Patient Centricity

"Patients in their own words" -- Nathan's story

Season 1 Episode 12

Nathan Peck is the CEO of Cure VCP Disease, a VCP disease patient, husband and father.

Nathan possesses a Bachelor of Industrial Engineering from the Georgia Institute of Technology as well as an MBA and Masters of Civil and Environmental Engineering from the Massachusetts Institute of Technology. As a patient, in January 2018, he formed Cure VCP Disease, Inc. along with a passionate group of IBMPFD patients, caregivers and researchers.  Through Cure VCP Disease, Inc. he is committed to bringing together patients, caregivers, researchers, pharmaceutical companies, other non-profits and investors to identify treatments and ultimately a cure for this ultra-rare, genetic disease. Being a patient with the disease drives the organization’s urgency and purpose.

In Nathan’s own words, “our goal is to make Cure VCP disease extinct… I don't want this organization to become big and long lasting. I want it to die because we conquered the disease, and we helped others in the process.”

See below for more information on Cure VCP Disease:

Website: https://www.curevcp.org/

What is VCP disease: https://youtu.be/behsJnCjbrk

Help support Cure VCP Disease: https://givebutter.com/2023VCPScientificProgram

Email: info@curevcp.org

 

Produced by Samantha Keyes and Georgianna Moreland

 

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