Linda's Corner: Inspiration for a Better Life

Frontotemporal Dementia [FTD]: Raising Awareness and Navigating Caregiving Challenges - Katie Prentiss

Linda Bjork/Katie Prentiss Season 6 Episode 4

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0:00 | 29:37

Katie's mom was just 62 when she was diagnosed with frontotemporal dementia.  The diagnosis catapulted her family into the world of caregiving and learning about this lesser known form of dementia.  Katie Prentiss is an award winning actress and filmmaker.  She is currently working on a feature film called “Wake Up Maggie” which is a love letter to her mom.  You can reach Katie at her website https://www.katieprentiss.com or Instagram @wakeupmaggiemovie.  You can also help Katie raise FTD awareness by supporting her go fund me

Some of the highlights Katie shares:
Frontotemporal dementia [FTD] is a lesser known type of dementia that is often misdiagnosed as depression, menopause, alcoholism, or delusional disorder
The unusual symptoms of FTD - this is not like the typical memory loss of Alzheimer's
FTD is the most common type of dementia for people under 65
The reality of saying a "slow goodbye" to someone you love
The reality of being catapulted into caregiving
Why we need additional research about FTD
Raising awareness through film
The concept of "unraveling" by peeling back the layers that don't serve us anymore - becoming more authentic
Learning to focus on what we can control
Dealing with caregiver guilt
Feeling overwhelmed as a caregiver
Learning to be compassionate with yourself as a caregiver
Acceptance is where peace lies
Living with the thought, "What if it happens to me"
Living a life filled with peace and fulfillment rather than fear and regret
And more

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