Connecticut Children's Grand Rounds

10.15.24 Pediatric Grand Rounds, "Understanding Chronic Pain in X-linked Hypophosphatemia (XLH): Insights to Inform a Digital Intervention" by Carolyn M Macica, PhD

Connecticut Children's

Event Objectives:

  • Review the pathophysiology of pain in XLH.
  • Identify the physical and psychosocial impact of chronic pain in XLH patients.
  • Evaluate current pain management approaches in adults with XLH.
  • Explore the development of digital tools for pain self-management in XLH.


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