Life with Multiple Diagnosis

So many of our kids have a common connection, CTNNB1, but many of our kids have more than just CTNNB1.  I interview Kelley Merwin about her son's multiple diagnosis and what she does for self-care.  Kelley talks about the process she went through to find her son's diagnosis and also how his other diagnosis have come into play with caring for her son.  Take a listen as Kelley shares the story of how she manages her son's needs and also her own.   

https://www.curectnnb1.org/
#raredisease
#syndrome