Carson’s Voices: A Place for Struggling Parents

Episode 11: Interview with Tee

Carson’s Voices: A Place for Struggling Parents Episode 11

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0:00 | 49:28

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Phil and Shannon interview Tee who was Carson's previous RBT at one of his ABA clinics. 

SPEAKER_01

It's a beautiful Sunday afternoon. We are in our kitchen with a beautiful, awesome guest for the for a time that how many times, how many weeks I was asking you to do this? Was it at least like four or five, like in a row where I'm like, hey, you want to do an podcast? And you're like, what are you talking about? And you were kind of confused by it. This is tea, everybody, by the way.

SPEAKER_04

I think it's been like three times.

SPEAKER_01

Three times? Okay.

SPEAKER_04

Three times. So you finally got me on.

SPEAKER_01

In my head, I like to exaggerate that it actually is something else. Um, so you're gonna hear background noises, you're gonna hear Carson bringing his water, and I don't really care, so just deal with it like we do. Um, this is life, guys. This is what happens on a Sunday. You're gonna hear running water, you're gonna hear his Kindle, you're gonna hear Mackie going up and down. It's gonna be a great day.

SPEAKER_00

Absolutely.

SPEAKER_01

T, thank you so much for doing this. I'm gonna say this a thousand times. It's uh it's really cool to get people on here who we've met out here for the first time. Um since we've been to Texas, meeting for you know, for the for the short period we've been out here.

SPEAKER_02

Yeah, yeah.

SPEAKER_01

T was um one of uh one of Carson's is it RBT? Is that the correct?

SPEAKER_04

Yes. Yes, RBT. RBT, yes. RBT.

SPEAKER_01

RBT at his ABA school uh that we're gonna leave nameless unless one of us spilled the beans, which might happen. We'll see how it goes.

SPEAKER_04

Hopefully not.

SPEAKER_01

If it happens, if it happens, then we'll just gonna I'll just add like a sound effect button or something crazy. Or I won't, and just you guys will know he goes to ABA.

SPEAKER_04

Um no, I'm gonna add a sound effect. No one used to know my dogs.

SPEAKER_01

I guess my first question for you, I want to know is when did you first get into ABA? Was it was was that place your first your first job there?

SPEAKER_04

Um no, it was not my first job. Um, I will say that uh the first time I really got into ABA was in like 2012. I was living in Fort Worth and um I was working at this um uh it was like an ABA clinic slash homeschool thing for children with special needs. So I started off as the homeschool teacher in the yellow room is what we called it, the yellow room. And um I had kids with like um bipolar, kids with uh Down syndrome, different things like that, um, where we would do a homeschool curriculum for them. And so um after that I ended up moving back to Austin. And when I moved back to Austin, I worked for daycares. Um I was like a valet. I had like five jobs. A valet, yeah. People were calling me like a Jamaican because I had so many jobs. I taught dance because I've been dancing all my life.

SPEAKER_01

Um then dancing for a church, by the way. You gotta be careful when you say dancing.

SPEAKER_04

Well, dancing for a church and also um dancing ballet, tap, jazz, and hip hop.

SPEAKER_01

Yep. It's incredible.

SPEAKER_04

So um, so yeah, I did that and then found myself into the school district where I was a special education um, it was behavior and um what was it? Behavior and special education, I believe. It was called bass. And um basically we had kids with autism, we had kids with other mental health, um, where we would go into their classroom and if they were having issues, you know, trying to learn, we would be aides for them. We'd sit in class with them, help them do their homework. Um, we'd also have um ways in which they would um they would deal with their behaviors. So if they were having behaviors, say that a kid was throwing a chair in the classroom. So they'd call us, we go down there and get them, bring them back, we talk about it, they like fill out this sheet on what happened, why did it happen, how can it not happen again, and they'd end up either spend the rest of the day in the class with us, or they would um they would go back to class with one of us. But either way, we held them responsible. So then after that, the district wasn't really paying, I wasn't really into it. So I was like, um, let's let me, you know, step out and try something different. So I ended up getting with this one school. Awesome, it was awesome in the beginning. So they will remain nameless as well because I might end up going in on them, but um, I ended up uh working for this ABA clinic, and um that's where I really developed my passion for it. So I worked there for like two years, and then I wanted more money, you know. Yeah, because you gotta make a career out of it, right? I mean for the things that we do, we should be getting paid, you know, all RBCs should be, you know, greatly paid. So anyway, found this other school, the school that uh Carson attends now, and um pay was great, you know, they gave me what I was asking for, and so then I just jumped in like headfirst, um, started learning more about ABA. Um, and uh yeah, it was it was it it was really fun. It was a really good time, and yes, I was tired, yes, I was exhausted, but at the end of the day, I was like, I'm changing the kids' life.

SPEAKER_01

100% you you just you just pushed a major uh misconception I had with uh with ABA. I thought ABA what's the what's the what's above an RBT?

SPEAKER_04

Uh B C B C B A B C B A. Or BC B C A B A, then B C B A.

SPEAKER_01

So I always thought, and maybe it it is probably half true, but I thought the B A C B A C B A was like the the leader, and then they they had people RBTs below them, which didn't have a lot of experience. You what you just laid out was more experience than I thought any RBT had.

SPEAKER_04

Oh yeah. Um a lot of us come in and have an experience, um, whether it's like at a level where they just got out of, you know, they just did some schooling and they had to do some hours in order for them to be a B. So in order to be a B C B A, you have to do hours as an RBT anyway.

SPEAKER_01

You can't so you can't just go in there and be like a fresh out of high school kid that actually And be a B C B A?

SPEAKER_04

Absolutely. You have to go to school.

SPEAKER_01

What about what about an RBT?

SPEAKER_04

Um you gotta have some type of uh knowledge, I would say. Um, but yeah, as far as the job, when you look at the job duties online when you're applying, um, high school is it's is um only high school education is good, but they prefer that you have some experience. But some companies will give you a chance and say that they could just train you up and groom you in the way that they want you to be. But yeah, I came in with some experience.

SPEAKER_01

You absolutely did. I mean more, yeah, again, no, it's when you described it, I was like, holy shit, she's uh says a lot more than I I mean I you obviously we've talked and I I know a little bit about your background, but uh I didn't know it was that extensive, so kudos to you.

SPEAKER_04

Yeah, thanks. I appreciate it.

