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Live Parkinson's - Live an Exceptional Life!
Live Parkinson's - Live an Exceptional Life
Discover hope, resilience, and practical tools for living an exceptional life with Parkinson’s. Hosted by Chris Kustanbauter, this podcast is dedicated to empowering those with Parkinson’s to take charge of their lives and thrive through a holistic approach.
Each week, tune in for expert interviews, personal stories, and actionable tips covering exercise, nutrition, optimism, and social connection – all proven to improve quality of life. From managing symptoms to staying active and building meaningful relationships, this podcast will equip you with tools and insights to navigate life confidently and positively.
Whether you’re newly diagnosed, a seasoned warrior, or a caregiver, Live Parkinson’s, Live an Exceptional Life brings you evidence-based strategies and inspiring stories to help you overcome challenges and stay motivated on your journey. Let’s embrace each day with strength, laughter, and community – and live life on your terms.
Subscribe now to join our supportive community, and never miss an episode as we tackle Parkinson’s together – one exceptional day at a time!
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Live Parkinson's - Live an Exceptional Life!
Personalized Parkinson's Nutrition: Latest Research & Practical Tips
Are you living with Parkinson's and feel overwhelmed by generic diet advice? It's time to discover the power of personalized nutrition! In this episode, we cut through the noise to show you why a one-size-fits-all approach doesn't work for Parkinson's, and how tailoring your diet can significantly impact your well-being and symptom management.
We dive into the latest research and provide actionable strategies to help you optimize your diet for your unique needs.
In this episode, you'll discover:
- Why a "Parkinson's Diet" is a Myth: Understand the heterogeneity of Parkinson's and why personalized nutrition is crucial for varying symptoms and disease progression.
- Medication & Food Interactions: Learn how diet can affect the efficacy of your Parkinson's medications, including practical tips for Levodopa.
- Targeting Specific Symptoms: Nutritional strategies for managing common challenges like constipation, swallowing difficulties (dysphagia), weight loss, and dyskinesia.
- Essential Nutrients Decoded: A personalized look at Vitamin D, B Vitamins, Omega-3s, Antioxidants, and Magnesium – backed by the latest research.
- Debunking Diet Myths: Separate fact from fiction about "superfoods" and restrictive diets that lack scientific evidence.
- Practical Steps to Personalize Your Plate: Actionable advice on self-monitoring, working with healthcare professionals, and making sustainable dietary changes.
Ready to take control of your Parkinson's nutrition?
- Visit liveparkinsons.com for more free resources, articles, and valuable tools to help you live an exceptional life with Parkinson's.
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#ParkinsonsDisease #ParkinsonsNutrition #PersonalizedNutrition #ParkinsonsDiet #NeuroNutrition #ParkinsonsResearch #HealthyLiving #ParkinsonsSupport #DietForPD #BrainHe
Disclaimer: This podcast is for educational purposes only is not intended to treat or diagnose Parkinson's Disease. Please ensure that you are following the treatment plan developed by your doctor. Please ensure before starting anything new you get approval from your doctor. The information being provided is based on my own personal experiences and does not guarantee that it will benefit everyone.
