I am so excited to welcome Laura Will to the podcast. In the last episode I interviewed the co-founders of Know Rare - Nina and Jack Wachsman, and today I have an interview with Laura Will, who writes blogs about the parental experience for knowrare.com as well as leading their patient advocate team.
This is a very special interview - Laura, a trained nurse practitioner, talks about her personal experience as mom to her 2-year-old son Alden who has a rare disease. She is a gifted writer and a poet and you’re in for a treat - she shares her beautiful poetry that will move you - I assure you. She also does volunteer work and has started a local support group in the Cape Cod Massachusetts area for parents of children with medical complexity or disability.
Laura will inspire you with her actions to support families along with her moving words. Here's how to find her:
Laura’s website: adragonmomswords.com
And also look for Laura’s posts on the Know Rare blog - knowrare.com/blog
You can connect with me by following me on:
Instragram: @theresabartolotta
Facebook: Safe Harbor Podcast group
Website: theresabartolotta.com where you can find my podcast episodes, books I recommend, and more to come!
And email me at safeharborpodcast@gmail.com to get on my mailing list.
Please rate and review the podcast- it helps others find us.
Come share your thoughts in the Safe Harbor Facebook group. And find me on:
Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/
Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.
I am so excited to welcome Laura Will to the podcast. In the last episode I interviewed the co-founders of Know Rare - Nina and Jack Wachsman, and today I have an interview with Laura Will, who writes blogs about the parental experience for knowrare.com as well as leading their patient advocate team.
This is a very special interview - Laura, a trained nurse practitioner, talks about her personal experience as mom to her 2-year-old son Alden who has a rare disease. She is a gifted writer and a poet and you’re in for a treat - she shares her beautiful poetry that will move you - I assure you. She also does volunteer work and has started a local support group in the Cape Cod Massachusetts area for parents of children with medical complexity or disability.
Laura will inspire you with her actions to support families along with her moving words. Here's how to find her:
Laura’s website: adragonmomswords.com
And also look for Laura’s posts on the Know Rare blog - knowrare.com/blog
You can connect with me by following me on:
Instragram: @theresabartolotta
Facebook: Safe Harbor Podcast group
Website: theresabartolotta.com where you can find my podcast episodes, books I recommend, and more to come!
And email me at safeharborpodcast@gmail.com to get on my mailing list.
Please rate and review the podcast- it helps others find us.
Come share your thoughts in the Safe Harbor Facebook group. And find me on:
Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/
Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.