Cutting Close: Getting to know Evie Meg (thistrippyhippie) EP.6

This week on Cutting Close, Josh Hughes and Caolan Carney-Slee are joined by content creator and podcast host Evie Meg, better known as This Trippy Hippie. Over the last decade, Evie has built a huge online following by sharing her experiences of living with Tourette’s syndrome and helping to raise awareness around the condition.

In this episode, the boys sit down with Evie for a relaxed but honest conversation about life with Tourette’s, the challenges that come with it, and the common misconceptions people still have. Evie shares her experiences, how she navigates everyday life, and what she’s learned from living with the condition in the public eye.

It’s a high-energy, unpredictable episode in the studio, with Josh and Evie’s Tourette’s bouncing off each other throughout, creating a loud and genuinely hilarious conversation from start to finish. Caolan does his best to keep things on track, but as always, it quickly goes off in all directions.

They also talk about Evie’s past 10 years online, how things have evolved over time, and the impact her openness has had on the people who watch her content.

It’s a funny, chaotic and feel-good episode with loads of moments, and we’re buzzing for you to watch it.

Let us know your favourite part of the episode and what questions you would’ve asked Evie.

Listen on Spotify: https://open.spotify.com/show/3UeWfKPanOEfoAW49NPBAc

Listen on Apple Podcasts: https://podcasts.apple.com/us/podcast/cutting-close-podcast/id1890005982

Follow on Instagram: https://www.instagram.com/cuttingclosepodcast/

Follow on TikTok: https://www.tiktok.com/@UCZbTQiu9ZsjvwPauc3_ZISw

Follow the hosts:
Instagram: https://www.instagram.com/thetourettesbarber/
Instagram: https://www.instagram.com/pnky_barber/

Follow Evie:
Instagram: https://www.instagram.com/eviemeg/
TikTok: https://www.tiktok.com/@thistrippyhippie
YouTube: https://www.youtube.com/@thistrippyhippie ⁨@thistrippyhippie⁩  

YouTube channel: https://www.youtube.com/@CuttingClosePod

📩 Contact: cuttingclosepod@gmail.com

Transcript

SPEAKER_01 0:00

Because I think some people might just think you're born with threats, threats started straight away. And just for both of you guys, like when you started noticing it being part of your life.

SPEAKER_00 0:07

I haven't heard your story actually from your point of view. I've just read a little bit of it.

SPEAKER_02 0:10

So I'd be curious to take a seat, little girl, I'll tell you. Um no, it's it's uh it's it's it does sit down again. It does make me nervous, and even Lucy made a point to me. She goes, I'd actually understand a little bit more if it was an adult. But he's a 13-year-old boy. And he still wasn't allowed on that flight. You go, girl, you get them out. But fuck off. I was obviously just not looking because I'm not a bastard, but we all have eyes. And I out of nowhere, out of nowhere, I thought I was just sitting down, minding my own business, drinking my pint while I watched the football, but at the top of my lungs, I went, I came here for a titwank. Welcome back to cutting clothes with me, Josh Hughes, aka the Tourette's barber.

SPEAKER_01 1:00

And me, Queelon, the special Irish fella. This is Cut and Close, where we have real conversations, interesting guests.

SPEAKER_02 1:05

And we take nothing too seriously, and every conversation hits a little fucking close. Right, let's get into it. Let's do it. And if you want to support us on this pod, please like and subscribe wherever you're watching this. It fucking goes a long way for us, and we're already trying. God loves to try. Okay. So we've got a great show on today, and it was our pleasure to introduce our wonderful guest this week. Um and as it's Tourette's aware this month, um, just we couldn't get lucky with the guests we've got. Our guest today is one of the biggest online advocates for Tourette's worldwide. I'm gonna gas you up. Uh, an all-round good fuck! She's got me going, an all-round good person. Um not only is she known for having Tourette's online, but she's also in one of the top ten most followed people on TikTok, which is fucking incredible. So to welcome on Eve Eevee Meg, aka Trippy Hippie. Hi, here she is. Fucking bitch. Oh, don't thanks for coming on, my suite. I know you've taken the time to come down. A fairly we've been wanting to do it for a while, so yeah, we've been in talks about this, but it only we only managed to sort it out literally like a week ago, didn't we? Not even.

SPEAKER_00 2:08

I don't think I think it was like two days ago.

SPEAKER_02 2:09

It was about three days ago. It just ended up happening, but so it so Eevee and I have met before, and just for the lit just for the listeners and the watchers, obviously we've both got to rett, so it is going to be probably a little bit loud today, but do you know what? Fucking shut up and listen. Um yeah, so Eve and I met properly for the first time. Was it this year?

SPEAKER_00 2:29

Kind of briefly. No, it was la it was the end of last year.

SPEAKER_02 2:32

End of last year at the icewear premiere.

SPEAKER_00 2:34

Yeah, it was September, October.

SPEAKER_02 2:36

Was it that long already?

SPEAKER_01 2:37

It's been a while ago since you were.

SPEAKER_02 2:38

Yeah, I forgot it was that long ago.

SPEAKER_00 2:40

Um even then was quite brief. But we've been mutuals for a while now.

SPEAKER_02 2:43

Yeah, definitely. Lots of online activity, that sounds wrong. But yeah, no, so we've known each other for a while, and obviously a lot anyone in the threats community, fuck you and your mum, knows you, right? And I've a bit like myself, where you kind of put yourself out of line, but you've obviously how long have you actually been doing it now?

SPEAKER_00 2:59

Um, well, I got TikTok ten years ago now. Jesus. Um, but it was it was musically back then. Fuck you.

SPEAKER_01 3:06

Of course. That was the same thing. It was musically musically. I didn't actually know that. Yeah.

SPEAKER_00 3:10

Well, yeah, because then China bought it. China, China. And made in. And named it TikTok.

SPEAKER_02 3:15

And then it switched it.

SPEAKER_00 3:17

But it was musical, yeah. So it's the same app, they just gave it a different name. Cunt chicken.

SPEAKER_01 3:21

Fair enough. And what was the reason you started initially? Was it to spread awareness for Twitter threads? Or was it just because you wanted to start something that went from there?

SPEAKER_00 3:27

No, I was actually doing sign language videos. So I got it and I downloaded it when I was at college and I was having a really bad time at college, and I was like really shy and self-conscious. And so I got this new um social media, and I was like, this is great, like nobody really follows me, it's very like quiet. I don't really know anyone, I can just do my own thing. And I was I was doing sign language, so I was just like practicing it there, and then didn't mention anything about ticks, none of my health issues um till like a couple years in, I think. Okay, fair chicken.

SPEAKER_01 3:59

And then when did you notice it started blowing up? Because obviously you and Josh both probably spreading what spread most of the awareness for Trett in the UK now, probably. In different ways, but yeah.

SPEAKER_02 4:08

Blow around trumpets, maybe, but there's a lot of there's so many people out there doing it. I think it's I feel bad for some people because I think they really want it to blow up, and I'm not saying that everyone is going to, it doesn't necessarily mean that at all.

SPEAKER_01 4:19

But when you did it at the start, you didn't do it, you were doing it to almost people out there just to see how help you deal with it.

SPEAKER_02 4:25

Well, for me, when it came to like putting myself out of there, we used that account actually a shop account, right? For H. And then I posted a couple of haircut videos. I think two the first two did really well. Like fuck you, Angela Mum. A couple of hundred thousand views, but then we posted one with Little Harry and it just went mental. But that was all off the back of Lucy saying to me, Josh, why don't you show how you work with your when your threats is bad?

SPEAKER_01 4:46

And it just went from there. But was that similar with you? Like, was there one specific video that sent it mental online then?

SPEAKER_00 4:53

There was one in 2018 and kind of on topic for you. I don't know if you've addressed this on here or not, your legs. Have you got a lot of things? I have, yeah.

SPEAKER_02 5:00

I mean obviously all my socials I have, but yeah.

SPEAKER_00 5:02

So in in 2018 when my legs weren't working, I posted a video of me like kind of getting my legs back and walking across the kitchen. And that was like that was like my first that was like my first um viral video in 2018 was me just kind of hobbling along the kitchen.

SPEAKER_02 5:20

Um It's weird to think about it like that. See, it's it's obviously like it's amazing that you put yourself out there. But then isn't it a bit mad when people do become fascinated with something that actually is really hard to put yourself out there for? But then people appreciate and respect the sharing of your story, right?

SPEAKER_00 5:36

Well, people find like things that are different or a bit kind of odd, I guess you would say. They find it really interesting, they probably don't want to admit it, but like I think it's the reason that like I'm pretty sure there was at one point where like the hashtag Tourette's on TikTok had like over a billion views, and I think it's because people were just so like fascinated in something that was really like unusual and different.

SPEAKER_02 5:59

I think you're 100% right. I think there is that kind of fascination, especially with the uncontrollable side and the swearing. Fuck which is definitely like and again, I think most of the people think that that is Tourette's if the stereotype is that you must swear and you can't control yourself.

SPEAKER_00 6:11

Yeah, but that's just uh and people finding it really like hilarious as well.

SPEAKER_02 6:16

Exactly. And I don't mind personally, I don't know about you, I don't mind when people find it funny because I'd rather them find it funny and acknowledge it rather than act like it hasn't happened.

SPEAKER_00 6:23

Yeah.

SPEAKER_02 6:24

Because I can't stand when people try and act like it hasn't been said.