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Hello and welcome to Live Parkinson's Live an Exceptional Life. I'm your host, chris Kustenbotter, and I've been living an exceptional life with Parkinson's for the past 15 years. The mission of this podcast is to help as many people as possible living with Parkinson's to lead a great quality of life. Today's topic is personalized Parkinson's nutrition latest research and practical tips. Imagine a diet that actually works with your Parkinson's, helping you to manage your specific symptoms and improve your quality of life. No, this isn't a one-size-fits-all approach. Join us as we explore the cutting-edge research and deliver practical steps to create a personalized nutrition plan that truly serves you. Thank you for joining me today for a crucial conversation about something deeply personal and, at the same time, profoundly impactful on your health and well-being your nutrition. Now, if you or somebody you care about is living with Parkinson's, you probably already know that this journey is unique. Every individual is going to experience Parkinson's differently the motor symptoms, the non-motor challenges and the way your medications work. It's all part of a very personal puzzle and, just like every other piece of that puzzle, your nutrition shouldn't be a one-size-fits-all solution. For too long, the conversation around diet and Parkinson's has often been broad and generalized, but what if the real power lies in understanding your specific needs, your unique symptom profile and how the latest scientific research can inform a dietary approach that truly works for you. So in this episode, we're going to delve into why personalization isn't just a buzzword but a fundamental key to potentially managing your Parkinson's journey more effectively. We're going to explore how different symptoms from our visible motor symptoms and the challenges that they present to the often overlooked non-motor symptoms, which can present their own challenges and can have distinct nutritional implications. We'll examine some of the most recent research in the field of nutrition in Parkinson's, cutting through the noise and the hype to present evidence-based insights. But, most importantly, understanding the research is nice, but we also have to know how we can use it in our daily lives. So we'll be translating the research into practical, actionable tips that you can start thinking about and sharing with your healthcare team. So, whether you've been newly diagnosed or have been living with Parkinson's for years, or a caregiver seeking answers, this episode is designed to empower you with a better understanding of how to tailor your diet to your specific needs. So, if you're ready, get comfortable, maybe go grab a healthy snack and let's get started on this important quest. It's time to unlock the potential of personalized nutrition in your Parkinson's journey.
Speaker 1:Now let's start by discussing why a one-size-fits-all approach simply doesn't cut it when it comes to nutrition and Parkinson's, and why personalizing your diet is so important. I know one of the questions I had when I was first diagnosed and maybe you did too was is there a specific Parkinson's diet that I should be following? Well, the short answer is no. While there are general guidelines for healthy eating that apply to everyone, including people living with Parkinson's, the idea of a single prescribed Parkinson's diet is mostly a misconception. In reality, it's better to think about personalized nutrition tailored to your specific individual needs. So I guess that begs the question why is personalization in your nutrition so important? Well, the answer relates to how Parkinson's manifests itself in each person. Now, I've often heard it called a boutique disease, meaning that each person will experience Parkinson's differently. Some may have tremors, some may not the same, with gait issues and other motor and non-motor symptoms. So think of it this way Parkinson's is like a fingerprint Each person's experience is distinct and personal, just like your fingerprint.
Speaker 1:Another important factor to consider, besides motor and non-motor symptoms that are part of Parkinson's, is the disease progression. Now we know that Parkinson's is a progressive condition, meaning that our symptoms are going to tend to evolve and change over time. So, in terms of nutrition, foods that may be helpful in the early stages could be less relevant or maybe need adjusting as Parkinson's progresses. For example, someone experiencing significant weight loss in later stages is going to have a very different nutritional priority than someone in the early stages with a healthy appetite. And then another factor that really needs to be considered as part of the nutrition plan is your individualized response to medication. For instance, levodopa, which has been the gold standard of treatment, can interact with certain nutrients, particularly protein. So the timing and distribution of protein intake throughout the day can significantly affect how well levodopa is absorbed and used in our body. The optimal protein needs and eating strategy can vary based on personal specific medication regimen, dose and how their body metabolizes the drug. So what works for one person in terms of eating protein and taking their medication may not be ideal for someone else. So it's important to consider the three factors that we just discussed the type of symptoms, disease progression and medication response when considering the nutritional needs and diet program for someone with Parkinson's.
