Conversations Through Alzheimer's
In 2019, we slowly started to watch our mom, Rose Marti, lose cognitive function and our family didn't have answers for years. Her PCP told us she was "just getting old." We didn't accept that, and we kept fighting. In 2025, she was finally diagnosed with early-onset Alzheimer's at 61.
This podcast is what comes next.
Conversations Through Alzheimer's follows a real family in real time. The fear, the love, the logistics, and the moments nobody warns you about. Hosted by sisters Amber Marti and Felicia Wood, this is an honest and authentic look at what it actually means to walk through this together.
This podcast is also meant to be a resource because there's a lot of information out there about Alzheimer's and almost none of it is in one place. Each episode weaves our family's lived experience with practical education: the medications that have been tried, functional medicine support, the legal forms you should complete while your loved one is still here mentally, how to build the right medical team, what the Alzheimer's Association can do for you, and how to find your people as a caregiver.
If your family is in this too — or if you're just starting to wonder — this is for you.
New episodes every Monday. Season 1 launches June 1, 2026.
Conversations Through Alzheimer's
Meet Rose: Our Mother, Whose Alzheimer's Diagnosis Is Why We're Sharing Our Story
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We are sisters Amber and Felicia, and we've watched our mom Rose step into one of the hardest chapters a family can face: an Alzheimer's diagnosis, in real time. Instead of processing it privately, we're choosing to share it. Every lesson learned, every milestone, the hard conversations, and the moments somewhere between grief and grace.
In this first episode, we introduce ourselves, share how we got here, and explain why this story felt too important to keep quiet. But most importantly, meet Rose. Because before you understand this journey, you need to know the woman at the heart of it.
In Season 1, we pull back the curtain on what it actually looks like to care for a parent in the early stages of early-onset Alzheimer's, especially from afar. We'll cover what we thought we knew about Alzheimer's and dementia versus the reality, how we built a care team across distance, resources and support systems, what works and what doesn't when showing up for someone with dementia, the everyday struggles, the big feelings, and the preventative steps we're taking to help slow progression and protect our mom's quality of life.
Walk with us! Join our team at the Walk to End Alzheimer's in Buffalo, NY this September 2026 — or donate! 100% of proceeds go to the Alzheimer's Association: act.alz.org/site/TR/Walk2026/NY-WesternNewYork?pg=team&team_id=1057467&fr_id=19818
Thanks for walking this journey with us. Conversations Through Alzheimer's is hosted by sisters Amber and Felicia, and new episodes drop every Monday through September 2026.
If this show has resonated with you, share it with someone who needs it and leave us a review wherever you get your podcasts. Follow along on our socials:
- Instagram: https://www.instagram.com/conversationsthroughalz/
- TikTok: https://www.tiktok.com/@conversationsthroughalz
- YouTube: https://www.youtube.com/@ConversationsThroughALZ
Support the Alzheimer's Association by joining our Walk to End Alzheimer's team or donating: https://act.alz.org/site/TR/Walk2026/NY-WesternNewYork?pg=team&team_id=1057467&fr_id=19818
Welcome to Conversations Through Alzheimer's. I'm Amber Marty and I'm Felicia Wood. We're sisters and daughters of Rosemary Marty, diagnosed with Alzheimer's in June of 2025.
SPEAKER_01We're documenting her journey as it happens and we're sharing every resource we find along the way. This is her story and ours. Thank you so much for joining us for season one, episode one of Conversations Through Alzheimer's. My name is Amber. I wanted to give you a little bit of background about why I wanted to start this podcast. Um I am hosting this with my sister, Felicia, because we spend probably too many hours a week on the phone talking about, like, oh, have you talked to mom today? Where what's her status? Um, like, just our lives have become consumed with Alzheimer's disease, with Alzheimer's in relation to our mom. And as we've been doing all this research and figuring out what works and what doesn't, I wanted to share it out to the world. Um, you know, we're not doctors, we're not researchers. We are literally two daughters who lives got turned upside down one day because of an email that I got saying that our mom has Alzheimer's. Um, and you know, she she got diagnosed last year um in June of 2025, but it feels like a lot longer because we've started to notice these symptoms uh at least for the last, well, probably five years. So that's just a little a tiny bit of background of why I wanted to start this podcast. I also want to go into a little bit about who the cast is in in this series, so to speak, and who you're going to be hearing from, who the key players are. Um, and with that, Felicia, if you want to kick us off.