SPEAKER_00 6:27

No, I prefer to be around people who have a sense of humour rather than like me saying stuff that I'm like myself giggling at, and then they're sat there like really kind of straight faced. I find that really awkward. The only thing that does bother me is like there was a TikTok that went out a few months ago, and it was these two girls, and it looked like they were on like a podcast like this, and one of them said, What's the like what did she say? What's the most desirable condition? Do you see this?

SPEAKER_02 6:51

If you could have a neurological condition, what would you have? It's your Tourette.

SPEAKER_00 6:54

Tourette's and then she did an impression of a tick.

SPEAKER_02 6:56

I just no that that's piss take, personally. I mean, there's you could talk about Tourette's if you're talking about it with some sort of respect, and I but I I I saw that video and I've seen it quite oh jeez. Sorry. Oh little Red Riding Hood. Um loved her tits.

SPEAKER_00 7:14

Yeah, man.

SPEAKER_02 7:15

What was the question?

SPEAKER_01 7:17

Um you were talking about how the girls on the podcast were impersonating.

SPEAKER_02 7:22

Yeah, that was weird. No, I was talking, sorry, I went back to you. It was your conversation.

SPEAKER_01 7:26

Yeah, it was weird because lesbians. But you also struggled with that with your comments. You got that quite a lot with a lot of girls commenting things like I wish my boyfriend had Tourette's not seen.

SPEAKER_02 7:36

Because I actually don't get a lot of I don't get a lot of hate online, but it is that sort of maybe misunderstood questions where they're like, I wish my boyfriend had to do it.

SPEAKER_01 7:44

If there's like one thing for like you two both, for people out there who don't know much about Tourette's, what do you think it makes easier for people to deal with and maybe not come across offensive? Like, what would you want people to know?

SPEAKER_02 7:55

I'll let you go first if you want. Ladies first?

SPEAKER_00 8:00

There's like there's like loads of it, I suppose. Like I think people think of it as like the really funny condition, which obviously it can be. Like, we're very good at having a laugh. You have to look at it.

SPEAKER_02 8:10

If you don't laugh, you cry.

SPEAKER_00 8:12

I'm happy to have a laugh about it. But then I think people don't think about like for example, the uncomfortable feeling in your body, whatever the tick may be. Like, like even sat here, I can like feel it in my legs, my stomach, my eyebrows. Like, I can feel it a lot of the time. And I think people probably don't think about that side of things of like literally feeling okay, I have to move, otherwise it feels like I don't know. For example, if I have a a tick that feels like it's gonna be in my arm, it feels like I have to move it, otherwise it's like I'm gonna just drop off or something.

SPEAKER_02 8:43

Yeah, I I don't know if I had the same sort of build-up like you do from what you're saying. So I don't like again, I'm not maybe as physical as yourself, those ticks, but I did when I was younger, and when I'm thinking about when I was younger, did I did I feel like I kind of got the urge of what was coming? I don't think so. Like, and I've never been able to suppress either. So with suppression, I find it a little bit weird. But going back to your question, with if we could say anything, I reckon there's a couple of points. I reckon it's a mixture of it's all fun and games, like we just kind of said, but I've got to go home with this. When once I leave you, you don't have to think about it. Yeah, we it's constantly with us, and my brain is like a fucking bouncy ball when I'm terrestrial is really bad, it's just constant. Yes, but then also this is something that I think, especially after a few situations that have happened with the BAFTAs and and even more recently, with a few other things.

SPEAKER_00 9:33

I nice feet.

SPEAKER_02 9:34

I think people don't realise that we are not actively thinking about what's just come out of our mouths. We're not thinking when I'm not sitting there thinking, don't say it, don't say it. It's not like that. It's a case of literally I hear it like you would hear it coming out coming out of like I didn't know that actually was a thing until I met you.

SPEAKER_01 9:51

Because I remember there's sometimes you'd almost hear what you said after you've said it.

SPEAKER_02 9:53

Yeah, I'd even have to ask sometimes, so what did I say? Because I've it's I've not paid attention.

SPEAKER_00 9:57

I do that all the time.

SPEAKER_02 9:58

Yeah, hello, even again, like when they're just doing that, like sorry, what was I just talking about? Because it's just so distracting. Yeah, you're almost losing your train of thought in the process, and even so I I picked Evie and my m up to come here today from from around the corner, and even Eve said, like, oh, so how do you get on driving? I was like, it is really hard to have a conversation, remember where you're driving, uh, as well as driving, yeah, uh and remember what you're doing out and with ticks as well. So it's not like I can't handle it, I definitely can, but it is fucking hard work at times to be multitasking when your brain is basically trying to fucking throw you off course all the time. And I don't mean in the car disclaimer, I don't mean throw me off the road, I mean as my brain.

SPEAKER_00 10:34

Yeah, I felt safe for the car.

SPEAKER_02 10:36

I do get often comments about my driving. Josh is a psychotic driver. I didn't notice that is absolutely not true, but I did not notice he's used to driving tractors on Irish roads.

SPEAKER_00 10:47

Fucking oh well, there you go.

SPEAKER_01 10:48

Yeah, snail peas, 24-7. Josh is the opposite. It's basically a white hillbilly.

SPEAKER_00 10:53

It is interesting though, seeing like different cases of Tourette's because some people can't drive because of their Tourette's, and some people can drive and they don't tick when they drive like at all.

SPEAKER_02 11:01

Whereas obviously you still tick when you drive, but it's not something that you're like, see, one of my ones that used to be worse was actually every time I saw a big lorry, I used to put my hand and go pin pew, pimp pin, all the big lorry drivers whilst driving. Yeah. Do you know what though? I don't, you know, fuck the DVLA. As long as I know I'm safe and I'm being safe. But if I know I can't drive when I shouldn't, I won't do it. Do you know what I mean? I'm not like reckless. If I really can't say control of my hands, or oh, I feel a bit all over the shelf, I wouldn't drive that day.

SPEAKER_00 11:32

Yeah, I don't think I could I don't think I could drive with my Tourette.

SPEAKER_02 11:35

No, like again, I think it's the physicality, right? For you.

SPEAKER_00 11:40

Yeah, so I do have motor ticks, so the reason why I couldn't like learn to drive in the beginning was because I started having seizures when I was 16. Obviously, you learn when you're 17, so I could I've never been able to even have a lesson. But then my best friend has this like driving simulator on his um cunt on his PC, and he's got like the wheel, the pedals, everything.

SPEAKER_02 11:59

He's comfortable.

SPEAKER_00 12:00

So I absolutely love it when I go to his house and we try it. But when I was trying it, I'd be like driving, and then I'd like get stuck doing this, or my eyes would close and I'm just like, Well, now I've got to like pause the game. But if my head, I sometimes have moat ticks where I'm just doing this, and that could last like a good 20 seconds, and obviously if I'm driving, like yeah, that's no joke. No, it's not.

SPEAKER_02 12:22

No, I've got that, and it is a shame because it it it must you must feel like it holds your back, but it is it unfortunately it is what it is, isn't it? Yeah, it's a safety thing at the end of the day, isn't it?

SPEAKER_00 12:31

Yeah, I'll just be passenger princess for as long as I need to be. Cat chicken. Yeah.

SPEAKER_01 12:36

That is a lovely lad this time of year. So I was gonna say with Tourette's as well, because I don't even think you've talked about what where your Tourette started and how it happened originally, and obviously, because of Tourette's awareness might be good for people to know kids because I think some people might just think you're born with Tourette, Tourette started straight away. And just for both of you guys, like when you started noticing it being part of your life.

SPEAKER_00 12:54

I haven't heard your story actually from your point of view. I've just read a little bit of it, so I'd be curious to do.

SPEAKER_02 13:01

Um no, it's it's it's it's it does sit down again. Sorry, right, let's talk on a damn hall in a dream. Um yeah, so for me, it was a case of it sounds really dramatic. I was on a I was 14 and a half, I was on a school ski trip in Italy, and it was the second to last day of this ski trip, and I'd fallen over. Not a big thing, I didn't register it as a big accident or anything. Yeah, but come the next day, our last day of skiing, we were on a ski lift and it was a fairly long one that was like four or five minutes coming up, and I started basically out of nowhere convulsing from a pain that I was feeling in my back.

SPEAKER_00 13:42

Did you hit your head?

SPEAKER_02 13:43

So that's what I couldn't tell you 100% if I hit my head the day before, but I must have done something. So they reckon that it could have been a spinal cord injury that triggered something in the back of my brain. But I always seem to think that I knew I think I always had it, but it wasn't triggered until that point. But they can't tell me that for sure. But that's what I personally deep down believe.

SPEAKER_00 14:01

I've heard of that before, where it's just kind of lying dormant and then something triggers it.

SPEAKER_02 14:05

But then I've also had moments throughout my life when my ticks have like lied dormant for a long time. Well, yeah, when I was about 18, fuck. Yeah, waxing and waiting, yeah. Right. But when I was like 19, my ticks went really quiet for not like not like a whole year of silence, but I borderline almost forgot I had to rettes. And then it came, I think can't remember how maybe around 20, it came back again. And then when I started my barbering career at like 21, it kind of was a bit quieter as well.

SPEAKER_01 14:29

Yeah, when I first met you, you didn't take much at all to be careful at the time. Yeah. It was later on again then.