Speaker 1:Now let's look at an example Someone struggling with constipation, which, of course, is a very common non-motor symptom. Their nutritional plan might focus on increasing their dietary fiber and making sure they're staying hydrated While someone else dealing with swallowing difficulties, known as dysphagia. The priority shifts to texture-modified foods and strategies to prevent aspiration, even if they're getting enough fiber. Besides these three factors and how they affect your nutritional needs, we can't overlook the fascinating connection between the gut and the brain, also known as the gut-brain axis. Emerging research suggests that the makeup of the individual's gut microbiome, which is the trillions yes, I said trillions of bacteria living in our digestive system, can play a role in the development of Parkinson's and symptom expression. It's conceivable that different gut microbiome profiles might influence how people absorb nutrients, respond to certain foods and even impact our neurological function. This is a rapidly evolving area of research and it reinforces why personalized approach to nutrition, and potentially even considering health, is so important. So the bottom line is this what works incredibly well for one person with Parkinson's might be completely ineffective or detrimental for someone else.
Speaker 1:There's no magic pill, no universal Parkinson's diet that meets everyone's unique needs and challenges. So the key takeaway is the need for a personalized approach to nutrition. In Parkinson's, it's about understanding your own body, your specific symptoms, your medication regimen and, working with your healthcare professional, they can connect you with registered dietitians who specialized in neurological conditions to help develop a dietary plan that's tailored to you All. Right now that we understand why personalization is so crucial in Parkinson's nutrition, let's look at some of the key factors that shape those individual needs. Now think of these as puzzle pieces that make up your unique nutritional profile.
Speaker 1:Now, one of the most significant factors we need to consider right up front is medication interaction, particularly with levodopa, again, the gold standard medication for managing our motor symptoms. Levodopa is an amino acid and it competes with other amino acids, primarily those found in protein-rich foods, for absorption in the small intestine. So, as an example, imagine Sarah, who finds her levodopa medication works best when she takes it about 30 minutes before a meal. However, on days she has a protein-heavy lunch like a large chicken salad, she notices her medication seems less effective for a longer period after the meal. Now this is likely due to the protein interfering with the absorption of levodopa.
Speaker 1:Now I have a friend, bob, who told me he was getting frustrated because the effectiveness of his levodopa was fluctuating a lot during the day and it made it hard for him to participate in some of the activities that he really enjoyed. Bob said he was discussing the motor fluctuations with his doctor and his doctor told him to look at his diet. So Bob went home and he said wow, that's right, I'm having a protein smoothie every day for breakfast and then taking my medication right afterwards. So he thought to himself I bet that's what's causing some of the motor fluctuations. So what he decided to do was to get away from having a protein heavy breakfast and moved the protein to more of the protein to later in the day, at lunch and dinnertime and a later breakfast. After that, he said he started to notice improvements in his motor symptoms.
Speaker 1:All right, now let's look at how diet can affect some other specific symptoms of Parkinson's. And let's start with everyone's favorite topic the bathroom and in this case constipation. Constipation is a very common, often bothersome, non-motor symptom in Parkinson's. The slowness of movement in our bodies that we experience can also affect the digestive system. Now I have a friend, michael, who said he finds when he doesn't get enough fiber in his diet, especially not eating enough fruits and vegetables and whole grains, he experiences significant constipation and discomfort. Now why he needed to tell me this? I'm not sure, but since it was important to him, I listened and sympathized with him.
Speaker 1:Now another critical symptom that can dramatically affect our nutritional needs is swallowing difficulties, which is also known as dysphagia. Swallowing difficulties can range from mild difficulty swallowing liquids and solids to a severe inability to swallow safely. So if you're experiencing swallowing issues, make sure you tell your neurologist or your movement disorder specialist and ask for a referral to a speech therapist. Wait, chris, you said get a referral to a speech therapist if you're having trouble swallowing. That can't be right. Yes, I did say a speech therapist, because they're not only trained in helping you improve your speech, but they can give you actionable strategies to help you with specific swallowing issues. Now I've worked with Gabrielle, a speech therapist, who is exceptional and has helped me with my speech issues, but she's also really well-trained in helping people with swallowing issues. Now, for example, emily, a person living with Parkinson's, noticed that thin liquids sometimes make her cough, which can increase her risk of aspiration. She said both her and her doctor and the speech therapist have recommended that she thicken her fluids to a more honey-like consistency to make them easier to swallow.
