Spotlight on Care: Alzheimer's Caregiving
Welcome to Spotlight on Care, the podcast where we share stories, experiences, tips and advice on caring for loved ones affected by Alzheimer’s and other dementias. Spotlight on Care is produced by the University of California, Irvine Institute for Memory Impairments and Neurological Disorders, UCI MIND. Please subscribe to the Spotlight on Care podcast wherever you listen. For more information, visit mind.uci.edu. What would like to hear about next? Email us at mwitbrac@uci.edu.
Episodes
44 episodes
Navigating Relationships with a Parent Who Was Abusive or Absent with Pamela D. Wilson
In this episode of Spotlight on Care, co-hosts Steve and Virginia are joined once again by caregiving expert Pamela D. Wilson to discuss the challenges adult children face when caring for parents who were absent, abusive, or neglectful. They ex...
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Season 1
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Episode 44
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26:35
Caregiver Resource Center
In this episode, Diana Marquez-Siemers and Rachel Smyth from the Caregiver Resource Center (CRC) provide expert insights on the challenges and solutions for families caring for loved ones with dementia. Join Steve and Virginia as they learn abo...
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Season 1
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Episode 43
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27:10
Caring for Difficult Parents with Pamela D. Wilson
Virginia and Steve are joined by Pamela D. Wilson, MS, BS/BA, NCG, CSA.– an international resource for caregivers with over two decades of experience in aging and caregiving– known for her consultations, advocacy, and her book, "The Caregiving ...
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Season 1
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Episode 42
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29:11
Helpful Caregiving Tips with Virginia Naeve (Part 2)
Virginia rejoins Steve in this concluding 2 part series on caregiving strategies. In this episode, they provide insights into activities and products that can be utilized to enhance daily living and simplify routine tasks. Tune in for valuable ...
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Season 1
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Episode 41
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29:55
Helpful Caregiving Tips with Virginia Naeve (Part 1)
Steve interviews Virginia about tips she has compiled over the years to improve the caregiving journey. Listen along as they delve into topics on healthcare visits, money matters, safety, and mood changes. This is part 1 of a 2 part serie...
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Season 1
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Episode 40
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30:11
Supporting patients and families; a geriatrician’s perspective with Dr. Nathaniel Chin
Virginia and Steve are joined by Nathaniel Chin, MD, a geriatrician, associate professor at the University of Wisconsin Department of Medicine, Medical Director of the Wisconsin Alzheimer's Disease Research Center, and host and creator of the p...
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Season 1
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Episode 39
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45:13
Advances in Alzheimer’s Disease Clinical Care with Ahmad Sajjadi MD,PhD
Steve and Virginia sit down with Ahmad Sajjadi, MD, PhD, associate professor of Neurology at UC Irvine and research clinician at UCI MIND, to discuss some of the recent advances that have been made in Alzheimer’s disease research and care. He d...
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Season 1
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Episode 38
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36:38
Keeping the Holidays and Celebrations Happy, Healthy and Safe with Dr. Miriam Galindo
Virginia and Steve speak with Dr. Galindo, who cared for her father with Alzheimer's disease and helps the listeners understand the importance of simplifying the holidays to maximize enjoyment for everyone. She gives tips on focusing on o...
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Season 1
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Episode 29
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34:18
Cognitive testing with Dr. Michelle McDonnell
Steve and Virginia are joined by Dr. Michelle McDonnell, a neuropsychologist at UCI MIND, who discusses the importance of cognitive testing. She discusses the process involved in the testing, tips to encourage your loved one to participate, and...
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Episode 37
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31:42
Why you should start early with end of life wishes and details with Susan Papiri
Susan Papiri, Community Relations Director for Dignity Memorial. She discusses involving loved ones earlier regarding their wishes, preferences and religious traditions. These conversations can give honor to their legacy and reduce family stres...
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Season 1
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Episode 36
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31:50
The dangers of denial with Elizabeth Lonseth
Steve and Virginia are joined by Elizabeth Lonseth, an author and caregiver, who discusses the dangers of denial in Alzheimer’s caregiving. She touches on the many ways that both patients and caregivers can suffer when caregivers do not come to...
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Season 1
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Episode 35
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30:09
Reducing caregiver stress with Dr. Natali Edmonds
Virginia is joined by Dr. Natali Edmonds, a board certified Geropsychologist and founder of Dementia Careblazers, an online resource for dementia caregivers. Dr. Edmonds talks about 4 mistakes caregivers make when dealing with their loved ones,...