SPEAKER_02Yep. I'll I'll share. So I'm Felicia, the other sister. I am the oldest out of the two of us. And we were born and raised in uh a suburb of Denver, Colorado, uh, a little city called Arvada. Um we uh I will say that I now live in New York and so does my sister, although we live on separate sides of the state. And um, it's definitely an interesting part of our story is being far away from our mom as we have gone through the process of noticing the symptoms, uh, getting the diagnosis, taking all of that in. Our our distance from her definitely plays um a big part of that. I'll also share that for me, I live here in New York with my husband, David, and our um toddler who is named Oliver. He's um almost two at the time of recording this, which is in uh March of 2025. So um definitely got a lot of 2026. March of 2026. That's correct. Sorry. That's and that's what it feels like these days, just like a swirl of information. And then you say things like that, and then you wonder if you have Alzheimer's. Exactly.
SPEAKER_01Yeah, you definitely question that. Like once you have somebody that you know as Alzheimer's, you're like, oh no, is this the beginning? Yeah, exactly.
SPEAKER_02It's something we definitely say often to each other. Um and then of course, Amber, you can introduce yourself a little bit more as well. Um and maybe our dad too.
SPEAKER_01I am in western New York currently. Um, just got here about six months ago after living in Florida for the last four years. So um I am no stranger to having a uh long-distance relationship with our mom since 2021. Um, I will say that, you know, back then I'd call her about three to five times a week. And now it's like minimum one to two times a day, either phone call or FaceTime. And I think it's probably the same with Felicia, um, just with the the way the the disease is progressing.
SPEAKER_02And it's interesting that you say that because um I would say that most of my life, well, most of our life, right? Our mom worked in healthcare. Um, she was a secretary or admin assistant for the ER for two different hospitals in the in the metro area. And I can remember like calling her her her work phone and and bothering her on the phone, like, mom, Amber, Amber only wants to watch her show or or something like that. Um, but it just that made me think of that because I've always been the daughter who calls her mom multiple times a day, sometimes at least once a day, most of the time. Um, what's been interesting is like the further she gets along with her disease, we've almost kind of traded places in that. Like I I tend to talk to her a little bit more now, like when we're making the daily call with Oliver. Um, I think some of that has to do with, you know, life and job and busyness and all of those things. But um I would say that you definitely are the one who gets those phone calls of like, I can't open my computer or I need help with X, Y, or Z. Like you're you're definitely the person in the care team who is like her kind of day-to-day contact person for a lot of those things.
SPEAKER_01Yeah, I think that's true. And, you know, for context, like Felicia is married with a kid, um, am in an apartment with my cat. So very different lifestyles. And I think my mom just knows right now that like I might be a little bit more available than Felicia, who is trying to watch a toddler and cook dinner and do laundry and get a million errands done. So um I have a little bit more, more bandwidth than she does. Uh, but it doesn't mean that you're not hearing about it from me 20 minutes later.
SPEAKER_02And I would say that's actually an important part of, and we'll we'll go over it all, we'll talk more about like what it means to be a care team and what are some of the things that we go with, go through. But I think it's good for you to have a second person to vent about those things that you're experiencing, or just explain it or catch it up. Cause sometimes you'll go off on on one track and I'll say, wait, I didn't interpret it that way, or I don't, I don't know if that's the right thing, or we we already discussed this. Like there's so much to manage that just having more people, more brains involved is is really helpful. And um we'll definitely go into that some more as well.
