Lewy Body Roller Coaster
Welcome to our podcast about living on the Lewy Body Dementia roller coaster- a podcast for Lewy Body Dementia patients and their families presented by Lewy Body patients and their families.You will hear firsthand, the ups and downs and twists and turns of Lewy Body Dementia from families directly affected as we will share our support and experiences on all things Lewy Body.lewybodyrollercoaster@gmail.com
Podcasting since 2020 • 143 episodes
Lewy Body Roller Coaster
Latest Episodes
When Mother Nature Strikes: Navigating Household Disasters While Managing LBD
The conversation takes a surprising turn as they detail a series of household disasters that would test anyone's resilience. A massive 90-foot tree fell onto their house during the night, damaging their electrical system during one of the colde...
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Season 6
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Episode 5
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29:41
Hospice 101- Part Three
Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Va...
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Season 3
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Episode 40
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33:10
Hospice 101- Part Two
A tough topic but one we all need to know about sooner than later. Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or week...
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Season 3
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Episode 37
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25:23
Hospice 101 - Part One
A tough topic but one we all need to know about sooner than later. Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or week...
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Season 3
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Episode 36
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45:58
Welcome to 2025! Finding Joy and Support in Challenging Times
This episode sheds light on navigating life with Lewy Body dementia, focusing on the importance of community support and personal stories. We share experiences about hospice care, the unpredictability of hallucinations, and the joy found in goo...
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42:45