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Season 1
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Episode 34
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26:39
Caregiving Two Years Later; a Revisit with Lisa Up de Graff
Virginia and Steve are joined once again by Lisa Up de Graff, one of their first guests, who gives an update on her mother’s Alzheimer's disease journey. Lisa describes new challenges she has faced as the disease has progressed and recounts how...
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Season 1
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Episode 33
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31:43
Long distance caregiving with Irene Olson
Virginia is joined by Irene Olson, author of the book, “Requiem for the Status Quo'' and a state long-term care Ombudsman. Irene shares tips and challenges she faced with being a long distance caregiver for her father. She emphasizes the import...
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Season 1
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Episode 32
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26:29
Alzheimer's Disease and the Rise in Pseudomedicine with Dr. Joshua Grill
Dr. Joshua Grill, PhD, is a professor at UC Irvine in the departments of Psychiatry & Human Behavior and Neurobiology and Behavior, as well as the director of UCI MIND. Dr. Grill joins Steve to discuss risk factors for Alzheimer’s disea...
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Season 1
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Episode 31
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34:13
Caring for a Famous Parent with Alzheimer's with Patti Davis
Virginia and Steve are joined by Patti Davis, author of the book, Floating in The Deep End, and daughter of former United States President, Ronald Reagan. She recounts several different experiences she had while caring for her father w...
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Season 1
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Episode 30
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35:05
Learning to Adjust with Dee Ransom
Dee Ransom joins Steve and Virginia to discuss some of the adjustments she has had to make being a caregiver for her husband, John, who lives with Alzheimer’s disease. Dee shares her experience learning to advocate for her husband, adapting to ...
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Season 1
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Episode 28
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31:34
Wandering with Erin Light, MA
Erin Light, MA, is a gerontologist and a senior administrator at Silverado Senior Living, a memory care company based in Southern California. She joins Steve and Virginia to discuss how to manage wandering in a loved one with dementia. Erin beg...
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Season 1
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Episode 27
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38:43
The Genetics of Alzheimer's Disease with Lindsay Hohsfield, PhD
Steve and Virginia are joined by Lindsay Hohsfield, PhD, a neuroscientist at UCI and co-founder of a non-profit organization called Youngtimers, to discuss the role that our genes play in Alzheimer’s disease. She helps the audience understand t...
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Season 1
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Episode 26
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34:38
Choosing the Right Hospice Care with Heather Kruse
Steve and Virginia are joined by Heather Kruse, a licensed RN who specializes in dementia and hospice services. Heather was the hospice nurse for Steve’s wife, Patty at the time of her passing. She discusses the different services offered durin...
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Season 1
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Episode 25
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30:44
Taking Away the Car Keys with Bob Simpson and Jeanette Marantos
Our hosts are joined today by LA Times writer Jeanette Marantos and Virginia's brother, lawyer Bob Simpson, to tell us how they knew it was time to stop their loved one with Alzheimer's Disease from driving. They share stories on the challenges...
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Season 1
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Episode 24
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28:05
Traveling with a Loved One Affected by Alzheimers with Jeanette Marantos
Jeanette Marantos joins Virginia and Steve to discuss her experiences traveling with her husband, Steven, who had Alzheimer's disease, as well as sharing her tips on making travel manageable.
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Season 1
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Episode 23
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31:24
When You're Not the Caregiver: Guilt and Grief with Cindy Weinstein
In this episode, Virginia and Steve are joined by Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about...
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Season 1
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Episode 22
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32:09
Caring for a Child with Early Onset Alzheimer's Disease with Jim Russell
Virginia and Steve are joined by Jim Russell, MBA, PhD, who shares his emotional story of being a caregiver to his mother with Alzheimers and then to his daughter, Lynne, who was diagnosed with early onset Alzheimer's disease at 48 years ...
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Season 1
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Episode 21
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32:11
Cognitive Impairment from a Physician’s Point of View with Dr. Steven Tam
Virginia and Steve are joined by UCI Senior Health Center physician and UCI MIND researcher, Steven Tam, M.D., who describes some of the early symptoms of cognitive impairment, and the general approach he takes when assessing a patient. ...
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Season 1
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Episode 20
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37:51