
MSMS: The Many Stories of Multiple Sclerosis
Here we will hear real people, Australians and occasionally others round the world speaking on Multiple Sclerosis (MS).
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This podcast began with Colleen's hope of building greater understanding of what is involved in the HSCT procedure, through the sharing of stories of Australian people living with MS who had undergone HSCT.
That initial focus will expand to include discussions on a variety of issues relevant to Australians living with MS, such as symptoms, medications, and therapies.
Through sharing we support one another, reduce the isolation of living with Multiple Sclerosis, and foster a sense of community while raising awareness of the impact of this progressive disease on those living with it.
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The beginning series focuses on the choice of Hematopoietic Stem Cell Transplant (HSCT) - the variety of challenges faced, and individual outcomes of that procedure.
"MSMS: The Many Stories of Multiple Sclerosis" podcast's first episode follows your host Colleen and her husband Kel's unique journey through HSCT, a choice Colleen made when she found herself rapidly losing the ability to walk.
Married just over five years, Colleen and Kel travelled to Moscow Russia on a mission to stop the progress of Colleen's MS.
You'll hear of the unexpected obstacles they faced, one after the other, Colleen as patient and Kel her champion.
Surviving an experience that could not have been expected nor could have been prepared for, Colleen and Kel have shared their story in Australian newspapers, radio and television and here in this podcast episode tell more of their incredible story.
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Disclaimer:
This podcast is not intended to replace professional medical advice.
The views expressed in this podcast are those of the host or guest(s).
No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.
Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.
Content Warning:
Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some. In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance - do please look after yourself.
Episodes
Bend Like Bamboo: Simple Joy Leads Amanda From Paralysis To Practitioner

Beyond Diagnosis: Ashlee and Sava, a couple's story

Amy's Whirlwind Diagnosis: from Vertigo to MS in 48 Hours

Teresa's journey - from fears to fierce determination

If challenges come in threes - Vicki has gone beyond

See the notes here for Buddhist nun's story of Multiple Sclerosis

Brigitte doesn't think 7 is a lucky number

HSCT - What's age got to do with it ?

Colleen speaks with the personal trainer who helped her walk again

One special day after another, Anna makes her way toward a clinical trial for HSCT

Everyone's rushin' to Russia for HSCT....except Nicola

Why is Roland rolling the dice on a lesser known MS treatment approach?

We're better, and back....and learning how to turn discomfort into exhilaration

How I got from simple curiosity about HSCT to the reality of going through treatment.

We all have a life, ours is changed by MS. Read my 'diary' with me about how things changed ...

The importance of communities: Meet the connecting force for people undergoing HSCT

When you become your own case study : Mary's journey from professional to patient

When Peter learned that Primary Progressive MS doesn't mean there are no options

What's it all about? It's ok to talk about MS and how we deal with it - and we should

CoVid wasn't stopping Kerrie

Tanya rises up from the lowest low, to triumph, and AVN?

Colleen & Kel's unique experience
