Confessions of a Rare Disease Mama
Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
Confessions of a Rare Disease Mama
Latest Episodes
Mini Episode: All Aboard the Grief Train… CHOO CHOO
Just when you think you’ve made peace with your life, grief comes barreling back into the station. All aboard! This weekend was a really good one. We had family in town, celebrated birthdays and baptisms, spent time with people we l...
The Gap in Mental Health Support After a Diagnosis
When your child receives a life-altering diagnosis, you leave the hospital with a care plan....But no one gives you a coping plan.In this episode, I’m talking about the part no one prepares you for: the emotional aftermat...
Letting go of the "shoulds" of the holiday season
The holidays can feel magical... or overwhelming. For parents of children with medical complexity, special needs, or chronic illnesses, the season often comes with invisible burdens and unspoken expectations. In this episode, I talk about the w...
Life Lately/Catch up: Road Trips, School Days & Real Talk with My Husband
After a four-month break, we’re back and catching up on everything! In this episode, I sit down with my partner-in-crime (and life), Donald, to chat about what life has looked like lately for our family. From three back-to-back road tr...
BONUS EP: What to do when the world feels like too much
Ever feel like the world is just... too much? Whether it's the endless news cycle, the weight of caregiving, or just the everyday overwhelm, you’re not alone. In this episode, I’m opening up about what happens to our nervous system whe...
