
The Rare Disease Podcast
3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.
This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them
Podcasting since 2021 • 85 episodes
The Rare Disease Podcast
Latest Episodes
What To Do When A Child Unexpectedly Dies
*Please be aware that this episode contains conversations about child loss.*For this week's episode of the podcast, Lucy chats with Nikki Speed from SUDC UK. SUDC UK are a national charity for Sudden Unexplained Death in Chil...
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Season 8
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Episode 10
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46:28

The Organ My Baby Needs Is Inside Me
For this week's episode of the podcast, Lucy speaks to Elle Daniel who is waiting to be the donor of some of her liver to her daughter who is 19 months old. Elle's daughter has a very rare version of a rare condition called Congenital Disorders...
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Season 8
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Episode 9
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1:03:54

Genomics in Primary Care: Why Your Role Matters More Than Ever!
For this week's episode of the podcast Lucy chats to Isobel, Philandra and Vicki who are from the GMSA (Genomics Medicine Service Alliance). They are putting on a fantastic online event alongside the University Hospital Birmingham all about gen...
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Season 8
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Episode 8
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53:43