SPEAKER_02 14:32

But it really has waxed away for me where I I've met people that didn't even realise. And I didn't actually at the time have to tell them because it wasn't a big issue, but then it became bad again.

SPEAKER_00 14:39

Big issue. Fuck.

SPEAKER_02 14:41

Read all about it.

unknown 14:42

Right.

SPEAKER_01 14:43

Yeah, and then for you, when did you kind of start?

SPEAKER_00 14:46

I didn't have anything dramatic like that. It was just like super slow, slow onset with like started with maybe one or two ticks and then I was kind of about the same age as you actually. So yeah, and I think you hear about how some people can start showing signs of ticks when they're like three or four. And I we weren't one of the we weren't one of those people.

SPEAKER_03 15:10

No.

SPEAKER_00 15:11

Um, so I was in school, and they do say that like Tourette's can be uh can become like prominent around puberty. Hello. And I do think that that plays.

SPEAKER_02 15:22

Well it's it's the brain industry, isn't it? I think there is something to like there is something with that, definitely.

SPEAKER_00 15:27

Yeah. Yeah. So I was at school and my first one, um, well, what I think was my first one, just sounded like a hiccup, but I had it like a lot, like so many times a day. And then kind of like what I'm doing now with my legs, I remember them just jumping under the desk, not showing off. Not obviously as much as I'm doing now. Um, but it would just be like not not even like once a day, it was just every now and then. And then uh beads on.

SPEAKER_02 15:58

There's the beads on your very side caught they caught my eye, and then that was what it Oh god. Sorry, I stopped your mid-flow there.

SPEAKER_00 16:05

Yeah, I was like up. Um and then when I was 16 and I was at college, they got worse again, and it was like clapping and more motor ticks, and then when I was 18 they got worse again, and then when I was 20, they got worse again, so it was kind of just like slow progression, very, very slow, yeah. Hey!

SPEAKER_01 16:23

And do you ever have times when it levels out or is it kind of constant?

SPEAKER_00 16:26

Um no, I have much, I have much, much better periods, especially if I'm like can't chicken. Um I'm trying to think. There's like certain things where I do where I just don't tick at all, and I'm sure you're the same. Like if I'm on the sofa with pillows and blankets, I can basically they can just sit there.

SPEAKER_02 16:44

I've seen you post those videos, you look so cozy when you get yourself all snuggled up. But I think it is putting yourself in those positions where you know it's gonna help. Yeah. But again, I'm probably similar. That it's probably the best place to be, is on the sofa. It's cutting hair a lot of the time. Yeah, I yeah, when I'm cutting hair, it's actually I think it's the distraction as well. And I think we spoke about this before we came on that you do a lot of painting and stuff like that as well. Getting creative can also be really good for it, right?

SPEAKER_00 17:06

Yeah, so I'm an artist, and like people say to me, Oh, like, how are you an artist with Tourette's? Don't you just like scribble on it or rip it up or paint all over it? And I'm like, no, I don't think I've ever done that with this.

SPEAKER_02 17:16

This is that kind of stigma though of not fully understanding it though, because the brain is such a weird and complicated place to be, yeah, that actually sometimes it kind of works in your in your favour. Where yeah, if you hone in on something, fuck off. You can you can get it done. There's also what something else I wanted to say before we carry on talking, is obviously I think Evie and I are actually bouncing off each other quite a lot with our ticks, so it just because I'll even I want to make clear that I might not be as ticked as normal, but again, because when you meet someone with tourette, so I don't know if you found this, yeah, you tend to really it gets worse because you're with someone else.

SPEAKER_00 17:48

I mean, yeah, the I Swear premiere was like chaos. Hey! We sounded like a room full of birds.

SPEAKER_02 17:53

It was like a fucking domino effect, wasn't it? Yeah, but it was that was so um uh such an unbelievable feeling. I don't know if you felt the same that everyone with tourette's got together and it was fucking noisy trying to watch a film. But it was just but everyone knew that they everyone was fine, everyone's in a comfortable setting with people that understand, and there was something really beautiful about that. Yeah, yeah.

SPEAKER_00 18:15

Um no, I loved it so much, especially because cinemas are such a difficult place for people with Tourette's anyway. Like all of us going there knowing that it would that it like would have been a safe space. I think there's like something really special about that.

SPEAKER_02 18:28

100% and celebrating the film I swear in general is just mad. Like what what is what have you found your response the response in your point of view after after the film coming out?

SPEAKER_00 18:39

What like the public's response?

SPEAKER_02 18:40

Yeah, public or people or friends.

SPEAKER_00 18:43

I mean, everyone that I spoke to that has seen it has had such like has had such high praise for it. My um my grandparents went to see it, which I was worried about because of the language in it and fuck them. Um and their mums. And when I'm around my grandparents, my grandma and granddad, I don't tick very much, and I don't really know why that is. They see a lot of motor ticks and stuff, but I don't think they've heard the full extent of my coprolalia, which is the swearing ticks. Can't chicken. Can't you are what you eat. I was really worried about them seeing it. But when we picked them up from the cinema afterwards, they got in the car, and I was like, What did you think? And my grandma pointed at my granddad and went, He cried the whole film. Oh and like it hit them really, really hard. They they loved it. Chicken. Um, but it is quite a hard-hitting film as well. Definitely.

SPEAKER_02 19:38

I think Tourette's or no Tourette's it's a it's an incredible film. Yeah. Like it's just I think that's that's the whole point of it, right?

SPEAKER_01 19:45

I mean, I was gonna say I loved it, yeah. Well, my mum texted straight away saying like she sat there and cried for the entire film. Do you know what I mean? It was even I was the same. I'm sitting there tearing up, and obviously, you see, because it must be so difficult. Obviously, now it's still difficult to live with Tourette's imagination, but going back to that place where nobody knew what it was, and people were viewing people with dress completely differently. And hopefully, because like you guys, what you do with your social media, hopefully 20 years' time would be the next step. Yeah, and hopefully, the more awareness you spread, it'll kind of be the same thing where it's just not hope so. I mean, I don't know if it'd be the same, but I really do hope so.

SPEAKER_02 20:16

But I think unfortunately that the job is never done.

SPEAKER_00 20:18

Yeah, it feels like that, doesn't it?

SPEAKER_02 20:20

That brings us nicely on to our another thing we wanted to bring up. Um, for some of you that don't know, you might not have seen the story. I have posted it on my socials. Oh no, it's been quite a big thing about this young lad with Tourette's who him and his family got um killed. He wasn't allowed on a British Airways flight because he's got Tourette's. And they would the the the company the BA have said it wasn't because of his condition, but it was the the threat to other passengers and uh and staff, and I just think that's fucking bollocks. Yeah, um basically they told the airline, they told the airport prior to come in, he was wearing his disability lanyard the whole time. And yes, unfortunately, I don't know if you've had a similar sort of situation in an airport, there is obviously sensitive words you shouldn't say, and unfortunately, that is the kind of shit that will come out, it's just the type of works, unfortunately. But I am so anxious and stressed at an airport that oh but that that anxiety can sometimes just make it all worse. But this poor little lad was going away with his mum and dad, his little sister, and him, and he's 13. Yeah, and they got they let him get all the way to the gate before they made uh before they said no, unfortunately. They had a representative from BA telling that they weren't allowed on the flight. They offer them a refund, they have declined the refund. Uh, I don't know what the situation I should be after. I'm actually quite fortunate. I'm meeting this young lad Mason tomorrow. Nice and so I'll be making a little video about it and hopefully talking to him, make sure he's alright, as well as pushing the issue. But what's your thoughts on that, Evie, with that situation?

SPEAKER_00 21:42

I mean, yeah, the way that they fuck. I did feel bad because they said that they'd told the airline in advance because though this is like exactly what they were trying to avoid. And I feel like that made me that made me feel quite sad because it's obviously something that. They were worried about and were trying really hard to avoid, and like, hey, it it happened anyway.

unknown 22:06

Fuck.

SPEAKER_02 22:07

I think all they needed to do was once they got on the flight.

SPEAKER_00 22:10

Bitch.

SPEAKER_02 22:11

Which I've I've I've been on planes, I don't know when the last time you took a flight, but like, you know, fuck you. We do have to let people know because I do understand from everyone else's point. Fuck you, Angie Mum. From everyone else's point of view, that it is a bit weird if you're hearing someone screaming and shouting on the flight. Some people might be nervous and it is a plane, then you know there's obviously stuff around it. But like even if they've already pre-warmed them, all they needed to do was when they get on the flight, was on the tunnel, just say to everyone, Good evening, ladies and gentlemen. Just to let you all know that we have a passenger on board who's a young teenager with Tourette's, and if he does shout things out, then that's all they needed to say. And the other thing that I want to say is what the fucking difference is is it between What's the difference between someone having a peanut allergy and having to make sure no other passenger has peanuts, peanuts, penis? Make sure no one else has peanuts on the flight. What's the difference between doing an announcement to say this is a you know there's a guy with tourettes on this flight? I've got to travel. We're going away from my stag during a couple of weeks. Yep. I'm shitting it because I feel like if this is I mean, I'd be surprised if anyone touches that sort of subject again with tourettes. But it does make me nervous. And even Lucy made a point to me. She goes, I'd actually understand a little bit more if it was an adult. But he's a 13-year-old boy.

SPEAKER_01 23:20

He's a young lad, yeah.

SPEAKER_02 23:21

Like with his parents there with a disability lanyard again, just making that double clear, they covered all bases. And he still wasn't allowed on that floor.