Speaker 1:Now, next up in specific symptoms that can be personalized with nutrition is weight loss. Weight loss can occur in Parkinson's for various reasons, including increased energy expenditures due to movement with your motor symptoms, reduced appetite or even sometimes, medication side effects. Unintentional weight loss can lead to frailty, lack of mobility and a host of other complications like falling and things like that where you have the potential to injure yourself. Now, at one of the Parkinson's seminars I attended, I remember hearing a doctor speak on managing patients who are losing weight unintentionally. They said for these patients they recommend increasing their daily calorie intake with nutrient-dense foods like avocados, nuts and olive oil. These can provide healthy fats while at the same time, providing extra calories even when the person doesn't feel particularly hungry. Now a friend of mine with Parkinson's said that the dietician told him to consider eating small, frequent snacks or meals throughout the day, even if they're just a few bites of calorie-rich foods like a spoonful of peanut butter on crackers. He said after doing this for several weeks, he was able to keep his weight stable and seemed to have a little bit more energy.
Speaker 1:Now, last but not least, let's touch on another symptom many of us experience, and that's dyskinesia, those involuntary jerky movements that potentially happen as a long-term side effect of levodopa use. While the direct link between diet and dyskinesia isn't fully understood yet and is highly individual, some people find that certain types of foods might influence their occurrence or severity. One article I read the person said their dyskinesia seemed to be slightly worse after carbohydrate-heavy meals. Other articles I've read, the people mentioned anecdotally that their dyskinesias were exacerbated when they ate processed foods or used artificial sweeteners. Now, these experiences from these articles that I read aren't universal and research is needed to determine if certain foods increase dyskinesias. But it does show paying attention to what you eat and how you feel after your meal can affect your symptoms and how it may be important.
Speaker 1:One other thing to keep in mind when you're thinking about nutrition for Parkinson's is do you have any coexisting conditions? Some people with Parkinson's may also have other underlying conditions or diseases, like diabetes, heart disease or kidney problems, for example, and all of these are going to have their own specific dietary recommendations which you'd need to consider as part of your personalized Parkinson's nutrition. So to conclude this segment, you can see that medication, specific symptom management, disease progression and other health conditions create an opportunity for a highly individualized nutrition plan for each person living with Parkinson's. Now, while there's no dietary magic formula. Working closely with your healthcare team, you can develop a nutrition plan and strategy that meets your unique needs.
Speaker 1:All right, now let's turn our attention and zoom in on some specific essential nutrients that often come up in discussions about Parkinson's and nutrition. Keep in mind we're looking at these through our personalized lens. It's not just about what these nutrients do, but how they might fit into our individual dietary plan, ideally through food first and then, if needed, supplements. Well, and why do they call it the sunshine vitamin? Because when you go out into the sunshine, that helps us synthesize our body synthesize vitamin D, and vitamin D is crucial for bone health, which is important in Parkinson's because it can affect our mobility and our risk of falls, weak bones or osteoporosis. If you have a fracture, you could potentially fall and that's going to limit your mobility.
Speaker 1:Now, beyond bones, emerging research has also explored potential links between vitamin D levels and Parkinson's. Some studies for example, there was a meta-analysis that was published in Nutrients that have indicated that people with Parkinson's often have lower vitamin D levels compared to healthy controls. And there's been other observational studies, including one published in the Archives of Neurology in 2010 that suggested a possible association between higher vitamin D levels and reduced risk of developing Parkinson's or a potential role in modulating motor symptoms. However, and this is crucial more is not always better and the research is still ongoing. The key is individualized testing. Your doctor can perform a simple blood test to check your vitamin D levels. So if you're deficient in vitamin D, supplements may be recommended, but this should always be guided by test results and your doctor's advice to avoid potential toxicity. So some good sources of vitamin D to get in your food include fatty fish like salmon and mackerel, fortified milk and plant-based milks and egg yolks.