SPEAKER_01

I thought um I I again I thought it was just mostly like that's always been our thing because you can tell I can tell when Carson kind of has a worse day, and I'm not it's not it's not just the RBTs that day, because it's obviously he's going around. Yeah, but my problem with with with with typical with ABA that I see is that there's too many chefs in the kitchen, so to speak, you know? Uh-huh. So like it's it's like you have the BCBA whose plan is is this is the plan we're gonna follow, and then he has four or five different RB RBTs that day. And then that's if they don't call in sick or someone's there, or then they have someone from a different team.

SPEAKER_00

Right.

SPEAKER_01

And then it's like they don't know Carson, and then Carson, like they're trying to he's trying to communicate, but he can't do it. Or Carson's just having a bad day altogether, and it makes it so much worse. And then um, so I that's always been my biggest thing with it. And um when you first met Carson, let me ask you straight up do was he one of the worst kids you had in the in a thing?

SPEAKER_04

You know that's a yes. Um well, one of the worst kids I've ever had.

SPEAKER_01

No, just just went at that place.

SPEAKER_04

Would you say at that place? Um, I will never say worse. We're not gonna say worse. Um, the most challenging, yes. He was the worst challenging kid that I had ever had. However, I'm always up for challenges. Like I love a good challenge, and I know that I can steal the heart of kids. Um I don't mean to toot my horn, but you know, I love kids, kids love me. Um, that's just how it is. And I did my best to make sure that, you know, I used everything that I knew professionally and everything that I am personally to gain his heart. Like I stole it. Yeah, that's my guy.

SPEAKER_01

Like, Carson, Carson before before T left where she's at now, or where she's we're currently working, she when she left, Carson absolutely adored working with T. Uh just so anyone has to know. Like, Car, it was whenever he whenever he was with you, he always had a good day. So I want to let you know that. And then now that she comes and like she she comes and sits for him sometimes, yeah, they have the best time. So that is my point. If that's a full circle moment, I don't know what it is, guys. I'm gonna tell you. Um, he's over there getting snacks right now. Um, we're talking about me. Let's get some let's get some muffins. Yeah, um no, it's it's I'm I'm glad you're honest about that. Because some people would just be like, oh, well, yeah, he was he was difficult, but no big deal. But no, that's that's kind of what it is. We don't we where he came from um to where he is now is night and day. Um he's gonna sit at the table with this Kindle, so enjoy his his Kindle songs.

SPEAKER_02

Yeah.

SPEAKER_01

Um where he is now to what what he was before is is different for sure. Um it's always our goal to kind of we want to because he only has less than a year left before he has to do something else.

SPEAKER_04

Yeah, but yeah, that's true. Yeah, yeah, yeah.

SPEAKER_01

So what would you suggest in the sense of like is is the system itself like it is it is it something more that we could do?

SPEAKER_04

Like is there something more that absolutely um there are other clinics that accept kids seven and older. Like, yes, find another clinic for real. Yeah so you can keep going. Absolutely. And I would um when is his seventh birthday?

SPEAKER_01

April.

SPEAKER_03

He turned seven in April, so he's gonna be eight next April.

SPEAKER_04

Okay, so I would start the process now just uh looking for um I was about to give you guys some names, but we will do that, we'll do it off the podcast.

SPEAKER_02

Yeah.

SPEAKER_04

Um yeah, there are just keep it going. Um it is, he's I mean, it's gonna be a shock because he's used to the ones that he has. So for you know, come like you guys know, um, you know, it's I mean adjustment period, but yeah, keep it going. He'll he'll find people that he loves there for sure.

SPEAKER_03

Yeah, like I know we talked about it on the pod before, but we have started like the the school enrollment process, but we're not really like a hundred percent sure if that's where we want to put him right now. Well no, you know.

SPEAKER_04

I know that um listening to your earlier episodes, you know, um you guys had some issues when he was at the school. So I would personally just like if he was my kid, I'd just keep him in ABA for now. And then when we can get to the point where he can sit and he can draw and he can um, even though you know they're working on that now and he's doing pretty well from you know what I um before I left, what how it was going.

SPEAKER_01

All the work that you did, right? Ever since I was there, this year is pretty.

SPEAKER_04

But from what I see when I visit with him at the school, because I always go back and you know visit my old coworkers, and from what I see, he's doing really, really well, you know, and so you it'll it'll come. It's gonna come, and then once it comes, then you go to school route, you know? You might feel more comfortable with, you know, because I know you guys expressed that uh the behaviors was a big thing for the teachers out there, and you know, so yeah, just give him some time and then you know do your thing.

SPEAKER_01

We don't want to throw him into a school that if he's not gonna learn, there's no point of him going to a school.

SPEAKER_04

Exactly.

SPEAKER_01

Right. And we've always said since we've been at the beginning, until we can fix yeah, fix communication.

SPEAKER_02

Yeah.

SPEAKER_01

Until we can fix, like, again, him controlling behaviors, there's no point in him going to, he's not gonna learn anything. So I just we're just at a point where like he's gonna be so far behind. But realistically, I mean, what do you really learn in elementary school? What are we talking about here? No one goes to school, he barely doesn't know anything. That's crazy.

SPEAKER_04

That's not true. Nolan is my dude too, so you gotta stop that as well, okay? That's my dude, okay? For real.

SPEAKER_01

No one was sorry.

SPEAKER_00

He's fine.

SPEAKER_04

Um, but no, yeah. Um I I like, you know, right now we're working on his his core things is that we need him, we need to be working on communication, like you said. Because, like you said, if he doesn't communicate, how are we gonna teachers are gonna be exhausted all day from just doing behavior when we can actually get him to a place where he can actually sit down and do some work, you know? So um, yeah, don't rush it, do your thing.

SPEAKER_01

It's it's so hard because I mean we sit in these meetings, we do a meeting every Tuesday, um, or Monday, Tuesday, whatever day it is, uh-huh where we go through like just like the week and then like we talk about stuff and like kind of wins and losses and and different things we can try. And the place he's at does a great job of again the communication is stellar, so that's that's something that the with their side of it, like telling what they're doing, their plan, it's all laid out. What I obviously it's what I have a hard time with sometimes too is it's like I feel like the plan gets has to get changed so many times it's hard to keep that schedule because of who and that's just because of who Carson is sometimes, and I I totally get that. But it's like I wish it's like I when he gets sick, for instance, and misses three or four days, the whole schedule, it's like we have to start over like a month, I feel like.

