Diaries of a Heart Warrior
I'm Amy Erhart, the host of Diaries of a Heart Warrior; born with a Congenital Heart Defect (Hypoplastic Left Heart Syndrome-HLHS). I'm creating this podcast to bring you stories told by individuals living with a Congenital Heart Defect. Episodes will also include the parent(s) point of view on how it felt to receive the diagnosis of their child; what they wish they knew and what life looks like now. Let's take a journey and explore the lives of Heart Warriors as the stories are told from their perspective.
Diaries of a Heart Warrior
Let's Talk about St. Louis! Single Ventricle Day!
Today I am talking with 3 fellow CHDers who went to St. Louis in October 2024. The conference is hosted by Fontan Outcome Network and NPC-QIC; CHD physicians, patients and their families come to learn about heart and liver health and how to extend the life of single ventricle patients. For patients it is a time to grow friendships and talk about our past present and future and to hear others heart stories!
Ollie's Branch- Mental Health
https://theohhf.org/ollies-branch/
Sister's by Heart- Where you can apply for assistance to attend a conference.
https://www.sistersbyheart.org/
If you would like to be on the show please reach out!
Facebook: Amy Erhart Cunningham
Instagram: amyerhart_hlhs