danlos Syndrome and related complications, Amy's story is one of resilience and relentless pursuit of answers. Delve into her experiences with sudden paralysis, chronic pain, mental health crises, and the ongoing struggles with the healthcare system's overlook of rare conditions. Her narrative sheds light on the critical need for awareness, proper diagnosis, and the emotional toll of living with misunderstood illnesses. Amy's voice brings to life the silent battles many face but few hear about, calling for a shift in how we perceive and treat the unseen.
Hashtags:
#RareDiseaseAwareness #MedicalMystery
Please follow us on social media @HiddenDiagnosesImpact, watch the video format on YouTube @hiddendiagnosesimpact
Support this podcast and the mission of our forming nonprofit, which aims to raise awareness of complex neurological conditions like CCI and EDS, uplift disabled artists, and spark systemic change in both medicine and the creative world:
https://inclusivibe.betterworld.org/donate
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