SPEAKER_04

Absolutely, absolutely. And you know what? You take him, you take him to the professionals that know how to handle that.

SPEAKER_01

That's the thing though, it's I I always get like that's one of my biggest pet peeves, is it's just me. It's like I'm like, why do I know so much about this more than I should know? And then I'm not and I'm only saying that because he's my son, so obviously I should know more about him.

SPEAKER_02

Yeah, yeah, yeah.

SPEAKER_01

Um, but it's like I feel like when I'm asking questions and stuff, I'm thinking like to the plan, and I'm not trying to say I'm smart. I'm not smart, a smart person at all.

SPEAKER_04

Um okay, pause. I'm good looking.

SPEAKER_01

Just the smart thing has kind of left me a long time ago. Pause.

SPEAKER_04

What we're not gonna do is we are not gonna degrade ourselves. Okay. So now say yes, yes, Texas.

SPEAKER_03

And you get free therapy as well.

SPEAKER_01

Well, usually the therapy is just my uh it's it's Shannon and the the R the BCBA just beliterating belittling me the entire business. That's not true.

SPEAKER_03

I feel like you throw me under the bus more than I throw you under the bus. Oh. Why are you guys throwing each other under the bus?

SPEAKER_01

Well, no, we're with it's it's an it's an it's not never throwing in the bus. We're just very honest about what happened. Like this week, like you know, like the potty training stuff, and again, not throwing shannon under the bus, but it's like so No hold on, she'll show I think she'll be the first to admit she's more softer on it than I am about it. Like, I'm yeah.

SPEAKER_03

No, I'm definitely more softer with a lot of things of Carson than you are.

SPEAKER_01

Carson's at the thing.

SPEAKER_03

Carson said no.

SPEAKER_01

Yeah, he's said no. It's like no, it's me. But like, but we see successes with potty training at at at uh at the I must at the post. At the ABA clinic. And then at home, he doesn't because he's so comfortable with Shannon. But like I've got him to go to the bathroom a few times, and it is I don't again, I'm I'm getting Shannon, I want her to be able to be comfortable with it too, because I can't do if I force it down his throat and then it doesn't fall on the other side of the parent, then it's it the whole thing breaks down.

SPEAKER_04

Oh, you have no idea. Yes, let me let me speak from an RVT.

SPEAKER_01

Please.

SPEAKER_04

Uh place. Guys I love the sign. When we put something into place at the clinic, we a hundred percent expect you to do it at home. Now, do we know that there's gonna be some hiccups or some days where you guys are like, oh my god, this is not working, we'll try again another day. As long as you are trying and you are doing what we're doing at the clinic, because I'm gonna tell you it's not gonna happen if he does it at the clinic, and he does you guys get home and you're like, uh, you know, and this is not for you guys, just for you guys. This is for every parent. Yes. Every parent that has a child with autism. If we're doing something at the clinic and then you guys kinda, yeah, you know, about it at home, I'm not gonna No, be honest. I'm gonna be very honest, it grinds our gears. It really does.

SPEAKER_01

I'm so I'm I'm I'm glad you're saying that. Because that's that's what it is. I feel the same way. I feel like it's wasted work. I think you're doing it on one side where he's he does it here, and then he comes home and it's just a free-for-all. And I I we we've said on the podcast a bunch of times that I always feel bad for like parents who have to work both they're both out of the house 40 hours a week. Yeah, and then you come home and then like they're just they're at home just surviving. They've had a long week at work, and then they have to come home, and then now it's like they have an instruction manual for their kid and they have to figure out what to do.

SPEAKER_02

Yeah, you know what I mean?

SPEAKER_01

It's like and like I work from home, thankfully. I can I'm I'm there and I get like a front row seat from it, and then Shannon stays at home, so she has that too.

SPEAKER_04

Yeah, yeah.

SPEAKER_01

But it's also mentally draining sometimes because you just absolutely staying in this.

SPEAKER_04

You're doing great because I'm talking about my whole body. But um, we do understand that you guys do have those days where you know, we just we just want to know that you are trying at least. Because there are those parents that we have a plan, like for instance, say we have a we have a meal, a meal plan, right? Sit baby, sit child down at said table, sit down, help child with fork or spoon, helping them eat. You don't do it when you get home, they're eating with their hands. Then they come to the clinic and we can tell, oh, they've been eating with their hands at home because they have not been practicing the spoon or the fork. We can always tell. So you kind of throw yourselves under the bus when they come back to the clinic.

SPEAKER_01

This is why she thinks we're throwing on the bus because we're just being honest, and she's like, Yeah, I can tell that you guys are doing this all night. Yeah, I can tell that it wasn't happening this weekend. And that and that is the truth. And I we I'm very honest about like our schedule and like what we try and do because every Saturday we uh the weekend, our weekends, I try and make it jam-packed. We try and do something different every weekend so that way it makes Carson needs to live his life and be a kid at some point.

SPEAKER_02

Yeah, yeah.

SPEAKER_01

And that's that's the hardest thing, too, is when he comes home and has all these extra rules, it's like I we're putting all this extra stuff on him where he can't relax. And then it's so that's that's our that's our other side to it. And and you're right, there's some there's some rules, there's some hard rules we have to follow. And then to me, there's some rules we're like, well, when is he gonna be a kid and just be able to relax?

SPEAKER_04

You know what? So I okay, I totally get that, right? But how about this? What if um whatever the plan is to do when you guys are at home, right? Make him being able to relax and be a kid as his reinforcement.

SPEAKER_01

What do you what do you mean by that?

SPEAKER_04

So like um potty training, right? Okay, so we're doing the the potty training thing to kind of like build you up. I'm I'm just gonna speak on if I was a parent with autism, I mean a parent with a child with autism, um, which because I've been an RBT, I'll probably be like super whatever, but um parents that are have not been RBTs or aren't RBTs, um, just kind of gradually, okay. Once we get in the house, boom, we sit on the toilet.

SPEAKER_01

That's what she does. She does it every time.

SPEAKER_04

Okay, we sit on the toilet. Okay, so then let that bypass, then you be a kid, da-da-da, whatever, right? And then the next time, so just gradually do it. If you're already doing it, then I don't need to explain it to you guys, but to other parents who, you know, feel like they may not have um have a way to do as soon as you get home, boom, sit on the toilet. We sit on the toilet. Um, I don't know. I know that it usually takes Carson about he sits on the toilet by eight to ten minutes when we're yeah, he was here.

