Anna interviews Mel alongside her specialist physiotherapist, Jo Reffin from Kings College, London. Mel has facioscapulohumeral muscular dystrophy (FSHD) and was diagnosed 10 years ago. here she gives valuable insights into keeping active and m...

Jo Reffin, Clinical Lead  Neuromuscular Physiotherapist from King's College Hospital NHS Foundation Trust is in conversation with Deri who describes his experience , the ups and downs of exercise and activity whilst living with a diagn...

Anna is in conversation with Louise Halling, a trained counsellor. Louise has an undiagnosed limb girdle type muscular dystrophy, a diagnosis she has lived with for over 20 years. We discuss the ongoing grief associated with losing ski...

Dave Hick is a talented musician who was diagnosed with Becker Muscular Dystrophy in 2023. Here he is talking to Anna Mayhew, physiotherapist, about receiving a diagnosis, getting his head around it and positive things that have happened in the...

Here Sarah Gregson, paediatric neuromuscular physiotherapist, is in conversation with Zoe Harrison. Zoe works at Alderhey Hospital, Liverpool and was once a patient of Sarah's. Here they discuss Zoe's personal experience of transition, living w...

Anna Mayhew in discussion with Professor Volker StraubHarold Macmillan Professor of Medicine & Director, The John Walton Muscular Dystrophy Research Centre. Deputy Dean, Translational and Clinical Research Institute, Faculty of Medical ...

Anna Mayhew in conversation with Lindsey Pallant, Clinical Specialist PhysiotherapistRegional Paediatric Neuromuscular Team, Leeds Teaching Hospitals NHS Trust.They talk about the reasons for and what is important in rehabilitati...

Anna Mayhew in conversation with Hayley Ramjattan who is a Clinical Specialist Neuromuscular Physiotherapist at Oxford University Hospitals NHS Foundation Trust.They discuss briefly how CMS presents, the role o...

Anna Mayhew chats to Annette Costello about living with LGMD 2B. Annette lives in Dublin and is part of a natural history study for this type of LGMD - Dysferlinopathy.  She discusses the benefits of being part of such a study as well as w...

Anna Mayhew  is in Conversation with Emily Reuben, co-founder and CEO of Duchenne UK and mum to her son Eli who has duchenne muscular dystrophy and Jarod Wong a paediatric endocrinologist with an interest in bone health from the University...

Gita Ramdharry in conversation with Anna Mayhew.Gita is a Consultant Allied Health Professional in Neuromuscular Diseases at Queens Square, London. She is a physiotherapist. She is also an honorary Associate Professor at UCL Institute o...

Gita Ramdharry in conversation with Anna Mayhew.Gita is a Consultant Allied Health Professional in Neuromuscular Diseases at Queens Square, London. She is a physiotherapist. She is also an honorary Associate Professor at UCL Institute o...

Anna Mayhew - Consultant Research Physiotherapist from John Walton Muscular Dystrophy Research Centre in Newcastle task to Marina Di Marco,  Principal Neuromuscular Physiotherapist from Glasgow about Jaw Tightness in Neuromuscular Disorder...