Confessions of a Rare Disease Mama
Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
Podcasting since 2022 • 68 episodes
Confessions of a Rare Disease Mama
Latest Episodes
The Gap in Mental Health Support After a Diagnosis
When your child receives a life-altering diagnosis, you leave the hospital with a care plan....But no one gives you a coping plan.In this episode, I’m talking about the part no one prepares you for: the emotional aftermat...
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Episode 67
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31:17
Letting go of the "shoulds" of the holiday season
The holidays can feel magical... or overwhelming. For parents of children with medical complexity, special needs, or chronic illnesses, the season often comes with invisible burdens and unspoken expectations. In this episode, I talk about the w...
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Episode 66
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31:08
Life Lately/Catch up: Road Trips, School Days & Real Talk with My Husband
After a four-month break, we’re back and catching up on everything! In this episode, I sit down with my partner-in-crime (and life), Donald, to chat about what life has looked like lately for our family. From three back-to-back road tr...
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Episode 65
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49:37
BONUS EP: What to do when the world feels like too much
Ever feel like the world is just... too much? Whether it's the endless news cycle, the weight of caregiving, or just the everyday overwhelm, you’re not alone. In this episode, I’m opening up about what happens to our nervous system whe...
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Episode 64
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26:40
Life Lately: Solo Parenting, Sick Kids, & School Plans
In this casual solo episode, I’m just catching you up on what life has looked like lately over here. From solo parenting while Donald’s been away for job training, to the kids catching colds (because of course they did while Donald's gone), to ...
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Episode 63
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30:02