SPEAKER_03

I think like the maximum they let him sit now because he's doing so well is like 15.

SPEAKER_04

Okay, yeah.

SPEAKER_01

So he's he's playing he's playing rope a dope with him. Now now he's doing stuff where he's asking for he's asking for the bathroom just because he gets his his kid. So now he's he's playing. I said he's playing you guys for Kafo.

SPEAKER_00

I said, I said, but he's sitting.

SPEAKER_01

I said, as long as he sits and he asks for it then give it, then give him what he asks for. I think that's that's perfectly fair.

SPEAKER_04

And then after he sits and he goes, then hey, do whatever, dude. Like, you know, and then maybe let him do that for an hour, or maybe, maybe even two. And it you it does, it all depends on your kid. And then, you know, then oh, let's go sit on the toilet again. It doesn't have to be like a and I'm just talking about trying in at this point. Like, I'm not just like, okay, we're on a set schedule. BCBA said we need to do this, do this, do this. I'm just saying, I'm just saying, you're trying, you're at least putting them on the toilet. But if you're not doing as soon as you get to the door, as soon as you uh come home, you drop bags and clothes go off because that's what kids do. They like to come home and they like to um disrobe. So they're taking off everything, then hey, but we gotta say, well, hey, you can take off everything. Cool. Now let's go to the toilet, let's get it done, you know? Um, and so that they know that when I'm at the clinic, yes, I sit on the toilet. When I get home, I gotta sit on the toilet too. You know what I'm saying? And not give my parents a hard time, and it'll start developing like that. It's not gonna be overnight, but it will start to develop. I have seen, I have witnessed some developing happening, okay? I'm telling you. And um, not just with uh the clinic that I was that Carson goes to. Um, we had a couple kids in the clinic before that I was, you know, working in, and we actually did in home therapy. So that was a lot of fun, like seeing the houses and stuff. It was really cool. Anyway, um, because I was like. Like man, these are just goals.

SPEAKER_01

Do you do you feel like when you saw like the in-home stuff, is it better than at clinic, or do you think there's a better issue?

SPEAKER_04

I think they should have both.

SPEAKER_01

That's I completely agree. Thank you.

SPEAKER_04

I think they should have both. Absolutely. Because we did both as well. The kid came came to the clinic and then we'd come home. Yeah, I think they should have both. Now, when they're in home, I think that there should be like say he has a team of let's say five um RBTs because we do they do form a team that each kid has so that it's consistent. So I think that there should be a consistent person, one or two people that go into the home for um home therapy because they're comfortable. Like when I got here, Carson wasn't worried about me because I come over here now and I sit with him. So, you know, he's like, Oh, well, she's another person in the family or something, you know what I'm saying? So you want to keep that consistent so that the kid is comfortable, and you know, so yeah, I I definitely think they should have both.

SPEAKER_01

Yeah, we we because we did we we when we first did the at home, and I don't know if we were to cover that, or if you listen to that podcast, we typically were so we didn't I didn't I didn't even know it wasn't even it was a parent-led. I thought it was like, okay, these people are here to work with Carson, I'm gonna stay out of it and step back. And it was parent-led for two years.

SPEAKER_02

Nice, yeah.

SPEAKER_01

And then Shannon Shannon was a part of it, and like she was, I mean, again, and that's not a that's not a shot at the person did it, because the person did it's an awesome person.

SPEAKER_03

The team that we had was great, it's just we didn't get enough time with them. Yeah, we had we had Carson was little, and so he was still doing like naps and all that, and like when she came over, if he was asleep, we you know, we we wouldn't be like uh there was no urgency to wake him up or anything, so we miss our time, you know.

SPEAKER_04

And having the in-home piece also helps with what happens at home. Yes, you put him on the toilet when he comes home, but if you had in-home coming in, maybe like two or three times a week, he'll definitely uh he'll definitely gain that routine so that when we're they're not in the home, okay, mom's gonna expect me to go to the restroom, or they're gonna expect me to sit on the toilet. So yeah, I think you should have both.

SPEAKER_01

I think that's great.

SPEAKER_04

I know that the one that he goes to right now doesn't do in home.

SPEAKER_01

No, they don't, but uh but I because we can't obviously we can't be there past next year anyway, so that's what you have to start working.

SPEAKER_04

Both, yeah, for sure. Yeah. Um, I can recommend one.

SPEAKER_01

Yeah.

SPEAKER_04

Who shall name who shall be name?

SPEAKER_01

I I really I this this the place that he's at now turned my turn my whole way around about ABA at this place because of this place. Because of the people there, and and like I've told you before, it's very rare that we meet people that actually care about your son. Um it's it's and again, because people can look at it as a job or it's a therapy. Like, can you go into a doctor's office? Does a doctor really care about you? Probably not.

SPEAKER_04

Um doctor cares about me. Of course they all they all do.

SPEAKER_01

Like when I like when I when I go to a strip club, when I go when I go to a strip club, does stripper really like me? Yeah, she kind of she told me she does, so I believe it. But but but this is but again, and again, that's with the with yes, they do care about Carson in the sense of like they want to protect and be safe, but I really feel that they really care about my son. And that's that's such a big thing because that way I can now I can trust him being there. Because you hear you hear all these horrible stories and things happening, like I mean, all these people getting arrested and doing crazy stuff. I mean, do we what do we do you think we should put cameras in these in these places? What do you think we should be doing to should kind of show parents that it's it's safe to bring people to ABA?

SPEAKER_04

Well, there's already cameras in the room because um we have people that you know we want to make sure that uh all of the RBTs and the BCBAs are you know handling and treating all the kids uh I didn't know there was cameras, so that's that's good to know that. Yeah, oh yeah, we there's cameras in all of the rooms, absolutely, for sure. Yeah, I didn't know that you guys didn't know that, but yeah. I think we did.

