CTNNB1 Connect and Cure
CTNNB1 Connect and Cure
Latest Episodes
Ashley Werths recap of her first CTNNB1 Connect & Cure conference in 2025
In this episode, Toni spends some time talking with Ashley Werths about her first experience at the 2025 CTNNB1 Connect & Cure Conference. Ashley shares her journey as mom to Chandler, the connections she has made within the community, what...
Forward Together - 2026 Conference Update with Emily Amerson
In this episode Toni talks with CTNNB1 Connect & Cure President Emily Amerson about the upcoming conference in Boston. They discuss what to expect at this year's conference, including the Natural History Study, Biorepository samples, ...
Meet the Newest Board Members for CTNNB1 Connect & Cure
In this episode we get to know the newest members of the CTNNB1 Connect & Cure Board of Directors! Host Toni Paes talks with Ashley Hamic, Chief Operating Officer and Secretary, Anita Chang, Treasurer and Luke Dreckman, Co-Director of Fundr...
Diana O'Mara - Fundraising for the Future of CTNNB1
In this episode, Toni talks with Diana O'Mara about how her desire to make a difference has grown into an incredible annual fundraising event. Diana shares the inspiration behind the fundraiser, practical tips for families interested in organiz...
Estate Planning for CTNNB1 Families with Brenton McWilliams
In this episode, host Toni Paes talks with estate planning attorney and CTNNB1 parent Brenton McWilliams about how families can begin planning for the future of their children with special needs. In this reassuring and practical conversation, t...