CTNNB1 Connect and Cure
CTNNB1 Connect and Cure
Latest Episodes
Holiday Stress & Support with Stephanie Babcock
Surviving the Season: Holiday Stress, Support, and Strength in the CTNNB1 CommunityIn this episode, Toni sits down with licensed clinical social worker and CTNNB1 mom, Stephanie Babcock to talk about her family’s diagnosis journey...
A Lifetime of Love with Jana Brown
In this inspiring episode, host Toni Paes sits down with Jana Brown, mom to 29-year-old Jared —one of the oldest known individuals living with CTNNB1 syndrome. Jana shares her family’s decades-long journey from early misdiagnoses to f...
Integrative Health with Fraser Bridgeman - Methylene Blue, Red Light Therapy, and Beyond
In this episode of the CTNNB1 Connect & Cure podcast, host Toni Paes welcomes back Fraser Bridgeman to delve into discussions about Methylene Blue and its potential benefits for individuals with CTNNB1-related conditions. Fraser shares insi...
2025 Conference Update with Emily Amerson
President of CTNNB1 Connect & Cure, Emily Amerson and Toni sat down to discuss all the details of the 2025 CTNNB1 Connect & Cure Conference in Boston, Massachusetts happening on July 10 - 12. Listen in to hear all the information on wha...
Introducing Director of Fundraising Crawford McWilliams
Welcome Crawford McWilliams, our new CTNNB1 Connect & Cure Director of Fundraising. In this episode we get to know Crawford and her family, including her dragonfly Shreve. We discuss her fundraising efforts so far with CTNNB1, as well as so...