SPEAKER_01

I don't think we knew that. I don't I didn't know that, so maybe I just know like you can't as a parent you can't watch the camera, but no, it's just good to know just in case like there's an incident because again, like we used to see he'd come on with like bruises and and and again we didn't because obviously he was hurting himself, so we didn't know if it was from that. But it's but his first school, I mean I'm not saying they didn't in their first school. His first school was just the worst experience we've ever had. It's like a and I just think I I feel for other parents. They don't and then and and I'm just thinking, like, if I would have known what was going on in that school, I bet you I'm not the only person actually that actually was like worried about what was going on in that school. I mean, they because again, I'm not I'll be honest, that teacher was terrible. The teacher was terrible because she made me feel terrible. She made me feel like I was a bad parent, and that's such a that's such a disagreement. We're like, you just don't trust the system. And I again I I understand it, but I feel for parents who have to go their 40 hours a week and then they come home, they're they've all been away from the house, and they have to come home and do this whole you know offensive play playbook with their kid and then like teach what they're doing, it's just crazy. It's like this is what it is, and but yeah, that's what it is having to deal with an autistic kid. It's definitely you have to keep them on schedule. That's one thing we learn. And and Shannon, you know, Shannon will tell you the most she's she's hard, she doesn't like schedules. I'm very schedule-oriented, she's not, and it's it's a good, it's a it's a good yin and yang for us sometimes. Sometimes it's not, sometimes it makes it chaos. But because obviously I be a tyrant and go, oh, we should do this and this and that. And then Shannon's being all nice and stuff like that, and then it's like, well, you should do this more, and then it's pointing blame and pointing fingers, and it's you know, it's a constant thing. Oh my that's why I'm really good looking, so it kind of works out.

SPEAKER_03

So okay. Um, yeah, no, it took us a long time to get Carson on a schedule. And I mean, some of it was because of Carson, but it feels laughing because he says because of you see, throw me under the bus. See, check this guy out. No, but it took us a long time to get Carson on a schedule. Part of it was because of Carson and medication, and then obviously some of it was me because I wasn't really enforcing it.

SPEAKER_01

But I think we're I don't let me let me let me add a disclaimer. I absolutely don't blame Shannon for one thing that happens. Oh, of course. It is jokes, but but but the same, but the truth is too that there are things that we both we both do things that he already pulled this thing off. Pulls that pillow off. We both do things that that make that make the other. Oh, I'm not saying what he looks like. I'm not describing it.

SPEAKER_00

Yeah, no, but he's at home. If he can't be naked, let him let him do his thing. He's just out here. He wants to get a sun tail. Let him yeah, he's gonna go play in the water. Yeah.

SPEAKER_04

You know, geez, Louise.

SPEAKER_01

I just I just feel that there's yeah, there's times that we both we both do things, and that's that's that's why we do this podcast. It's just honestly to talk and be honest with what goes on. But it's also to hear other parents and tell parents that you guys are not, no one's doing a bad job. It's just this is a tough situation that no one has the answers for. But if we come together and we can start talking about stuff and be honest about what we're doing and what we're doing wrong, it's like when you go when you go on a diet. If I lie to you and say, Well, I've been eating healthy, I don't know why I'm not losing weight. Well, clearly you can tell me that I'm lying to you. Yeah, yeah.

SPEAKER_04

Phil said this because I'm on a 28-day diet.

SPEAKER_01

No, I didn't. No, we talked about it before.

SPEAKER_04

Yeah, you throw me under the bus, but it's okay. You know what? Because I lost five pounds, thanks in five days. Appreciate it.

SPEAKER_01

I'm gonna pause button. Let me see if I can find it. Go ahead. Keep talking.

SPEAKER_04

You were not ready?

SPEAKER_03

Please don't be something inappropriate for me.

SPEAKER_01

No.

SPEAKER_04

Yes, thank you. Thank you. It's hard work because it is. It's great. I have gone out to eat with family twice already, and I have It sucks.

SPEAKER_01

It sucks because I they talk about feeling left out when you go places. You're like, and like and then they it's like they do it in front of you. You're like, well, you guys are all just terrible people. What eating this beautiful food in front of me when I'm trying to just be better about my life. That's why I'm staying home. That's right. I get you.

SPEAKER_04

Um no, I'm gonna come over here and hang out with Carson.

SPEAKER_01

Go ahead.

SPEAKER_04

I feel like he and I can eat the same stuff.

SPEAKER_01

I don't know. No, he's not. No, yeah, yeah. Unless you're into muffins and uh grilled cheese.

SPEAKER_04

I think I used to be muffins are delicious. I I can't anymore.

SPEAKER_01

I know, don't worry about those ones.

SPEAKER_04

Guys, he ate all the muffins. He didn't leave me any muffins.

SPEAKER_01

He if you ask him for one, he'll get him. Oh, yeah, for sure. He's so sweet.

SPEAKER_04

Oh my goodness. I love that boy.

SPEAKER_01

Telling you. It makes it means the world. It means the world that I I've always said it. It's like when you when you come here and Shannon can tell that first story when you came that one time when like you he didn't recognize you at first. Like when you saw I think you sat at the at the at the at the at the uh island over there. Uh-huh. And then he didn't. Not at first, not at first.

SPEAKER_04

He didn't recognize me at first.

SPEAKER_03

Yeah, but then when he recognized you, he like lit up and he was so excited. He brought you upstairs with showing him showing you all of his things. Man. His trampoline, he was showing you the media room where he likes to crash on the couch, and then he made you chase him upstairs all night.

SPEAKER_04

Chase all night up and down, but I got my exercise.

SPEAKER_01

You know that he's only done that with one other person, and that was uh uh his his grandpa he does that with. Yeah, my dad. He's the only other person he's done that with. I feel so special. It again, that that just shows how you were doing it.

SPEAKER_02

I love that.

SPEAKER_01

When you when she she told me that happened, and we were both like just blown away. Like, he really did that, like he went and showed him, she's like, Yeah, he showed him everything. He showed him his room, he should have been.

SPEAKER_04

I'm so excited, and he did it on his own. Like, I just had to follow him, you know. Like, man. Yeah, I'll I'll sit for that guy any day, okay? I'm telling you.

SPEAKER_03

And then the last the last time you were here, he immediately went to his device and said, Chase me.

SPEAKER_04

Yeah, he did.

SPEAKER_01

Yeah, he's getting better at it. I'm telling you.

SPEAKER_04

I'm loving it. I'm loving it.