SPEAKER_01 23:28

So is that a common thing for people who don't know? So with Tourette's, when you are traveling, do you always make it aware to the airlines or like say trains or anything, or do you kind of just go about your life day to day and just because obviously Pete, you're spreading awareness about it, but a lot of people still don't know.

SPEAKER_00 23:40

Bitch.

SPEAKER_01 23:40

So do you make it aware to people before you go traveling?

unknown 23:44

Oh.

SPEAKER_01 23:46

So I'm talking too much.

SPEAKER_00 23:47

I mean, I I don't think we've ever told them in advance. I usually have a lanyard on just so that it's like clear as day. I mean, someone's twitching away, it's pretty obvious anyway, I think. Personally. Um, but I don't think we've ever told them in advance just because for me, I'm quite an anxious flyer. And I know that a lot of people, when they're stressed and they have Tourette's, their ticks get worse. But if I'm like really anxious about something, I don't tick very much. So usually in an airport, I'm not as ticky as I am now because I'm worried about flying, if that makes sense. Yeah, even off going through your head.

SPEAKER_02 24:23

With anxiety of it all.

SPEAKER_00 24:24

Yeah, so like I'm not usually as ticky as this when I fly. Um, but like if I was to get really ticky, I would probably ask them to do an announcement. But going back to Mason, I feel like they were saying that there was a threat, this 13-year-old boy. Hello, just because of what he'd been saying. But like he'd gone through security, so he'd been checked. They know that he didn't have anything.

SPEAKER_02 24:49

Such a valid point.

SPEAKER_00 24:50

So if they let him on the plane, my mum made this point the other day, they could have done the announcement and said he has Tourette's, there's no like meaning to his words, he's been security checked, he doesn't have anything, he's just a boy with Tourette's.

SPEAKER_02 25:02

I completely agree. It shouldn't even have to be said, but I agree that they could have double covered themselves.

SPEAKER_00 25:08

Yeah.

SPEAKER_02 25:08

And again, I saw the video of the representative from BA. Yeah. She seems to be very calm and delivered that, you know, because I saw a bit of a mix of views in the comment section of that video because some people were like, Oh, it's not her fault. I'm not saying it's that individual's fucking fault. It's obviously a higher-up situation that have made it trickle down. But unfortunately, she was the face of basically the person telling them that they can't get on. Yeah.

SPEAKER_00 25:30

But um, anyway, so I think she was higher up because in the video, I'm sure Mason's dad was saying, like, is there someone else I can speak to? And she was saying that like she was the most senior person she's speaking to. Hey, hey, hey, hey! So I mean I think I think that's right anyway.

SPEAKER_02 25:46

But uh it'll be interesting, like I said, hopefully the the video that this podcast will come out similar sort of time to maybe when I release the video of Mason as well on my social. So we'll see. Yeah, because it's the thing, like I'm not even trying to jump on the clout of it. I just actually one, I want to make sure Mason's alright. Because I want to remind him that actually this is fine. Hey, I looked at yeah, yeah, yeah. Oh, that looks dehydrated. Um beat. But I also want to check in on Mason, make sure Mason's alright, as well as talk about the story. Yes.

SPEAKER_00 26:19

Yeah, you know, I'll be looking forward to it. I'll be looking out for it. That's actually one of my ticks. I say that all the time.

SPEAKER_02 26:26

Oh the time. Fuck off. So you know that you know the phrase, this is what I said at the football the other day. This is quite a funny tick, and I've got to say. You know, in the film Legend with uh Tom Hardy, he goes, okay, me, shoot at. But fuck off. I was obviously just not looking because I'm not a bastard, but we all have eyes. And I, out of nowhere, out of nowhere, I thought correct. I was just sitting down, minding my own business, drinking my pint, trying to watch the football. But at the top of my lungs, I went, I came here for a titwank. And everyone heard it, and all my boys were obviously screaming. The table next to us found it fucking hilarious. But again, this maybe brings me on to a point that again with Tourette's that I think people wouldn't understand. I actually did a brief video about it the other day. But it's the embarrassment and the shame of what comes out of your mouth sometimes. Like I am, I've got quite dark humour, I like being pushing it to the line, as you well know, Quinn. I do, yeah. But there is some things like that in that setting. Like, I didn't want to say okay, my friend's hit wank. I really don't want to say that in public at 31 years of age. But that is something that I think people don't understand. That I don't mind being the centre of attention, but when it's not even my own doing. Yeah, yeah. And sometimes I just want to be in the background a bit more.

SPEAKER_00 27:47

I know, I feel like my Tourette's doesn't really suit hello, what I look like. Because like I've got loads of ticks talking about dicks, and like I'm this woman all dressed in purple, and you know, I try and make make myself look quite nice, and then I can like thank you, and then I could like say to my brother, get your dick out. Yeah, and like it doesn't fit, you know what I mean?

SPEAKER_02 28:07

Like that's a really good genre on Paul Nutton.

SPEAKER_00 28:09

It's it's it's awful.

SPEAKER_02 28:14

I do get what you mean though, about like I basically what you're saying is I'm not you're not saying that you're innocent, but you're your what you portray is you're a young person who isn't not trying to talk about dicks.

SPEAKER_00 28:25

Yeah, fuck.

SPEAKER_02 28:26

I'm also trying not to talk about dicks. That's all you talk about. It is, and I just have to I just have to work with dicks.

SPEAKER_03 28:32

I five me bamboobs.

SPEAKER_02 28:41

You said mamboobs so quietly that it hurt.

SPEAKER_00 28:44

I've had that one about five years.

SPEAKER_02 28:46

Probably six years actually.

SPEAKER_00 28:50

It's from Miranda. Have you ever seen it? Yes, I love it. I've got so many ticks from that show. It's not even funny. Cunt chicken.

SPEAKER_02 28:57

Also, sorry, should we get back on track?

SPEAKER_00 28:59

I don't even know what we're talking about.

SPEAKER_02 29:00

No, I forgot what we went to know now.

SPEAKER_01 29:05

It's a great topic to stay on, to be fair. But there was actually my sister-in-law pointed it out.

SPEAKER_00 29:10

Don't care. Sorry, Carol. Fuck.

SPEAKER_01 29:13

My name's Eevee. Which actually is quite is it actually? Not Evie, no, sorry. Readers, readers. Readers, sorry. Yeah, it's readers. It's my brother's readers. No. Which because she's actually been following you for years. She said hello as well. Yeah. She's actually very excited about this. She was, and she's actually asked a question because she was saying the power of social media, because when you had a so you were trying to get diagnosis, and then there was a girl on TikTok who commented, and that I was looking into it last night, and that's quite fascinating. And obviously for people who don't know, maybe just to explain that situation.

SPEAKER_00 29:42

Yeah, so um it's kind of a bit awkward because you've got my old diagnosis, which turned out to be wrong for me. Hey, fuck off.

SPEAKER_01 29:50

So what's Josh might even know about it? Josh might not even know about this, to be fair.

SPEAKER_00 29:54

You do, I'm sure you do. Wrong diagnosis, what do you mean? Yeah, I was diagnosed with FND in 2019, and it turned out to be wrong.

SPEAKER_02 29:59

Oh, sorry, right. Sorry, I missed. I thought I thought you meant Tourette's and I was like, I'm pretty sure they're right.

SPEAKER_00 30:06

Yeah, no, that's that one's right. Fuck off. Um yeah, I was diagnosed with FND in 2019, and then hello. And then in 2021, this girl in America was like, Evie, really needs to look into this, cunt chicken. Um, and she was spamming me all the time. And eventually I messaged her and I was kind of rude. I was like, What do you want? Because she had been bugging me for so long, and I didn't really understand what she was saying because once you have a diagnosis and you've had it for a while, you like settle with it. Cunchicken. And um, yeah, she was basically exactly right. So it turned out to be like encephalitis inflammation of the brain and uh Lyme disease as well. Fuck the kids. Um, which neither were things we'd ever considered, but it is a pretty cool story though.

SPEAKER_02 30:59

So sorry, just to be clear, so so she's reached out and she's told you that you might have been misdiagnosed because of her own experience.

SPEAKER_00 31:06

Yeah.

SPEAKER_02 31:07

No way. I didn't so I didn't realise it was quite like that.

SPEAKER_00 31:09

Yeah, it was weird things as well. She was she was like watching um watching my videos and sending me screenshots of my pupils where my pupils were dilated and was like, this is a sign of it, this is a sign of it. And I was like, oh my god, like she was kind of low-key stalking me. But like we're really good friends. Oh, when the when there's over.

SPEAKER_02 31:28

So just how many followers have you got on TikTok and so other platforms as well?

SPEAKER_00 31:31

At the moment on TikTok, there's 15.3 million. Isn't that mental? Hello fuckers!

SPEAKER_02 31:36

It's like five times the size of my own. Yeah, when you put it in perspective like that, which is even mad because kind of touching on that. Are you alright?

SPEAKER_00 31:44

Yeah, yeah. I'm alright.

SPEAKER_02 31:47

Yeah, sure. Sure. You're sure. Okay. Fuck off then. Um can we get a medic? Um with regards, again, I know it can sometimes feel a bit uncomfortable to talk about followers like that, but I mean, obviously, one, 50 over 15 million is fucking mental. And congrats to that because you deserve it. Thank you. But does it also how does it make you feel almost knowing that when you do put stuff out? I know it doesn't mean necessarily 15 million people see every video. Yeah, yeah. But how does it feel that there's a potential that they could see all that?