SPEAKER_01Yeah. And speaking of the care team, yeah. Um the the other biggest player you'll you'll heal hear a lot about is our dad Lyle. Um, so if you hear that name, that is who my mom is married to, and they've been married for almost 40 years. Um, they still live in the same house that since they have since 1998. Um, you know, it's it's been a a challenge because they my my my they have more of like a traditional marriage, I would say, whereas my dad was, you know, um do kind of doing his own thing, and my mom was the making the dinners and the laundry and get doing the insurance and all this stuff. And so it's been, I think, challenging since my mom's decline for them because he's having to pick up a lot of those things. So not not only is he watching his wife go through this and kind of grouping that process, but now figure out, shoot, how do I do the insurance? How do how do I cook the dinners? How do I do all the laundry? Um, and not to say that he would never do those things, but like he's now like realizing how much she did.
SPEAKER_02Um I would say it's like the system, right? Like it's like you might know how to do laundry, but it that's different than like having a system for how laundry gets done at your house or how you know how you do the tax forms, like even little like you start to take for granted all of the roles and responsibilities that you share in your marriage. Like that's definitely been a big thing that's changed, especially since mom's diagnosis. Yeah. And it also brought upon his retirement. So my dad just ended up retiring um at the end of December. And it was a big reason why was because he wanted to maximize his time with my mom and also be able to be more dedicated and more focused on on caretaking.
SPEAKER_01Yeah. So we'll definitely make sure to cover that in a in a future episode, the being the caretaker and and have him on and get his perspective and everything. But the the main character of this whole podcast is our mom Rose. Um, so I definitely want to g give you a brief version of who she is. And um, Felicia, if you kind of want to take that. And yeah.
SPEAKER_02Yeah. Um, so my mom is 62 years old right now. So the she is diagnosed with early onset Alzheimer's, which again, our our plan is to give a lot more information. Cause when we first found all of this out, we we thought, I think a lot of people do when you hear early onset, you think that means like early stage in the disease. What we found out through this process is that's not what that means. Early onset is if you are diagnosed with Alzheimer before the age of 63 or 65, 65. Um, so she has early onset Alzheimer's. Um, and my mom is a Colorado native. She actually grew up in in Denver herself. Um, she met my dad at the age of, I think they met when they were 20. She was 21. And then uh she got er, yeah, 21. They got married when she was 22 and um had meet when she was 23. So they got they got married pretty young in her life. Um she has siblings. She has actually three siblings that all kind of grew up in the in the area. Um, one of her sisters that she is part of our care team as well. Her name is Linda. We'll we'll probably talk a lot about Linda because she's been a really helpful for us being their local in Colorado, able to kind of facilitate going to some appointments and taking on certain roles in the in the care team. Um, and then she has two other siblings who now both live across the US as well. One lives in Los Angeles, the other one lives in um the upper uh part of Michigan. Um, so she comes from a family with a lot of kids, and she was the youngest. Um, and I would say that she kind of has like youngest child vibes. And it's it's funny. I'll I'll I'll say kind of share anecdotally too that my dad is the oldest in his family, oldest of four kids. So they kind of have this funny thing of exactly. Um, but my mom was always just a uh, I think one of the most important things you can know about my mom is like my mom, I don't want to get emotional and cry, but like she's always just said that like her kids are her life. And I think it's been like one of the biggest things in her life is just being a mom. Like she loved being a mom. She kind of was like viciously protective over us. Like when I was born, they always joked that like she wouldn't even let my dad really hold me because she was like, this is my baby. Um, so she loved being a mother. And I think her whole, even like she used to tell me that like she drop me off at daycare and go work at an insurance agency, and she would just try not to speed all the way back to the daycare because she she loved being around her kids. Like she, I think even now, like us having left Colorado was again, we'll we'll get into it, but it was a very big and I'll I'll call it traumatic thing for her. Like she she loves her, her, her children, and I think she loves her family. Um, and that is a really core part of who she is.
