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Safe Harbor: A Podcast for Parents of Children with Disabilities
The Safe Harbor Podcast is for parents of children with disabilities. This show enables parents to come together as a community to share, learn and support each other on this complex path. Your host, Theresa Bartolotta, is mom to a young adult with Rett syndrome and has worked with hundreds of families as a pediatric speech pathologist. Email Theresa at safeharborpodcast@gmail.com to join the mailing list and get updates. Join the Safe Harbor Podcast group on Facebook to connect and continue the discussion!
Episodes
23 episodes
Episode 22 - A Look Back and A Look Forward
In this episode your host, Theresa Bartolotta, is excited to announce that she is resuming the podcast! She shares an update on life and the reasons behind the long gap between episodes. Theresa reviews podcast statistics and how successful the...
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Episode 22
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14:42
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Episode 21 - Thoughts on Stages of Parenting and the Details and Feelings about Decision Making as we Age
In this solo episode I talk about stages of parenting a child with a disability. First there's the initial stage, when we deal with a diagnosis and setting up a treatment program and a community of care. Then there's the middle stage, whe...
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18:08
Episode 20 - Creating Places of Belonging for Families Impacted by Disabilities; An Interview with Abby Burle of Love Your Story
In this episode I speak with Abby Burle, founder of Love Your Story, an organization dedicated to create places of belonging for families impacted by disabilities. This project started after Abby and her husband Ryan traveled around...
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Season 1
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Episode 20
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37:19
Episode 19 - Getting Life Under Control While Raising Children, Several with Disabilities, with Laura Hernandez from Mama Systems
In this episode I interview the fun and inspiring Laura Hernandez of Mama Systems. Laura is mom to a large family and several of her children have disabilities. Listen to Laura explain how she turned her challenging life into one of peace...
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Season 1
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Episode 19
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36:01
Episode 18 - Interview with Sam and Sarah of the pRETTyhappy podcast.
I really enjoyed interviewing Sam and Sarah Ahlstrom, parents to a young girl with Rett syndrome, and co-hosts of the pRETTy happy podcast, a show dedicated to "Bringing families and friends together from the Rett syndrome community to discuss ...
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Season 1
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Episode 18
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52:55
Episode 17 - The Two Sides to Awareness Months - Pride and Sorrow
In this solo episode, I talk about Awareness Months, or Days, when a particular disorder is acknowledged. October is Rett Syndrome Awareness Month, and as a mom of a young woman with Rett syndrome I support many activities this month to raise a...
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14:55
Episode 16 - A Koolen Mama Tells Her Story of Living with, and Parenting Children with Koolen-de vries syndrome.
In this episode I interview Becky Tilley , who describes herself as "a rare mama living with Koolen-de vries syndrome." Becky has three beautiful children and her two youngest also have KDVS. She is a very passionate writer and rare disea...
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Season 1
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Episode 16
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40:56
Episode 15 - From Grief to Hope and Learning to Practice Gratitude
In this solo episode I talk about the cycles of grief and hope, and how the feeling of hope, and a gratitude practice, can help us get through the tough times. Parenting a child with a disability can be a rollercoaster - one day you're up, the ...
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22:48
Episode 14 - A Life of Volunteerism and Action: A Conversation with Leslie Greenfield on Seeing a Need and Filling It
Today my guest is a dear friend and colleague - Leslie Greenfield. Leslie has lived a life of volunteerism while raising her daughter Heather, who has Rett syndrome. I think you will find inspiration from this conversation. In her life, Lesl...
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Season 1
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Episode 14
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44:10
Episode 13 -An Interview with Laura Will, on Parenting a Child with a Disability, and being a Dragon Mom
I am so excited to welcome Laura Will to the podcast. In the last episode I interviewed the co-founders of Know Rare - Nina and Jack Wachsman, and today I have an interview with Laura Will, who writes blogs about the parental experience for kno...
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Season 1
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Episode 13
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50:13
Episode 12 - Connecting Individuals with Rare Disease to Clinical Trials: Nina and Jake Wachsman from Know Rare
The Safe Harbor podcast is a show for parents of children with disabilities and people who love them. Your host is Theresa Bartolotta. This episode features an interview with Nina and Jake Wachsman, a mother and son team who started Know Rare, ...
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Season 1
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Episode 12
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38:36
Episode 11 - Celebrating our Differences and Valuing Inclusion! An Interview with Anna Moates, co-author of "Almost Twins", and her sister Ashley
In this episode Theresa interviews sisters Anna and Ashley Moates, to learn about the amazing achievements of Anna, a young woman with Down Syndrome. Anna Moates is the co-author of Almost Twins, a book she wrote with her friend...
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Season 1
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Episode 11
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36:47
Episode 10 - Anything is Possible - Raising Conor, A Young Man with Down Syndrome, with Joyce Wright
In this episode, I speak with Joyce Wright, mother of Conor, a 31-year-old young man with Down syndrome. Their story is one of great joy and achievement! Joyce holds a doctorate in Nursing and is a professor at a NJ University. She’s a voluntee...
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Season 1
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Episode 10
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40:34
Episode 9 - What I Wish I Could Tell My Younger Self
Welcome to this the Safe Harbor podcast - a show for parents of children with disabilities. In this episode I talk about what I wish knew as a young mom learning that my child had a disability. The world and the future can look so dark, a...
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Season 1
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Episode 9
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21:34
Episode 8 - Travel Tips for Parents of Children with Disabilities with Dawn Barclay
In this episode, your host Theresa Bartolotta talks with Dawn Barclay, whose book "Traveling Different: Vacation Strategies for Parents of the Anxious, the Inflexible, and the Neurodiverse" will be released on August 15, 2022. Travel has been a...
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Season 1
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Episode 8
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36:49
Episode 7 - Advocating for your Child at IEP Time with Christine Reilly
In this episode your host Theresa Bartolotta speaks with Christine Reilly, who works to help parents advocate for their children with disabilities in the special education space. Christine Reilly is a mom of 4 girls, a teacher of students with ...
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Season 1
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Episode 7
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43:54
Episode 6 - Planning for An Amazing Future
Theresa is back after a brief break with a solo episode. She talks about the three phases of life once you have a child with a disability: the time before the diagnosis, the present time, and the future. We were different people before th...
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Season 1
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Episode 6
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13:11
Episode 5 - An Important Conversation about Siblings of Children with Disabilities with Sue Levine
In this episode Theresa talks with Sue Levine, Social Worker, and Co-Founder of Family Resource Associates in Red Bank, New Jersey. FRA is a not for profit agency that provides services to people with disabilities across the life...
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Season 1
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Episode 5
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36:42
Episode 4 - Fear
In this episode Theresa talks about the different types of fear we feel. The first is the type of fear we experience when we or a loved one are in danger. Parents living with children with special needs can experience fear a lot, due to medical...
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Season 1
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Episode 4
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20:35
Reflections on Raising an Adult Son with Autism; A Conversation with Patty Shannon
Safe Harbor is a podcast for parents of children with special needs and anyone who loves someone who is a parent of a special child. In this episode, host Theresa Bartolotta talks with Patty Shannon, mom to a terrific young man, Tom, who ...
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Season 1
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Episode 3
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37:06
How This Experience Makes Us Better
In this episode host Theresa Bartolotta explores the evolution of grief, from an initial experience of great loss and scarcity to a place of acceptance and abundance. You can find the New York Times articles Theresa authored here:
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Season 1
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Episode 2
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18:53