Candid Hearts: Conversations and CHD
Candid Hearts: Conversations and CHD is a podcast hosted by Amy Erhart and Meagan Houpt, both born with a congenital heart defect known as Hypoplastic Left Heart Syndrome (HLHS).
Through candid conversations, we share our personal journeys and amplify the voices of others living with congenital heart disease—patients, caregivers, spouses, and advocates alike. Each episode is rooted in honesty, education, and connection, exploring both the challenges and the triumphs of life with CHD.
Our mission is to raise awareness, provide education, and offer hope for the future of the CHD community. Whether you are living with CHD, loving someone who is, or simply looking to learn more, this space is for you.
We invite you to join us as we open our hearts and share real stories that matter.
Welcome to Candid Hearts: Conversations and CHD.
Episodes
63 episodes
Living Both Sides of CHD with Mia Johnson
Today, Mia joins us to share her incredibly unique story. Born with a congenital heart defect of her own, Mia has lived a healthy and vibrant life. When she and her husband decided to grow their family, she knew there were potential risks after...
Mezzion & FUEL-2: A New Chapter of Hope with John Pressor, Margaret Sarah Alexander, and Meg Didier
Today, we’re joined by members of Mezzion, a pharmaceutical company focused on improving outcomes for those living with single ventricle heart conditions. In our conversation with John, Margaret Sarah, and Meg, we learn more about their mission...
Navigating the Journey to Transplant with Kristin Norton
** Trigger Warning** Today’s conversation includes honest discussion about heart transplant and the realities that come with it. If that feels tender for you right now, please pause and come back when you’re ready....
Project 1 in 100- One Mission, Many Stories
Today, we speak with Project 1 in 100, an organization dedicated to uniting the entire CHD community in all its forms to advocate for awareness and meaningful change. While each founding member brings their own unique story and passion to the m...
The Boy with the Backward Heart: Pamela Sampson & Joshua’s Story
In today’s episode, Pam shares her deeply personal journey of longing to become a mother—and how that dream came true through the adoption of her son, Joshua, from Guatemala. As a first-time mom, Pam leans into her intuition when an unexpected ...
When Your Partner Has CHD: A Spouse’s Perspective
Today, we’re joined by Meagan’s husband, Billy; Amy’s husband, Bryan; and Steven and Janice. We wanted to create space for an honest conversation with spouses to explore what it’s like to love and build a life with someone who has congenital he...
The Murmur Mill: Are All CHDs Really Alike?
In today’s episode, we debunk a common myth about congenital heart disease. While many people are aware of CHD, it’s important to be clear: not all CHDs are the same.Too often, we find ourselves comparing our journeys to those of others,...
Welcome to Candid Hearts!
Welcome to Candid Hearts: Conversations in CHD. We’re Meagan and Amy, and we’re so glad you’re here.This podcast is a space for real, honest conversations about congenital heart disease. We’ll be sharing stories not only from ...
This is not goodbye!
After two years of recording solo, I’ve made the decision for Diaries of a Heart Warrior to change and evolve. This choice tugged at my heartstrings in a very personal way, but deep down I knew that bringing in a co-host would allow us...
Dr. Dawn Ilardi- Neuropsychologist
Join me for this episode as I sit down with Dr. Ilardi, a neuropsychologist, whose journey into supporting the CHD community began unexpectedly. While she did not originally set out to work with CHD patients, a clinical rotation opened her eyes...
Amanda Braun's Story- Tricuspid Atresia
Today I’m joined by Amanda as she shares her CHD journey. While childhood brought relatively few issues, things changed in her teenage years, leading to surgery and ongoing complications into adulthood. Through it all, Amanda’s positivity and o...
From Pediatric to Adult Care: Lessons We Wish We Knew
Today I’m joined by Jul, Aaron, and Scott for a conversation about transitioning from pediatric to adult care. When you’re born with CHD, so much happens before you’re even old enough to understand it. In this episode, we share the things we wi...
Sharing the Mic: My Conversation with Patrick Mason
Today I’m joined by Patrick Mason for a special episode. Since we both host podcasts, we thought it would be fun to do a dual interview and share our stories together. Patrick opens up about his own journey—what led him into podcasting, his exp...
The Struggle and the Strength: CHD and Staying Active
Growing up with CHD, there was no manual on what we could or couldn’t do—it was often trial by fire. Our parents did the best they could with the information they had, but as we step into adulthood, it’s on us to figure out how to start—or keep...
Aiden Renda's Story- From CHD to Heart Transplant
Today I’m joined by Aiden, who shares his powerful CHD and transplant journey. His path toward transplant began when he was just 16, and at 18, he received his new heart. Now, nine years later, Aiden reflects on the reality that while his heart...
Aaron Knutson is back! Talking about his disability journey
Aaron is back! Today, he opens up about his disability journey—what led him to the decision to step away from his job and begin the Social Security process. He shares the barriers he faced along the way and highlights the key things he believes...
Bekah Chovanec's Story- HRHS/ Pulmonary Atresia
Today, Bekah opens up about her journey of finding her footing as an adult with CHD. Learning to advocate for ourselves isn’t always easy—it takes time, growth, and confidence. For Bekah, certain life experiences have sparked a stronger drive t...
Melanie Letzer's Story- Heart mom of 2 children with CHD
To say Melanie’s story is unique would be an understatement. While having one child with CHD is already rare—about 1 in 100 births—Melanie is navigating life with two children living with congenital heart disease. The challenges are re...
Thirza de Kok's Story- HRHS
Today, Thirza shares her powerful story of living with CHD. Despite the challenges she’s faced, it’s clear she’s thriving. I especially love how she reflects on the impact of being part of a CHD group in her younger years—how those connections ...
Katherine Madigan's Story- Tricuspid Atresia
Katherine was born in 1982, and from the very beginning, her parents were filled with hope for her future. She underwent her first surgery within months of birth and received the Fontan procedure at age nine. From that point through much of her...
Tessa Go's Story- HRHS/WPW
Today, Tessa shares her journey through pregnancy, life as a military spouse, and the transition of care in managing her CHD. She reflects on her experiences with four pregnancies, navigating the challenges of frequent relocations as part of a ...
Ellie Garrington's Story- Tricuspid Atresia
Ellie was born with CHD, facing numerous challenges along the way. However, the most significant complication she endured was a stroke. Looking back, she recalls the frustrating journey of seeking help for her worsening symptoms—only to be told...
From Awareness to Action: Join the HeartWorks Movement
Heartworks is a nonprofit organization founded in June202 to build on the groundbreaking work started by Tod and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) at Mayo Clinic in 2010.Today, Kelly and I had a great ...
Chantelle Johnson's Story- Tetrology of Fallot
At 55, Chantelle has seen her fair share of changes in the medical field. Being born in the 70's she's been extremely fortunate to have little intervention in her life along that way. However, she now faces the next phase of CHD and...