Speaker 1:All right, next up on our nutritional countdown is B vitamins. Now, this whole family of nutrients are vital for energy production and healthy nerve function. In terms of Parkinson's, specific B vitamins like B6, b9, which is also known as folate and B12 are important because they help us regulate homeocysteine levels. All right, what are homeocysteine? Homeocysteine is an amino acid that plays a role in protein generation within our bodies. Amino acid that plays a role in protein generation within our bodies, so it helps break down vitamins B12, 6, and B9 folate to generate other essential chemicals. So elevated homeocysteine has been linked in some research to an increased risk of cognitive issues and vascular problems, which can be concerns in Parkinson's. For instance, research published in various journals, including the Journal of Movement Disorders, has investigated the relationship between homeocysteine vitamin B levels and Parkinson's, sometimes finding that levodopa therapy can affect homeocysteine levels, showing the need for adequate amounts of vitamin B.
Speaker 1:Some individuals with Parkinson's might also be at higher risk for deficiencies in certain B vitamins, like B12, due to their age, dietary patterns and medication interactions. Symptoms of vitamin B deficiency can sometimes mimic or worsen Parkinson's symptoms, like fatigue or neuropathy. So some good sources of B vitamins include leafy greens that's where you're going to get your folate meat, poultry, fish, eggs and dairy. Dairy is going to give you B12, and legumes, so that's your beans. Whole grains also give you various amounts of B vitamins. So it's important to note that, while ensuring adequate B vitamin intake is important, especially through a balanced diet, any supplementation should be discussed with your health care provider, especially if your specific deficiencies are suspected or they're identified when you have a blood test.
Speaker 1:Now let's turn our attention to omega-3 fatty acids. These are essential fats known for their anti-inflammatory properties and their role in brain health. Since there's a potential connection between neuroinflammation and its role in Parkinson's, there's been considerable interest in omega-3 fatty acid studies. A study Neuroprotective, antioxidant and Anti-Inflammatory Effects in a Model of Parkinson's that was published in the Annals of Neurodegenerative Disorders. The results of this RAT model showed improvements in motor function and dopamine levels and reduced neurodegeneration. In another study, omega-3 fatty acids and neurodegenerative disease, new evidence in clinical trials that was published in the International Journal of Molecular Sciences. International Journal of Molecular Sciences analyzed clinical trials and epidemiological studies suggesting that omega-3 supplementation could be a valuable tool in managing neurodegenerative diseases, including Parkinson's.
Speaker 1:While the direction slowing Parkinson's in humans is still developing, ensuring adequate intake is generally considered beneficial for overall brain health. Now, some excellent sources of omega-3 fatty acids include your fatty fish, like salmon, sardines and mackerel, as well as eating flax seeds, chai seeds and walnuts. The optimal dose and type of omega-3 for Parkinson's can vary, so if you're considering using supplements, it's vital to choose a high-quality product and discuss it with your doctor. So if you're considering using supplements, it's vital to choose a high quality product and discuss it with your doctor, especially if you're on blood thinning medications. All right, what about antioxidants like vitamin C, vitamin E and coenzyme CoQ10?
Speaker 1:Oxidative stress, which I've talked about on a number of podcasts, is an imbalance between free radicals and antioxidants in your body, and it's believed to be a significant contributor to some of the neurodegenerative processes in Parkinson's. So a diet rich in antioxidants is often recommended. Now there's been a number of population studies that have linked diets high in fruits and vegetables, which are excellent sources of vitamin C and E and various phytonutrients, with better health outcomes. Earlier on, there was hope that high-dose supplementation with specific antioxidants like vitamin E or CoQ10 could slow Parkinson's progression. For example, there was a DataTop trial in the late 1980s and early 90s that investigated vitamin E. Later, large-scale trials on CoQ10 that were published in the Archives of Neurology showed mixed or ultimately disappointing results in terms of significantly altering disease progression at the dosages that they studied. To learn more about supplements, check out my podcast entitled Parkinson's Disease and Supplements Benefits and Risks in Scientific Findings. All right now, the results of these studies doesn't diminish the importance of antioxidants, but it does strongly emphasize a food-first approach. But it does strongly emphasize a food-first approach. Brightly colored fruits and vegetables, berries, leafy greens and then bell peppers, citrus fruits, as well as nuts, seeds and whole grains, are packed with a wide array of antioxidants that are going to work together synergistically in your body. Excessive supplementation with single antioxidants can sometimes be unhelpful or even harmful, so focus on getting your antioxidants from your plate Now.