SPEAKER_01Um what would you say about mom? The first thing that comes to mind is how sh silly she is and how she just wants to laugh. Like, like if she could just pick one activity, she would say, make me laugh. Like, we'll get on FaceTime. And like she just she loves laughing. And I think that's why she misses us so much. Cause like my dad is a lot more serious, doesn't want to play games, doesn't want to sit there and be silly. Like he's like he's the opposite. He's very serious, wants to get stuff done. And so she really treasures like he loves reading and theology and like writing. And he's yeah, I say that those people can't also be silly, but true. Our dad is not silly.
SPEAKER_02Like when they go off like camping and stuff like that, like they definitely always talk about like how they have a good time and we'll, you know, laugh and and explore and do things like that. But on the day to day, like dad's more serious, enjoys like watching the news, and my mom is much more like, let's watch what's that? It was that movie, her favorite movie, yeah, with Will Farrell and Rachel McAdam. And she's like, Let's watch that for the you know 100th time. Yeah. So yeah, she's just really silly, likes to play games. Um people always comment that. Like all of our friends always say, like, we just love your mom. Like, she's so sweet. She's just really kind hearted and definitely enjoys a good laugh. Like a lot of my favorite memories with mom are like just driving in the car, like and like something making us laugh. And then we just like get on a thing, can't stop laughing, or or honestly, being in church and getting the giggles and not being able to stop laughing.
SPEAKER_01Yeah, exactly. Um so yeah, and and you know, she she has been very silly, but she has still been our mom. Like she's never like dropped the ball. She always made sure we were, you know, dressed and had food and did our homework and bathed and all that stuff. And and you know, like she'd create portals for us and say, here's your password and and everything like that. And so that's why, like, when we started to notice something was wrong, um, like it was it was a big gap.
SPEAKER_02Yeah, absolutely. Like my mom is um, one of the things that's like the coolest thing about our mom is like she's always planned great vacations for us. Like from the time I was little when they had like hardly any money, we'd go on road trips, right? We'd go to South Dakota or go down to New Mexico or or whatnot. Um, and then as we got older, we went and did like various trips places. Like we went to Boston one year, we went to Hawaii for post school graduation. Yeah. And like um, I think one of like the last trips that we did that she planned was in 2016. Um, that's when we one of my our cousins was getting married down in Miami. And so she planned for the three of us, uh, me, Amber, and her, to go down to the Florida Keys for the first time for a couple days. And uh, I would say, like, you're right, like she's she's always been somebody who's really like loved travel, loves planning things, like um really good at planning vacations, like always finds like really cool. Researching excursions, like cool places to stay, getting the best deal. Exactly. And then um I think that was like you said, something that we kind of started to notice is like that started to kind of fade away. And I think in the moment we thought it was just we're getting older, life is getting busier. And then a couple later years later, it was COVID, like COVID happened. And so like nobody was really traveling. And so you just kind of let those things go because you think it's just that season of life. But now looking back, like you can start to connect those dots.
SPEAKER_01Yeah, exactly. So I want to make sure, you know, we we go through like what you guys are gonna be hearing over the next at least season, because I want to like reiterate like we're not researchers, we're not doctors, we're we're daughters that are living this live and want to share this live. Um, so this is gonna be season one of hopefully very many. Um, our plan is to document this as it happens. Um so I want to go into just a f a few minutes about like when we knew something was wrong and kind of the the general timeline of like when things felt off um and and kind of how we how we got to where we are now um and what to expect to hear over the next um over the next season.