SPEAKER_01

I I think it's great. I I it's it's so cool that we've we've met you and and how great you are with them, and it makes us feel better that we can go out because when we meet uh, as Shannon's mom calls fly by night babysitters, we uh we uh we basically bring the so I love you, Barbara. I'm only kidding with you. Um she'll love it. She listens to the podcast. Uh but no, we we when we bring the when we bring out the babysitters, because again, you don't really know how much they have experience with Carson. Absolutely, yeah. And and the fact that he's he's when he's not he's non-verbal, it makes it so much scarier because you can't tell. That's why it's always better we always try and leave no one home with him because obviously no one he could be the voice for Carson.

SPEAKER_03

At least like the first time when we have like a new person, we like to leave no one because he, you know, he's a help.

SPEAKER_04

Oh, he is. He is really funny.

SPEAKER_03

We were talking about this last time because I was like, you know, you don't you don't realize like how much he pays attention to Carson and Carson's needs, but then when we're gone and he was like, he told you he's gonna want his pizza cut up.

SPEAKER_04

And he yeah, and he told me he was like, he's probably just gonna he did tell me he's probably just gonna look at the at the splash pad. We went to the splash pad, I swear. That's all he did. Nolan turned it on, and he wanted to stay in that wagon with his candle, like, and then we went over to the park, and that's when he was like, I'm getting out, and then he wanted me to chase him. Yeah, and I panicked because I thought he was gonna elope, and then he did not. He stopped.

SPEAKER_01

No, he's there, he's he he's the eloping now was a joke to him now. Like when he goes out the front door, he's laughing when he goes to the car. He's not gonna go past, he might even go like the end of the yard. I've seen him like go like right around the corner to the neighbor's yard. Okay, but he's not gonna run down the street or like the eloping. What would what feared me about the eloping is when he would almost do it as like a his body response and he didn't know he was doing it. And then it's like it's just a fearful thing of like him running down the street.

SPEAKER_00

Yeah, yeah.

SPEAKER_01

Um, and I know I told the story about how he got lost for that 45 minutes or like that we lost him. Yeah, and that was that was like one of the roughest times of like that's why the eloping is so important and so scary. Yeah, but I think we're definitely past that now. I really feel that. Man, he's not he's not a danger to that sense of like he he knows he's doing it. Like when he goes up the front door, he's just doing it to like get a rise out of Shannon. Because like Shannon, if he's not if he's not paying attention, if Shannon's not paying attention in the sense of like when he wants his her attention, that's when he goes, picks up the ladder, does this, unlocks the door, boom, and he just goes right to the to the car, he laughs hysterically the entire time.

SPEAKER_04

Just to scare you.

SPEAKER_03

No, it's like I literally turn my head for one second, and he's he's so fast too. Yes, he just works through those locks.

SPEAKER_04

Yes, yo, and I had on slides that day too.

SPEAKER_01

I couldn't believe when you had slides on, I was like, I don't want to tell her not to put some shoes on, but I was like, he actually said that when we left.

SPEAKER_03

He's like, we just sent her to the park to go chase Carson's slides.

SPEAKER_04

What am I gonna do? Tell you, hey T, put some shoes on. I mean, it's at first I was coming over here to chill, you know, like it was supposed to be a chill thing. And then we're like, yeah, we're gonna go to the park on this. I was like, yeah, let's do it. Not really lots of that I had slides on. So I'm I'm chasing him in my Nike slides. Like, we're having a good time though. He had a really, really good time. And then when it was time to go, he was he got back in the wagon. I think it helps that he likes that wagon.

SPEAKER_01

Yeah, that's that's why we bring it. We know, like, I think there's people that look when we go places they kind of judge us from that wagon. Yeah, but why we do it, it's like a safe spot.

SPEAKER_04

It really it's it's it's a we're free, we're walking down the street. Yeah, I would love for him to be in a safe spot while I'm walking us down the street. Yeah, if we're holding hands going down, even though he practices going across the street and stuff at school, like it's if we're walking down the street, I'm going around the corner, up the street. We need to uh we're gonna do wagon.

SPEAKER_01

We go to the uh the water park that has an indoor and outdoor water park, which you you should come and see how we end up with. You have to come. But but when we go outside, we took the wagon one time. The last time we went, the last two or three times, we didn't take the wagon. We just let him move in. That's awesome. And he does a great job with it.

SPEAKER_04

That's awesome. Well, that was my first time taking him, so I had to.

SPEAKER_01

You were in slides.

SPEAKER_04

And I was and I was in slides, guys, okay. But um, no, yeah. Um I I thoroughly enjoyed that day. And I got my I'm telling you, with Carson, I don't need to do any other no cardio. You get all the other cardio, yo.

SPEAKER_01

His nickname is cardio Carson. I don't know if you knew that about him.

SPEAKER_04

He literally just made the name. Hey, we should make some songs.

SPEAKER_01

I'm telling you.

SPEAKER_04

I'm telling you.

SPEAKER_01

Clean songs, not Icy Brothers songs.

SPEAKER_04

They need to be songs that the kids can listen to. The he's a kid.

SPEAKER_01

Carson, Carson's a hand when I put some music on. He always like, if I put it over like this, uh that speaker right there, that thing, that thing is awesome, by the way.

SPEAKER_04

I don't think they can see it.

SPEAKER_01

They can't see it. I don't know why I pointed to it. Um I would say, oh yeah, but we're talking to you though. This is funny. But but that one, but he he gets a kick out of it. Because obviously, like when we go places, and I've always dreamed about taking him to a concert like with me. Like, I love live music. Yeah, that's why I was so big when he played I played that show, and I got to record him being there that one time. And like to me, it's like when I put the music on, he doesn't ever like plug his ears around it, he doesn't try and turn it off. He just That is so awesome. He likes it, he likes the loud music. He he again the the boat thing was a big deal when he used to put all the boat love stuff up there, and it's great.

SPEAKER_03

Carson loved the boat though, that was his favorite. Him and Mackie.

SPEAKER_01

Yeah, and now Mackie's decrepit.

SPEAKER_03

Mackie's came back inside.

SPEAKER_01

It's too much.

unknown

Yeah.

SPEAKER_04

I love Mackie though. Mackie thinks he's helping as well. When I'm when I'm sitting with Carson, like we're going upstairs, he thinks that he's just helping as well. Like he's doing it.