SPEAKER_00 32:19

Um it's kind of scary. I mean, there was a period where I stopped uh like just showing any videos where I was ticking. Um like it used to be that if I was having a bad tick day, I would talk about it with my followers and share it with people, and then like I just stopped stopped doing that. But I guess when you're being super vulnerable with things like dystonia and seizures and other mobility issues, that is really scary to be really vulnerable. Hello. But like I started talking about stuff like that in like 2018, so it's been quite a long time, and I think eventually I got kind of maybe a bit too used to it. Like sometimes I worry that I'm too comfortable online. Yeah, fuck. So I get people say to me, Oh, how do you do it? And I think a lot of the time I don't actually think about people seeing it, which sounds really silly. Yeah, which I don't know if that's a great maybe not.

SPEAKER_01 33:18

I think it's quite a normal thing. Over a period of time, you're gonna get used to that, aren't you?

SPEAKER_02 33:21

So you've got to have, I mean, I think it's incredible that you put yourself out there. And I think it's kind of like your story and a couple of others kind of inspired me to want to put myself out there more. And I think not saying it's any different from a guy's point of view, but I think for a bloke with Tourette's to be as vulnerable as eyes lights, I tend to try and put myself out there as it can be difficult, and I think we just I'm trying to show all, but I'm also not trying to show it as just a fucking highlight highlight reel. Like I I want to show how how how well we're doing, but also I do want to show the side of well, it can be shit, but I also don't want it to come across like a fucking victim. Because I don't need I don't need sympathy, but I'm all putting myself out there for if anyone else is also feeling the same.

SPEAKER_00 34:00

Lesbian.

SPEAKER_01 34:00

I don't think anyone would ever view it as a victim, but that's what I'm saying. Why it's such a good thing with the movie I swear coming out, and you guys, like for people like me or Ryan who don't who didn't grow up knowing about threats. You're showing the sad side of it, or not the sad side, but showing the side of it that actually affects you day to day is what more people need to know about.

SPEAKER_02 34:16

Yeah, definitely. I think that is the day-to-day stuff, right? And again, for me, it's not just about yeah, when I get do a twitchy haircut and it's really fucking funny. That is, I think, the same way I've drawn people in to show what I do, and I like to show people that I am, even though I have Tourette's and it is a real struggle, that I can still crack on with my day job and something that I'm passionate about and actually took me on trumpet, I'm fucking good at it. So that's what I'm just trying to show.

SPEAKER_01 34:39

But well, that's the same to you to be fair. So aside from like Tourette's, because that must happen a lot online where people view you as a person with Tourette's, but aside from like your diagnosis and all these things, you're saying you do arts. Do you have any other things that you do business-wise or like aside from everything else?

SPEAKER_00 34:53

Well, I was a gymnast for a long time, and that was like kind of just my personality for so long. Um, and then when I got more unwell, I had to quit. But um, I would say, like, yeah, I mean, a lot of people know me for like my love of animals, and I post a lot about animals. I've got three rabbits at home, which are basically like my kids. Hey, um, but it's like, yeah, it's like you're you're known as like the barber with Tourette's, but you're also like just Josh, like and I'm just Evie. Like we are Fuck we are people, but it's kind of unfortunate that the Tourette's is so obvious. So maybe people might notice that first. And I often think that sometimes when people see me twitching in public, um, they probably don't realise that I can have a normal conversation with people like this. But you are okay.

SPEAKER_02 35:44

I mean, don't be wrong, I can imagine having having a seizure is a completely different fucking thing.

SPEAKER_00 35:48

Yeah.

SPEAKER_02 35:48

But but like, you know, just seeing you maybe struggle, they might think you're struggling, but actually it's just this is just what we have to deal with.

SPEAKER_03 35:55

Yeah.

SPEAKER_02 35:55

But like I again, like when I get stuck in like a tick or something like that, and I can't stop it, and again, sometimes it depends what I'm doing, where I am, who I'm around, whatever. But breasts. It doesn't mean lovely. Um chicken. I actually have no idea what I was talking about. I don't think I was going anywhere with it. But then as soon as you said breasts, because it was so clear, breasts just came into my brain. Like a flash. Um nipple, right.

SPEAKER_00 36:26

I don't know what we're talking about.

SPEAKER_02 36:27

So with your art as well then, what kind of art do you do?

SPEAKER_00 36:34

Um mandalas. Yeah. I'm a mandala artist, so like your tattoo is very, very strong.

SPEAKER_01 36:40

Get that stuck on there.

SPEAKER_00 36:41

I do actually have a I have two friends I think that have tattooed my artwork. But they're from like years ago, so I kind of look at it now and I'm like, eh.

SPEAKER_02 36:53

Yeah, we'll we'll get that going.

SPEAKER_00 36:55

I mean, they still look nice, don't get me wrong, but like I think as an artist, when you look at work from years ago, you're like, oh, that's not great.

SPEAKER_01 37:02

That's the nice thing about documenting online because you can see how much you've improved over the years.

SPEAKER_02 37:05

The same guys, yeah, 100%. But I mean, yeah, god, I I I think you should definitely do that. Maybe not to have it on him. Or maybe you say that you shouldn't do that. But we can definitely have it drawn out, put it on him. And then maybe you could put something.

SPEAKER_00 37:17

Why are you getting him into this?

SPEAKER_02 37:18

This has to be his on your inner, yeah. Fine. I'll do something similar, but in his one, it has to be a hidden message.

SPEAKER_01 37:26

Josh was looking for a full face mandala.

SPEAKER_02 37:29

No, like you're a cunt. I was gonna say like fuck just in the middle.

SPEAKER_00 37:35

Just leave my mark. Oh my god, no.

SPEAKER_02 37:37

Put like a five-leaf clover or something just to wind it right up. Yeah.

SPEAKER_00 37:42

Well, you paint as well, though, don't you?

SPEAKER_02 37:45

I haven't I haven't done as much painting as I'd like to. I've always been I've always been I've always sketched in that, and again, like I can draw eyes just with with my eyes closed. It's just something I've just repetitively done. And that's like why I like that one as well. But um, but yeah, I've always found that's like a good little like release and a break for me, like when especially when I'm feeling really twitchy.

SPEAKER_00 38:05

Yeah. Fuck! Yeah, I barely tick when I'm I might have like some in my face, so I get lows in my eyebrows. My eyebrows are like always dancing around. Right. So like when I'm drawing, I might be doing stuff with my eyebrows, but I'm not gonna have like big, like full body ones. And I think people people don't realise that. But I think people also know, like quite commonly, that people with Tourette's or stutters can sing really well. I mean, not all of us, obviously. Hey, but I mean we can sing without singing uh without stuttering or ticking.

SPEAKER_02 38:35

I just I was gonna go straight to spando our ballet then. Go on, go on then. No, I'm not gonna do it. No, but you know, the first bit that comes straight away. Oh, take the stage. But I mean it is true though, I think, yeah.

SPEAKER_00 38:49

I feel like that's more common knowledge than some other parts of Tourette's might be. I feel like I see that online quite a bit.

SPEAKER_02 38:55

What the distraction thing?

SPEAKER_00 38:58

Yeah, about like singing because there was there was like a guy on um who went on the voice with Tourette's a few years ago. I've forgotten his name now. He used to be quite big in the Tourette's community on YouTube, and he went on the voice and he got through the whole song without ticking, and then the song stopped, and the judges turned around because they pressed their buzzers and he was like ticking away, and they had no idea. Fuck! They had no idea that he had Tourette's because he uh went the whole song.

SPEAKER_01 39:20

It's bizarre how the brain works because I do find it fascinating how that works. I've seen it with you before in the past. I love Baldman, and there earlobes. You too. Not on the earlobes.

SPEAKER_02 39:31

Nice to see you, mate. Okay, you popped into my brain. Earlobes, that's fine. You need your earlobes reading. I do love a good earlobe. Can I see your lobe? Do you mind? Do you mind just showing me your lobe? This has become the thing. We see earlobes every single day.

SPEAKER_00 39:42

I didn't know if you were ticking or not.

SPEAKER_02 39:43

I know it was mate. I was just gonna say show me your lobe, because we we see ears every single day. Josh is trying to talk a weird thing.

SPEAKER_01 39:51

Can I be honest? Josh is trying to make this a thing. He wants to try to make earlobes a thing. It's you're trying to break my lobe. Yeah, it's not a thing.

SPEAKER_00 40:00

So, what makes a nice earlobe?

SPEAKER_02 40:02

You've got a nice sweet ear little earlobe. For me, I like a nice big earlobe, bit of flesh on there, something to play around with. Do you know what I mean?

SPEAKER_00 40:10

It's just like a fetish thing.

SPEAKER_02 40:11

No, it's not. No, it's not a fetish thing. That's what I call across the room. Because you look very scared that way. It's not like that. It's more just appreciation. Because we we cut people's hair, so we're staying above people's heads all the time. So everyone's got different ears. That's all I'm talking about. I'd give yours if you want a rating, I'd give them a solid seven and a half.

SPEAKER_00 40:32

I didn't ask for that, but thanks.

SPEAKER_02 40:33

Well, now you've got it.

SPEAKER_00 40:35

Seven and a half. Yeah.

SPEAKER_02 40:38

Yeah, well, maybe you've got to work on it.