Speaker 1:Lastly, let's touch on magnesium. This mineral is involved in over 300 biochemical reactions in our body, including muscle function, nerve transmission and energy production. Some people with Parkinson's experience muscle cramps and sleep disturbances, and magnesium is sometimes suggested for these issues. Large-scale clinical trials specifically on magnesium supplementation for motor symptoms or disease progression in Parkinson's are limited, while its fundamental role in the body is well established. Now, some dietary sources of magnesium include leafy green vegetables, nuts, seeds and whole grains, and also including beans, so you can kind of see a pattern here that a lot of it is fruits and vegetables, nuts, whole grains and leafy greens, fruits, vegetables, nuts, whole grains and leafy greens. Now, as with other nutrients, individual responses to supplementation can differ, and it's best to ensure dietary intake and discuss any potential supplementation with your healthcare provider, especially at high doses, because this can cause digestive upset or interaction with certain medications. Now in early June, I'm going to be doing a podcast with Dr Carolyn Dean, md, an expert on magnesium, so check that out if you want to learn more about magnesium and its effects on the body.
Speaker 1:Now, after hearing about all these important nutrients, you might be tempted to rush out and buy a variety of supplements. You might be tempted to rush out and buy a variety of supplements, but I want to strongly emphasize that the cornerstone of good nutrition, even and especially in Parkinson's, is eating a balanced diet of whole foods that are tailored to your individual preferences and tastes, as well as tolerance. Why? Because whole foods can provide a host of vitamins, minerals and fiber and other beneficial compounds that work together in ways that taking individual supplements often can't replicate. Supplements can play a role, especially if you have a specific deficiency or if your dietary intake is insufficient, but ideally they should be just that supplementary, and always discuss any potential supplementation with your doctor to make sure it's an appropriate part of your treatment plan. Okay, we've discovered the why and some of the what when it comes to personalized nutrition for Parkinson's. Now let's look at the how. What practical steps can we take to start tailoring our diets to our specific needs?
Speaker 1:The crucial first step in the process is self-monitoring and symptom tracking. Think of yourself as a nutritional detective. Keeping a detailed food diary alongside a log of your Parkinson's symptoms, both motor and non-motor symptoms, can give you valuable clues. A friend of mine, karen, started noticing that her tremor seemed slightly more pronounced a couple hours after she ate certain processed snacks. So she started tracking her food intake and noting the timing and severity of her tremor, and what she started to see was a potential correlation. And then, at one of the Parkinson's seminars I attended, I heard someone speaking and saying that they were struggling with fatigue. The person said they started keeping a food diary and initially didn't see any clear patterns. But after a few weeks they said they noticed that on days that they skipped breakfast or had a very carb-heavy lunch, that their afternoon fatigue was significantly worse. They said the simple act of taking the time to track their food and symptoms helped them identify what he was doing and eating and how that was contributing to his fatigue. So this allowed him to make adjustments and ensure that they were eating a healthy breakfast and a more moderate lunch instead of being so carb-heavy. So if you want to get a free symptom tracker, visit my website, liveparkinsonscom, and you can get. There's a link on the homepage. Go on there and click on that and you can get a free medication and symptom tracker to help you track your symptoms.