SPEAKER_01

He's part of the family. He's he's he was he's our he's our middle child. He's um love it. He was right before we had Carson. He was just a puppy, and then we had him, and then uh when we we brought uh Carson home from the hospital, that's when I got Mackie neutered that same week. Same day. Oh wow, because we had like we're sitting in the same day, it was the same day because I remember I had three or four days off, so I just I'm like, let's just do it now because so so his neuter anniversary is on Carson's birthday. The week the week after the thing the week when we went home. Yeah, yeah. So I don't even remember that, but he had a cone on he had a cone on like all like the baby instant baby pictures, but then we have a lot of pictures with like Mackie used to always sleep by Carson.

SPEAKER_03

No, uh Phil always says that Mackie is Carson's therapy dog, and I said, No, Mackie needs a therapy dog because he's got high anxiety.

SPEAKER_04

He does, he talks all the time. He's like, whoa! I'm like, whoa!

SPEAKER_01

But he's the only dog that goes outside, he lays right next to Carson and he watches the other way. He always, if you watch him, that's what he does.

SPEAKER_04

He just I love that. I love that.

SPEAKER_01

Even right now, he's not gonna leave and go somewhere else. He's gonna see where Carson's outside, and he's gonna see.

SPEAKER_03

No, he has to he always be with the kids too. When we had like my friends over and they had their two kids, and the kids were out in the backyard playing with like a uh jumpy slide, um water slide, and he was out there all day with them, just that's so awesome.

SPEAKER_04

Watching after him. Oh my goodness.

SPEAKER_01

That's what yeah, he's he's definitely a great again. He's he's a great family dog. Um, you know, another thing that Shannon was wrong about getting a dog, but that's another story.

SPEAKER_03

Well, I mean, I was six months pregnant when we got him, so it's like stop it.

SPEAKER_04

This is my girl here. I listen.

SPEAKER_01

I married her. I know she's great.

SPEAKER_04

Listen, listen. Now it's two of us.

SPEAKER_01

I know. This is this is.

SPEAKER_04

Technically, it's one of you.

SPEAKER_01

It's always the case.

SPEAKER_04

Because the kids are gonna be on our side.

SPEAKER_01

The kids will be on your side. I get it.

SPEAKER_04

Especially Carson.

SPEAKER_01

Especially Carson. Dad's the villain. Dad's only the hero when it's time to go to bed. That's that's when Carson likes me. Because obviously, it's I'm a big warm pillow that he can slap. Yeah, it's all it is. Oh, yeah. Other than that, it's not much more. Anything else you want to ask about ABA? Anything? Any questions that we we uh any curtain you want to pull back?

SPEAKER_04

Yeah, let's pull back some curtains. I'm down.

SPEAKER_01

Anything you're scared to ask about ABA?

SPEAKER_03

No, I think you covered everything that we discussed.

SPEAKER_01

You not think you want to cover the fact that he was the worst kid that she's ever had?

SPEAKER_04

I'm surprised you asked that. Okay, listen. Let's let's talk about it, okay? Let's talk about it. So I, like I said earlier, I love a good challenge, right? He is not a good one. Yes, he is.

SPEAKER_01

Go ahead, please.

SPEAKER_04

No, no, no. I'm just I I had a kid who used to every single day. And you know, she was older, so she was like, because at the the um at my previous clinic before the one that Carson goes to, you know, we went up to 18, I believe. And so, um, which I'm gonna give you guys uh yeah, anyway. Um, and I think I believe she was 13 going on, 14. And she would just just oh y'all. She used to slap the shit.

SPEAKER_01

Really? Like every time? Like full, like full contact.

SPEAKER_04

Yeah, like you have to be on guard.

SPEAKER_00

Yeah.

SPEAKER_04

Like and know when that hand is coming up. Like you had to be on guard.

SPEAKER_01

Why would she do why do you think she was doing it?

SPEAKER_04

Was just was it just like it was like when she wouldn't get her way, um, and attention, divided attention was another thing. Okay. Like you if you're gonna talk um not about her, but like if you're talking about her programs and whatnot, like the BC Bay comes in, like somebody has to be with, like, she has to have some type of toy in front of her, um, and you then you can talk. But if you weren't, if she was trying to get your attention and you were not giving her attention, oh, it was over. And and when you're first working with her, you have to you you you get a little you get a little beat up because until you learn what triggers her and when the hand is gonna come up, because it could be across the face, it could be on your arm, like she used to tear my arms up because I was, you know, I couldn't. You're protecting yourself. Yeah, mm-hmm. Yeah. But she's got me in the face a few times, and I what never again, you know. But anyway, I say that to say that Carson is not the most challenging that I have. Um I think that all of us on his team, we were I wanna say we might have panicked at first, right? So like when you see one RBT with with a kid and they're doing everything that they're doing right, we we automatically like automatic, like panic. Like, okay, we're gonna be on his team. So when they put me on his team, I so I'm not gonna speak for everyone else right now. I'm gonna talk about me. Yeah. When I saw him with another um, I think the first day he had did like a headbutt thing.

SPEAKER_01

He uh yeah, put hope in the hospital for me. Yeah, yeah, yeah, yeah.

SPEAKER_04

Yes, first day.

SPEAKER_01

I it doesn't I didn't say what the place was, it's okay.

SPEAKER_04

Okay. Um, but she's gonna listen to the case. She's gonna listen though. So you gotta go back and you gotta.

SPEAKER_01

That's fine. Go ahead and see.

SPEAKER_04

So anyway, um, so I think I already told that story before already, too. Okay, you did. Okay, perfect, perfect. So yeah, and then I was like, oh man, right? And I was like, okay, how am I going to gain his heart? Like immediately that's where I went. I was like, okay, I'm probably gonna get it too, you know, which I actually did. That time I did get it, but it was my fault because um I was behind him trying to help him put on his shirt instead of standing up, and then he was just like, and he, you know, he got me real good. But um after that, I just kept pressing on. And um I believe that the I don't know any new ones that are on his case, but when I left and the ones that were on him, I'm like, uh, I'm pretty sure she won't mind if I say I'm like, uh actually I was um we'll do nicknames. So KK and um Liza. Okay, and uh who am I missing?

SPEAKER_01

Um first letter than an initial, it's fine.

SPEAKER_04

Hey Yeah, yeah, yeah, yeah, yeah. So I think that when we as a team we did really well with okay, make sure that we oh no, you didn't. No, he didn't he does not do that anymore.

SPEAKER_01

Not as much, no.

SPEAKER_04

Y'all, I'm so sorry. I but I'm um You're fine. I am uh you know, trying to um basically Carson, get away from that.