SPEAKER_00 40:42

Do the piercings add any extra?

SPEAKER_02 40:44

Maybe it does. Okay, we'll bring it up to an eight.

SPEAKER_00 40:45

Oh, thanks. I'll take it.

SPEAKER_02 40:47

You're a bizarre person, you are.

SPEAKER_00 40:50

Do you do this with every guest that you have to do?

SPEAKER_02 40:53

It's gonna become a you wait till I get to check out Ryan's while he takes those headphones off. Show me a tea. Just show me the ear. Just show me your ear. Oh, that's meaty. That's a meaty lobe. Dear Lord. Anyway, sorry. For people listening, Ryan, our cameraman, has a very meaty lobe.

SPEAKER_00 41:15

Penis. Oh no.

SPEAKER_02 41:18

He's got a meaty penis too.

SPEAKER_00 41:20

Stop.

SPEAKER_02 41:20

Which we are. We need to move on.

SPEAKER_01 41:24

So with um because obviously sorry, my head has gone now with that.

SPEAKER_00 41:30

But chicken.

SPEAKER_01 41:31

What is because obviously we've talked a lot about like different ticks, things. What's the funniest situation that your threat has put you in in your life? To both of you guys, or like say a funny moment that you can remember.

SPEAKER_02 41:42

Have you got something off the bat? Do you want me to go first?

SPEAKER_00 41:45

I did have one, but I've forgotten it, so you can go fucking cunt.

SPEAKER_02 41:48

I had one the other day, and there's a lot of funny situations that have come from being at Lucy's family home at the dinner table. Oh god. So I've got like my father-in-law, Paul, and Tracy, my mother-in-law, and usually either both or one of both their brothers. And this was only like two Sundays ago. My ticks were really bad and it like really amped up throughout the course of this dinner. We got to dessert. I can't even remember some of the ticks that had already happened by this point, but because they're so good and I'm so comfortable, I think my ticks were just extremely bad that day.

SPEAKER_03 42:17

Beans.

SPEAKER_02 42:17

But I'm very comfortable there. But my mother-in-law was handing out dessert, which was I think it was chocolate-covered strawberries. And Lucy's mum, Tracy, had chocolate on her fingers. And I might have looked her straight in the eye and said, Tracy, let me suck those fingers clean. I didn't want to say that to my my future mother-in-law. She took it like a trooper. Hello, David. And I didn't actually get to suck them. But it's just uh sorry, Paul. Thank God. That for me, that was a really funny situation. I felt really embarrassed at the time, but it was really funny, and I can look at it, look back at it even only a couple of weeks ago and think it was fucking funny. Yeah, that's good. And yeah.

SPEAKER_00 42:54

Wow.

SPEAKER_02 42:54

So yeah, that was something. That was literally two weeks ago. Because I can't go that far back. I can't fucking remember all my tics.

SPEAKER_00 43:00

I don't know if I can top that.

SPEAKER_02 43:01

I sometimes like to ask a panel of people that I know because then they'll they'll have their own aspects or they'll have their own perspective of funny ticks.

SPEAKER_00 43:08

Yeah, that's good. Fuck! Um the o well, there's a few, but one of them that I was we went up to an eight. That point five makes a big difference to my to my ego. Fuck off. All right. So there was a there was a couple that came to mind. One of them was Therese camp. Hello, Buckers, in um 2021, I think.

SPEAKER_02 43:41

Special camp. Where the windows taste great. Everyone in the room is crying. I'm so sorry. Even if his mum behind the camera cannot keep it together. That's definitely staying in.

SPEAKER_03 44:03

We're allowed.

SPEAKER_02 44:05

We're allowed.

SPEAKER_00 44:06

Um sorry.

SPEAKER_02 44:09

Tourette's camp.

SPEAKER_00 44:10

Tourette's count 2021. Um This isn't gonna be that funny after all that. Your tick was funnier than my own.

SPEAKER_03 44:18

Your ticks are funny. Sorry.

SPEAKER_00 44:20

Thank you. Um not funny, ha ha. Wee. Um so there was like 40 of us with Tourette's in one room. God chicken. Yeah. And I have a tick where I say my own name, wee. And it's usually kind of like, well, at the time it was Evie, what you doing all the time. And I would like say it to myself over and over again.

SPEAKER_02 44:41

That sounds like the name of a really good song.

SPEAKER_00 44:43

Really?

SPEAKER_02 44:44

Evie, what are you doing?

SPEAKER_00 44:53

Um, and that was a big one for me at the time. Like I was saying it all the time, and I managed to spread it around at Tourette's camp. So we were having this like seminar, I think. Yeah. Bitch. We were having like this seminar where a kind of like neurologist person comes in to talk to us all about Tourette's as if as if we don't know enough about it.

SPEAKER_02 45:15

I'm saying expert because we get told we get told about our own fucking condition. I've run in the story.

SPEAKER_00 45:21

I mean So we were at this like seminar, and like Eevee, what you're doing was just echoing from all different corners of the room. And this was like four, no, five years ago now. And I still get the odd person say to me, you know, every now and then I still say, Eevee, what you doing five years later, and it was just from every corner of the room, and it was really funny because I made a video of it that went quite viral, and you could just like hear it in the distance.

SPEAKER_01 45:47

Oh my god, people saying it.

SPEAKER_00 45:50

Yeah, it was great.

SPEAKER_01 45:52

I feel like that's a tattoo shit. Wow.

SPEAKER_02 45:55

Eevee, what you're doing, yeah.

SPEAKER_00 45:56

That would be quite good. It does creep me out though. Like, even now, I don't say evie, what you're doing anymore, but it's just like Eevee. Like, imagine if you had a tick where you're like, Josh.

SPEAKER_02 46:06

See, I I really creepy. I don't think I've ever ticked my own name. But I can't be 100%. But I wouldn't have to be a good one. I don't know where it's come from, but I don't like it. I sometimes do get names in my head. Like I said to her, David Seaman was living in my head for a good 18 months, went through.

SPEAKER_01 46:20

Yeah, you're obsessed with David Seaman for a while, yeah.

SPEAKER_02 46:22

Seaman! But I started to realise all over your face why David Seaman's name was in my head. And I think obviously it is the second name. Tits! But I think it was also, and I was like, but why David Seaman of all people, right? And I was like, where's that come from? Then I came to the conclusion that my older cousin, well, I don't see that often, but when he was a kid, I was a bit obsessed for him being my older cousin, and his room was dedicated to Arsenal. Um, that was firm.

SPEAKER_00 46:47

Sorry. Thank you.

SPEAKER_02 46:49

Um good punch. But I realised that my cousin had all these pictures and basically a shrine to David Seaman. So I think that must be where it came from, but that was unlocked. Like we're talking like 25 years later.

SPEAKER_01 47:03

That's crazy when it sits in your subconscious for that long, then, isn't it?

SPEAKER_02 47:05

It's maybe maybe 24, 20, 23 years. But like we are talking that I reckon that has been at the back of my brain all that time. Now it's just come out that way. All over her face.

SPEAKER_00 47:14

I blurted out semen at my therapist the other week.

SPEAKER_02 47:17

Really? Yeah. What did he have to say about that?

SPEAKER_00 47:20

Well, he tried to go past he tried to just ignore it, but then I started giggling, so he did as well. Yeah. He's got a good like sense of humour, so I wasn't really but he's Irish, so he said something in an Irish accent and it sounded like semen, so then my Tourette's was like semen. Um but going back to what you said before, I've always said, like, I've always thought that for people with Tourette's, this is how I look at it at it anyway, that we have like this is gonna sound really stupid, in our brains, like a filing cabinet with all our old ticks in.

unknown 47:52

Yeah.

SPEAKER_00 47:53

And I can find that literally like years down the line, a tick from like seven years ago could just randomly blurt out. And I fully believe that they're all like stored away somewhere.

SPEAKER_02 48:03

Do you know what I reckon it's like? Did you ever watch Bruce Almighty? Yes. A little bit like you know, when he pulls out the filing cabinet, I reckon it's actually like that. There's nothing behind it, but it's about two miles long. That's exactly what it is. Because I I genuinely feel like I'm not the brightest. I was gonna do I'm just gonna start doing Elvis then. Oh, I didn't give you your chance. I um when to become one. These are an issue. These are an issue. We never worried about this before. This has become problematic. What's the question? I'd often think that I'm not the brightest person. No anchors, but my brain obviously has a lot more capability than I I am aware of because again, like we're talking about holding in that information, and there's things that come up. I'm like, how the fuck is it? And also, uh the association game, my tourette is so quick at like hearing I hear something, I'm not even thinking about responsible. My ticks have said something that is not only funny but relevant to that conversation.

SPEAKER_00 49:02

Yeah, my mum says that my ticks are really quick. Cut chicken.

SPEAKER_01 49:06

Funnier than you, like you always say that. You say my tourette is funnier than me, doesn't it?

SPEAKER_02 49:09

You always say and I'm fucking funny, so they must be good.

SPEAKER_00 49:11

Yeah, you always funny.

SPEAKER_02 49:13

That was sarcastic.

SPEAKER_00 49:14

No, it wasn't. It definitely was. I missed it. Cut chicken.

SPEAKER_02 49:19

Cut chicken. Chicken can't chicken. Ever seen a chicken's cut?

SPEAKER_00 49:24

Not personally, no. When I came from it. I'm vegetarian though, so. Oh, you're veggie. Yeah.