Speaker 1:The second absolutely essential step is collaboration with your healthcare professionals, because we know trying to navigate both Parkinson's and nutrition can often be overwhelming, and your neurologist or movement disorder specialist, of course, is central to your care. But they can also refer you to a registered dietitian who has experience working with neurological conditions and they can also become a valuable member of your team. Now, during a breakout session on nutrition at one of the Parkinson's symposiums that I attended, a neurologist talked about a patient they had who was experiencing unintentional weight loss, and they referred him to a registered dietitian. He said the dietitian conducted a thorough intake of his dietary eating plan, his activity level and his personal food preferences. The neurologist said his patient and the dietician developed a personalized plan that focused on calorie-dense, nutrient-rich foods that the patient enjoyed eating, which is key, helping him stabilize his weight.
Speaker 1:Now the third piece of practical advice is to embrace gradual dietary changes. Now we all want to get to our goal as fast as possible. Now we all want to get to our goal as fast as possible, but try to resist the urge to make dramatic overnight changes to your eating habits, because it's often hard to sustain and sometimes can lead to digestive upset or frustration. So, instead of completely eliminating all processed foods at once, try to focus on maybe replacing one processed snack a day with a piece of fruit or a handful of nuts. Over time, these small changes really can add up to a significant shift in your overall diet. Now one of the support groups I attended we were discussing eating and nutrition and one of the people in the group said that instead of making drastic changes to her diet, she said that she focused on adding one new healthy recipe to her weekly meal plan. She said the gradual approach helped prevent feeling deprived and helped her make healthy eating habits sustainable. So remember, small, consistent changes are often more effective in the long run than dramatic changes.
Speaker 1:Now the next tip or strategy is to pay attention to your body's signals. Be a mindful eater. Notice how different foods make you feel, not just immediately, but in the hours that follow as well. Do certain foods seem to make your? Does a particular type of meal seem to coincide with increased tremor or stiffness? A friend of mine, megan, started paying closer attention to how she felt after eating, especially after eating or consuming dairy products, because she said she was noticing that she was getting some GI upset. She noticed that she really wouldn't feel well when she ate a lot of cheese or drank milk. Now, while she didn't entirely eliminate dairy from her diet, she said she was more cognizant on how much she ate or drank.
Speaker 1:Now I know in my case I would often eat too quickly and without much thought. If I enjoyed it down the gullet it went. I often didn't think about the texture of the food, as long as it tasted good. Then, as I got older and Parkinson's joined me on my life's journey, I began to notice how I felt immediately after eating and several hours afterwards, and I soon realized that eating too quickly, especially large, carb-heavy meals, made me feel lethargic and fatigued, in addition to being very miserable, because I'd eaten too much and because I ate it too quickly. Was eating two bowls of spaghetti great? Sure, it tasted great, but then I really felt stuffed and terrible afterwards. So what I realized was that, by slowing down and paying attention to the taste, the texture, the smells and even the colors of my food, I was able not only to enjoy my food more and the people I was eating with more, but I also felt so much better because I knew when to stop eating, because I felt comfortable rather than being stuffed, which helped me with my energy and reduced fatigue. So listen to your body, because it can give you great feedback if you listen to what it's telling you.
Speaker 1:Finally, I want to provide some valuable resources for Parkinson's and nutrition. The Parkinson's Foundation, if you go to parkinsonsorg, offers a wealth of information, including resources on nutrition, exercise and managing specific symptoms. Also, check out the Davis Phinney Foundation and the Michael J Fox Foundation, because they also provide some great information and resources. The National Institutes of Neurological Disorders and Stroke, which are part of the National Institutes of Health, also provides comprehensive information on Parkinson's and research updates. So, to summarize the key strategies we just discussed, by actively engaging in self-monitoring, working closely with your healthcare team and making gradual changes and listening to your body's signals, you can take significant steps toward a nutritional strategy that's going to support your individual well-being on your Parkinson's journey.
