Confessions of a Rare Disease Mama
Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.
Confessions of a Rare Disease Mama
Officially entering my self love era
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Enjoy this solo catch-up episode! Some things I bring up during this episode:
-Our kid's starting school (homebound vs. in person)
-Roman's upcoming SIXTH birthday & fundraiser
-Dealing with ignorant comments online
-What quality of life means to me and my children
-Upcoming weekend trip I have planned (without the hubby and kids)!
-How it felt turning 36 this summer and officially entering my SELF LOVE era
Listen to my episode on the Rarely Normal Podcast
Listen to my story episode on the Rare Life
Resources & Links for this episode:
- Buy Soaring Together: Amazon, Barnes & Noble, or locally at Bike Trail Books in Loveland and the Cincinnati Zoo Gift Shop
- Learn more about our brave warriors: saveromanandstella.com
- Support our family: GoFundMe
- Follow us!
- Instagram: @confessionsofararediseasemama
- TikTok: @rare_mama
- Facebook: Jillian Arnold & Confessions of a Rare Disease Mama
- Get your FREE Positive Affirmations for the Medical Parent PDF here!
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