Embracing Holland

SCN2A Voices

February 24, 2021 Katie Loosley, Nikki Beasley, Jenna Puteri, Kris Ray Season 2 Episode 5
Embracing Holland
SCN2A Voices
Chapters
Embracing Holland
SCN2A Voices
Feb 24, 2021 Season 2 Episode 5
Katie Loosley, Nikki Beasley, Jenna Puteri, Kris Ray

In celebration of International SCN2A Awareness Day on February 24th, we explore how SCN2A, a rare genetic disease, impacts each child. You’ll hear from four moms with four very different children. They will show us what life has looked like for them since their diagnosis and what they are doing as a result of knowing the genetic cause for their children’s medical conditions. 


A BIG thank you to the four parents who shared their voices and stories for this episode.


  • Katie Loosley 
  • Nikki Beasley
  • Jenna Puteri
  • Kris Ray



Other episodes from SCN2A parents

Seizing Joy and Grace with Tracy Umezu


Growing a Family Gratefully with Rachael Lividini


A Dad's Eye View 


The Art of Supporting the Special Needs Mom


Links


FamilieSCN2A Foundation


FamilieSCN2A Global Support Group


SCN2A Related Autism & Epilepsy: The FamilieSCN2a Foundation


SCN2A Australia


SCN2A Insights Podcast


SCN2A Families UK - FB page


SCN2A Europe


Simon Searchlight - SCN2A (Research)


SPARK for Autism - SCN2A


A Walk with Jo Facebook Page


Eye Gaze - Think Smart Box


Look to Learn - Activities for Eye Gaze


Children’s Hospital of Philadelphia - Dr. Ingo Helbig


Children’s Mercy - Dr. Coffman



Show Notes

In celebration of International SCN2A Awareness Day on February 24th, we explore how SCN2A, a rare genetic disease, impacts each child. You’ll hear from four moms with four very different children. They will show us what life has looked like for them since their diagnosis and what they are doing as a result of knowing the genetic cause for their children’s medical conditions. 


A BIG thank you to the four parents who shared their voices and stories for this episode.


  • Katie Loosley 
  • Nikki Beasley
  • Jenna Puteri
  • Kris Ray



Other episodes from SCN2A parents

Seizing Joy and Grace with Tracy Umezu


Growing a Family Gratefully with Rachael Lividini


A Dad's Eye View 


The Art of Supporting the Special Needs Mom


Links


FamilieSCN2A Foundation


FamilieSCN2A Global Support Group


SCN2A Related Autism & Epilepsy: The FamilieSCN2a Foundation


SCN2A Australia


SCN2A Insights Podcast


SCN2A Families UK - FB page


SCN2A Europe


Simon Searchlight - SCN2A (Research)


SPARK for Autism - SCN2A


A Walk with Jo Facebook Page


Eye Gaze - Think Smart Box


Look to Learn - Activities for Eye Gaze


Children’s Hospital of Philadelphia - Dr. Ingo Helbig


Children’s Mercy - Dr. Coffman