Speaker 1:Now let's finish up by talking some of the common misconceptions about Parkinson's nutrition and then briefly touch upon the exciting ongoing research in the area. Now, one of the most common and persistent myths is the idea of Parkinson's superfoods. Specific ingredients that are claimed to be miracle cures are often or offer dramatic improvements in symptoms. Now you might hear certain berries, spices or specific fats being touted as essential for everyone with Parkinson's. Specific fats being touted as essential for everyone with Parkinson's.
Speaker 1:While many of these foods are undoubtedly nutritional and can be included as part of a healthy diet, the notion that any single food will drastically alter the course of Parkinson's lacks any scientific backing, especially for the vast majority of people. Remember our discussions about personalization what might offer slight benefits to one person due to their unique needs might have little or no impact on another person. Also, be wary of highly restrictive diets marketed as the Parkinson's diet. These often lack scientific evidence and support and can often lead to nutritional deficiencies and a decreased quality of life. So, unless you have a specific food intolerance or allergy identified by a healthcare professional, eliminating entire food groups is generally not recommended, and it can also make it hard for your body to get the nutrients it needs. So, focused on balanced, whole foods approach tailored to your individual needs and preferences, rather than adhering to these rigid, unproven dietary rules.
Speaker 1:All right, now let's touch on some of the fascinating ongoing research in personalized nutrition for Parkinson's, and one particularly exciting area is the role of gut microbiome. Now, as I mentioned earlier, the trillions of bacteria in our gut may influence various aspects of Parkinson's, including motor and non-motor symptoms, and, potentially, the effectiveness of medications. So researchers are investigating how different dietary patterns and interventions, like specific pre and probiotics, might impact the gut microbiome in people with Parkinson's, and whether manipulating the gut microbiome could offer therapeutic benefits for different subgroups of patients with specific microbiome profiles. Now it's a very active area of investigation and while there are no definitive answers yet, it does show the potential for a highly personalized nutritional intervention based on someone's unique gut bacteria composition. Now another area of research is exploring is the relationship between genetic predispositions and nutritional needs in Parkinson's. Since genetic influence can influence the risk of developing Parkinson's, it's possible certain genetic variations might affect how individuals metabolize nutrients or respond to different dietary components. While they're still in the early stages of research and not yet ready for clinical trials, it does show how nutritional recommendations could be fine-tuned based on someone's genetic makeup. Now, both of these are still in the early stages and they need to be reproduced in large-scale clinical trials before any recommendations can be made.
Speaker 1:But the key takeaway is that the field of Parkinson's nutrition is not static. New discoveries are being made and the role of diet and how it relates to Parkinson's is really a constantly growing field. Remember, there's no magic food or secret diet for Parkinson's. The best approach is going to be a personalized one, based on input from your healthcare team and based on your specific symptoms and needs. And this brings us to the end of our important discussion on personalizing your nutrition for Parkinson's.
Speaker 1:I hope that the insights and practical steps that we've explored today have empowered you to think a little bit differently about your diet and its potential impact on your well-being. Now remember, your journey with Parkinson's is unique, as your nutritional needs should be too. It's about listening to your body, reviewing your diet with your healthcare team and making informed decisions based on the latest research and your individual needs and preferences. Now, if you're looking for more resources to support you on your Parkinson's journey, I encourage you to visit liveparkinsonscom. There, you'll find a wealth of valuable resources and articles to help you on your Parkinson's journey. I encourage you to visit liveparkinsonscom. There you'll find a wealth of valuable resources and articles to help you on your Parkinson's journey. And don't forget to subscribe to the free monthly newsletter to stay up to date on the latest research and practical tips and inspiring stories.
Speaker 1:Now my mission is to empower individuals with Parkinson's to lead a great quality of life. So if you find value in today's episode and appreciate the work I'm doing, please consider supporting the mission and podcast by visiting my Kofi page at Koficom slash live Parkinson's. Your contribution helps me continue to create valuable content and to reach more people who can benefit from the information. Thank you for joining me today. Remember to stay healthy, stay strong and live your best life with Parkinson's. Thanks again for listening. I really appreciate it.