SPEAKER_02Yeah. Yeah, absolutely. I mean, as uh we've kind of tried to create an outline for ourselves for this first season, like there's definitely a lot to the story, but I would say that um looking back now, we could tell we could we can kind of pinpoint the real beginning of the disease to at least 2019. It may have started even as early as 2016, like we said, and kind of like at the very early signs. And then 2019 might have been when things were starting to actually impact her day-to-day. Um, really high-level overview. Like then, of course, COVID happened. Well, in 2019, she had a job that she ended up losing. It was a new job that she ended up, they went a different direction. And looking back now, we kind of think that maybe she couldn't fulfill the expectations that she had said she could because of her disease. Also, with Alzheimer's, like new changes in routine are extremely challenging. So she might have been struggling a lot more than she would have known because of her Alzheimer's. Um, then COVID happened, and in 2021, Amber moved first. She actually moved to Florida. We didn't really notice a ton of stuff happening then. But then I moved in 2023. And after that is when it started to really start to magnify like every snowball. Every time we were together, we were noticing different things, would start to notice just an uptick in like forgetting the words or asking similar questions, or or even we haven't talked about this much, but like even how she would really start to tell you only the same stories, and then tell me the same stories. Like we've always been like between the three of us, like she would either know who she told what, and then we just repeat ourselves, and it starts to be like a pretty big break in our in our the like new kind of dynamic of their phone conversations.
SPEAKER_01Yeah, exactly. Um and I think it was like um we have m multiple episodes going into detail, like the the signs that we first saw. So I want to keep this high level, but um but basically we over over the the trips that she came and visited us, we noticed something was was bad enough to where we're like, this can't wait any longer. Like you have to go see somebody. So before we wrap up for the day, I wanted to see if we can actually call my mom in so you can hear from her directly and we can ask her a few questions. So let's give her a call now.
SPEAKER_02Hi, mom.
SPEAKER_00Hi girls.
SPEAKER_02How are you today, mom? Yeah, what have you been up to? I have been not feeding the dog. You've been not feeding your dog? Why? She's too fat. That is true, but I've never heard you say that before. You always said she's perfect.
SPEAKER_00I've I've said her a couple times. Stop feeding Bella. She's not starving.
SPEAKER_02Stop starving? She's a good girl. Is there a chance that you don't remember feeding her? Is there a chance that you don't remember having already fed her? Because it's usually like clockwork. We can rewind. Yep. We need to take a deep breath. Yeah. Okay, let's let's go ahead and start over. Are you ready? Let's take a deep breath. Okay. Hi, girls. How are you? Good. How are you doing? Doing pretty good. We are just excited for our listeners to get the chance to meet you. And we have a couple of questions, if that's okay. Sure. So we this is our very first episode. We've been talking a lot about why we're doing this podcast. And I'm curious, do you have any words of wisdom for people who might have recently got diagnosed with Alzheimer's themselves? Like what would you tell other people about how it's been for you?
SPEAKER_00Well, having gotten uh diagnosed early Alzheimer Alzheimer's. I wish first to say that I wish I would have was eating better and exercising more and taking care of myself more. But I would recommend to people um that they should one see a functional doctor because that that's really helpful to me. And um get a really good neurologist. Yeah, yeah.
SPEAKER_02So it seems like one of the ways that you've been kind of coping with the diagnosis is to do something about it. Like both of those things are like get a functional doctor, get a good neurologist, like you can take control, you can eat better, you can exercise more. Has that kind of given you some a feeling of control, maybe?
SPEAKER_00Yeah, it's it's not really control. I think it's more, you know, I want to live, and so I'm gonna do what I have to do.
SPEAKER_02Yeah, I remember um one of the we were kind of reflecting on when we all first found out like it was official. You know, there was a lot of time we were like this could be it, but we didn't really know what was going on. And I think you were talking about like changing your eating or something. And I was I think you and I were filling out the form for the functional medicine doctor. And I said, you know, like one of the questions, like, are you willing to change your sleep? Are you willing to change your diet? Um, like how willing on a scale from zero, like not willing at all to five, like I'll do anything. I said, What do you what do you What do you want to choose? And do you remember what you said? I'm sure I said five. Everything. You said I will do anything. I will do anything.
SPEAKER_00Yeah.
SPEAKER_02Yeah.
unknownOkay. Okay.
SPEAKER_02Do you um do you remember right before the we got the official results? Like, did you think you had Alzheimer's?
SPEAKER_00I didn't think that I had Alzheimer's. No. I knew something was wrong. And I had I knew something was wrong because like even going to the grocery store and checking out on a, you know, check out yourself. I couldn't remember the phone number to put, you know, to get my discount. And I'd have to ask the lady, no, what button do I put to, you know, for the for the uh credit card and I do I knew something was wrong how to do the more I knew something was wrong because I thought it was um ADHD or something like this, like that.