SPEAKER_01 49:30

Josh has a vendetta against vegetarians, so I used to get a lot of stick for that.

SPEAKER_00 49:33

Are you vegetarian?

SPEAKER_01 49:34

I was, I grew up in a vegetarian household and I was vegetarian. And then I got you get a lot of stick off people like him. That's kind of crack.

SPEAKER_02 49:42

I don't know if I want to go for a meal with you after this, then. Yeah, true, actually. Oh, okay. I've got a question for you. And it's coming from me because and again, if it's something that you don't want to answer, we don't have to leave it in. But do you think you've ever met anyone with Tourette's that actually hasn't got Tourette's?

unknown 50:01

Fuck!

SPEAKER_03 50:06

That's good. Oh, that's side.

SPEAKER_02 50:09

That's the clinic.

SPEAKER_03 50:10

That's good.

SPEAKER_02 50:11

Have you met anyone else with Tourette's that thing's got to be that's good. How did you know?

SPEAKER_00 50:19

Oh god, sorry.

SPEAKER_02 50:21

Um engine, mum. You can walk home.

SPEAKER_00 50:29

I genuinely don't know. Why have you? Fuck the kids.

SPEAKER_02 50:33

Obviously, you will never know.

unknown 50:34

No.

SPEAKER_02 50:36

But I'm big old titties. And I'm not lovely. Um I'm I'm not saying this is just my percent my my opinion, right? But and that isn't I meet a lot of people with threats now because of the online stuff, and obviously people come to my barber shop. I I'm a cheeky wee, I tend to feel I I get the sense off someone when they've got tourists.

SPEAKER_03 50:56

Yeah.

SPEAKER_02 50:57

Like almost pro like even if they just walked in, it we almost trigger each other straight away. And I'm not saying I feel like we kind of had that. As soon as I picked you up, I got a bit more twitchy as soon as I was fine in the car when I picked you up. And that's not no sorry about that. But I'm just saying, I really don't mean that in a way of like, oh, it's your fault, but I just got to rets like there is this weird thing that like you kind of you both set each other off.

SPEAKER_00 51:20

Yeah. Fuck.

SPEAKER_02 51:21

I have met people that don't set me off that claim they have to rates.

SPEAKER_00 51:24

Hi-5 me, man boobs.

SPEAKER_02 51:26

Thanks, tits.

SPEAKER_01 51:27

Um I hope man boobs six.

SPEAKER_00 51:29

It's because you're doing this with your hands, so it's like right there. No, you're fine. Um gay. Sorry, my hands are a bit clammy as well. That's fine. Did you notice? I did.

SPEAKER_02 51:39

I thought you washed them. Um what was what's that? But that's what I'm trying to get at. It's the fact that I I can't say for sure that they don't have to. Which? I've met so many people where I have that feeling instantly.

SPEAKER_00 51:51

Yeah.

SPEAKER_02 51:51

But there's some people that I have.

SPEAKER_00 51:53

I think I have once actually, now that I think of some, but I I don't think I can talk about it.

SPEAKER_02 51:57

No, that's absolutely fine. I I I respect that. I wasn't trying to call you out when it was. Is that quite a big thing online though? People faking it. Yeah, did it, yeah.

SPEAKER_00 52:03

Yeah. Thankfully, not so much these days. I feel like it's calmed down.

SPEAKER_02 52:07

But I think it has, and I don't think you'll know. There's a few that off straight off the bat, was it Ticks and Roses? She was a big one online. And like I think I don't know how it came out that she ended up well, actually I do. I I saw a video the other day about it. She put herself out there all out of the blue and it was she became quite big. Breakfast. But then it was all a little bit her ticks were a limit to Do you recognise that?

SPEAKER_00 52:28

Blackfist. Do you know what it's from? I never meet people who know what it's from.

SPEAKER_01 52:33

Blackfist. Have you ever seen the video?

unknown 52:34

No. In the kitchen.

SPEAKER_02 52:37

I know it. I know I do now, it's been explained. But what we're gonna talk about enough. People online and personally pretending. She she was a big one who said that she was very handy. But she she she came out and it was her ticks were like too I don't know how else to say it, but they were like too perfect. If you know what I mean. Like they were too they were like, I mean, oh don't do that, don't do that, don't do that, do it. It was too it there was sorry if anyone who saw my hairline then.

SPEAKER_01 53:13

But um that's worse than the hairline, don't worry.

SPEAKER_00 53:17

You look great, Josh. No, you look quick.

SPEAKER_02 53:23

That's not the first time you troll to it. No. You we actually do give Quinn on a slap at the end of every episode as well. So it's just good for you to know. That was quick. But so anyway, but basically it came out. I think people started to question her online, and then actually Widlough her sister posted that she's never been diagnosed from a sister. But I think and there was that Elphabara Alpha Bar, whatever her name is.

SPEAKER_01 53:47

Was it Scarlett Moffat actually? Scarlett Moff. She got in trouble, didn't she, a few years ago for the instruction?

SPEAKER_02 53:51

She made a really fucking stupid comment on a documentary she did. Actually, Jody and Nicole Dyer were on it.

SPEAKER_00 53:56

Yeah, I was invited on it.

SPEAKER_02 53:58

Oh really?

SPEAKER_00 53:58

I refused.

SPEAKER_02 53:59

Yeah, I'm not really yeah. I'm not saying that you shouldn't or shouldn't not go on it. Yeah, I don't actually have any recollection of that. I've only watched it once to kind of see nice feet. But she'd made a comment about that she had ticks and that she didn't want to get too close to it. In case she caught it, that set us back in the threats community because then people honestly, I'm not saying people are stupid, no one is, but unfortunately, people do take things that betray you, and it's like, but of course you can't catch it. Yeah.

SPEAKER_00 54:25

Yeah, someone that I mutuals with after that actually got a text from someone at work that where she works saying, hi, like I don't mean to be rude, but I saw the channel full documentary and I'm a bit worried about coming into work now. Am I gonna catch your tour? You joke you know, someone that I was mutuals with, and so obviously she sent a message back saying, like, this is absolutely disgraceful. No, you're obviously not gonna catch my Tourette. Cunt chicken, but it just shows that um Evie, what the media puts out there. Oh, that was my take that I was telling you about. Oh, yeah, yeah. Fuck you, yeah. Hey cunt.

SPEAKER_02 54:59

Oh, I didn't know if you were talking about electric vehicles.

SPEAKER_00 55:02

What? Oh, the cars, right? Hello. Um, what was I saying? But it just shows that what the media puts out there does actually have an effect and people do believe it.

SPEAKER_01 55:12

People believe anything, that's the issue.

SPEAKER_02 55:14

It's yeah, I haven't even got an example of something that's outrageous that people believe, but Santa. There is so many things like that. Sorry, kids, Santa Israel. Bitch. This is a kids' podcast. Oh yeah.

SPEAKER_00 55:32

Oh no Lord of all kids. That was cool. Plus, I've been saying that the whole time. To the kids. F the kids. I've been saying that the whole episode. I think it's all the time it's true. Maybe not.

SPEAKER_02 55:42

Yeah.

SPEAKER_00 55:42

Fuck off.

SPEAKER_02 55:45

Santa was so good. That was that kind of opening it up to me.

SPEAKER_01 55:50

I'm sorry, my head's going to get back to it. What were we saying? What were we talking about? Uh the oh media and how they can portray things in a certain way and make people believe. But that goes in so many different directions in life, which is back to it again, why people spreading awareness for like with threats or other conditions.

SPEAKER_02 56:06

Oh, of course. And I think actually this comes back to the topic of like, you know, I'm so glad this is why we're doing it, because Tourette's Awareness Month is between May 15th to June 15th. Yeah. Yeah. And we're slap banging the middle right now. What day is it? Today's the 31st, isn't it?

SPEAKER_01 56:17

Do you guys do a lot of work with Tourette's Awareness?

SPEAKER_02 56:20

Gay!

SPEAKER_00 56:22

Um well, I would say so, yeah. Yeah.

SPEAKER_02 56:25

I think we kind of like we unofficially do it ourselves because I've done a lot of work with Tourette's Action, and Tourette's Action is the leading UK charity for Tourette, so there's a great charity. And we've I've have you done stuff with them as well.

SPEAKER_00 56:35

Well, I went to their Tourette's camps, that was Tourette's Action.

SPEAKER_02 56:37

So the kids I know I did a campaign with them last year, maybe the year before. Um yeah, not to say that I wouldn't do it again 100%, I'd do it again if we worked together, but I think we you and I probably have done it, we do it all out in our own in our own way. Yeah, yeah. And again, I think we just try and put ourselves out there to I often think about the younger kids. I think about the teenagers that are going through the tough time of dealing with threats and also dealing with a tough time of life like teenage the fuck you nonce. Dealing with like things of that age, any whether it be puberty or oh yeah, relationships and all that sort of yep, big problem for some. Um but you know, we it can be difficult at the best of times, let alone dealing with threats on top of that. Colin, what about you, Colin? Um so Gabley. Well, I'm trying to say is I I do it to help other people, yeah. Yeah, to help other people that are going through it. I mean, and and adults as well, but especially the kids.

SPEAKER_01 57:29

Well, that's kind of the thing. I know you bump into a lot of people who you've helped over the years because they come into the shop and all, but do you have that often where you meet people now that you know you've helped who also struggle with similar things?