SPEAKER_01

Carson, get away from that.

SPEAKER_04

Gonna go. Um just basically I'm learning and seeing that he does not do some behaviors that he used to do when I was there. But um, and he's listening very well. Very nice.

SPEAKER_01

Keep talking the story.

SPEAKER_04

Oh yeah. So anyway, um, I just feel like we all took it and we just was like, okay, BCBA, what are we gonna do? Let us know what we're gonna do so that we can help get this down. I love like challenges are just my thing. You know, I just they just are. And so I'm just you know.

SPEAKER_01

No, it it's it's definitely this. And when did he start Mert? Was it was it like it was like a few weeks in? We're almost done, by the way. Just after that. Was it a few weeks it was a few weeks after he started the school?

SPEAKER_03

Yeah, it had to have been because I think he started Mert the same month that he started his school.

SPEAKER_01

Yeah, and so that that because like his behaviors were like when so when we moved here, he was still kind of going through that stuff, and then once we moved here, uh and then we did the Mert therapy, that's when the behaviors kind of got better. And then afterwards we see a better thing. Like now his behaviors, at least now, are um he doesn't do the headbanging too much. Um he does. They're more um self-indurous. Yeah, he bites his hand. That's like his big thing now.

SPEAKER_03

Um a little bit of headbanging, but not often.

SPEAKER_01

Not in a not like a not on the not in a destructive way. It's like light tapping. Yeah. So that's the good news about that. Um, but so it's it's definitely getting better than what it was than when you first when you first went about it to do it. So um that's a good progress that we can share at least that it's not past that.

SPEAKER_04

So absolutely, absolutely. I'm just um I'm very happy and intrigued with how far he's come even since I left in last November. Like he's just come so far, and yeah, I'm just so so proud of him. And like, and I'm proud of you guys because you guys don't get your credit like you should, but I'm proud of you guys as well.

SPEAKER_01

All credit can go to Shannon. I just sit here and just critique. That's all I do.

SPEAKER_03

So yes, thank you.

SPEAKER_01

Well, um, no, we're we're we're grateful for you and grateful for knowing you and grateful that you that you did this. And um yeah, I'm all we're always about recommendation, and I I I would welcome anybody on this on anybody that you know in the world who wants to come share stories or tell what goes on to like open up so we can kind of get more information about it. I think that when we share information and we tell we tell honest stories, I think that's when people hear it because who knows, maybe the kids are going through like you know it's never good for a parent to hear that their kid's the worst student. I mean, we heard that it's so no I'm not saying I'm not saying you're not your idea.

SPEAKER_00

No, I I understand.

SPEAKER_01

When you when you hear that as a parent, you just think that you failed everything that you're doing. Because like you're you it's like you it's like blowing your whole world of like you what you believe and what you think it is, but to hear that there's actually like again, he's made so much progress in the sense of this, and if we don't share these stories and start talking to each other, it's just we're gonna get lost in this thing, and then thinking that you know medication is just a s just the answer, and then you over medicate these kids, and then I mean we lost two and a half years of over medicating, I feel like. Um and I'm glad that I'm glad we're we're past that now, so we can start telling people that what we went through maybe will help someone. Maybe it and again, medication does help. I is I'm not gonna hear I'm not a doctor, I'm not gonna tell anyone what they can and cannot do. I'm just sharing the stories of what happened to us so then people can hear it. Because I feel like everyone always hears these like backlog fake stories about oh, my son turned seven today and he started talking. Like that doesn't happen. That I've I've I don't meet parents that have done that. Absolutely. I wish I did.

SPEAKER_02

Yeah, no, for real.

SPEAKER_01

Yeah, I mean, if the day that comes or if Carson starts just saying full words or full sentences, I'll I'll be blown away.

SPEAKER_04

I mean, I I Oh it's gonna it I'm anecdotally it's uh no, not uh what is it? What's the word I'm trying to use? Anecdotally, it will come. Yeah, it will come.

SPEAKER_01

I'm looking into letterboarding. That's what I'm gonna start doing. I I think he's he's ready to because again, I feel like he's trying to he's trying to communicate now, and I think uh that's that's that's his breakdown now, is that he's looking for ways to communicate. Um Shannon's looking for Carson, he's actually right there. He he's in here. He was in the room. Never a dull moment of this podcast.

SPEAKER_04

I'm telling you, man. He's in here. He was in the room.

SPEAKER_01

I think like Yeah, we he was in the room. I that's why I wasn't gonna yell and like, oh, he's in the room.

SPEAKER_03

Gotta be sure, okay? Okay, okay. We we appreciate that.

SPEAKER_01

No, we're we're gonna work at this, and and again, I'm always welcome for suggestions, but if there's people that you know that want to come and do this and start talking and telling their story, I'm I I I want to share other people's stories so we can all learn together.

SPEAKER_04

So Alright, let's do it. That's the goal.

SPEAKER_01

And again, I'm just I'm so grateful that you did this, and it's so cool.

SPEAKER_04

I'm so grateful you asked me. Um this opportunity was awesome. This was my first time ever on the podcast.

SPEAKER_01

And um you had chaotic, you had a dog laying down up and down, you had Carson pouring water and taking his clothes off.

SPEAKER_04

Well, it's it's real life. Real life, real life. Yes, absolutely. I love I love the silver house for sure. For sure. Thank you. Yeah.

SPEAKER_01

Well, we appreciate you. Anything anything you want to add or say that we didn't cover? Anything that you want to go over? Anything?

SPEAKER_04

No, I'd like to come back on another time and then we can find a different um subject to do, and I think we can chime in on and stuff, yeah.

SPEAKER_01

Send anything together. Yeah, we'd love to have you. Anything I didn't cover that I that you're gonna yell at me after the podcast is over? Nope.

SPEAKER_03

I think we covered everything.

SPEAKER_01

She says no, but that means yes.

SPEAKER_04

No, she's gonna yell at you at the end.

SPEAKER_01

It's always a exactly yeah, that's how it always goes. T, you you're you're definitely one of Carson's biggest advocates, so thank you so much for doing this. It's really fun.

SPEAKER_04

That's my guy. That's my guy. Means the world. That's right. Yes.

SPEAKER_01

Cheers to you, and uh, we'll be back on soon. So thank you again.

SPEAKER_04

All right, thank you.