SPEAKER_02You just knew something wasn't quite the same as it had been. Right.
SPEAKER_01And so when you had met with that neurologist who did the P Tau test, not that you knew they were you were getting a P Tau test, but I think he Well, due to some technical difficulties, we lost my mom here, but we got her on the uh on speaker, so we'll finish asking her her questions this way.
SPEAKER_02So, Mom, do you remember I I was just asking you about that when you left the neurologist before your diagnosis and how you were feeling. Do you remember anything from that?
SPEAKER_00Um, I I don't all I remember is him saying, Oh, here at the in the last minute, let's let's take, you know the blood draw. Yeah. And and then I just didn't think that would have anything to do with because he made it sound like, oh, it's not a big deal. Um and then it was the next day you guys called me and told me about the diagnosis. Did did we call and tell you or did you find out from dad? Well, you called dad and dad told me.
SPEAKER_02And do you remember like how did you feel when you knew when he told you that?
SPEAKER_00I just crumbled to the floor and started crying. I felt bad. You felt bad? Well, I felt horrible. I was very worried about you. Yeah, crazy. But you know what? You you you and Amber both knew something was wrong too. Is that right? We did.
SPEAKER_02Um, and you know, it's it's really tough. I think we've talked about how, you know, it's kind of like the worst case scenario to find out this news. And there's like a silver lining that at least we were able to find out while you are still in the earlier stages of the d disease compared to some other people out there. And I think it's hard to see that as a silver lining, but do you feel like it is a silver lining?
SPEAKER_00Yeah, yeah, I can see that. Yeah, you know, I mean, there's a lot of people get like you say, they don't they get to get diagnosed way too late and you know, and can't take advantage of some of the things that they're is out there now or whatever.
SPEAKER_02Yeah. Can I ask you, um if you had to describe some of the things that you struggle with because of your Alzheimer's, like what do you think those things are?
SPEAKER_00Um mostly my like my language or talking or my language, I get stuck on words. Um unless it's more people that I you know are comfortable with. But for sure.
SPEAKER_02Do you remember kind of struggling with that like in the last few years too?
SPEAKER_00Well, uh I I think at some level, but I've always not been a talker either. But um yeah, I mean, I yeah.
SPEAKER_02So mostly like language, you would say. Language. Yeah. Are there any things that you feel like more recently have become harder for you? Like you I know you just gave the example of the grocery store, but anything else that you feel like has gotten a little more challenging?
SPEAKER_00Um, uh I you know, they talked about on you know the Alzheimer's support groups that are online about you know, driving and what whatnot. And um I I know I just have to really pay attention and don't let my eyes go off the you know what I'm looking at because that's pretty scary. I mean, if you're not all with it, then I wouldn't be driving a car, but I I just try to you know focus. Focus and I don't tootle all over the Denver area, I just tootle around our little place here.
SPEAKER_02Yeah, do you do you feel like um like new new things or places you're less familiar with that those things feel harder than they used to?
SPEAKER_00I do because um well for one, answer is so different, even our bada is so different than it's like sometimes you just if you don't if you're not you know familiar with places, it's easy to say where the hell am I? But the the the Alzheimer's or you know that's that hasn't been a thing, but it it's still it's you gotta use your the what brain power you have while you have it.
SPEAKER_02Yeah, absolutely. Is it kind of like family that is what's like your biggest motivator, or do you have other things that you just want to make sure you're here for a long time for?
SPEAKER_00Well, yes, definitely my family, but you know, you just I mean bad things happen to a lot of people and you know, instantly or you know, sometimes they have you know long, long life to live with the disease. But um I uh I just wanna I never thought I'd you know have this disease and um you know you always think about living a long life, so I just want to live as much as I can.
SPEAKER_02Yeah, we we want you around as long as we can have you. Good, good, good, good, good.
unknownOkay.