SPEAKER_00 57:38

Yeah, I get I get people who say to me quite a lot, um actually, you know, I was telling you we were just on holiday uh a couple weeks ago down by the coast. Um we we went to grab a bite to eat somewhere, and this woman came over me. Fuck off, came over, she came over to us when we were at the table and said, Um, I know this is really weird, but hello. And she recognized me and she said that there was a mum at a baby group. Was it mum? Um, uh like a baby group who had been diagnosed with Tourette's, and they were literally just talking about me a few days before. And this was like somewhere that we'd never been before. It was like totally random, like totally random chance meeting. But like it's really cool to know that you're helping people and having like no idea about it, people that you've never met, and like making a difference to some.

SPEAKER_01 58:29

That's the best bit about it, I think.

SPEAKER_00 58:31

Fuck. Um that's the deal. Yeah, it was really cool. And that happens, that happens quite a lot, even if it's not in person. Get DMs quite a lot. I'm sure that you're not. Yeah, definitely.

SPEAKER_02 58:41

I I it's hard because there's some situations that especially when they're really young, like say the kid, like I often get parents messaging me, which I completely appreciate. But when they're talking about that, there's the kid that's maybe 10 or a little bit under, it's got donors to let's I'm not saying I can't give them advice, but obviously I never even had to let's that young.

SPEAKER_03 58:59

No, me neither.

SPEAKER_02 59:00

I find it difficult to like give them a good solid piece of advice if I haven't dealt with it myself. I think the way I want to end this on a more behind, or it yeah, it doesn't have to be funny, but what's one of your best interactions with someone in public who's come and said hello? Because we spoke about this just before, and I don't know if you had any other any other good ones.

SPEAKER_00 59:22

Um beat.

SPEAKER_02 59:26

Um I'll put you on the spot now. I've got one off the bat because I told it to you before.

SPEAKER_00 59:35

Can you remember any mum?

SPEAKER_01 59:39

Everyone's getting put on the spot.

SPEAKER_00 59:40

Not from like I've had a good interaction with someone that was genuinely really good because of a tick that I had, but it wasn't someone who knew me. Oh well no, they you had to explain and then they Yeah, and we just got on really well, and it was actually because I'd scared the life out of him. Although I was in London at one of my appointments and I came out the clinic and we were waiting for an Uber. Hey! And this guy came out of the clinic and I turned around and went boom right in his face. Cut chicken. Because with my Torettes, it really attaches on to B words, like with the lips. I don't know if your tics, hello, um, cling on to certain sensations. So, like, because for me it's in my lips, but but it's like I don't know.

SPEAKER_02 1:00:22

No, you said that I don't know.

SPEAKER_00 1:00:24

It's like a really big sensory thing for me. So like breakfast, hello, loads of different B words. So thank you. So, like at the time, going but was a really big thing for me, and I just happened to turn around and do it really loud right in this guy's face. Hello fuckers. Um and like he jumped an absolute mile, but he carried on walking and he was waiting for an Uber a bit further down. And I turned to my mum and I was like, I've got to say something, like I can't just leave it at that. So I went over and I was like, I'm really sorry I scared you. I have Tourette's, like, I didn't mean to. Hello fuckers, and we actually just had a really nice conversation. Um, and it was just really, really nice. Oh, that's lovely.

SPEAKER_02 1:01:03

That's a nice one. That is lovely, and I think you do, yeah. I mean, I think straight away I kind of it's easier for me to recall bad situations than it is good, which I hate saying that because but it is true. But bitch. I remember once there was an unfortunate time where I'd made a bit of a fool of myself out of my friends, and I got left by my friends in London. And uh, for good reason, they were they should they they had the they they made the right call. But I um I was actually then on the train with like a bag of five Big Mac meals, and I dropped all the drinks, the drinks were gone. I'm I'd lost the majority of the chips, but I had three Big Mac burgers, and I was very twitchy, and I had to get on the tube and then change. Obviously, I if it wasn't already clear, I had a couple of drinks that night. Woohoo! And my ticks went really mad. I think because a little bit I'd been left on my own, and I was trying to give out the burgers because I thought I can't eat eat, I'll take three of them on, but I can't eat all five.

SPEAKER_03 1:01:58

Fuck off, Mike.

SPEAKER_02 1:01:59

I was trying to give them out. We obviously I do get it a random person on the tube giving out food from a bag that you have no idea where it's coming from. You're not gonna take it. But there was a bit like I sat next to this youngish couple, they were probably younger than me at the time. Um it's the man boobs, like that's like my like my nickname. I like that. And I was talking to this couple, and I went, I know this sounds really weird. I'm a ja fuck fuck, I'm a genuine person. I have tourettes, by the way. But would you like a Big Mac? And he went, Yeah, I'll have a Big Mac. And we sat there and we ate a burger together. And I meant, I know this is really weird. I said, and I told him my story of the night, which I'm not gonna go into now, but and I explained about my Tourette's and he just made me feel so much more comfortable because I was I wasn't in a really anxious position. Hello! And I'm I'm glad he accepted my burger and we had a good chat.

SPEAKER_00 1:02:44

That's so nice.

SPEAKER_02 1:02:45

So if you ever remember doing that, mate, just thanks. That is great. That's really sweet.

SPEAKER_00 1:02:50

Fuck off, mum. Yeah, that's really really nice.

SPEAKER_02 1:02:56

I think this is where we should think about wrapping up, don't you? Right, so you I just want to say one, appreciate you coming down to do this, two, it's been a fucking great show. I hope Queeline's enjoyed it. Yeah, it's been great to meet you.

SPEAKER_00 1:03:07

Yeah, you too. I've had queef before I've been calling you queef without you even knowing for a while. Fuck off.

SPEAKER_01 1:03:13

Well, I say a while, just earlier today.

SPEAKER_00 1:03:16

Fuck off.

SPEAKER_01 1:03:16

I have had it quite often in my life. I've had worse, but we all get into that now. I'm not gonna die.

unknown 1:03:23

Yeah.

SPEAKER_02 1:03:23

But I really appreciate you calming down. I hope you've enjoyed yourself and yeah, I appreciate you.

SPEAKER_00 1:03:27

I don't want to get cringy, but before we finish, coaching. No, don't need to say, Oh god, I was just gonna say thank you because hello. Just last week my Tourette's was really bad and I was really struggling. And like, you know those days where you get like really down in the dumps and you're like, I don't want to have Tourette's anymore. Like, just really, really sorry for yourself. I've been having quite a few of those days lately. So, like when I found out I was coming here, I was like really looking forward to it.

SPEAKER_02 1:03:51

Oh, I'm tough to hear that.

SPEAKER_00 1:03:53

Really lifted me up. It's always good to be around someone else with Tourette's, I think. So I don't have anyone near me, a lot of people down south. And my lovely friend Saren, I don't get to see her very often. Otto Cook is exactly love that bitch. Yeah, she's amazing.

SPEAKER_02 1:04:08

She's she's a beautiful human being.

SPEAKER_00 1:04:09

Yeah, she is. Um, so I was really looking forward to this. I'm so excited. Being around someone like me, I think you need to be around people more that are.

SPEAKER_02 1:04:17

And I think that is definitely important. And I I do get what you're saying, that it's not always possible to be around people, but that's why I encourage people to try and come some come to my shop, not just for the business, but actually to meet other people that do the same thing.

SPEAKER_03 1:04:28

Yeah.

SPEAKER_02 1:04:29

You know, that's what we need. I appreciate it. Actually, the one last question I will ask is if you could take a pill tomorrow to have to take your Tourette's away, would you take it?

SPEAKER_00 1:04:38

Depends what day you ask me on.

SPEAKER_02 1:04:40

This is true, but let's say an average day.

SPEAKER_00 1:04:44

I made a video about this years ago and I said no, absolutely not.

SPEAKER_02 1:04:49

But there's no right answer, but I've I'd say your answer is right because I've said no, because I believe that it's made me who I am.

SPEAKER_00 1:04:56

Yeah, I mean I think the same. I think my confidence because I have Tourette's has gotten so much higher. Like, hello. Like, you probably won't believe this, but when I was in college, I was actually mute. Fuck off. I was mute for like nearly two years. But your mum still wishes probably sometimes, yeah. Hello.

SPEAKER_02 1:05:13

Just a remote wouldn't be a bad thing every so often, would it? Just fucking shut it off.

SPEAKER_00 1:05:17

Um, but like when my Tourette's got way more vocal, it literally pushed me out of myself. Hello. And so I think the way that I can talk to people that I haven't met now so easily is because of my Tourette. So I'm very grateful for that. So maybe no, but then sometimes I'm like, yeah, get rid of it right now. Hello. But um, but also I wouldn't have met you or Saren or all these other people if I didn't have Tourette.

SPEAKER_02 1:05:43

So no, no, I respect that.

SPEAKER_01 1:05:46

Yeah, beautiful stuff.

SPEAKER_00 1:05:49

And that wasn't a man boobs.

SPEAKER_02 1:05:50

That wasn't man boobs. I'll take it. But you are a man boobs, we'll stay for it. Stay tuned for next week. I keep looking at you.

SPEAKER_00 1:05:56

Hello, fuckers.

SPEAKER_02 1:05:57

Bye, fuckers.

SPEAKER_00 1:05:58

Beep, beep, beep, beep, beep.

SPEAKER_02 1:05:59

Beep.