SPEAKER_02Well, mom, I think as we uh close out, you know, and and sign off, I think one of the most important things for us is you have a signature way of of saying goodbye. Do you do you know what that is?
SPEAKER_00No, I forgot.
SPEAKER_02Well, a lot of times when we're getting off the phone, we'll say bye to each other and you might say something like, bye-bye. Oh yeah, bye-bye. Well, you just say bye-bye in your normal voice and say bye-bye.
SPEAKER_01Okay, bye-bye. I hope you enjoyed hearing a little bit from our mom Rose and got to see a little bit of her silly side and and got to know a little bit about her and hear her perspective on the disease. So that kind of brings us um the past five years up until kind of present day, like within the last year. Um, and I think the rest of the season one is really gonna go into how we went, we brought her to a functional medicine doctor. Um, even though like the the neurologist said like there's no supporting evidence against that. And how um we looked into clinical trials that got canceled. We looked into um we we took a trip to Disney World because like when you get a diagnosis like this, you want to savor every moment with with your with your loved one. Um and and even more recently, uh we just had a consultation last Friday for an IV infusion that will actually go in and remove the amyloid plaque from the brain and not improve symptoms but prolong where she's at, and that's the the ultimate goal with Alzheimer's. So I think that um we have so much to cover in this first season. As you can hear just from this, like we can talk on this for for days, and we can't wait to share all of these important updates with you guys.
SPEAKER_02Yeah, I think I think that, like we said from the beginning, like the we want, we have felt so alone, even though we've had each other, but like kind of isolated in this process. A lot of people don't really know how to respond when you share that your mom has Alzheimer's, other than feeling sad or or saying they're sorry. And so, but we we just wanted to share this story because we know there are other people out there that are wondering, well, how was the experience for them? What do I not know? You don't know what you don't know, and so even though we're not experts, we can share things we've heard or parts of the story that have been true for us about things that we've run into. And I think there's a lot of value in that, or at least we hope we hope so, which is why we're telling the story.
SPEAKER_01Exactly. And um, I just wanted to point out too like the importance of finding a good care team. Like, we didn't even find out about the IV infusions until we we got her into a neurologist that had a six month wait time um and how great she was, and and I can't wait to go into that episode because we learned so much from her that I that I really want to share with with everyone listening.
SPEAKER_02Um, but I would also say with that, like if you or anybody you know even has potential signs, like do not stop fighting for that diagnosis because you in our experience, it's very easy to be pushed off. You're kind of written off for being younger, you're kind of written off for stress and anxiety. You're I mean, that's which all of us are feeling so much stress and so much anxiety in our world. We're not doing all of those kind of best brain health practices. And so it's really easy to have doctors kind of lead you astray, not intentionally, right? I don't believe any of it is meaningful, but like you do you have to be your own biggest advocate. And even if you hear like, well, we can get you in with a neurologist, but it's gonna take years. Get on that wait list. Get on that wait list now. Don't stop fighting for yourself to get evaluated. And if something doesn't feel right, like advocate for yourself.
SPEAKER_01Yeah, exactly. Exactly. So um, we really just want this podcast to be uh kind of two parts. It's gonna be half documenting the the story of Rose and and her prognosis and and and telling you guys how how it is live for her, for us, uh, for my dad, for for everyone involved, as well as the practical education that we're learning. I mean, even simple things like like we bought her skylight calendar and we'll go into that, and and things that you can um purchase or or ideas that we have, like of like sharing the screen through Zoom so you can help them log into things if if you're if you're far away. Thank you so much for for listening um to this episode, and we can't wait to share more with you next time. Bye-bye. If this episode resonated with you, or if someone you love is navigating an Alzheimer's diagnosis, please know you don't have to find it alone. The Alzheimer's Association is a free 24 7 resource available to anyone who needs their support. Whether you're newly diagnosed, deep in caregiving, or just trying to understand what comes next. You can reach them anytime at 1 800 272 3900. You can also reach them online at alz.org.